travelling with cf

saveferris2009 · Apr 1, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: camperscove
The best advice is to always expect the worst-case scenario and then be pleasantly surprised.
</end quote></div>

This is a GREAT point. I'm so so so glad you brought this up.

I bring about a week's worth of extra meds with me just in case.

I'll never forget my uncle was on vacation overseas when 9/11 happened. He wasn't able to fly back to the US on his regularly scheduled flight (9/12) and had to spend 3 extra days out of the country.

I know 9/11 is a rarity (or at least we hope), but this story reminds me of the worst case scenario - how amazing would it be if you had extra meds with you prepared just for an emergency like this?

saveferris2009 · Apr 1, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: camperscove
The best advice is to always expect the worst-case scenario and then be pleasantly surprised.
</end quote></div>

This is a GREAT point. I'm so so so glad you brought this up.

I bring about a week's worth of extra meds with me just in case.

I'll never forget my uncle was on vacation overseas when 9/11 happened. He wasn't able to fly back to the US on his regularly scheduled flight (9/12) and had to spend 3 extra days out of the country.

I know 9/11 is a rarity (or at least we hope), but this story reminds me of the worst case scenario - how amazing would it be if you had extra meds with you prepared just for an emergency like this?

saveferris2009 · Apr 1, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: camperscove
The best advice is to always expect the worst-case scenario and then be pleasantly surprised.
</end quote></div>

This is a GREAT point. I'm so so so glad you brought this up.

I bring about a week's worth of extra meds with me just in case.

I'll never forget my uncle was on vacation overseas when 9/11 happened. He wasn't able to fly back to the US on his regularly scheduled flight (9/12) and had to spend 3 extra days out of the country.

I know 9/11 is a rarity (or at least we hope), but this story reminds me of the worst case scenario - how amazing would it be if you had extra meds with you prepared just for an emergency like this?

saveferris2009 · Apr 1, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: camperscove
The best advice is to always expect the worst-case scenario and then be pleasantly surprised.
</end quote>

This is a GREAT point. I'm so so so glad you brought this up.

I bring about a week's worth of extra meds with me just in case.

I'll never forget my uncle was on vacation overseas when 9/11 happened. He wasn't able to fly back to the US on his regularly scheduled flight (9/12) and had to spend 3 extra days out of the country.

I know 9/11 is a rarity (or at least we hope), but this story reminds me of the worst case scenario - how amazing would it be if you had extra meds with you prepared just for an emergency like this?

saveferris2009 · Apr 1, 2009

<div class="FTQUOTE"><begin quote>Originally posted by: camperscove
 The best advice is to always expect the worst-case scenario and then be pleasantly surprised.
 </end quote>
 
 
 
 This is a GREAT point. I'm so so so glad you brought this up.
 
 I bring about a week's worth of extra meds with me just in case.
 
 I'll never forget my uncle was on vacation overseas when 9/11 happened. He wasn't able to fly back to the US on his regularly scheduled flight (9/12) and had to spend 3 extra days out of the country.
 
 I know 9/11 is a rarity (or at least we hope), but this story reminds me of the worst case scenario - how amazing would it be if you had extra meds with you prepared just for an emergency like this?

fly30 · Apr 1, 2009

Thanks for all the replies, everyone.

Christian, thanks for the heap of information. Just wanting to know what is airborn drink? I dont think they sell it here, as i have never heard or seen it.

Also how did you go about getting insurnace, we have been rejected by 5 major companies. Not fare at all, its total discrimaination. What are we supposed to do? stop living our life, keep our child locked up at home and never travel because of CF. Very very SAD.

As for the nebs, we are not on any at the moment. So we dont need to lug any of that stuff around this trip. For those who are, how do you sterilise your eflow on a 24hour flight?

fly30 · Apr 1, 2009

Thanks for all the replies, everyone.

Christian, thanks for the heap of information. Just wanting to know what is airborn drink? I dont think they sell it here, as i have never heard or seen it.

Also how did you go about getting insurnace, we have been rejected by 5 major companies. Not fare at all, its total discrimaination. What are we supposed to do? stop living our life, keep our child locked up at home and never travel because of CF. Very very SAD.

As for the nebs, we are not on any at the moment. So we dont need to lug any of that stuff around this trip. For those who are, how do you sterilise your eflow on a 24hour flight?

fly30 · Apr 1, 2009

Thanks for all the replies, everyone.

Christian, thanks for the heap of information. Just wanting to know what is airborn drink? I dont think they sell it here, as i have never heard or seen it.

Also how did you go about getting insurnace, we have been rejected by 5 major companies. Not fare at all, its total discrimaination. What are we supposed to do? stop living our life, keep our child locked up at home and never travel because of CF. Very very SAD.

As for the nebs, we are not on any at the moment. So we dont need to lug any of that stuff around this trip. For those who are, how do you sterilise your eflow on a 24hour flight?

fly30 · Apr 1, 2009

Thanks for all the replies, everyone.

Christian, thanks for the heap of information. Just wanting to know what is airborn drink? I dont think they sell it here, as i have never heard or seen it.

Also how did you go about getting insurnace, we have been rejected by 5 major companies. Not fare at all, its total discrimaination. What are we supposed to do? stop living our life, keep our child locked up at home and never travel because of CF. Very very SAD.

As for the nebs, we are not on any at the moment. So we dont need to lug any of that stuff around this trip. For those who are, how do you sterilise your eflow on a 24hour flight?

fly30 · Apr 1, 2009

Thanks for all the replies, everyone.
 
 Christian, thanks for the heap of information. Just wanting to know what is airborn drink? I dont think they sell it here, as i have never heard or seen it.
 
 Also how did you go about getting insurnace, we have been rejected by 5 major companies. Not fare at all, its total discrimaination. What are we supposed to do? stop living our life, keep our child locked up at home and never travel because of CF. Very very SAD.
 
 As for the nebs, we are not on any at the moment. So we dont need to lug any of that stuff around this trip. For those who are, how do you sterilise your eflow on a 24hour flight?

saveferris2009 · Apr 1, 2009

i carry multiple pastic neb pieces with me on the plane, so i have no need to sterilize on the plane.

in terms of the head, i bring my own water to rinse it off and i keep the alcohol cup with me that i soak it in when the head is not in use.

saveferris2009 · Apr 1, 2009

i carry multiple pastic neb pieces with me on the plane, so i have no need to sterilize on the plane.

in terms of the head, i bring my own water to rinse it off and i keep the alcohol cup with me that i soak it in when the head is not in use.

saveferris2009 · Apr 1, 2009

i carry multiple pastic neb pieces with me on the plane, so i have no need to sterilize on the plane.

in terms of the head, i bring my own water to rinse it off and i keep the alcohol cup with me that i soak it in when the head is not in use.

saveferris2009 · Apr 1, 2009

i carry multiple pastic neb pieces with me on the plane, so i have no need to sterilize on the plane.

in terms of the head, i bring my own water to rinse it off and i keep the alcohol cup with me that i soak it in when the head is not in use.

saveferris2009 · Apr 1, 2009

i carry multiple pastic neb pieces with me on the plane, so i have no need to sterilize on the plane.
 
 in terms of the head, i bring my own water to rinse it off and i keep the alcohol cup with me that i soak it in when the head is not in use.

Ratatosk · Apr 1, 2009