To have more children (with possible CF) or not

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chrissyd

New member
<div class="FTQUOTE"><begin quote>TextPerhaps you are very sick but I don't understand why you are unable to particiapte so much with your friends/family. What is holding you back? I hope I don't come off too judgemental, I'm just curious. </end quote></div>


No worries! I didn't explain my situation a lot; but wanted to sat that my life; my childhood is no where near normal. Never has been. When I was younger they didn't know I had CF. So my not normal childhood was also a product of not recieveing the correct treatmenst.
Now; however even with the correct treatments I still feel hindered.
I am not able to attend functions held outside; because of sinus problems.
I am not able to go to parties with friends and/or family (65% of them; not all) because of cigarette smoke.
I also have huge ear problems; mainly because my eustation (sp?) tubes are clogged often. So I get headaches and ear aches frequently.
Like I siad, many but not all. My CF could be worse but b/c of my mutations and my current care (knock on wood) it's good right now. I do think that many "normal" people don't worry about the little things I do with CF. As achild even not knowing that it was CF; I didn't understand why I had so many ear infections, or why I was always coughing. The othe kids didn't.

I guess I was just trying to explain that having CF makes you different. Not different in a bad way; but it changes how you live, even how you think about things.
Do I think I'm "normal"? No. Many on this site might not see anything wrong with me but as a child I was not like other children seen as "normal" and as an adult...it is still the same.
My mild mutation doesn't feel mild to me; although reading what many on this site expirience it is.
 
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chrissyd

New member
<div class="FTQUOTE"><begin quote>TextPerhaps you are very sick but I don't understand why you are unable to particiapte so much with your friends/family. What is holding you back? I hope I don't come off too judgemental, I'm just curious. </end quote></div>


No worries! I didn't explain my situation a lot; but wanted to sat that my life; my childhood is no where near normal. Never has been. When I was younger they didn't know I had CF. So my not normal childhood was also a product of not recieveing the correct treatmenst.
Now; however even with the correct treatments I still feel hindered.
I am not able to attend functions held outside; because of sinus problems.
I am not able to go to parties with friends and/or family (65% of them; not all) because of cigarette smoke.
I also have huge ear problems; mainly because my eustation (sp?) tubes are clogged often. So I get headaches and ear aches frequently.
Like I siad, many but not all. My CF could be worse but b/c of my mutations and my current care (knock on wood) it's good right now. I do think that many "normal" people don't worry about the little things I do with CF. As achild even not knowing that it was CF; I didn't understand why I had so many ear infections, or why I was always coughing. The othe kids didn't.

I guess I was just trying to explain that having CF makes you different. Not different in a bad way; but it changes how you live, even how you think about things.
Do I think I'm "normal"? No. Many on this site might not see anything wrong with me but as a child I was not like other children seen as "normal" and as an adult...it is still the same.
My mild mutation doesn't feel mild to me; although reading what many on this site expirience it is.
 
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chrissyd

New member
<div class="FTQUOTE"><begin quote>But seriously, are all your lives THAT bad?? That's the part I can't get my head around. CF is annoying, frustrating, and all things negative, but its only a part of who you are. </end quote></div>

I know I just posted but I wanted to say; that my life (while I don't consider it "normal") is not bad. Life is not easy; healthy or not. And CF isn't a small part of who I am, its a big part. But <b>NOT</b> bigger than my family...not bigger than the good things I have been blessed with.

Disclaimer:
I know this quote is from a post not directed at me; however I just wanted to throw in my two cents!
 
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chrissyd

New member
<div class="FTQUOTE"><begin quote>But seriously, are all your lives THAT bad?? That's the part I can't get my head around. CF is annoying, frustrating, and all things negative, but its only a part of who you are. </end quote></div>

I know I just posted but I wanted to say; that my life (while I don't consider it "normal") is not bad. Life is not easy; healthy or not. And CF isn't a small part of who I am, its a big part. But <b>NOT</b> bigger than my family...not bigger than the good things I have been blessed with.

Disclaimer:
I know this quote is from a post not directed at me; however I just wanted to throw in my two cents!
 
C

chrissyd

New member
<div class="FTQUOTE"><begin quote>But seriously, are all your lives THAT bad?? That's the part I can't get my head around. CF is annoying, frustrating, and all things negative, but its only a part of who you are. </end quote></div>

I know I just posted but I wanted to say; that my life (while I don't consider it "normal") is not bad. Life is not easy; healthy or not. And CF isn't a small part of who I am, its a big part. But <b>NOT</b> bigger than my family...not bigger than the good things I have been blessed with.

Disclaimer:
I know this quote is from a post not directed at me; however I just wanted to throw in my two cents!
 
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tucksmama

New member
Just FYI, there is an adoption tax credit that you can use for the cost of an adoption. My husband and I have one child with CF. We debated for years whether or not to have another child. We decided to adopt instead. Yes, the cost of adoption is as much as IVF or PGD, but we are able to utilized the adoption tax credit, which in itself, is helping to cover a majority of the cost of the adoption. Adoption is such an AWESOME event, as is giving birth to your own child. We were lucky to have had our daughter placed in our arms when she was only 6 days old! I will not sit here and tell you what you should do, but I do want you to know that there are lots of children out there who are in need of a loving home and loving family. Good luck with your decision.
 
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tucksmama

New member
Just FYI, there is an adoption tax credit that you can use for the cost of an adoption. My husband and I have one child with CF. We debated for years whether or not to have another child. We decided to adopt instead. Yes, the cost of adoption is as much as IVF or PGD, but we are able to utilized the adoption tax credit, which in itself, is helping to cover a majority of the cost of the adoption. Adoption is such an AWESOME event, as is giving birth to your own child. We were lucky to have had our daughter placed in our arms when she was only 6 days old! I will not sit here and tell you what you should do, but I do want you to know that there are lots of children out there who are in need of a loving home and loving family. Good luck with your decision.
 
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tucksmama

New member
Just FYI, there is an adoption tax credit that you can use for the cost of an adoption. My husband and I have one child with CF. We debated for years whether or not to have another child. We decided to adopt instead. Yes, the cost of adoption is as much as IVF or PGD, but we are able to utilized the adoption tax credit, which in itself, is helping to cover a majority of the cost of the adoption. Adoption is such an AWESOME event, as is giving birth to your own child. We were lucky to have had our daughter placed in our arms when she was only 6 days old! I will not sit here and tell you what you should do, but I do want you to know that there are lots of children out there who are in need of a loving home and loving family. Good luck with your decision.
 
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littledebbie

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>shamrock</b></i>

But seriously, are all your lives THAT bad?? That's the part I can't get my head around. CF is annoying, frustrating, and all things negative, but its only a part of who you are.</end quote></div>

How bad does bad have to be in your opinion to decide to take steps necessary to preventing knowingly having a child with CF?

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Lilith</b></i>
But whatever. Its not my life, its not my kid. I'm just really going to shake my head in disgust when more and more CFers are born into the world despite the parents knowing the facts <b>and having options</b>. And that's the truth about how I really feel. I'm not holding back, and I'm not trying to be tactful anymore, because that obviously doesn't work and I'm frustrated to death with this topic.</end quote></div>

Amen sister

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>katyf13</b></i>

Tuck's mom... YOU ARE AWESOME!!!!!!!</end quote></div>

I'm getting on this high five train!
 
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littledebbie

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>shamrock</b></i>

But seriously, are all your lives THAT bad?? That's the part I can't get my head around. CF is annoying, frustrating, and all things negative, but its only a part of who you are.</end quote></div>

How bad does bad have to be in your opinion to decide to take steps necessary to preventing knowingly having a child with CF?

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Lilith</b></i>
But whatever. Its not my life, its not my kid. I'm just really going to shake my head in disgust when more and more CFers are born into the world despite the parents knowing the facts <b>and having options</b>. And that's the truth about how I really feel. I'm not holding back, and I'm not trying to be tactful anymore, because that obviously doesn't work and I'm frustrated to death with this topic.</end quote></div>

Amen sister

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>katyf13</b></i>

Tuck's mom... YOU ARE AWESOME!!!!!!!</end quote></div>

I'm getting on this high five train!
 
L

littledebbie

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>shamrock</b></i>

But seriously, are all your lives THAT bad?? That's the part I can't get my head around. CF is annoying, frustrating, and all things negative, but its only a part of who you are.</end quote></div>

How bad does bad have to be in your opinion to decide to take steps necessary to preventing knowingly having a child with CF?

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Lilith</b></i>
But whatever. Its not my life, its not my kid. I'm just really going to shake my head in disgust when more and more CFers are born into the world despite the parents knowing the facts <b>and having options</b>. And that's the truth about how I really feel. I'm not holding back, and I'm not trying to be tactful anymore, because that obviously doesn't work and I'm frustrated to death with this topic.</end quote></div>

Amen sister

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>katyf13</b></i>

Tuck's mom... YOU ARE AWESOME!!!!!!!</end quote></div>

I'm getting on this high five train!
 
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lovelife

New member
Hi sknoell, I just have to say that even though the child doesnt have cf or it does what do you do with the others while the one with cf goes in the hospital. Either way the children miss out and the ones that dont have cf will be left out no matter what. Its just my opinion because my daughter did alot of hospital time and they was no way that I could take care of another child at the same time. You want them to be fair for all your children i think. I hope this helps and the only person that can make the desicion is you and your hunsband and no matter what all children are angels. take care
Liza mother of a 16/cf teenage beautiful girl
 
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lovelife

New member
Hi sknoell, I just have to say that even though the child doesnt have cf or it does what do you do with the others while the one with cf goes in the hospital. Either way the children miss out and the ones that dont have cf will be left out no matter what. Its just my opinion because my daughter did alot of hospital time and they was no way that I could take care of another child at the same time. You want them to be fair for all your children i think. I hope this helps and the only person that can make the desicion is you and your hunsband and no matter what all children are angels. take care
Liza mother of a 16/cf teenage beautiful girl
 
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lovelife

New member
Hi sknoell, I just have to say that even though the child doesnt have cf or it does what do you do with the others while the one with cf goes in the hospital. Either way the children miss out and the ones that dont have cf will be left out no matter what. Its just my opinion because my daughter did alot of hospital time and they was no way that I could take care of another child at the same time. You want them to be fair for all your children i think. I hope this helps and the only person that can make the desicion is you and your hunsband and no matter what all children are angels. take care
Liza mother of a 16/cf teenage beautiful girl
 
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