Vest and Pedi

[AbbysMama]

Hey. We got Abby's vest in on Monday, had the training on Wednesday, and she's been a trooper using it since! Yea! I'm glad that it is going so very well.

Hubby talked to the pedi yesterday and he's aggravated that the CF center has her doing the breathing treatments and the vest without any real clinical diagnosis. He thinks it is overkill. This is so strange since he is so vigilant about her care and very much proactive in ensuring she remains healthy. Our Pedi is a family friend and I'm trying to process why he's so aggravated by this. Is this a typical reaction from pedis about for lack of a better word...aggressive preventative care? What to do? What to do?

Please share your experiences.

Em

 

[AbbysMama]

Hey. We got Abby's vest in on Monday, had the training on Wednesday, and she's been a trooper using it since! Yea! I'm glad that it is going so very well.

Hubby talked to the pedi yesterday and he's aggravated that the CF center has her doing the breathing treatments and the vest without any real clinical diagnosis. He thinks it is overkill. This is so strange since he is so vigilant about her care and very much proactive in ensuring she remains healthy. Our Pedi is a family friend and I'm trying to process why he's so aggravated by this. Is this a typical reaction from pedis about for lack of a better word...aggressive preventative care? What to do? What to do?

Please share your experiences.

Em

 

[AbbysMama]

Hey. We got Abby's vest in on Monday, had the training on Wednesday, and she's been a trooper using it since! Yea! I'm glad that it is going so very well.

Hubby talked to the pedi yesterday and he's aggravated that the CF center has her doing the breathing treatments and the vest without any real clinical diagnosis. He thinks it is overkill. This is so strange since he is so vigilant about her care and very much proactive in ensuring she remains healthy. Our Pedi is a family friend and I'm trying to process why he's so aggravated by this. Is this a typical reaction from pedis about for lack of a better word...aggressive preventative care? What to do? What to do?

Please share your experiences.

Em

 

[AbbysMama]

Hey. We got Abby's vest in on Monday, had the training on Wednesday, and she's been a trooper using it since! Yea! I'm glad that it is going so very well.

Hubby talked to the pedi yesterday and he's aggravated that the CF center has her doing the breathing treatments and the vest without any real clinical diagnosis. He thinks it is overkill. This is so strange since he is so vigilant about her care and very much proactive in ensuring she remains healthy. Our Pedi is a family friend and I'm trying to process why he's so aggravated by this. Is this a typical reaction from pedis about for lack of a better word...aggressive preventative care? What to do? What to do?

Please share your experiences.

Em

 

[AbbysMama]

Hey. We got Abby's vest in on Monday, had the training on Wednesday, and she's been a trooper using it since! Yea! I'm glad that it is going so very well.

Hubby talked to the pedi yesterday and he's aggravated that the CF center has her doing the breathing treatments and the vest without any real clinical diagnosis. He thinks it is overkill. This is so strange since he is so vigilant about her care and very much proactive in ensuring she remains healthy. Our Pedi is a family friend and I'm trying to process why he's so aggravated by this. Is this a typical reaction from pedis about for lack of a better word...aggressive preventative care? What to do? What to do?

Please share your experiences.

Em

 

[rcq925]

I think it is very strange, to say the least, that your pediatrician feels this way. CF is ALL about preventative care and keeping the lungs healthy. She should definitely be doing the vest and breathing treatments. Which drugs is she doing?

Once lung funtion is gone/ lung damage occurs it is irreversible. So prevention is key. Just because your daughter is not symptomatic at this time, does not mean she always will be. It is good to get her in the routine now of doing her vest and breathing treatments, so it becomes a way of life, part of her routine day.

Hayley really never even sees our family doctor. She did well baby visits for the first two years, but she has not seen the family doctor since. We call the clinic for everything related to her health. They know her best.

Just my two cents. Keep doing the vest and those treatments!!

 

[rcq925]

I think it is very strange, to say the least, that your pediatrician feels this way. CF is ALL about preventative care and keeping the lungs healthy. She should definitely be doing the vest and breathing treatments. Which drugs is she doing?

Once lung funtion is gone/ lung damage occurs it is irreversible. So prevention is key. Just because your daughter is not symptomatic at this time, does not mean she always will be. It is good to get her in the routine now of doing her vest and breathing treatments, so it becomes a way of life, part of her routine day.

Hayley really never even sees our family doctor. She did well baby visits for the first two years, but she has not seen the family doctor since. We call the clinic for everything related to her health. They know her best.

Just my two cents. Keep doing the vest and those treatments!!

 

[rcq925]

I think it is very strange, to say the least, that your pediatrician feels this way. CF is ALL about preventative care and keeping the lungs healthy. She should definitely be doing the vest and breathing treatments. Which drugs is she doing?

Once lung funtion is gone/ lung damage occurs it is irreversible. So prevention is key. Just because your daughter is not symptomatic at this time, does not mean she always will be. It is good to get her in the routine now of doing her vest and breathing treatments, so it becomes a way of life, part of her routine day.

Hayley really never even sees our family doctor. She did well baby visits for the first two years, but she has not seen the family doctor since. We call the clinic for everything related to her health. They know her best.

Just my two cents. Keep doing the vest and those treatments!!

 

[rcq925]

I think it is very strange, to say the least, that your pediatrician feels this way. CF is ALL about preventative care and keeping the lungs healthy. She should definitely be doing the vest and breathing treatments. Which drugs is she doing?

Once lung funtion is gone/ lung damage occurs it is irreversible. So prevention is key. Just because your daughter is not symptomatic at this time, does not mean she always will be. It is good to get her in the routine now of doing her vest and breathing treatments, so it becomes a way of life, part of her routine day.

Hayley really never even sees our family doctor. She did well baby visits for the first two years, but she has not seen the family doctor since. We call the clinic for everything related to her health. They know her best.

Just my two cents. Keep doing the vest and those treatments!!

 

[rcq925]

I think it is very strange, to say the least, that your pediatrician feels this way. CF is ALL about preventative care and keeping the lungs healthy. She should definitely be doing the vest and breathing treatments. Which drugs is she doing?

Once lung funtion is gone/ lung damage occurs it is irreversible. So prevention is key. Just because your daughter is not symptomatic at this time, does not mean she always will be. It is good to get her in the routine now of doing her vest and breathing treatments, so it becomes a way of life, part of her routine day.

Hayley really never even sees our family doctor. She did well baby visits for the first two years, but she has not seen the family doctor since. We call the clinic for everything related to her health. They know her best.

Just my two cents. Keep doing the vest and those treatments!!

 

[Rebjane]

Maybe your pediatrician needs to speak with your CF doctor. It could help him understand why the life-expectancy for CF'ers has increased each year due to research and better understanding of CF care. Your daughter deserves to take advantage of this. As my cynical sidenote; do all these extra treatments cost of VEST, etc affect reimbursement for your pediatrician? Some docs get incentives for less intervention from HMO's.

 

[Rebjane]

Maybe your pediatrician needs to speak with your CF doctor. It could help him understand why the life-expectancy for CF'ers has increased each year due to research and better understanding of CF care. Your daughter deserves to take advantage of this. As my cynical sidenote; do all these extra treatments cost of VEST, etc affect reimbursement for your pediatrician? Some docs get incentives for less intervention from HMO's.

 

[Rebjane]

Maybe your pediatrician needs to speak with your CF doctor. It could help him understand why the life-expectancy for CF'ers has increased each year due to research and better understanding of CF care. Your daughter deserves to take advantage of this. As my cynical sidenote; do all these extra treatments cost of VEST, etc affect reimbursement for your pediatrician? Some docs get incentives for less intervention from HMO's.

 

[Rebjane]

Maybe your pediatrician needs to speak with your CF doctor. It could help him understand why the life-expectancy for CF'ers has increased each year due to research and better understanding of CF care. Your daughter deserves to take advantage of this. As my cynical sidenote; do all these extra treatments cost of VEST, etc affect reimbursement for your pediatrician? Some docs get incentives for less intervention from HMO's.

 

[Rebjane]

Maybe your pediatrician needs to speak with your CF doctor. It could help him understand why the life-expectancy for CF'ers has increased each year due to research and better understanding of CF care. Your daughter deserves to take advantage of this. As my cynical sidenote; do all these extra treatments cost of VEST, etc affect reimbursement for your pediatrician? Some docs get incentives for less intervention from HMO's.

 

[Ratatosk]

We get the same thing from DS's ped who is also head of the local CF program. They don't encourage CPT/Vest/Nebs unless the lungs become affected. They're always wondering why we're doing it when there aren't any symptoms or when he isn't sick. It's almost as if they're telling us we can relax, take a break or something.

Or primary CF doctor in the City has always stressed proper lung care. Once you lose lung tissue you can never ever regain it. So it's important to be proactive instead of reactive. So we're supposed to do CPT/Vest twice day as a bare minimum -- more if he's got a cold, cough, wheeze -- we do two vest treatments and one CPT treatment on a regular basis and throw one or two more in if he's sick. Because we've done this since he was a week old, it's a part of life -- it's all routine. We're used to it. He's only ever missed one treatment so far and that was when we were catching a flight back from Mexico didn't have time to beat him between connecting flights.

You've got to do what you feel is in the best interest of your child. And even if she's not showing any symptoms, the vest and nebs have gotta help keep those lungs clear of any gunk during cold and flu season.

 

[Ratatosk]

We get the same thing from DS's ped who is also head of the local CF program. They don't encourage CPT/Vest/Nebs unless the lungs become affected. They're always wondering why we're doing it when there aren't any symptoms or when he isn't sick. It's almost as if they're telling us we can relax, take a break or something.

Or primary CF doctor in the City has always stressed proper lung care. Once you lose lung tissue you can never ever regain it. So it's important to be proactive instead of reactive. So we're supposed to do CPT/Vest twice day as a bare minimum -- more if he's got a cold, cough, wheeze -- we do two vest treatments and one CPT treatment on a regular basis and throw one or two more in if he's sick. Because we've done this since he was a week old, it's a part of life -- it's all routine. We're used to it. He's only ever missed one treatment so far and that was when we were catching a flight back from Mexico didn't have time to beat him between connecting flights.

You've got to do what you feel is in the best interest of your child. And even if she's not showing any symptoms, the vest and nebs have gotta help keep those lungs clear of any gunk during cold and flu season.

 

[Ratatosk]

We get the same thing from DS's ped who is also head of the local CF program. They don't encourage CPT/Vest/Nebs unless the lungs become affected. They're always wondering why we're doing it when there aren't any symptoms or when he isn't sick. It's almost as if they're telling us we can relax, take a break or something.

Or primary CF doctor in the City has always stressed proper lung care. Once you lose lung tissue you can never ever regain it. So it's important to be proactive instead of reactive. So we're supposed to do CPT/Vest twice day as a bare minimum -- more if he's got a cold, cough, wheeze -- we do two vest treatments and one CPT treatment on a regular basis and throw one or two more in if he's sick. Because we've done this since he was a week old, it's a part of life -- it's all routine. We're used to it. He's only ever missed one treatment so far and that was when we were catching a flight back from Mexico didn't have time to beat him between connecting flights.

You've got to do what you feel is in the best interest of your child. And even if she's not showing any symptoms, the vest and nebs have gotta help keep those lungs clear of any gunk during cold and flu season.

 

[Ratatosk]

We get the same thing from DS's ped who is also head of the local CF program. They don't encourage CPT/Vest/Nebs unless the lungs become affected. They're always wondering why we're doing it when there aren't any symptoms or when he isn't sick. It's almost as if they're telling us we can relax, take a break or something.

Or primary CF doctor in the City has always stressed proper lung care. Once you lose lung tissue you can never ever regain it. So it's important to be proactive instead of reactive. So we're supposed to do CPT/Vest twice day as a bare minimum -- more if he's got a cold, cough, wheeze -- we do two vest treatments and one CPT treatment on a regular basis and throw one or two more in if he's sick. Because we've done this since he was a week old, it's a part of life -- it's all routine. We're used to it. He's only ever missed one treatment so far and that was when we were catching a flight back from Mexico didn't have time to beat him between connecting flights.

You've got to do what you feel is in the best interest of your child. And even if she's not showing any symptoms, the vest and nebs have gotta help keep those lungs clear of any gunk during cold and flu season.

 

[Ratatosk]

We get the same thing from DS's ped who is also head of the local CF program. They don't encourage CPT/Vest/Nebs unless the lungs become affected. They're always wondering why we're doing it when there aren't any symptoms or when he isn't sick. It's almost as if they're telling us we can relax, take a break or something.

Or primary CF doctor in the City has always stressed proper lung care. Once you lose lung tissue you can never ever regain it. So it's important to be proactive instead of reactive. So we're supposed to do CPT/Vest twice day as a bare minimum -- more if he's got a cold, cough, wheeze -- we do two vest treatments and one CPT treatment on a regular basis and throw one or two more in if he's sick. Because we've done this since he was a week old, it's a part of life -- it's all routine. We're used to it. He's only ever missed one treatment so far and that was when we were catching a flight back from Mexico didn't have time to beat him between connecting flights.

You've got to do what you feel is in the best interest of your child. And even if she's not showing any symptoms, the vest and nebs have gotta help keep those lungs clear of any gunk during cold and flu season.