Mary and anyone else on this site, I would strongly suggest that you do make a living will to put in writing what your intentions are, as well as assign someone you trust and who can carry out your wishes as a MEDICAL power of attorney. Clearly Terri Schaivo didn't have this, all she had was conversation between her and her husband (and nobody really knows the truth in her case but her and her husband) but it could have saved all of this. I do agree in a sense that not allowing someone to have food or water is very cruel, but in my time in the medical field, I have seen instances where it is very necessary and assists the person in dying. I know it sounds cruel, but if you have ever had to experience it first hand, taking care of the patient and their family and see the pain on a daily basis, you can begin to understand why it is sometimes necessary. This is just the stance I have taken on since working on a cancer ward where we have terminal patients. I have no know "health conditions" right now, but my husband is still my MEDICAL power of attorney, and them my mom as a second person. And my husband has me as his medical power of attorney and we both have living wills in addition to the POA's.
What I don't understand is why they haven't started her on some heavy pain medication, for comfort purposes. At our hospital, depending on the patients wishes sometimes we give the family members control of their "button" (the automated narcotic medication machine that dispenses a certain amount of pain meds sperad over X minutes, plus the button for when the patient is in more pain and wants more pain meds). I have seen many cases, and even when my grandfather was in the hospital and died of bone cancer-where the family has decided that it is time, so the morphine (or whatever medication is in there) is pushed as often as possible. Ultimately this arrests the respiratory system and the patiens go quickly, painless and what seems almost peacefully. I don't understand why they don't do something like this for her, I mean, come on 15 years!
Julie (wife to Mark 24 w/CF)