To have more children (with possible CF) or not

H

hopesiris

Guest
I saw someone post about IVF scholarships and grants, I'm wondering if there is anything you can do to get financial help. I didn't read all the responses you got so don't know if anyone brought this up. There is a post in the "pregnancy" forum on it.

My opinion is that insurance companies should have to cover IVF/PGD when it is used to prevent fatal disease. After all, even the mildest CF causes substantial medical bills once a person becomes symptomatic -- you'd think that insurance companies would jump at the chance to lower costs long term. *sigh*

I'm sorry your son is sick but I'm glad he is doing well right now.
 
H

hopesiris

Guest
I saw someone post about IVF scholarships and grants, I'm wondering if there is anything you can do to get financial help. I didn't read all the responses you got so don't know if anyone brought this up. There is a post in the "pregnancy" forum on it.

My opinion is that insurance companies should have to cover IVF/PGD when it is used to prevent fatal disease. After all, even the mildest CF causes substantial medical bills once a person becomes symptomatic -- you'd think that insurance companies would jump at the chance to lower costs long term. *sigh*

I'm sorry your son is sick but I'm glad he is doing well right now.
 
H

hopesiris

Guest
I saw someone post about IVF scholarships and grants, I'm wondering if there is anything you can do to get financial help. I didn't read all the responses you got so don't know if anyone brought this up. There is a post in the "pregnancy" forum on it.

My opinion is that insurance companies should have to cover IVF/PGD when it is used to prevent fatal disease. After all, even the mildest CF causes substantial medical bills once a person becomes symptomatic -- you'd think that insurance companies would jump at the chance to lower costs long term. *sigh*

I'm sorry your son is sick but I'm glad he is doing well right now.
 
J

janddburke

New member
this topic is a slippery slope.
if you take the position that 2 parents who are carriers should not procreate because of the chance of having a child with CF.....
why not pose the position that people who are carriers, regardless of their partner's status, should also not have children. They might have a child who is also at risk for passing on the disease.
also, there is discussion that perhaps carriers are not as asymtomatic as originally thought. Why risk it?
follow my thread?
there are NO guarantees.
my husband and I had a second child 6 years after Jess. Took us a while to decide but ultimately we didn't want Jess to be alone if something should happen to us.
our Maddie has some serious allergies and has actually been hospitalized more than Jess. who knew.
do I wish I had done things differently? NOT FOR 1 SECOND.
 
J

janddburke

New member
this topic is a slippery slope.
if you take the position that 2 parents who are carriers should not procreate because of the chance of having a child with CF.....
why not pose the position that people who are carriers, regardless of their partner's status, should also not have children. They might have a child who is also at risk for passing on the disease.
also, there is discussion that perhaps carriers are not as asymtomatic as originally thought. Why risk it?
follow my thread?
there are NO guarantees.
my husband and I had a second child 6 years after Jess. Took us a while to decide but ultimately we didn't want Jess to be alone if something should happen to us.
our Maddie has some serious allergies and has actually been hospitalized more than Jess. who knew.
do I wish I had done things differently? NOT FOR 1 SECOND.
 
J

janddburke

New member
this topic is a slippery slope.
if you take the position that 2 parents who are carriers should not procreate because of the chance of having a child with CF.....
why not pose the position that people who are carriers, regardless of their partner's status, should also not have children. They might have a child who is also at risk for passing on the disease.
also, there is discussion that perhaps carriers are not as asymtomatic as originally thought. Why risk it?
follow my thread?
there are NO guarantees.
my husband and I had a second child 6 years after Jess. Took us a while to decide but ultimately we didn't want Jess to be alone if something should happen to us.
our Maddie has some serious allergies and has actually been hospitalized more than Jess. who knew.
do I wish I had done things differently? NOT FOR 1 SECOND.
 
J

janddburke

New member
this topic is a slippery slope.
if you take the position that 2 parents who are carriers should not procreate because of the chance of having a child with CF.....
why not pose the position that people who are carriers, regardless of their partner's status, should also not have children. They might have a child who is also at risk for passing on the disease.
also, there is discussion that perhaps carriers are not as asymtomatic as originally thought. Why risk it?
follow my thread?
there are NO guarantees.
my husband and I had a second child 6 years after Jess. Took us a while to decide but ultimately we didn't want Jess to be alone if something should happen to us.
our Maddie has some serious allergies and has actually been hospitalized more than Jess. who knew.
do I wish I had done things differently? NOT FOR 1 SECOND.
 
J

janddburke

New member
this topic is a slippery slope.
if you take the position that 2 parents who are carriers should not procreate because of the chance of having a child with CF.....
why not pose the position that people who are carriers, regardless of their partner's status, should also not have children. They might have a child who is also at risk for passing on the disease.
also, there is discussion that perhaps carriers are not as asymtomatic as originally thought. Why risk it?
follow my thread?
there are NO guarantees.
my husband and I had a second child 6 years after Jess. Took us a while to decide but ultimately we didn't want Jess to be alone if something should happen to us.
our Maddie has some serious allergies and has actually been hospitalized more than Jess. who knew.
do I wish I had done things differently? NOT FOR 1 SECOND.
 
J

janddburke

New member
this topic is a slippery slope.
if you take the position that 2 parents who are carriers should not procreate because of the chance of having a child with CF.....
why not pose the position that people who are carriers, regardless of their partner's status, should also not have children. They might have a child who is also at risk for passing on the disease.
also, there is discussion that perhaps carriers are not as asymtomatic as originally thought. Why risk it?
follow my thread?
there are NO guarantees.
my husband and I had a second child 6 years after Jess. Took us a while to decide but ultimately we didn't want Jess to be alone if something should happen to us.
our Maddie has some serious allergies and has actually been hospitalized more than Jess. who knew.
do I wish I had done things differently? NOT FOR 1 SECOND.
 
K

karismom

New member
I have just finished reading the posts here and am just thinking WOW!!!

To all of you who have kids that are "healthy" w CF, that is just fabulous.

Well here is a twist to your THEORY that "well my first or my first and second have a mild case so I am SURE that even if the baby has CF it will be fine! WRONG!!!!!!!!!!!!!!!!!!! My ex husband and I BOTH carry the DeltaF508 gene and our first daughter Kari, (MANY of you are aware of Kari's plight!) had meconium ileus surgery at ONE day old, numerous sinus surgeries, TWO lung tx's that have failed PLUS a MAJOR bowel obstruction that required MAJOR surgery after the first tx, has a port, and has had a feeding tube on two seperate occasions along with diabetes for dessert!

She has endured MORE in her 26 yrs of life than 100 people w/o CF have!!! I have to admit that after she was born we decided to have another child because WE did not want to be left childless for ever!!! Well long story short Holli Jade has CF also. and by the GRACE of GOD she has been what some of you refer to as CF & "healthy"!!! her lung function is like 87% unless she has an infection, has had two sinus surgeries and been in the hospital 4 times in her life.

I drop to my knees each and every day for this. HERE'S THE DEAL!!!!!! she COULD have been JUST AS SICK as Kari! so OBVIOUSLY you cannot predict the severity based on the mutation!!! and I have always, ALWAYS felt guilt for taking that chance with HER LIFE!!! YES. YES i am glad she is here. but if i had decided not to have her i would not know her so DO NOT go down THAT road PLEASE!!! Yah when the child is FIVE or TWELVE it may all SEEM to be sunshine and roses but that is CRAP!!! whoever of you said that there are ALOT of cf'ers who skip merrily thru life w/o being sick, WHERE? that is utter bull****! the percentage of people in that category is almost NIL! it is EASY for you folks with the "healthy ones" to get on your high horses. when you watch YOUR precious child go thru 1/100th of what Kari and most others go thru get back to me OK???? after you watch them cough themselves almost to unconciousness, vomiting all over, GASPING for each breath, screaming HELP ME!! oh god PLEASE help me! being carved up like a pumpkin for transplants and obstructions, numerous hospitalizations, having to miss out on LOTS of things in their life due to illness (for THREE solid years Kari was in the hospital for her bday, easter, tgiving and CHRISTMAS!!!) I asked the same question in a blog titled having a child when the parent has cf in adults w/cf dated 4/27/07 and only two replied.. why? it is a LUDICROUS question!!! the human mind cannot wrap around a question like that! and sounds to me like you all are only worried about whether or not your child will be "mad" at you! BOO HOO! do you NOT hear yourselves and how SELFISH you sound???

I agree WHOLEHEARTEDLY at this time with my journey w/cf being what it has for 26 yrs, that in MY OPINION it is indeed SELFISH to take that kind of risk. YOU MOMS are not the ones who have to suffer and die young!!! BOTTOM LINE.


peace.

lisa <img src="i/expressions/rose.gif" border="0">
 
K

karismom

New member
I have just finished reading the posts here and am just thinking WOW!!!

To all of you who have kids that are "healthy" w CF, that is just fabulous.

Well here is a twist to your THEORY that "well my first or my first and second have a mild case so I am SURE that even if the baby has CF it will be fine! WRONG!!!!!!!!!!!!!!!!!!! My ex husband and I BOTH carry the DeltaF508 gene and our first daughter Kari, (MANY of you are aware of Kari's plight!) had meconium ileus surgery at ONE day old, numerous sinus surgeries, TWO lung tx's that have failed PLUS a MAJOR bowel obstruction that required MAJOR surgery after the first tx, has a port, and has had a feeding tube on two seperate occasions along with diabetes for dessert!

She has endured MORE in her 26 yrs of life than 100 people w/o CF have!!! I have to admit that after she was born we decided to have another child because WE did not want to be left childless for ever!!! Well long story short Holli Jade has CF also. and by the GRACE of GOD she has been what some of you refer to as CF & "healthy"!!! her lung function is like 87% unless she has an infection, has had two sinus surgeries and been in the hospital 4 times in her life.

I drop to my knees each and every day for this. HERE'S THE DEAL!!!!!! she COULD have been JUST AS SICK as Kari! so OBVIOUSLY you cannot predict the severity based on the mutation!!! and I have always, ALWAYS felt guilt for taking that chance with HER LIFE!!! YES. YES i am glad she is here. but if i had decided not to have her i would not know her so DO NOT go down THAT road PLEASE!!! Yah when the child is FIVE or TWELVE it may all SEEM to be sunshine and roses but that is CRAP!!! whoever of you said that there are ALOT of cf'ers who skip merrily thru life w/o being sick, WHERE? that is utter bull****! the percentage of people in that category is almost NIL! it is EASY for you folks with the "healthy ones" to get on your high horses. when you watch YOUR precious child go thru 1/100th of what Kari and most others go thru get back to me OK???? after you watch them cough themselves almost to unconciousness, vomiting all over, GASPING for each breath, screaming HELP ME!! oh god PLEASE help me! being carved up like a pumpkin for transplants and obstructions, numerous hospitalizations, having to miss out on LOTS of things in their life due to illness (for THREE solid years Kari was in the hospital for her bday, easter, tgiving and CHRISTMAS!!!) I asked the same question in a blog titled having a child when the parent has cf in adults w/cf dated 4/27/07 and only two replied.. why? it is a LUDICROUS question!!! the human mind cannot wrap around a question like that! and sounds to me like you all are only worried about whether or not your child will be "mad" at you! BOO HOO! do you NOT hear yourselves and how SELFISH you sound???

I agree WHOLEHEARTEDLY at this time with my journey w/cf being what it has for 26 yrs, that in MY OPINION it is indeed SELFISH to take that kind of risk. YOU MOMS are not the ones who have to suffer and die young!!! BOTTOM LINE.


peace.

lisa <img src="i/expressions/rose.gif" border="0">
 
K

karismom

New member
I have just finished reading the posts here and am just thinking WOW!!!

To all of you who have kids that are "healthy" w CF, that is just fabulous.

Well here is a twist to your THEORY that "well my first or my first and second have a mild case so I am SURE that even if the baby has CF it will be fine! WRONG!!!!!!!!!!!!!!!!!!! My ex husband and I BOTH carry the DeltaF508 gene and our first daughter Kari, (MANY of you are aware of Kari's plight!) had meconium ileus surgery at ONE day old, numerous sinus surgeries, TWO lung tx's that have failed PLUS a MAJOR bowel obstruction that required MAJOR surgery after the first tx, has a port, and has had a feeding tube on two seperate occasions along with diabetes for dessert!

She has endured MORE in her 26 yrs of life than 100 people w/o CF have!!! I have to admit that after she was born we decided to have another child because WE did not want to be left childless for ever!!! Well long story short Holli Jade has CF also. and by the GRACE of GOD she has been what some of you refer to as CF & "healthy"!!! her lung function is like 87% unless she has an infection, has had two sinus surgeries and been in the hospital 4 times in her life.

I drop to my knees each and every day for this. HERE'S THE DEAL!!!!!! she COULD have been JUST AS SICK as Kari! so OBVIOUSLY you cannot predict the severity based on the mutation!!! and I have always, ALWAYS felt guilt for taking that chance with HER LIFE!!! YES. YES i am glad she is here. but if i had decided not to have her i would not know her so DO NOT go down THAT road PLEASE!!! Yah when the child is FIVE or TWELVE it may all SEEM to be sunshine and roses but that is CRAP!!! whoever of you said that there are ALOT of cf'ers who skip merrily thru life w/o being sick, WHERE? that is utter bull****! the percentage of people in that category is almost NIL! it is EASY for you folks with the "healthy ones" to get on your high horses. when you watch YOUR precious child go thru 1/100th of what Kari and most others go thru get back to me OK???? after you watch them cough themselves almost to unconciousness, vomiting all over, GASPING for each breath, screaming HELP ME!! oh god PLEASE help me! being carved up like a pumpkin for transplants and obstructions, numerous hospitalizations, having to miss out on LOTS of things in their life due to illness (for THREE solid years Kari was in the hospital for her bday, easter, tgiving and CHRISTMAS!!!) I asked the same question in a blog titled having a child when the parent has cf in adults w/cf dated 4/27/07 and only two replied.. why? it is a LUDICROUS question!!! the human mind cannot wrap around a question like that! and sounds to me like you all are only worried about whether or not your child will be "mad" at you! BOO HOO! do you NOT hear yourselves and how SELFISH you sound???

I agree WHOLEHEARTEDLY at this time with my journey w/cf being what it has for 26 yrs, that in MY OPINION it is indeed SELFISH to take that kind of risk. YOU MOMS are not the ones who have to suffer and die young!!! BOTTOM LINE.


peace.

lisa <img src="i/expressions/rose.gif" border="0">
 
K

karismom

New member
I have just finished reading the posts here and am just thinking WOW!!!

To all of you who have kids that are "healthy" w CF, that is just fabulous.

Well here is a twist to your THEORY that "well my first or my first and second have a mild case so I am SURE that even if the baby has CF it will be fine! WRONG!!!!!!!!!!!!!!!!!!! My ex husband and I BOTH carry the DeltaF508 gene and our first daughter Kari, (MANY of you are aware of Kari's plight!) had meconium ileus surgery at ONE day old, numerous sinus surgeries, TWO lung tx's that have failed PLUS a MAJOR bowel obstruction that required MAJOR surgery after the first tx, has a port, and has had a feeding tube on two seperate occasions along with diabetes for dessert!

She has endured MORE in her 26 yrs of life than 100 people w/o CF have!!! I have to admit that after she was born we decided to have another child because WE did not want to be left childless for ever!!! Well long story short Holli Jade has CF also. and by the GRACE of GOD she has been what some of you refer to as CF & "healthy"!!! her lung function is like 87% unless she has an infection, has had two sinus surgeries and been in the hospital 4 times in her life.

I drop to my knees each and every day for this. HERE'S THE DEAL!!!!!! she COULD have been JUST AS SICK as Kari! so OBVIOUSLY you cannot predict the severity based on the mutation!!! and I have always, ALWAYS felt guilt for taking that chance with HER LIFE!!! YES. YES i am glad she is here. but if i had decided not to have her i would not know her so DO NOT go down THAT road PLEASE!!! Yah when the child is FIVE or TWELVE it may all SEEM to be sunshine and roses but that is CRAP!!! whoever of you said that there are ALOT of cf'ers who skip merrily thru life w/o being sick, WHERE? that is utter bull****! the percentage of people in that category is almost NIL! it is EASY for you folks with the "healthy ones" to get on your high horses. when you watch YOUR precious child go thru 1/100th of what Kari and most others go thru get back to me OK???? after you watch them cough themselves almost to unconciousness, vomiting all over, GASPING for each breath, screaming HELP ME!! oh god PLEASE help me! being carved up like a pumpkin for transplants and obstructions, numerous hospitalizations, having to miss out on LOTS of things in their life due to illness (for THREE solid years Kari was in the hospital for her bday, easter, tgiving and CHRISTMAS!!!) I asked the same question in a blog titled having a child when the parent has cf in adults w/cf dated 4/27/07 and only two replied.. why? it is a LUDICROUS question!!! the human mind cannot wrap around a question like that! and sounds to me like you all are only worried about whether or not your child will be "mad" at you! BOO HOO! do you NOT hear yourselves and how SELFISH you sound???

I agree WHOLEHEARTEDLY at this time with my journey w/cf being what it has for 26 yrs, that in MY OPINION it is indeed SELFISH to take that kind of risk. YOU MOMS are not the ones who have to suffer and die young!!! BOTTOM LINE.


peace.

lisa <img src="i/expressions/rose.gif" border="0">
 
K

karismom

New member
I have just finished reading the posts here and am just thinking WOW!!!

To all of you who have kids that are "healthy" w CF, that is just fabulous.

Well here is a twist to your THEORY that "well my first or my first and second have a mild case so I am SURE that even if the baby has CF it will be fine! WRONG!!!!!!!!!!!!!!!!!!! My ex husband and I BOTH carry the DeltaF508 gene and our first daughter Kari, (MANY of you are aware of Kari's plight!) had meconium ileus surgery at ONE day old, numerous sinus surgeries, TWO lung tx's that have failed PLUS a MAJOR bowel obstruction that required MAJOR surgery after the first tx, has a port, and has had a feeding tube on two seperate occasions along with diabetes for dessert!

She has endured MORE in her 26 yrs of life than 100 people w/o CF have!!! I have to admit that after she was born we decided to have another child because WE did not want to be left childless for ever!!! Well long story short Holli Jade has CF also. and by the GRACE of GOD she has been what some of you refer to as CF & "healthy"!!! her lung function is like 87% unless she has an infection, has had two sinus surgeries and been in the hospital 4 times in her life.

I drop to my knees each and every day for this. HERE'S THE DEAL!!!!!! she COULD have been JUST AS SICK as Kari! so OBVIOUSLY you cannot predict the severity based on the mutation!!! and I have always, ALWAYS felt guilt for taking that chance with HER LIFE!!! YES. YES i am glad she is here. but if i had decided not to have her i would not know her so DO NOT go down THAT road PLEASE!!! Yah when the child is FIVE or TWELVE it may all SEEM to be sunshine and roses but that is CRAP!!! whoever of you said that there are ALOT of cf'ers who skip merrily thru life w/o being sick, WHERE? that is utter bull****! the percentage of people in that category is almost NIL! it is EASY for you folks with the "healthy ones" to get on your high horses. when you watch YOUR precious child go thru 1/100th of what Kari and most others go thru get back to me OK???? after you watch them cough themselves almost to unconciousness, vomiting all over, GASPING for each breath, screaming HELP ME!! oh god PLEASE help me! being carved up like a pumpkin for transplants and obstructions, numerous hospitalizations, having to miss out on LOTS of things in their life due to illness (for THREE solid years Kari was in the hospital for her bday, easter, tgiving and CHRISTMAS!!!) I asked the same question in a blog titled having a child when the parent has cf in adults w/cf dated 4/27/07 and only two replied.. why? it is a LUDICROUS question!!! the human mind cannot wrap around a question like that! and sounds to me like you all are only worried about whether or not your child will be "mad" at you! BOO HOO! do you NOT hear yourselves and how SELFISH you sound???

I agree WHOLEHEARTEDLY at this time with my journey w/cf being what it has for 26 yrs, that in MY OPINION it is indeed SELFISH to take that kind of risk. YOU MOMS are not the ones who have to suffer and die young!!! BOTTOM LINE.


peace.

lisa <img src="i/expressions/rose.gif" border="0">
 
K

karismom

New member
I have just finished reading the posts here and am just thinking WOW!!!

To all of you who have kids that are "healthy" w CF, that is just fabulous.

Well here is a twist to your THEORY that "well my first or my first and second have a mild case so I am SURE that even if the baby has CF it will be fine! WRONG!!!!!!!!!!!!!!!!!!! My ex husband and I BOTH carry the DeltaF508 gene and our first daughter Kari, (MANY of you are aware of Kari's plight!) had meconium ileus surgery at ONE day old, numerous sinus surgeries, TWO lung tx's that have failed PLUS a MAJOR bowel obstruction that required MAJOR surgery after the first tx, has a port, and has had a feeding tube on two seperate occasions along with diabetes for dessert!

She has endured MORE in her 26 yrs of life than 100 people w/o CF have!!! I have to admit that after she was born we decided to have another child because WE did not want to be left childless for ever!!! Well long story short Holli Jade has CF also. and by the GRACE of GOD she has been what some of you refer to as CF & "healthy"!!! her lung function is like 87% unless she has an infection, has had two sinus surgeries and been in the hospital 4 times in her life.

I drop to my knees each and every day for this. HERE'S THE DEAL!!!!!! she COULD have been JUST AS SICK as Kari! so OBVIOUSLY you cannot predict the severity based on the mutation!!! and I have always, ALWAYS felt guilt for taking that chance with HER LIFE!!! YES. YES i am glad she is here. but if i had decided not to have her i would not know her so DO NOT go down THAT road PLEASE!!! Yah when the child is FIVE or TWELVE it may all SEEM to be sunshine and roses but that is CRAP!!! whoever of you said that there are ALOT of cf'ers who skip merrily thru life w/o being sick, WHERE? that is utter bull****! the percentage of people in that category is almost NIL! it is EASY for you folks with the "healthy ones" to get on your high horses. when you watch YOUR precious child go thru 1/100th of what Kari and most others go thru get back to me OK???? after you watch them cough themselves almost to unconciousness, vomiting all over, GASPING for each breath, screaming HELP ME!! oh god PLEASE help me! being carved up like a pumpkin for transplants and obstructions, numerous hospitalizations, having to miss out on LOTS of things in their life due to illness (for THREE solid years Kari was in the hospital for her bday, easter, tgiving and CHRISTMAS!!!) I asked the same question in a blog titled having a child when the parent has cf in adults w/cf dated 4/27/07 and only two replied.. why? it is a LUDICROUS question!!! the human mind cannot wrap around a question like that! and sounds to me like you all are only worried about whether or not your child will be "mad" at you! BOO HOO! do you NOT hear yourselves and how SELFISH you sound???

I agree WHOLEHEARTEDLY at this time with my journey w/cf being what it has for 26 yrs, that in MY OPINION it is indeed SELFISH to take that kind of risk. YOU MOMS are not the ones who have to suffer and die young!!! BOTTOM LINE.


peace.

lisa <img src="i/expressions/rose.gif" border="0">
 
V

vmhoward

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

Thank you for sharing that.



I feel like so many parents on this site are in complete denial about what this disease can bring.



But no..... it only matters what THEY want. I want another child. I don't care at what expense. They will have to live with themselves for the rest of their lives for their poor decision-making.....</end quote></div>

I have to disagree with this statement. Although yes there are some people who are blind to CF and what their child is dealing with, ultimately (speaking as a Parent) it does slap you in the face eventually.

Of coarse I would love to have another child. yes I have four children, and that could sound selfish considering that many people cant even have one child. When Garran was born (# 4) and Dx we didnt even know what CF was. We had no idea that we were even carriers, it was blind luck that none of the other three had CF. But Before we even found out about Garran's DX (at two months old) we decided four was enough and had my tubes tied (after delivery). So no more babies.

Sometimes I see a baby and say, oh I would like to have another one, but then I realize that, # 1 "It would take an Act of God to make that happen" and # 2 "I look at Garran and wonder will my next child go through the pain and illness that he has to go through?"

Granted if by some strange miracle I did get pregnant, I would not have an abortion, that is not even an option. Even given the chance of CF. And you all know how sick Garran is. I know what it is like to watch a child cough his lungs up and beg for help. He is only 6 and is at less than 50% lung function. And you may see it as SELFISH not to abort, but I just dont believe in Abortion.

That being said. This topic has gone so far from the original posters question and I appologize for that.
 
V

vmhoward

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

Thank you for sharing that.



I feel like so many parents on this site are in complete denial about what this disease can bring.



But no..... it only matters what THEY want. I want another child. I don't care at what expense. They will have to live with themselves for the rest of their lives for their poor decision-making.....</end quote></div>

I have to disagree with this statement. Although yes there are some people who are blind to CF and what their child is dealing with, ultimately (speaking as a Parent) it does slap you in the face eventually.

Of coarse I would love to have another child. yes I have four children, and that could sound selfish considering that many people cant even have one child. When Garran was born (# 4) and Dx we didnt even know what CF was. We had no idea that we were even carriers, it was blind luck that none of the other three had CF. But Before we even found out about Garran's DX (at two months old) we decided four was enough and had my tubes tied (after delivery). So no more babies.

Sometimes I see a baby and say, oh I would like to have another one, but then I realize that, # 1 "It would take an Act of God to make that happen" and # 2 "I look at Garran and wonder will my next child go through the pain and illness that he has to go through?"

Granted if by some strange miracle I did get pregnant, I would not have an abortion, that is not even an option. Even given the chance of CF. And you all know how sick Garran is. I know what it is like to watch a child cough his lungs up and beg for help. He is only 6 and is at less than 50% lung function. And you may see it as SELFISH not to abort, but I just dont believe in Abortion.

That being said. This topic has gone so far from the original posters question and I appologize for that.
 
V

vmhoward

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

Thank you for sharing that.



I feel like so many parents on this site are in complete denial about what this disease can bring.



But no..... it only matters what THEY want. I want another child. I don't care at what expense. They will have to live with themselves for the rest of their lives for their poor decision-making.....</end quote></div>

I have to disagree with this statement. Although yes there are some people who are blind to CF and what their child is dealing with, ultimately (speaking as a Parent) it does slap you in the face eventually.

Of coarse I would love to have another child. yes I have four children, and that could sound selfish considering that many people cant even have one child. When Garran was born (# 4) and Dx we didnt even know what CF was. We had no idea that we were even carriers, it was blind luck that none of the other three had CF. But Before we even found out about Garran's DX (at two months old) we decided four was enough and had my tubes tied (after delivery). So no more babies.

Sometimes I see a baby and say, oh I would like to have another one, but then I realize that, # 1 "It would take an Act of God to make that happen" and # 2 "I look at Garran and wonder will my next child go through the pain and illness that he has to go through?"

Granted if by some strange miracle I did get pregnant, I would not have an abortion, that is not even an option. Even given the chance of CF. And you all know how sick Garran is. I know what it is like to watch a child cough his lungs up and beg for help. He is only 6 and is at less than 50% lung function. And you may see it as SELFISH not to abort, but I just dont believe in Abortion.

That being said. This topic has gone so far from the original posters question and I appologize for that.
 
V

vmhoward

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

Thank you for sharing that.



I feel like so many parents on this site are in complete denial about what this disease can bring.



But no..... it only matters what THEY want. I want another child. I don't care at what expense. They will have to live with themselves for the rest of their lives for their poor decision-making.....</end quote></div>

I have to disagree with this statement. Although yes there are some people who are blind to CF and what their child is dealing with, ultimately (speaking as a Parent) it does slap you in the face eventually.

Of coarse I would love to have another child. yes I have four children, and that could sound selfish considering that many people cant even have one child. When Garran was born (# 4) and Dx we didnt even know what CF was. We had no idea that we were even carriers, it was blind luck that none of the other three had CF. But Before we even found out about Garran's DX (at two months old) we decided four was enough and had my tubes tied (after delivery). So no more babies.

Sometimes I see a baby and say, oh I would like to have another one, but then I realize that, # 1 "It would take an Act of God to make that happen" and # 2 "I look at Garran and wonder will my next child go through the pain and illness that he has to go through?"

Granted if by some strange miracle I did get pregnant, I would not have an abortion, that is not even an option. Even given the chance of CF. And you all know how sick Garran is. I know what it is like to watch a child cough his lungs up and beg for help. He is only 6 and is at less than 50% lung function. And you may see it as SELFISH not to abort, but I just dont believe in Abortion.

That being said. This topic has gone so far from the original posters question and I appologize for that.
 
V

vmhoward

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

Thank you for sharing that.



I feel like so many parents on this site are in complete denial about what this disease can bring.



But no..... it only matters what THEY want. I want another child. I don't care at what expense. They will have to live with themselves for the rest of their lives for their poor decision-making.....</end quote>

I have to disagree with this statement. Although yes there are some people who are blind to CF and what their child is dealing with, ultimately (speaking as a Parent) it does slap you in the face eventually.

Of coarse I would love to have another child. yes I have four children, and that could sound selfish considering that many people cant even have one child. When Garran was born (# 4) and Dx we didnt even know what CF was. We had no idea that we were even carriers, it was blind luck that none of the other three had CF. But Before we even found out about Garran's DX (at two months old) we decided four was enough and had my tubes tied (after delivery). So no more babies.

Sometimes I see a baby and say, oh I would like to have another one, but then I realize that, # 1 "It would take an Act of God to make that happen" and # 2 "I look at Garran and wonder will my next child go through the pain and illness that he has to go through?"

Granted if by some strange miracle I did get pregnant, I would not have an abortion, that is not even an option. Even given the chance of CF. And you all know how sick Garran is. I know what it is like to watch a child cough his lungs up and beg for help. He is only 6 and is at less than 50% lung function. And you may see it as SELFISH not to abort, but I just dont believe in Abortion.

That being said. This topic has gone so far from the original posters question and I appologize for that.
 
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