This makes me feel very sad

[bittyhorse23]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>chrissyd</b></i>

The fact that we now have the ability to "play god" and use it...scares me.



<img src="i/expressions/rose.gif" border="0"></end quote></div>

I don' think I could have said it any better <img src="i/expressions/face-icon-small-smile.gif" border="0">

However:
I like the newborn screening tests to see if your newborn has any number of diseases. Treatments can begin immediately and there won't be any run around with what they may have.

I also like the idea that if your baby is tested inutero, then you can be prepared for the baby when it is born. You can have a CF dr lined up, and be educated about it so that you can start the most proactive treatment plan possible.

So for me it is kind of a toss up. I think it is a shame that people abort their babies when they find out they have CF. Makes me wonder how many wonderful people were killed off just because of something they had no control over.

 

[bittyhorse23]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>chrissyd</b></i>

The fact that we now have the ability to "play god" and use it...scares me.



<img src="i/expressions/rose.gif" border="0"></end quote></div>

I don' think I could have said it any better <img src="i/expressions/face-icon-small-smile.gif" border="0">

However:
I like the newborn screening tests to see if your newborn has any number of diseases. Treatments can begin immediately and there won't be any run around with what they may have.

I also like the idea that if your baby is tested inutero, then you can be prepared for the baby when it is born. You can have a CF dr lined up, and be educated about it so that you can start the most proactive treatment plan possible.

So for me it is kind of a toss up. I think it is a shame that people abort their babies when they find out they have CF. Makes me wonder how many wonderful people were killed off just because of something they had no control over.

 

[bittyhorse23]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>chrissyd</b></i>

The fact that we now have the ability to "play god" and use it...scares me.



<img src="i/expressions/rose.gif" border="0"></end quote></div>

I don' think I could have said it any better <img src="i/expressions/face-icon-small-smile.gif" border="0">

However:
I like the newborn screening tests to see if your newborn has any number of diseases. Treatments can begin immediately and there won't be any run around with what they may have.

I also like the idea that if your baby is tested inutero, then you can be prepared for the baby when it is born. You can have a CF dr lined up, and be educated about it so that you can start the most proactive treatment plan possible.

So for me it is kind of a toss up. I think it is a shame that people abort their babies when they find out they have CF. Makes me wonder how many wonderful people were killed off just because of something they had no control over.

 

[bittyhorse23]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>chrissyd</b></i>

The fact that we now have the ability to "play god" and use it...scares me.



<img src="i/expressions/rose.gif" border="0"></end quote>

I don' think I could have said it any better <img src="i/expressions/face-icon-small-smile.gif" border="0">

However:
I like the newborn screening tests to see if your newborn has any number of diseases. Treatments can begin immediately and there won't be any run around with what they may have.

I also like the idea that if your baby is tested inutero, then you can be prepared for the baby when it is born. You can have a CF dr lined up, and be educated about it so that you can start the most proactive treatment plan possible.

So for me it is kind of a toss up. I think it is a shame that people abort their babies when they find out they have CF. Makes me wonder how many wonderful people were killed off just because of something they had no control over.

 

[bittyhorse23]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>chrissyd</b></i>
<br />
<br />The fact that we now have the ability to "play god" and use it...scares me.
<br />
<br />
<br />
<br /><img src="i/expressions/rose.gif" border="0"></end quote>
<br />
<br />I don' think I could have said it any better <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />However:
<br />I like the newborn screening tests to see if your newborn has any number of diseases. Treatments can begin immediately and there won't be any run around with what they may have.
<br />
<br />I also like the idea that if your baby is tested inutero, then you can be prepared for the baby when it is born. You can have a CF dr lined up, and be educated about it so that you can start the most proactive treatment plan possible.
<br />
<br />So for me it is kind of a toss up. I think it is a shame that people abort their babies when they find out they have CF. Makes me wonder how many wonderful people were killed off just because of something they had no control over.

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>


Amy... I had my own room. I left my door open when I did meds, I was never ashamed of that. I was, however, embarrassed by pooping my brains out and farting like it was my job. LOL <img src="i/expressions/face-icon-small-wink.gif" border="0"></end quote></div>

in my dorms, even if you had your own room, the whole hallway shared bathrooms <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> yipeeeeee

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>


Amy... I had my own room. I left my door open when I did meds, I was never ashamed of that. I was, however, embarrassed by pooping my brains out and farting like it was my job. LOL <img src="i/expressions/face-icon-small-wink.gif" border="0"></end quote></div>

in my dorms, even if you had your own room, the whole hallway shared bathrooms <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> yipeeeeee

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>


Amy... I had my own room. I left my door open when I did meds, I was never ashamed of that. I was, however, embarrassed by pooping my brains out and farting like it was my job. LOL <img src="i/expressions/face-icon-small-wink.gif" border="0"></end quote></div>

in my dorms, even if you had your own room, the whole hallway shared bathrooms <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> yipeeeeee

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>


Amy... I had my own room. I left my door open when I did meds, I was never ashamed of that. I was, however, embarrassed by pooping my brains out and farting like it was my job. LOL <img src="i/expressions/face-icon-small-wink.gif" border="0"></end quote>

in my dorms, even if you had your own room, the whole hallway shared bathrooms <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> yipeeeeee

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>
<br />
<br />
<br />Amy... I had my own room. I left my door open when I did meds, I was never ashamed of that. I was, however, embarrassed by pooping my brains out and farting like it was my job. LOL <img src="i/expressions/face-icon-small-wink.gif" border="0"></end quote>
<br />
<br />in my dorms, even if you had your own room, the whole hallway shared bathrooms <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> yipeeeeee

 

[bittyhorse23]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

Amy... I had my own room. I left my door open when I did meds, I was never ashamed of that. I was, however, embarrassed by pooping my brains out and farting like it was my job. LOL <img src="i/expressions/face-icon-small-wink.gif" border="0"></end quote></div>

LMAO! This was my sole reason for living at home during college! The thought of sharing a bathroom with a floor of girls, knowing how much I pooped, made my skin crawl! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[bittyhorse23]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

Amy... I had my own room. I left my door open when I did meds, I was never ashamed of that. I was, however, embarrassed by pooping my brains out and farting like it was my job. LOL <img src="i/expressions/face-icon-small-wink.gif" border="0"></end quote></div>

LMAO! This was my sole reason for living at home during college! The thought of sharing a bathroom with a floor of girls, knowing how much I pooped, made my skin crawl! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[bittyhorse23]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

Amy... I had my own room. I left my door open when I did meds, I was never ashamed of that. I was, however, embarrassed by pooping my brains out and farting like it was my job. LOL <img src="i/expressions/face-icon-small-wink.gif" border="0"></end quote></div>

LMAO! This was my sole reason for living at home during college! The thought of sharing a bathroom with a floor of girls, knowing how much I pooped, made my skin crawl! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[bittyhorse23]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

Amy... I had my own room. I left my door open when I did meds, I was never ashamed of that. I was, however, embarrassed by pooping my brains out and farting like it was my job. LOL <img src="i/expressions/face-icon-small-wink.gif" border="0"></end quote>

LMAO! This was my sole reason for living at home during college! The thought of sharing a bathroom with a floor of girls, knowing how much I pooped, made my skin crawl! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[bittyhorse23]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>
<br />
<br />Amy... I had my own room. I left my door open when I did meds, I was never ashamed of that. I was, however, embarrassed by pooping my brains out and farting like it was my job. LOL <img src="i/expressions/face-icon-small-wink.gif" border="0"></end quote>
<br />
<br />LMAO! This was my sole reason for living at home during college! The thought of sharing a bathroom with a floor of girls, knowing how much I pooped, made my skin crawl! <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />

 

[mom2lillian]

An interesting aside: I studied this in my genetics class, if you think about it, until the past say 20 years or so Cf'ers werent really reproducing much so CF theoretically should have 'eliminated' itself or kept itself to a small subset, it actually increased in prevelance over time. THere is a bunch of scientific mumbo jumbo as to what genetic mutations offer and why they stay around, there is a huge number that occur but never 'catch on'. Because CF was lethal it shouldnt have increased in prevalence as it did, it should have been fairly self limiting, so they studied what advantages CF offered and carriers as well as those with CF had some advantages when it came to some disease that was a problem a long time ago, forgive my memory, so that was one of the theories as to why it propogated and spread, because it offered a larger advantage to a great many as opposed to the few of us it killed. Anyway I htought it was interesting.

On the topic itself I will just say that I think I have one heck of a great life, its worth living in my eyes <img src="i/expressions/face-icon-small-wink.gif" border="0"> and I think it's a shame parents decide that their child isnt worth living just because its not the life they 'envisioned' for their child. As a parent I do understand wanting to limit suffering of your child but we aren't God, we dont know why the child has or was given CF, we dont know how their disease will run its course, if they will be one of those barely affected, if there will be a miraculous cure next year, or if they were meant to be severly affected, suffer and be motivated to be the one to FIND the cure, we just dont know and I think its a shame to decide we know best.

Emily-GREAT PFT's girl, by the way I think I remmebr *someone* saying, in the not so distant past that those of us wiht PFT's higher than 100 were sucky or something along those lines and if that is your FEV1 I just wanted to remind you that you have now joined that club AND you have beat me!

 

[mom2lillian]

An interesting aside: I studied this in my genetics class, if you think about it, until the past say 20 years or so Cf'ers werent really reproducing much so CF theoretically should have 'eliminated' itself or kept itself to a small subset, it actually increased in prevelance over time. THere is a bunch of scientific mumbo jumbo as to what genetic mutations offer and why they stay around, there is a huge number that occur but never 'catch on'. Because CF was lethal it shouldnt have increased in prevalence as it did, it should have been fairly self limiting, so they studied what advantages CF offered and carriers as well as those with CF had some advantages when it came to some disease that was a problem a long time ago, forgive my memory, so that was one of the theories as to why it propogated and spread, because it offered a larger advantage to a great many as opposed to the few of us it killed. Anyway I htought it was interesting.

On the topic itself I will just say that I think I have one heck of a great life, its worth living in my eyes <img src="i/expressions/face-icon-small-wink.gif" border="0"> and I think it's a shame parents decide that their child isnt worth living just because its not the life they 'envisioned' for their child. As a parent I do understand wanting to limit suffering of your child but we aren't God, we dont know why the child has or was given CF, we dont know how their disease will run its course, if they will be one of those barely affected, if there will be a miraculous cure next year, or if they were meant to be severly affected, suffer and be motivated to be the one to FIND the cure, we just dont know and I think its a shame to decide we know best.

Emily-GREAT PFT's girl, by the way I think I remmebr *someone* saying, in the not so distant past that those of us wiht PFT's higher than 100 were sucky or something along those lines and if that is your FEV1 I just wanted to remind you that you have now joined that club AND you have beat me!

 

[mom2lillian]

An interesting aside: I studied this in my genetics class, if you think about it, until the past say 20 years or so Cf'ers werent really reproducing much so CF theoretically should have 'eliminated' itself or kept itself to a small subset, it actually increased in prevelance over time. THere is a bunch of scientific mumbo jumbo as to what genetic mutations offer and why they stay around, there is a huge number that occur but never 'catch on'. Because CF was lethal it shouldnt have increased in prevalence as it did, it should have been fairly self limiting, so they studied what advantages CF offered and carriers as well as those with CF had some advantages when it came to some disease that was a problem a long time ago, forgive my memory, so that was one of the theories as to why it propogated and spread, because it offered a larger advantage to a great many as opposed to the few of us it killed. Anyway I htought it was interesting.

On the topic itself I will just say that I think I have one heck of a great life, its worth living in my eyes <img src="i/expressions/face-icon-small-wink.gif" border="0"> and I think it's a shame parents decide that their child isnt worth living just because its not the life they 'envisioned' for their child. As a parent I do understand wanting to limit suffering of your child but we aren't God, we dont know why the child has or was given CF, we dont know how their disease will run its course, if they will be one of those barely affected, if there will be a miraculous cure next year, or if they were meant to be severly affected, suffer and be motivated to be the one to FIND the cure, we just dont know and I think its a shame to decide we know best.

Emily-GREAT PFT's girl, by the way I think I remmebr *someone* saying, in the not so distant past that those of us wiht PFT's higher than 100 were sucky or something along those lines and if that is your FEV1 I just wanted to remind you that you have now joined that club AND you have beat me!

 

[mom2lillian]

An interesting aside: I studied this in my genetics class, if you think about it, until the past say 20 years or so Cf'ers werent really reproducing much so CF theoretically should have 'eliminated' itself or kept itself to a small subset, it actually increased in prevelance over time. THere is a bunch of scientific mumbo jumbo as to what genetic mutations offer and why they stay around, there is a huge number that occur but never 'catch on'. Because CF was lethal it shouldnt have increased in prevalence as it did, it should have been fairly self limiting, so they studied what advantages CF offered and carriers as well as those with CF had some advantages when it came to some disease that was a problem a long time ago, forgive my memory, so that was one of the theories as to why it propogated and spread, because it offered a larger advantage to a great many as opposed to the few of us it killed. Anyway I htought it was interesting.

On the topic itself I will just say that I think I have one heck of a great life, its worth living in my eyes <img src="i/expressions/face-icon-small-wink.gif" border="0"> and I think it's a shame parents decide that their child isnt worth living just because its not the life they 'envisioned' for their child. As a parent I do understand wanting to limit suffering of your child but we aren't God, we dont know why the child has or was given CF, we dont know how their disease will run its course, if they will be one of those barely affected, if there will be a miraculous cure next year, or if they were meant to be severly affected, suffer and be motivated to be the one to FIND the cure, we just dont know and I think its a shame to decide we know best.

Emily-GREAT PFT's girl, by the way I think I remmebr *someone* saying, in the not so distant past that those of us wiht PFT's higher than 100 were sucky or something along those lines and if that is your FEV1 I just wanted to remind you that you have now joined that club AND you have beat me!

 

[mom2lillian]

An interesting aside: I studied this in my genetics class, if you think about it, until the past say 20 years or so Cf'ers werent really reproducing much so CF theoretically should have 'eliminated' itself or kept itself to a small subset, it actually increased in prevelance over time. THere is a bunch of scientific mumbo jumbo as to what genetic mutations offer and why they stay around, there is a huge number that occur but never 'catch on'. Because CF was lethal it shouldnt have increased in prevalence as it did, it should have been fairly self limiting, so they studied what advantages CF offered and carriers as well as those with CF had some advantages when it came to some disease that was a problem a long time ago, forgive my memory, so that was one of the theories as to why it propogated and spread, because it offered a larger advantage to a great many as opposed to the few of us it killed. Anyway I htought it was interesting.
<br />
<br />On the topic itself I will just say that I think I have one heck of a great life, its worth living in my eyes <img src="i/expressions/face-icon-small-wink.gif" border="0"> and I think it's a shame parents decide that their child isnt worth living just because its not the life they 'envisioned' for their child. As a parent I do understand wanting to limit suffering of your child but we aren't God, we dont know why the child has or was given CF, we dont know how their disease will run its course, if they will be one of those barely affected, if there will be a miraculous cure next year, or if they were meant to be severly affected, suffer and be motivated to be the one to FIND the cure, we just dont know and I think its a shame to decide we know best.
<br />
<br />Emily-GREAT PFT's girl, by the way I think I remmebr *someone* saying, in the not so distant past that those of us wiht PFT's higher than 100 were sucky or something along those lines and if that is your FEV1 I just wanted to remind you that you have now joined that club AND you have beat me!
<br />
<br />