U don't look like u have CF

Wheezie

New member
I absolutely cannot BELIEVE someone would do something like that, dramamama! I want to believe people are generally good, but when I hear something like this, it really makes me wonder. Not only was her response rude, inconsiderate, and completely ignorant, it was VANDALISM.

I'm so sorry you had to go through that experience. People just don't know any better and I'm sure we've all made assumptions about another that were incorrect. But it is completely unacceptable, even if she were absolutely POSITIVE you didn't have a disability and were abusing the use of that parking space, to vandalize your property.

I have these little cards that are meant to be placed on car windshields when someone parks in a spot without a placard displayed or without the disabled license plates. It just reminds them that if they are disabled, they need to remember to put up their placard and if they're not, they are making life a lot more difficult for someone who actually needs that parking space. I got the cards from the disability rights organization I used to work for. I've only actually used one once. Anyway, the point is that there are much nicer ways to remind someone when they are doing something wrong (especially if you don't really KNOW they're doing anything wrong). What that woman did was abhorrent. <img src="i/expressions/face-icon-small-frown.gif" border="0">
 

Wheezie

New member
I absolutely cannot BELIEVE someone would do something like that, dramamama! I want to believe people are generally good, but when I hear something like this, it really makes me wonder. Not only was her response rude, inconsiderate, and completely ignorant, it was VANDALISM.

I'm so sorry you had to go through that experience. People just don't know any better and I'm sure we've all made assumptions about another that were incorrect. But it is completely unacceptable, even if she were absolutely POSITIVE you didn't have a disability and were abusing the use of that parking space, to vandalize your property.

I have these little cards that are meant to be placed on car windshields when someone parks in a spot without a placard displayed or without the disabled license plates. It just reminds them that if they are disabled, they need to remember to put up their placard and if they're not, they are making life a lot more difficult for someone who actually needs that parking space. I got the cards from the disability rights organization I used to work for. I've only actually used one once. Anyway, the point is that there are much nicer ways to remind someone when they are doing something wrong (especially if you don't really KNOW they're doing anything wrong). What that woman did was abhorrent. <img src="i/expressions/face-icon-small-frown.gif" border="0">
 

Wheezie

New member
I absolutely cannot BELIEVE someone would do something like that, dramamama! I want to believe people are generally good, but when I hear something like this, it really makes me wonder. Not only was her response rude, inconsiderate, and completely ignorant, it was VANDALISM.

I'm so sorry you had to go through that experience. People just don't know any better and I'm sure we've all made assumptions about another that were incorrect. But it is completely unacceptable, even if she were absolutely POSITIVE you didn't have a disability and were abusing the use of that parking space, to vandalize your property.

I have these little cards that are meant to be placed on car windshields when someone parks in a spot without a placard displayed or without the disabled license plates. It just reminds them that if they are disabled, they need to remember to put up their placard and if they're not, they are making life a lot more difficult for someone who actually needs that parking space. I got the cards from the disability rights organization I used to work for. I've only actually used one once. Anyway, the point is that there are much nicer ways to remind someone when they are doing something wrong (especially if you don't really KNOW they're doing anything wrong). What that woman did was abhorrent. <img src="i/expressions/face-icon-small-frown.gif" border="0">
 

Wheezie

New member
I absolutely cannot BELIEVE someone would do something like that, dramamama! I want to believe people are generally good, but when I hear something like this, it really makes me wonder. Not only was her response rude, inconsiderate, and completely ignorant, it was VANDALISM.

I'm so sorry you had to go through that experience. People just don't know any better and I'm sure we've all made assumptions about another that were incorrect. But it is completely unacceptable, even if she were absolutely POSITIVE you didn't have a disability and were abusing the use of that parking space, to vandalize your property.

I have these little cards that are meant to be placed on car windshields when someone parks in a spot without a placard displayed or without the disabled license plates. It just reminds them that if they are disabled, they need to remember to put up their placard and if they're not, they are making life a lot more difficult for someone who actually needs that parking space. I got the cards from the disability rights organization I used to work for. I've only actually used one once. Anyway, the point is that there are much nicer ways to remind someone when they are doing something wrong (especially if you don't really KNOW they're doing anything wrong). What that woman did was abhorrent. <img src="i/expressions/face-icon-small-frown.gif" border="0">
 

Wheezie

New member
I absolutely cannot BELIEVE someone would do something like that, dramamama! I want to believe people are generally good, but when I hear something like this, it really makes me wonder. Not only was her response rude, inconsiderate, and completely ignorant, it was VANDALISM.

I'm so sorry you had to go through that experience. People just don't know any better and I'm sure we've all made assumptions about another that were incorrect. But it is completely unacceptable, even if she were absolutely POSITIVE you didn't have a disability and were abusing the use of that parking space, to vandalize your property.

I have these little cards that are meant to be placed on car windshields when someone parks in a spot without a placard displayed or without the disabled license plates. It just reminds them that if they are disabled, they need to remember to put up their placard and if they're not, they are making life a lot more difficult for someone who actually needs that parking space. I got the cards from the disability rights organization I used to work for. I've only actually used one once. Anyway, the point is that there are much nicer ways to remind someone when they are doing something wrong (especially if you don't really KNOW they're doing anything wrong). What that woman did was abhorrent. <img src="i/expressions/face-icon-small-frown.gif" border="0">
 

Playswithpixels

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Lance2020x</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Playswithpixels</b></i>



Several years ago I had to change Doctors (Insurance issues, I'll say Tenncare, and leave it at that.)

</end quote></div>



Oh GOD. They've been trying to kick me for the past 4 years, they finally got rid of me when I turned 21, didn't tell me or anything, I just went in to pick up my filled meds and they said "Um.... Tenncare kicked you..... you didn't know?" Why the hell would I? Satan doesn't let his companies send out information.



I'm finally on CSS now which is amazing, but doesn't cover anything that's non CF related, so if I break my leg or something I'm pretty much screwed, plus there are rumors going around that they might run out of money. God bless America!









As for the topic: I've had people say things to me like "Oh cool! You get to eat all the fatty foods you want! I wish I could do that!!" I just smile because I know they're ignorant, but sometimes I'll be a jerk and laugh along with them and say something like "Hahaha, yeah it rocks, FORCING yourself to eat and having to do 4 hours of medication every day and knowing you'll probably be dead in a couple years! Woo! haha!"

That usually creates a pretty entertainingly awkward silence.</end quote></div>
 

Playswithpixels

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Lance2020x</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Playswithpixels</b></i>



Several years ago I had to change Doctors (Insurance issues, I'll say Tenncare, and leave it at that.)

</end quote></div>



Oh GOD. They've been trying to kick me for the past 4 years, they finally got rid of me when I turned 21, didn't tell me or anything, I just went in to pick up my filled meds and they said "Um.... Tenncare kicked you..... you didn't know?" Why the hell would I? Satan doesn't let his companies send out information.



I'm finally on CSS now which is amazing, but doesn't cover anything that's non CF related, so if I break my leg or something I'm pretty much screwed, plus there are rumors going around that they might run out of money. God bless America!









As for the topic: I've had people say things to me like "Oh cool! You get to eat all the fatty foods you want! I wish I could do that!!" I just smile because I know they're ignorant, but sometimes I'll be a jerk and laugh along with them and say something like "Hahaha, yeah it rocks, FORCING yourself to eat and having to do 4 hours of medication every day and knowing you'll probably be dead in a couple years! Woo! haha!"

That usually creates a pretty entertainingly awkward silence.</end quote></div>
 

Playswithpixels

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Lance2020x</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Playswithpixels</b></i>



Several years ago I had to change Doctors (Insurance issues, I'll say Tenncare, and leave it at that.)

</end quote></div>



Oh GOD. They've been trying to kick me for the past 4 years, they finally got rid of me when I turned 21, didn't tell me or anything, I just went in to pick up my filled meds and they said "Um.... Tenncare kicked you..... you didn't know?" Why the hell would I? Satan doesn't let his companies send out information.



I'm finally on CSS now which is amazing, but doesn't cover anything that's non CF related, so if I break my leg or something I'm pretty much screwed, plus there are rumors going around that they might run out of money. God bless America!









As for the topic: I've had people say things to me like "Oh cool! You get to eat all the fatty foods you want! I wish I could do that!!" I just smile because I know they're ignorant, but sometimes I'll be a jerk and laugh along with them and say something like "Hahaha, yeah it rocks, FORCING yourself to eat and having to do 4 hours of medication every day and knowing you'll probably be dead in a couple years! Woo! haha!"

That usually creates a pretty entertainingly awkward silence.</end quote></div>
 

Playswithpixels

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Lance2020x</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Playswithpixels</b></i>



Several years ago I had to change Doctors (Insurance issues, I'll say Tenncare, and leave it at that.)

</end quote>



Oh GOD. They've been trying to kick me for the past 4 years, they finally got rid of me when I turned 21, didn't tell me or anything, I just went in to pick up my filled meds and they said "Um.... Tenncare kicked you..... you didn't know?" Why the hell would I? Satan doesn't let his companies send out information.



I'm finally on CSS now which is amazing, but doesn't cover anything that's non CF related, so if I break my leg or something I'm pretty much screwed, plus there are rumors going around that they might run out of money. God bless America!









As for the topic: I've had people say things to me like "Oh cool! You get to eat all the fatty foods you want! I wish I could do that!!" I just smile because I know they're ignorant, but sometimes I'll be a jerk and laugh along with them and say something like "Hahaha, yeah it rocks, FORCING yourself to eat and having to do 4 hours of medication every day and knowing you'll probably be dead in a couple years! Woo! haha!"

That usually creates a pretty entertainingly awkward silence.</end quote>
 

Playswithpixels

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Lance2020x</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Playswithpixels</b></i>



Several years ago I had to change Doctors (Insurance issues, I'll say Tenncare, and leave it at that.)

</end quote>



Oh GOD. They've been trying to kick me for the past 4 years, they finally got rid of me when I turned 21, didn't tell me or anything, I just went in to pick up my filled meds and they said "Um.... Tenncare kicked you..... you didn't know?" Why the hell would I? Satan doesn't let his companies send out information.



I'm finally on CSS now which is amazing, but doesn't cover anything that's non CF related, so if I break my leg or something I'm pretty much screwed, plus there are rumors going around that they might run out of money. God bless America!









As for the topic: I've had people say things to me like "Oh cool! You get to eat all the fatty foods you want! I wish I could do that!!" I just smile because I know they're ignorant, but sometimes I'll be a jerk and laugh along with them and say something like "Hahaha, yeah it rocks, FORCING yourself to eat and having to do 4 hours of medication every day and knowing you'll probably be dead in a couple years! Woo! haha!"

That usually creates a pretty entertainingly awkward silence.</end quote>
 

Playswithpixels

New member
Lance, I only kept my Tenncare on a technicality. When we first moved to Tennessee I had Medicare and SSI, from 1989-1994. So according to thier records they can't boot me off........at least not until they are overwhelmed by immigrants. I am in the process of getting help from CSS, because we pay $300-$400 a month for meds that Tenncare doesn't cover.

My reply to someone who offers to comment on my use of a place card is "If you only had x-ray eyes". I don't use my card often, my husband picks on me when I do. But when I do I hold my head up and don't act ashamed, because if the only benefit of having CF is getting to park closer than by god I am going too....LOL

Andrea (32 w/CF dx: 8 mos.)
 

Playswithpixels

New member
Lance, I only kept my Tenncare on a technicality. When we first moved to Tennessee I had Medicare and SSI, from 1989-1994. So according to thier records they can't boot me off........at least not until they are overwhelmed by immigrants. I am in the process of getting help from CSS, because we pay $300-$400 a month for meds that Tenncare doesn't cover.

My reply to someone who offers to comment on my use of a place card is "If you only had x-ray eyes". I don't use my card often, my husband picks on me when I do. But when I do I hold my head up and don't act ashamed, because if the only benefit of having CF is getting to park closer than by god I am going too....LOL

Andrea (32 w/CF dx: 8 mos.)
 

Playswithpixels

New member
Lance, I only kept my Tenncare on a technicality. When we first moved to Tennessee I had Medicare and SSI, from 1989-1994. So according to thier records they can't boot me off........at least not until they are overwhelmed by immigrants. I am in the process of getting help from CSS, because we pay $300-$400 a month for meds that Tenncare doesn't cover.

My reply to someone who offers to comment on my use of a place card is "If you only had x-ray eyes". I don't use my card often, my husband picks on me when I do. But when I do I hold my head up and don't act ashamed, because if the only benefit of having CF is getting to park closer than by god I am going too....LOL

Andrea (32 w/CF dx: 8 mos.)
 

Playswithpixels

New member
Lance, I only kept my Tenncare on a technicality. When we first moved to Tennessee I had Medicare and SSI, from 1989-1994. So according to thier records they can't boot me off........at least not until they are overwhelmed by immigrants. I am in the process of getting help from CSS, because we pay $300-$400 a month for meds that Tenncare doesn't cover.

My reply to someone who offers to comment on my use of a place card is "If you only had x-ray eyes". I don't use my card often, my husband picks on me when I do. But when I do I hold my head up and don't act ashamed, because if the only benefit of having CF is getting to park closer than by god I am going too....LOL

Andrea (32 w/CF dx: 8 mos.)
 

Playswithpixels

New member
Lance, I only kept my Tenncare on a technicality. When we first moved to Tennessee I had Medicare and SSI, from 1989-1994. So according to thier records they can't boot me off........at least not until they are overwhelmed by immigrants. I am in the process of getting help from CSS, because we pay $300-$400 a month for meds that Tenncare doesn't cover.

My reply to someone who offers to comment on my use of a place card is "If you only had x-ray eyes". I don't use my card often, my husband picks on me when I do. But when I do I hold my head up and don't act ashamed, because if the only benefit of having CF is getting to park closer than by god I am going too....LOL

Andrea (32 w/CF dx: 8 mos.)
 

mamerth

New member
when I was diagnosed my doctor refuse to believe the sweat tests (I had 3 of them). He said I wanted to be sick and this my new excuse. I wanted to slap his silly. Like a 15 year old wants an excuse to be sick.

I have regular people ask me all the time... "you look to healthy too have CF" -- How do they think CF is suppose to look??
 

mamerth

New member
when I was diagnosed my doctor refuse to believe the sweat tests (I had 3 of them). He said I wanted to be sick and this my new excuse. I wanted to slap his silly. Like a 15 year old wants an excuse to be sick.

I have regular people ask me all the time... "you look to healthy too have CF" -- How do they think CF is suppose to look??
 

mamerth

New member
when I was diagnosed my doctor refuse to believe the sweat tests (I had 3 of them). He said I wanted to be sick and this my new excuse. I wanted to slap his silly. Like a 15 year old wants an excuse to be sick.

I have regular people ask me all the time... "you look to healthy too have CF" -- How do they think CF is suppose to look??
 

mamerth

New member
when I was diagnosed my doctor refuse to believe the sweat tests (I had 3 of them). He said I wanted to be sick and this my new excuse. I wanted to slap his silly. Like a 15 year old wants an excuse to be sick.

I have regular people ask me all the time... "you look to healthy too have CF" -- How do they think CF is suppose to look??
 

mamerth

New member
when I was diagnosed my doctor refuse to believe the sweat tests (I had 3 of them). He said I wanted to be sick and this my new excuse. I wanted to slap his silly. Like a 15 year old wants an excuse to be sick.

I have regular people ask me all the time... "you look to healthy too have CF" -- How do they think CF is suppose to look??
 
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