Well you gotta look at it both ways, and try not to be too emotionally attached. As we all know (though some don't want to think about it), disease, and mutations that lead to disease are natures way of culling any population, including humans. Our mutation(s) that lead to our disease essentially was a death sentence. I surely was not supposed to live to be nearly 37 years of age. None of us with CF was. Or any other chronic/terminal disease. No parent wants to have a child with a disease like CF. I know I personally wouldn't want a child of mine to suffer the way I suffered. Who would? Technology advances, prescreening advances, some may even abort their children...And in turn you have the inevitable outcome of less and less people living with CF, even when our longevity goes up due to new advances in medicines and care.
The part that really sucks for those with CF alive and trying to stay alive: With less and less CF patients around to receive drugs, there won't be as much financial motivation to develop new drugs for those patients, because they won't be able to recoup their R&D, and the profits just won't be there. So i'm happy there is less people suffering from CF, this is of course not the way those of us with CF wanted to see it. It essentially equates to eugenics. But let's not fool ourselves. From a natural aspect, we sure as hell weren't supposed to survive long.
The part that really sucks for those with CF alive and trying to stay alive: With less and less CF patients around to receive drugs, there won't be as much financial motivation to develop new drugs for those patients, because they won't be able to recoup their R&D, and the profits just won't be there. So i'm happy there is less people suffering from CF, this is of course not the way those of us with CF wanted to see it. It essentially equates to eugenics. But let's not fool ourselves. From a natural aspect, we sure as hell weren't supposed to survive long.