transitioning from mask to mouthpiece

[saveferris2009]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ashmomo</b></i>

Wow..IMO some of this sounds like torture! I can't imagine holding my kids nose plugged unless completely necessary.

My daughter is 4 and we use the mouthpiece. We just hold it in front of her nose and you can see her breathing in and out. She has never sat with it in her mouth for more than a minute or so. I didn't know that this was such an issue. If they are breathing it in, it is getting to their lungs...</end quote></div>

You're going to induce resistant bacteria in your daughter's lungs if you keep this up.

As Liza mentioned, you're underdosing the medication.

When you underdose an antibiotic you create resistant bacteria.

As you know, the antibiotic choices for CFer's are severly limited and avoiding antibiotic resistance can ultimately extend her life.

Something that may have been mentioned here (not sure) is nose plugs. I don't have kids so I'm not sure if younger kids will tolerate them, but they're a great way to make sure you don't breath through your nose.

If you have the mouthpiece in the mouth like it should be, breathing through the nose as well as the mouth reduces the amount of medication that goes in the lungs, as you all have mentioned before.

If you're going to spend 2 hours a day doing meds, and spend hundreds of dollars on the medication, you might as well be doing it right.

And I vaguely do remember my mom and I doing the nebulizer with my dolls. Fun times, mom <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[saveferris2009]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ashmomo</b></i>

Wow..IMO some of this sounds like torture! I can't imagine holding my kids nose plugged unless completely necessary.

My daughter is 4 and we use the mouthpiece. We just hold it in front of her nose and you can see her breathing in and out. She has never sat with it in her mouth for more than a minute or so. I didn't know that this was such an issue. If they are breathing it in, it is getting to their lungs...</end quote></div>

You're going to induce resistant bacteria in your daughter's lungs if you keep this up.

As Liza mentioned, you're underdosing the medication.

When you underdose an antibiotic you create resistant bacteria.

As you know, the antibiotic choices for CFer's are severly limited and avoiding antibiotic resistance can ultimately extend her life.

Something that may have been mentioned here (not sure) is nose plugs. I don't have kids so I'm not sure if younger kids will tolerate them, but they're a great way to make sure you don't breath through your nose.

If you have the mouthpiece in the mouth like it should be, breathing through the nose as well as the mouth reduces the amount of medication that goes in the lungs, as you all have mentioned before.

If you're going to spend 2 hours a day doing meds, and spend hundreds of dollars on the medication, you might as well be doing it right.

And I vaguely do remember my mom and I doing the nebulizer with my dolls. Fun times, mom <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[saveferris2009]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ashmomo</b></i>

Wow..IMO some of this sounds like torture! I can't imagine holding my kids nose plugged unless completely necessary.

My daughter is 4 and we use the mouthpiece. We just hold it in front of her nose and you can see her breathing in and out. She has never sat with it in her mouth for more than a minute or so. I didn't know that this was such an issue. If they are breathing it in, it is getting to their lungs...</end quote></div>

You're going to induce resistant bacteria in your daughter's lungs if you keep this up.

As Liza mentioned, you're underdosing the medication.

When you underdose an antibiotic you create resistant bacteria.

As you know, the antibiotic choices for CFer's are severly limited and avoiding antibiotic resistance can ultimately extend her life.

Something that may have been mentioned here (not sure) is nose plugs. I don't have kids so I'm not sure if younger kids will tolerate them, but they're a great way to make sure you don't breath through your nose.

If you have the mouthpiece in the mouth like it should be, breathing through the nose as well as the mouth reduces the amount of medication that goes in the lungs, as you all have mentioned before.

If you're going to spend 2 hours a day doing meds, and spend hundreds of dollars on the medication, you might as well be doing it right.

And I vaguely do remember my mom and I doing the nebulizer with my dolls. Fun times, mom <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[saveferris2009]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ashmomo</b></i>

Wow..IMO some of this sounds like torture! I can't imagine holding my kids nose plugged unless completely necessary.

My daughter is 4 and we use the mouthpiece. We just hold it in front of her nose and you can see her breathing in and out. She has never sat with it in her mouth for more than a minute or so. I didn't know that this was such an issue. If they are breathing it in, it is getting to their lungs...</end quote>

You're going to induce resistant bacteria in your daughter's lungs if you keep this up.

As Liza mentioned, you're underdosing the medication.

When you underdose an antibiotic you create resistant bacteria.

As you know, the antibiotic choices for CFer's are severly limited and avoiding antibiotic resistance can ultimately extend her life.

Something that may have been mentioned here (not sure) is nose plugs. I don't have kids so I'm not sure if younger kids will tolerate them, but they're a great way to make sure you don't breath through your nose.

If you have the mouthpiece in the mouth like it should be, breathing through the nose as well as the mouth reduces the amount of medication that goes in the lungs, as you all have mentioned before.

If you're going to spend 2 hours a day doing meds, and spend hundreds of dollars on the medication, you might as well be doing it right.

And I vaguely do remember my mom and I doing the nebulizer with my dolls. Fun times, mom <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[saveferris2009]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ashmomo</b></i>
<br />
<br />Wow..IMO some of this sounds like torture! I can't imagine holding my kids nose plugged unless completely necessary.
<br />
<br />My daughter is 4 and we use the mouthpiece. We just hold it in front of her nose and you can see her breathing in and out. She has never sat with it in her mouth for more than a minute or so. I didn't know that this was such an issue. If they are breathing it in, it is getting to their lungs...</end quote>
<br />
<br />You're going to induce resistant bacteria in your daughter's lungs if you keep this up.
<br />
<br />As Liza mentioned, you're underdosing the medication.
<br />
<br />When you underdose an antibiotic you create resistant bacteria.
<br />
<br />As you know, the antibiotic choices for CFer's are severly limited and avoiding antibiotic resistance can ultimately extend her life.
<br />
<br />Something that may have been mentioned here (not sure) is nose plugs. I don't have kids so I'm not sure if younger kids will tolerate them, but they're a great way to make sure you don't breath through your nose.
<br />
<br />If you have the mouthpiece in the mouth like it should be, breathing through the nose as well as the mouth reduces the amount of medication that goes in the lungs, as you all have mentioned before.
<br />
<br />If you're going to spend 2 hours a day doing meds, and spend hundreds of dollars on the medication, you might as well be doing it right.
<br />
<br />And I vaguely do remember my mom and I doing the nebulizer with my dolls. Fun times, mom <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[hmw]

<div class="FTQUOTE"><begin quote>And I vaguely do remember my mom and I doing the nebulizer with my dolls. Fun times, mom <img src="i/expressions/face-icon-small-smile.gif" border="0"></end quote></div>

Depending on how much cajoling Emily needs to roll her out of bed in the morning sometimes her entire menagerie of Webkinz needs a puff (very realistic sound effect required, of course) of her inhalers. <img src="i/expressions/face-icon-small-wink.gif" border="0"> )One of her horses does in fact have CF, according to her, and gets a cough whenever she does.)

 

[hmw]

<div class="FTQUOTE"><begin quote>And I vaguely do remember my mom and I doing the nebulizer with my dolls. Fun times, mom <img src="i/expressions/face-icon-small-smile.gif" border="0"></end quote></div>

Depending on how much cajoling Emily needs to roll her out of bed in the morning sometimes her entire menagerie of Webkinz needs a puff (very realistic sound effect required, of course) of her inhalers. <img src="i/expressions/face-icon-small-wink.gif" border="0"> )One of her horses does in fact have CF, according to her, and gets a cough whenever she does.)

 

[hmw]

<div class="FTQUOTE"><begin quote>And I vaguely do remember my mom and I doing the nebulizer with my dolls. Fun times, mom <img src="i/expressions/face-icon-small-smile.gif" border="0"></end quote></div>

Depending on how much cajoling Emily needs to roll her out of bed in the morning sometimes her entire menagerie of Webkinz needs a puff (very realistic sound effect required, of course) of her inhalers. <img src="i/expressions/face-icon-small-wink.gif" border="0"> )One of her horses does in fact have CF, according to her, and gets a cough whenever she does.)

 

[hmw]

<div class="FTQUOTE"><begin quote>And I vaguely do remember my mom and I doing the nebulizer with my dolls. Fun times, mom <img src="i/expressions/face-icon-small-smile.gif" border="0"></end quote>

Depending on how much cajoling Emily needs to roll her out of bed in the morning sometimes her entire menagerie of Webkinz needs a puff (very realistic sound effect required, of course) of her inhalers. <img src="i/expressions/face-icon-small-wink.gif" border="0"> )One of her horses does in fact have CF, according to her, and gets a cough whenever she does.)

 

[hmw]

<div class="FTQUOTE"><begin quote>And I vaguely do remember my mom and I doing the nebulizer with my dolls. Fun times, mom <img src="i/expressions/face-icon-small-smile.gif" border="0"></end quote>
<br />
<br />Depending on how much cajoling Emily needs to roll her out of bed in the morning sometimes her entire menagerie of Webkinz needs a puff (very realistic sound effect required, of course) of her inhalers. <img src="i/expressions/face-icon-small-wink.gif" border="0"> )One of her horses does in fact have CF, according to her, and gets a cough whenever she does.)

 

[ashmomo]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>




You're going to induce resistant bacteria in your daughter's lungs if you keep this up.

As Liza mentioned, you're underdosing the medication.

When you underdose an antibiotic you create resistant bacteria.

As you know, the antibiotic choices for CFer's are severly limited and avoiding antibiotic resistance can ultimately extend her life.

If you're going to spend 2 hours a day doing meds, and spend hundreds of dollars on the medication, you might as well be doing it right.

</end quote></div>


Well, EXCUSE ME! I didn't realize I was doing anything wrong! Just sounds like you are being overly criticizing to me. I read this and felt it was very rude the way you put it towards me, almost as to put me down.

You know, I do my best to keep my kids healthy and it is alot of work. I guess come to think of it, we were NEVER trained how to do a nebulizer. I am learning more every day about CF on this forum and I respect all of the parents and adults w/ CF that are on this site. I read all these posts every day. Someone will post about their new baby w/ CF and people will support them, many comments. Seems when I post a question, I usually don't get much of an answer or support. I look to this website to support me when my times are bad as well as I try to help others. Not sure what I have done wrong to be treated w/ such ignorance, but I guess I just have to learn from others posts and hope they post what I need to know.

Now I have met some nice people on here and I am not saying you are not nice, but the way you come off to me in this response was just rude and made me feel like crap as a mother. Which I KNOW is far from true! SORRY I didn't know we were doing it wrong!!!!!!!!!!!!!!!!!!!!!!

AND for the record, she only does Pulmozyme for preventative care.

Sorry, but this is how the post made me feel.

 

[ashmomo]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>




You're going to induce resistant bacteria in your daughter's lungs if you keep this up.

As Liza mentioned, you're underdosing the medication.

When you underdose an antibiotic you create resistant bacteria.

As you know, the antibiotic choices for CFer's are severly limited and avoiding antibiotic resistance can ultimately extend her life.

If you're going to spend 2 hours a day doing meds, and spend hundreds of dollars on the medication, you might as well be doing it right.

</end quote></div>


Well, EXCUSE ME! I didn't realize I was doing anything wrong! Just sounds like you are being overly criticizing to me. I read this and felt it was very rude the way you put it towards me, almost as to put me down.

You know, I do my best to keep my kids healthy and it is alot of work. I guess come to think of it, we were NEVER trained how to do a nebulizer. I am learning more every day about CF on this forum and I respect all of the parents and adults w/ CF that are on this site. I read all these posts every day. Someone will post about their new baby w/ CF and people will support them, many comments. Seems when I post a question, I usually don't get much of an answer or support. I look to this website to support me when my times are bad as well as I try to help others. Not sure what I have done wrong to be treated w/ such ignorance, but I guess I just have to learn from others posts and hope they post what I need to know.

Now I have met some nice people on here and I am not saying you are not nice, but the way you come off to me in this response was just rude and made me feel like crap as a mother. Which I KNOW is far from true! SORRY I didn't know we were doing it wrong!!!!!!!!!!!!!!!!!!!!!!

AND for the record, she only does Pulmozyme for preventative care.

Sorry, but this is how the post made me feel.

 

[ashmomo]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>




You're going to induce resistant bacteria in your daughter's lungs if you keep this up.

As Liza mentioned, you're underdosing the medication.

When you underdose an antibiotic you create resistant bacteria.

As you know, the antibiotic choices for CFer's are severly limited and avoiding antibiotic resistance can ultimately extend her life.

If you're going to spend 2 hours a day doing meds, and spend hundreds of dollars on the medication, you might as well be doing it right.

</end quote></div>


Well, EXCUSE ME! I didn't realize I was doing anything wrong! Just sounds like you are being overly criticizing to me. I read this and felt it was very rude the way you put it towards me, almost as to put me down.

You know, I do my best to keep my kids healthy and it is alot of work. I guess come to think of it, we were NEVER trained how to do a nebulizer. I am learning more every day about CF on this forum and I respect all of the parents and adults w/ CF that are on this site. I read all these posts every day. Someone will post about their new baby w/ CF and people will support them, many comments. Seems when I post a question, I usually don't get much of an answer or support. I look to this website to support me when my times are bad as well as I try to help others. Not sure what I have done wrong to be treated w/ such ignorance, but I guess I just have to learn from others posts and hope they post what I need to know.

Now I have met some nice people on here and I am not saying you are not nice, but the way you come off to me in this response was just rude and made me feel like crap as a mother. Which I KNOW is far from true! SORRY I didn't know we were doing it wrong!!!!!!!!!!!!!!!!!!!!!!

AND for the record, she only does Pulmozyme for preventative care.

Sorry, but this is how the post made me feel.

 

[ashmomo]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>




You're going to induce resistant bacteria in your daughter's lungs if you keep this up.

As Liza mentioned, you're underdosing the medication.

When you underdose an antibiotic you create resistant bacteria.

As you know, the antibiotic choices for CFer's are severly limited and avoiding antibiotic resistance can ultimately extend her life.

If you're going to spend 2 hours a day doing meds, and spend hundreds of dollars on the medication, you might as well be doing it right.

</end quote>


Well, EXCUSE ME! I didn't realize I was doing anything wrong! Just sounds like you are being overly criticizing to me. I read this and felt it was very rude the way you put it towards me, almost as to put me down.

You know, I do my best to keep my kids healthy and it is alot of work. I guess come to think of it, we were NEVER trained how to do a nebulizer. I am learning more every day about CF on this forum and I respect all of the parents and adults w/ CF that are on this site. I read all these posts every day. Someone will post about their new baby w/ CF and people will support them, many comments. Seems when I post a question, I usually don't get much of an answer or support. I look to this website to support me when my times are bad as well as I try to help others. Not sure what I have done wrong to be treated w/ such ignorance, but I guess I just have to learn from others posts and hope they post what I need to know.

Now I have met some nice people on here and I am not saying you are not nice, but the way you come off to me in this response was just rude and made me feel like crap as a mother. Which I KNOW is far from true! SORRY I didn't know we were doing it wrong!!!!!!!!!!!!!!!!!!!!!!

AND for the record, she only does Pulmozyme for preventative care.

Sorry, but this is how the post made me feel.

 

[ashmomo]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>
<br />
<br />
<br />
<br />
<br />You're going to induce resistant bacteria in your daughter's lungs if you keep this up.
<br />
<br />As Liza mentioned, you're underdosing the medication.
<br />
<br />When you underdose an antibiotic you create resistant bacteria.
<br />
<br />As you know, the antibiotic choices for CFer's are severly limited and avoiding antibiotic resistance can ultimately extend her life.
<br />
<br />If you're going to spend 2 hours a day doing meds, and spend hundreds of dollars on the medication, you might as well be doing it right.
<br />
<br /></end quote>
<br />
<br />
<br />Well, EXCUSE ME! I didn't realize I was doing anything wrong! Just sounds like you are being overly criticizing to me. I read this and felt it was very rude the way you put it towards me, almost as to put me down.
<br />
<br />You know, I do my best to keep my kids healthy and it is alot of work. I guess come to think of it, we were NEVER trained how to do a nebulizer. I am learning more every day about CF on this forum and I respect all of the parents and adults w/ CF that are on this site. I read all these posts every day. Someone will post about their new baby w/ CF and people will support them, many comments. Seems when I post a question, I usually don't get much of an answer or support. I look to this website to support me when my times are bad as well as I try to help others. Not sure what I have done wrong to be treated w/ such ignorance, but I guess I just have to learn from others posts and hope they post what I need to know.
<br />
<br />Now I have met some nice people on here and I am not saying you are not nice, but the way you come off to me in this response was just rude and made me feel like crap as a mother. Which I KNOW is far from true! SORRY I didn't know we were doing it wrong!!!!!!!!!!!!!!!!!!!!!!
<br />
<br />AND for the record, she only does Pulmozyme for preventative care.
<br />
<br />Sorry, but this is how the post made me feel.

 

[Ratatosk]

Sorry if I offended you, but I do feel that it's important for people to know that the blow-by method is very inadequate in terms of getting the medication into your little one's lungs. If you can't use the mouthpiece then a mask is probably your best bet.

With tobi and pulmozyme it's important to get those meds deep into the lungs and with blowby you're wasting the medication and thousands of dollars.

 

[Ratatosk]

Sorry if I offended you, but I do feel that it's important for people to know that the blow-by method is very inadequate in terms of getting the medication into your little one's lungs. If you can't use the mouthpiece then a mask is probably your best bet.

With tobi and pulmozyme it's important to get those meds deep into the lungs and with blowby you're wasting the medication and thousands of dollars.

 

[Ratatosk]

Sorry if I offended you, but I do feel that it's important for people to know that the blow-by method is very inadequate in terms of getting the medication into your little one's lungs. If you can't use the mouthpiece then a mask is probably your best bet.

With tobi and pulmozyme it's important to get those meds deep into the lungs and with blowby you're wasting the medication and thousands of dollars.

 

[Ratatosk]

Sorry if I offended you, but I do feel that it's important for people to know that the blow-by method is very inadequate in terms of getting the medication into your little one's lungs. If you can't use the mouthpiece then a mask is probably your best bet.

With tobi and pulmozyme it's important to get those meds deep into the lungs and with blowby you're wasting the medication and thousands of dollars.

 

[Ratatosk]

Sorry if I offended you, but I do feel that it's important for people to know that the blow-by method is very inadequate in terms of getting the medication into your little one's lungs. If you can't use the mouthpiece then a mask is probably your best bet.
<br />
<br />With tobi and pulmozyme it's important to get those meds deep into the lungs and with blowby you're wasting the medication and thousands of dollars.