TO THE CFERS

N

NoExcuses

New member
Hopefully my mom answers this <img src="">

<b> At what age did your parents hand over all treatments to you. When did they make your meds and treatments your full responsibility? </b>

Enzymes I was 6 or 7.

Nebs I think I was 12 or so. There wasn't a Vest (at least I didn't get one) until I was 14 so CPT was my gig starting then.



<b>2. At what age did they stop going into the doctors office with you? </b> 15?



<b>3. When do you feel your parents made all aspects of CF (meds, calorie intake, setting up doc appointments, etc) your full responsibility? </b> I think I was 13 or 14
 
N

NoExcuses

New member
Hopefully my mom answers this <img src="">

<b> At what age did your parents hand over all treatments to you. When did they make your meds and treatments your full responsibility? </b>

Enzymes I was 6 or 7.

Nebs I think I was 12 or so. There wasn't a Vest (at least I didn't get one) until I was 14 so CPT was my gig starting then.



<b>2. At what age did they stop going into the doctors office with you? </b> 15?



<b>3. When do you feel your parents made all aspects of CF (meds, calorie intake, setting up doc appointments, etc) your full responsibility? </b> I think I was 13 or 14
 
N

NoExcuses

New member
Hopefully my mom answers this <img src="">

<b> At what age did your parents hand over all treatments to you. When did they make your meds and treatments your full responsibility? </b>

Enzymes I was 6 or 7.

Nebs I think I was 12 or so. There wasn't a Vest (at least I didn't get one) until I was 14 so CPT was my gig starting then.



<b>2. At what age did they stop going into the doctors office with you? </b> 15?



<b>3. When do you feel your parents made all aspects of CF (meds, calorie intake, setting up doc appointments, etc) your full responsibility? </b> I think I was 13 or 14
 
N

NoExcuses

New member
Hopefully my mom answers this <img src="">

<b> At what age did your parents hand over all treatments to you. When did they make your meds and treatments your full responsibility? </b>

Enzymes I was 6 or 7.

Nebs I think I was 12 or so. There wasn't a Vest (at least I didn't get one) until I was 14 so CPT was my gig starting then.



<b>2. At what age did they stop going into the doctors office with you? </b> 15?



<b>3. When do you feel your parents made all aspects of CF (meds, calorie intake, setting up doc appointments, etc) your full responsibility? </b> I think I was 13 or 14
 
S

Seana30

New member
Thank you all SOOO much for taking the time to answer these questions for me. It really helps a lot!!

Sometimes I think I am not being proactive enough with Courtney, and other times I feel like all I do is nag her.

Thank you , thank you, thank you!!!!

Seana
 
S

Seana30

New member
Thank you all SOOO much for taking the time to answer these questions for me. It really helps a lot!!

Sometimes I think I am not being proactive enough with Courtney, and other times I feel like all I do is nag her.

Thank you , thank you, thank you!!!!

Seana
 
S

Seana30

New member
Thank you all SOOO much for taking the time to answer these questions for me. It really helps a lot!!

Sometimes I think I am not being proactive enough with Courtney, and other times I feel like all I do is nag her.

Thank you , thank you, thank you!!!!

Seana
 
S

Seana30

New member
Thank you all SOOO much for taking the time to answer these questions for me. It really helps a lot!!

Sometimes I think I am not being proactive enough with Courtney, and other times I feel like all I do is nag her.

Thank you , thank you, thank you!!!!

Seana
 
S

Seana30

New member
Thank you all SOOO much for taking the time to answer these questions for me. It really helps a lot!!

Sometimes I think I am not being proactive enough with Courtney, and other times I feel like all I do is nag her.

Thank you , thank you, thank you!!!!

Seana
 
S

Seana30

New member
Thank you all SOOO much for taking the time to answer these questions for me. It really helps a lot!!

Sometimes I think I am not being proactive enough with Courtney, and other times I feel like all I do is nag her.

Thank you , thank you, thank you!!!!

Seana
 
S

Samsmom

New member
Seana, I have a slightly different point of view and experience for you. My daughter is almost 14, but we have only known about the cf for a little over a year. We are all still learning how to treat her, but she also has some mental health issues and is not very compliant at anything in her life, therefore I am always with her at an appointment as if she is a very young child. I monitor her meds. and physically have to see her take them or else they become dog food and a dog on concerta is funny but not good for the kid who didn't take it. I do try to make her be the one to get the meds. out and she knows what she needs to take and when for the most part, she just needs that eye to see that she takes her meds. We don't currently do any nebs. or breathing treatments, just the acapella and she does well with that as long as all the other meds. are on board. I think all kids are unique and develop at different rates and what is right for one may not be right for the next. I'm sure your daughter will let you know when she is ready to be responsible for her care. Best wishes.
 
S

Samsmom

New member
Seana, I have a slightly different point of view and experience for you. My daughter is almost 14, but we have only known about the cf for a little over a year. We are all still learning how to treat her, but she also has some mental health issues and is not very compliant at anything in her life, therefore I am always with her at an appointment as if she is a very young child. I monitor her meds. and physically have to see her take them or else they become dog food and a dog on concerta is funny but not good for the kid who didn't take it. I do try to make her be the one to get the meds. out and she knows what she needs to take and when for the most part, she just needs that eye to see that she takes her meds. We don't currently do any nebs. or breathing treatments, just the acapella and she does well with that as long as all the other meds. are on board. I think all kids are unique and develop at different rates and what is right for one may not be right for the next. I'm sure your daughter will let you know when she is ready to be responsible for her care. Best wishes.
 
S

Samsmom

New member
Seana, I have a slightly different point of view and experience for you. My daughter is almost 14, but we have only known about the cf for a little over a year. We are all still learning how to treat her, but she also has some mental health issues and is not very compliant at anything in her life, therefore I am always with her at an appointment as if she is a very young child. I monitor her meds. and physically have to see her take them or else they become dog food and a dog on concerta is funny but not good for the kid who didn't take it. I do try to make her be the one to get the meds. out and she knows what she needs to take and when for the most part, she just needs that eye to see that she takes her meds. We don't currently do any nebs. or breathing treatments, just the acapella and she does well with that as long as all the other meds. are on board. I think all kids are unique and develop at different rates and what is right for one may not be right for the next. I'm sure your daughter will let you know when she is ready to be responsible for her care. Best wishes.
 
S

Samsmom

New member
Seana, I have a slightly different point of view and experience for you. My daughter is almost 14, but we have only known about the cf for a little over a year. We are all still learning how to treat her, but she also has some mental health issues and is not very compliant at anything in her life, therefore I am always with her at an appointment as if she is a very young child. I monitor her meds. and physically have to see her take them or else they become dog food and a dog on concerta is funny but not good for the kid who didn't take it. I do try to make her be the one to get the meds. out and she knows what she needs to take and when for the most part, she just needs that eye to see that she takes her meds. We don't currently do any nebs. or breathing treatments, just the acapella and she does well with that as long as all the other meds. are on board. I think all kids are unique and develop at different rates and what is right for one may not be right for the next. I'm sure your daughter will let you know when she is ready to be responsible for her care. Best wishes.
 
S

Samsmom

New member
Seana, I have a slightly different point of view and experience for you. My daughter is almost 14, but we have only known about the cf for a little over a year. We are all still learning how to treat her, but she also has some mental health issues and is not very compliant at anything in her life, therefore I am always with her at an appointment as if she is a very young child. I monitor her meds. and physically have to see her take them or else they become dog food and a dog on concerta is funny but not good for the kid who didn't take it. I do try to make her be the one to get the meds. out and she knows what she needs to take and when for the most part, she just needs that eye to see that she takes her meds. We don't currently do any nebs. or breathing treatments, just the acapella and she does well with that as long as all the other meds. are on board. I think all kids are unique and develop at different rates and what is right for one may not be right for the next. I'm sure your daughter will let you know when she is ready to be responsible for her care. Best wishes.
 
S

Samsmom

New member
Seana, I have a slightly different point of view and experience for you. My daughter is almost 14, but we have only known about the cf for a little over a year. We are all still learning how to treat her, but she also has some mental health issues and is not very compliant at anything in her life, therefore I am always with her at an appointment as if she is a very young child. I monitor her meds. and physically have to see her take them or else they become dog food and a dog on concerta is funny but not good for the kid who didn't take it. I do try to make her be the one to get the meds. out and she knows what she needs to take and when for the most part, she just needs that eye to see that she takes her meds. We don't currently do any nebs. or breathing treatments, just the acapella and she does well with that as long as all the other meds. are on board. I think all kids are unique and develop at different rates and what is right for one may not be right for the next. I'm sure your daughter will let you know when she is ready to be responsible for her care. Best wishes.
 
E

EnergyGal

New member
<b>1. At what age did your parents hand over all treatments to you. When did they make your meds and treatments your full responsibility? </b> I was very young around the age of six or seven when, I remembered to take my enzymes. I always had used Chest Physical therapy and needed someone to help me with cupping my back. I started cupping my own sides and chest at the age of twelve. I was even able to hit my back(I have long arms).

<b>2. At what age did they stop going into the doctors office with you? </b>AS soon as I could drive. I would go by myself and I moved out of my parents home when I was 18. It was always nice when they would come along after that but that only happened if they were down from NYC visiting or I was in the hospital and of course Transplant life.

3. <b>When do you feel your parents made all aspects of CF (meds, calorie intake, setting up doc appointments, etc) your full responsibility? </b> When I left home, I did it all.

My parents have no clue to what medications I take or how much I eat. Thankfully they help me in other areas that are more important.
 
E

EnergyGal

New member
<b>1. At what age did your parents hand over all treatments to you. When did they make your meds and treatments your full responsibility? </b> I was very young around the age of six or seven when, I remembered to take my enzymes. I always had used Chest Physical therapy and needed someone to help me with cupping my back. I started cupping my own sides and chest at the age of twelve. I was even able to hit my back(I have long arms).

<b>2. At what age did they stop going into the doctors office with you? </b>AS soon as I could drive. I would go by myself and I moved out of my parents home when I was 18. It was always nice when they would come along after that but that only happened if they were down from NYC visiting or I was in the hospital and of course Transplant life.

3. <b>When do you feel your parents made all aspects of CF (meds, calorie intake, setting up doc appointments, etc) your full responsibility? </b> When I left home, I did it all.

My parents have no clue to what medications I take or how much I eat. Thankfully they help me in other areas that are more important.
 
E

EnergyGal

New member
<b>1. At what age did your parents hand over all treatments to you. When did they make your meds and treatments your full responsibility? </b> I was very young around the age of six or seven when, I remembered to take my enzymes. I always had used Chest Physical therapy and needed someone to help me with cupping my back. I started cupping my own sides and chest at the age of twelve. I was even able to hit my back(I have long arms).

<b>2. At what age did they stop going into the doctors office with you? </b>AS soon as I could drive. I would go by myself and I moved out of my parents home when I was 18. It was always nice when they would come along after that but that only happened if they were down from NYC visiting or I was in the hospital and of course Transplant life.

3. <b>When do you feel your parents made all aspects of CF (meds, calorie intake, setting up doc appointments, etc) your full responsibility? </b> When I left home, I did it all.

My parents have no clue to what medications I take or how much I eat. Thankfully they help me in other areas that are more important.
 
E

EnergyGal

New member
<b>1. At what age did your parents hand over all treatments to you. When did they make your meds and treatments your full responsibility? </b> I was very young around the age of six or seven when, I remembered to take my enzymes. I always had used Chest Physical therapy and needed someone to help me with cupping my back. I started cupping my own sides and chest at the age of twelve. I was even able to hit my back(I have long arms).

<b>2. At what age did they stop going into the doctors office with you? </b>AS soon as I could drive. I would go by myself and I moved out of my parents home when I was 18. It was always nice when they would come along after that but that only happened if they were down from NYC visiting or I was in the hospital and of course Transplant life.

3. <b>When do you feel your parents made all aspects of CF (meds, calorie intake, setting up doc appointments, etc) your full responsibility? </b> When I left home, I did it all.

My parents have no clue to what medications I take or how much I eat. Thankfully they help me in other areas that are more important.
 
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