JennifersHope
New member
I can understand both sides of the spectrum... I do believe their is going to be a cure someday, I don't know when, but I do know it will be... I think it isn't very nice to make parents feel like a fool for having hope..
Statistics show that CFers lives are being extended longer and longer all the time, and that is A FACT... we all have heard it a million times that when we adults were little we were not expected to live past our teens... so I say to the parents Have Hope....
In the meantime, a CFers life is very hard. not to say it isn't good... I am a class 4/5 which is considered mild CF, now granted I have a lot of other health problems but my lung function is great.. and my life is still hard,... Treatments are time consuming, investing in your health takes all my energy and that makes me mad...
I am not going to judge another parent for having another child knowing that they can have CF... I am just saying though I am with you on the having hope that a cure is coming... and I believe it is. Remember their isn't a cure right now.. and right now, having CF no matter how mild is hard...
Most adults with CF learn to make accomadations for the cards they are dealt with, and having another child with CF, that child will certainly learn to do the same, hopefully....but I can honestly say, I have a decent life, I have great family support and if I had to choose to have been born with CF or not been born at all, I on most days would say No thanks to the whole process.....
Though I will be really clear, I don't believe in abortion at all and I believe like I said if you are having another child with CF the child will learn to deal
Statistics show that CFers lives are being extended longer and longer all the time, and that is A FACT... we all have heard it a million times that when we adults were little we were not expected to live past our teens... so I say to the parents Have Hope....
In the meantime, a CFers life is very hard. not to say it isn't good... I am a class 4/5 which is considered mild CF, now granted I have a lot of other health problems but my lung function is great.. and my life is still hard,... Treatments are time consuming, investing in your health takes all my energy and that makes me mad...
I am not going to judge another parent for having another child knowing that they can have CF... I am just saying though I am with you on the having hope that a cure is coming... and I believe it is. Remember their isn't a cure right now.. and right now, having CF no matter how mild is hard...
Most adults with CF learn to make accomadations for the cards they are dealt with, and having another child with CF, that child will certainly learn to do the same, hopefully....but I can honestly say, I have a decent life, I have great family support and if I had to choose to have been born with CF or not been born at all, I on most days would say No thanks to the whole process.....
Though I will be really clear, I don't believe in abortion at all and I believe like I said if you are having another child with CF the child will learn to deal