Vest and Pedi
- Thread starter AbbysMama
- Start date
T
TonyaH
Guest
Em,
It can be very frustrating when you find someone in the medical profession with little understanding of cystic fibrosis. We were lucky to find a pediatrician who knows CF very well, and has told us he would stay up to date on CF . He was referred to us by our CF doctor. I wanted a good team approach to Andrew's care.
I know your pediatrician is a friend, so maybe you could explain that you are looking for good communication between doctors. You have the right to this and if your friend won't help you, I'm sure your CF doc could refer you to someone in your area.
Good luck!
It can be very frustrating when you find someone in the medical profession with little understanding of cystic fibrosis. We were lucky to find a pediatrician who knows CF very well, and has told us he would stay up to date on CF . He was referred to us by our CF doctor. I wanted a good team approach to Andrew's care.
I know your pediatrician is a friend, so maybe you could explain that you are looking for good communication between doctors. You have the right to this and if your friend won't help you, I'm sure your CF doc could refer you to someone in your area.
Good luck!
T
TonyaH
Guest
Em,
It can be very frustrating when you find someone in the medical profession with little understanding of cystic fibrosis. We were lucky to find a pediatrician who knows CF very well, and has told us he would stay up to date on CF . He was referred to us by our CF doctor. I wanted a good team approach to Andrew's care.
I know your pediatrician is a friend, so maybe you could explain that you are looking for good communication between doctors. You have the right to this and if your friend won't help you, I'm sure your CF doc could refer you to someone in your area.
Good luck!
It can be very frustrating when you find someone in the medical profession with little understanding of cystic fibrosis. We were lucky to find a pediatrician who knows CF very well, and has told us he would stay up to date on CF . He was referred to us by our CF doctor. I wanted a good team approach to Andrew's care.
I know your pediatrician is a friend, so maybe you could explain that you are looking for good communication between doctors. You have the right to this and if your friend won't help you, I'm sure your CF doc could refer you to someone in your area.
Good luck!
T
TonyaH
Guest
Em,
It can be very frustrating when you find someone in the medical profession with little understanding of cystic fibrosis. We were lucky to find a pediatrician who knows CF very well, and has told us he would stay up to date on CF . He was referred to us by our CF doctor. I wanted a good team approach to Andrew's care.
I know your pediatrician is a friend, so maybe you could explain that you are looking for good communication between doctors. You have the right to this and if your friend won't help you, I'm sure your CF doc could refer you to someone in your area.
Good luck!
It can be very frustrating when you find someone in the medical profession with little understanding of cystic fibrosis. We were lucky to find a pediatrician who knows CF very well, and has told us he would stay up to date on CF . He was referred to us by our CF doctor. I wanted a good team approach to Andrew's care.
I know your pediatrician is a friend, so maybe you could explain that you are looking for good communication between doctors. You have the right to this and if your friend won't help you, I'm sure your CF doc could refer you to someone in your area.
Good luck!
T
TonyaH
Guest
Em,
It can be very frustrating when you find someone in the medical profession with little understanding of cystic fibrosis. We were lucky to find a pediatrician who knows CF very well, and has told us he would stay up to date on CF . He was referred to us by our CF doctor. I wanted a good team approach to Andrew's care.
I know your pediatrician is a friend, so maybe you could explain that you are looking for good communication between doctors. You have the right to this and if your friend won't help you, I'm sure your CF doc could refer you to someone in your area.
Good luck!
It can be very frustrating when you find someone in the medical profession with little understanding of cystic fibrosis. We were lucky to find a pediatrician who knows CF very well, and has told us he would stay up to date on CF . He was referred to us by our CF doctor. I wanted a good team approach to Andrew's care.
I know your pediatrician is a friend, so maybe you could explain that you are looking for good communication between doctors. You have the right to this and if your friend won't help you, I'm sure your CF doc could refer you to someone in your area.
Good luck!
T
TonyaH
Guest
Em,
It can be very frustrating when you find someone in the medical profession with little understanding of cystic fibrosis. We were lucky to find a pediatrician who knows CF very well, and has told us he would stay up to date on CF . He was referred to us by our CF doctor. I wanted a good team approach to Andrew's care.
I know your pediatrician is a friend, so maybe you could explain that you are looking for good communication between doctors. You have the right to this and if your friend won't help you, I'm sure your CF doc could refer you to someone in your area.
Good luck!
It can be very frustrating when you find someone in the medical profession with little understanding of cystic fibrosis. We were lucky to find a pediatrician who knows CF very well, and has told us he would stay up to date on CF . He was referred to us by our CF doctor. I wanted a good team approach to Andrew's care.
I know your pediatrician is a friend, so maybe you could explain that you are looking for good communication between doctors. You have the right to this and if your friend won't help you, I'm sure your CF doc could refer you to someone in your area.
Good luck!
OK Em... two things:
1) you sort of heard it second hand... no offense to your wonderful husband, but men in general hear thing differently than women... so It's possible that his interpretation was different than yours might have been, or like you said it could have more to do with what the doctor is going through personally. Who know but for reason number two (to follow) it's not really important anyway
2) it is always a good idea to start with the preventative stuff, and if at some point you decide to back off of it I suppose that would be an options -- didn't you start this now because of a cold or RSV or something out of the ordinary right now anyway?..... here's the thing... anytime you can talk your insurance company out of getting a vest, it's a good thing!
We didn't get a vest and start treatment with our son until he turned 21 years old! We didn't even know he had the genes until he was 18 and he didn't have any symptoms until 21.... so when he did start with some symptoms, the CF doctor thought it was possible we were dealing with allergies and exposure to mold spores, not necessarily CF symptoms... so he wanted to hold off on prescribing the vest until he saw if the pulmozyme and moving him out of the basement would make a difference... well.... when I mentioned his health insurance coverage was about to drop and go to Medicaid only....the doctor ordered the vest right then ... now that we have seen a decrease in symptoms and an increase in lung function (to the tune of 11%) the doctor wouldn't even consider letting him go from two times a day to one time a day on the vest, let alone drop it all together.... so anyway.... after all that rambling.... my point is who cares if the pediatrician isn't completely on board with what the CF docs say.... just do it and keep a good rapport with both doctors... <b>I'm sure you can swing it</b>, cuz I know you and you are that good
Sorry for being so blunt... I've had a couple of drinks tonight with dinner so my "politically correct and nice" filters are gone hahahah.
1) you sort of heard it second hand... no offense to your wonderful husband, but men in general hear thing differently than women... so It's possible that his interpretation was different than yours might have been, or like you said it could have more to do with what the doctor is going through personally. Who know but for reason number two (to follow) it's not really important anyway
2) it is always a good idea to start with the preventative stuff, and if at some point you decide to back off of it I suppose that would be an options -- didn't you start this now because of a cold or RSV or something out of the ordinary right now anyway?..... here's the thing... anytime you can talk your insurance company out of getting a vest, it's a good thing!
We didn't get a vest and start treatment with our son until he turned 21 years old! We didn't even know he had the genes until he was 18 and he didn't have any symptoms until 21.... so when he did start with some symptoms, the CF doctor thought it was possible we were dealing with allergies and exposure to mold spores, not necessarily CF symptoms... so he wanted to hold off on prescribing the vest until he saw if the pulmozyme and moving him out of the basement would make a difference... well.... when I mentioned his health insurance coverage was about to drop and go to Medicaid only....the doctor ordered the vest right then ... now that we have seen a decrease in symptoms and an increase in lung function (to the tune of 11%) the doctor wouldn't even consider letting him go from two times a day to one time a day on the vest, let alone drop it all together.... so anyway.... after all that rambling.... my point is who cares if the pediatrician isn't completely on board with what the CF docs say.... just do it and keep a good rapport with both doctors... <b>I'm sure you can swing it
</b>, cuz I know you and you are that good Sorry for being so blunt... I've had a couple of drinks tonight with dinner so my "politically correct and nice" filters are gone
hahahah.OK Em... two things:
1) you sort of heard it second hand... no offense to your wonderful husband, but men in general hear thing differently than women... so It's possible that his interpretation was different than yours might have been, or like you said it could have more to do with what the doctor is going through personally. Who know but for reason number two (to follow) it's not really important anyway
2) it is always a good idea to start with the preventative stuff, and if at some point you decide to back off of it I suppose that would be an options -- didn't you start this now because of a cold or RSV or something out of the ordinary right now anyway?..... here's the thing... anytime you can talk your insurance company out of getting a vest, it's a good thing!
We didn't get a vest and start treatment with our son until he turned 21 years old! We didn't even know he had the genes until he was 18 and he didn't have any symptoms until 21.... so when he did start with some symptoms, the CF doctor thought it was possible we were dealing with allergies and exposure to mold spores, not necessarily CF symptoms... so he wanted to hold off on prescribing the vest until he saw if the pulmozyme and moving him out of the basement would make a difference... well.... when I mentioned his health insurance coverage was about to drop and go to Medicaid only....the doctor ordered the vest right then ... now that we have seen a decrease in symptoms and an increase in lung function (to the tune of 11%) the doctor wouldn't even consider letting him go from two times a day to one time a day on the vest, let alone drop it all together.... so anyway.... after all that rambling.... my point is who cares if the pediatrician isn't completely on board with what the CF docs say.... just do it and keep a good rapport with both doctors... <b>I'm sure you can swing it</b>, cuz I know you and you are that good
Sorry for being so blunt... I've had a couple of drinks tonight with dinner so my "politically correct and nice" filters are gone hahahah.
1) you sort of heard it second hand... no offense to your wonderful husband, but men in general hear thing differently than women... so It's possible that his interpretation was different than yours might have been, or like you said it could have more to do with what the doctor is going through personally. Who know but for reason number two (to follow) it's not really important anyway
2) it is always a good idea to start with the preventative stuff, and if at some point you decide to back off of it I suppose that would be an options -- didn't you start this now because of a cold or RSV or something out of the ordinary right now anyway?..... here's the thing... anytime you can talk your insurance company out of getting a vest, it's a good thing!
We didn't get a vest and start treatment with our son until he turned 21 years old! We didn't even know he had the genes until he was 18 and he didn't have any symptoms until 21.... so when he did start with some symptoms, the CF doctor thought it was possible we were dealing with allergies and exposure to mold spores, not necessarily CF symptoms... so he wanted to hold off on prescribing the vest until he saw if the pulmozyme and moving him out of the basement would make a difference... well.... when I mentioned his health insurance coverage was about to drop and go to Medicaid only....the doctor ordered the vest right then ... now that we have seen a decrease in symptoms and an increase in lung function (to the tune of 11%) the doctor wouldn't even consider letting him go from two times a day to one time a day on the vest, let alone drop it all together.... so anyway.... after all that rambling.... my point is who cares if the pediatrician isn't completely on board with what the CF docs say.... just do it and keep a good rapport with both doctors... <b>I'm sure you can swing it
</b>, cuz I know you and you are that good Sorry for being so blunt... I've had a couple of drinks tonight with dinner so my "politically correct and nice" filters are gone
hahahah.OK Em... two things:
1) you sort of heard it second hand... no offense to your wonderful husband, but men in general hear thing differently than women... so It's possible that his interpretation was different than yours might have been, or like you said it could have more to do with what the doctor is going through personally. Who know but for reason number two (to follow) it's not really important anyway
2) it is always a good idea to start with the preventative stuff, and if at some point you decide to back off of it I suppose that would be an options -- didn't you start this now because of a cold or RSV or something out of the ordinary right now anyway?..... here's the thing... anytime you can talk your insurance company out of getting a vest, it's a good thing!
We didn't get a vest and start treatment with our son until he turned 21 years old! We didn't even know he had the genes until he was 18 and he didn't have any symptoms until 21.... so when he did start with some symptoms, the CF doctor thought it was possible we were dealing with allergies and exposure to mold spores, not necessarily CF symptoms... so he wanted to hold off on prescribing the vest until he saw if the pulmozyme and moving him out of the basement would make a difference... well.... when I mentioned his health insurance coverage was about to drop and go to Medicaid only....the doctor ordered the vest right then ... now that we have seen a decrease in symptoms and an increase in lung function (to the tune of 11%) the doctor wouldn't even consider letting him go from two times a day to one time a day on the vest, let alone drop it all together.... so anyway.... after all that rambling.... my point is who cares if the pediatrician isn't completely on board with what the CF docs say.... just do it and keep a good rapport with both doctors... <b>I'm sure you can swing it</b>, cuz I know you and you are that good
Sorry for being so blunt... I've had a couple of drinks tonight with dinner so my "politically correct and nice" filters are gone hahahah.
1) you sort of heard it second hand... no offense to your wonderful husband, but men in general hear thing differently than women... so It's possible that his interpretation was different than yours might have been, or like you said it could have more to do with what the doctor is going through personally. Who know but for reason number two (to follow) it's not really important anyway
2) it is always a good idea to start with the preventative stuff, and if at some point you decide to back off of it I suppose that would be an options -- didn't you start this now because of a cold or RSV or something out of the ordinary right now anyway?..... here's the thing... anytime you can talk your insurance company out of getting a vest, it's a good thing!
We didn't get a vest and start treatment with our son until he turned 21 years old! We didn't even know he had the genes until he was 18 and he didn't have any symptoms until 21.... so when he did start with some symptoms, the CF doctor thought it was possible we were dealing with allergies and exposure to mold spores, not necessarily CF symptoms... so he wanted to hold off on prescribing the vest until he saw if the pulmozyme and moving him out of the basement would make a difference... well.... when I mentioned his health insurance coverage was about to drop and go to Medicaid only....the doctor ordered the vest right then ... now that we have seen a decrease in symptoms and an increase in lung function (to the tune of 11%) the doctor wouldn't even consider letting him go from two times a day to one time a day on the vest, let alone drop it all together.... so anyway.... after all that rambling.... my point is who cares if the pediatrician isn't completely on board with what the CF docs say.... just do it and keep a good rapport with both doctors... <b>I'm sure you can swing it
</b>, cuz I know you and you are that good Sorry for being so blunt... I've had a couple of drinks tonight with dinner so my "politically correct and nice" filters are gone
hahahah.OK Em... two things:
1) you sort of heard it second hand... no offense to your wonderful husband, but men in general hear thing differently than women... so It's possible that his interpretation was different than yours might have been, or like you said it could have more to do with what the doctor is going through personally. Who know but for reason number two (to follow) it's not really important anyway
2) it is always a good idea to start with the preventative stuff, and if at some point you decide to back off of it I suppose that would be an options -- didn't you start this now because of a cold or RSV or something out of the ordinary right now anyway?..... here's the thing... anytime you can talk your insurance company out of getting a vest, it's a good thing!
We didn't get a vest and start treatment with our son until he turned 21 years old! We didn't even know he had the genes until he was 18 and he didn't have any symptoms until 21.... so when he did start with some symptoms, the CF doctor thought it was possible we were dealing with allergies and exposure to mold spores, not necessarily CF symptoms... so he wanted to hold off on prescribing the vest until he saw if the pulmozyme and moving him out of the basement would make a difference... well.... when I mentioned his health insurance coverage was about to drop and go to Medicaid only....the doctor ordered the vest right then ... now that we have seen a decrease in symptoms and an increase in lung function (to the tune of 11%) the doctor wouldn't even consider letting him go from two times a day to one time a day on the vest, let alone drop it all together.... so anyway.... after all that rambling.... my point is who cares if the pediatrician isn't completely on board with what the CF docs say.... just do it and keep a good rapport with both doctors... <b>I'm sure you can swing it</b>, cuz I know you and you are that good
Sorry for being so blunt... I've had a couple of drinks tonight with dinner so my "politically correct and nice" filters are gone hahahah.
1) you sort of heard it second hand... no offense to your wonderful husband, but men in general hear thing differently than women... so It's possible that his interpretation was different than yours might have been, or like you said it could have more to do with what the doctor is going through personally. Who know but for reason number two (to follow) it's not really important anyway
2) it is always a good idea to start with the preventative stuff, and if at some point you decide to back off of it I suppose that would be an options -- didn't you start this now because of a cold or RSV or something out of the ordinary right now anyway?..... here's the thing... anytime you can talk your insurance company out of getting a vest, it's a good thing!
We didn't get a vest and start treatment with our son until he turned 21 years old! We didn't even know he had the genes until he was 18 and he didn't have any symptoms until 21.... so when he did start with some symptoms, the CF doctor thought it was possible we were dealing with allergies and exposure to mold spores, not necessarily CF symptoms... so he wanted to hold off on prescribing the vest until he saw if the pulmozyme and moving him out of the basement would make a difference... well.... when I mentioned his health insurance coverage was about to drop and go to Medicaid only....the doctor ordered the vest right then ... now that we have seen a decrease in symptoms and an increase in lung function (to the tune of 11%) the doctor wouldn't even consider letting him go from two times a day to one time a day on the vest, let alone drop it all together.... so anyway.... after all that rambling.... my point is who cares if the pediatrician isn't completely on board with what the CF docs say.... just do it and keep a good rapport with both doctors... <b>I'm sure you can swing it
</b>, cuz I know you and you are that good Sorry for being so blunt... I've had a couple of drinks tonight with dinner so my "politically correct and nice" filters are gone
hahahah.OK Em... two things:
1) you sort of heard it second hand... no offense to your wonderful husband, but men in general hear thing differently than women... so It's possible that his interpretation was different than yours might have been, or like you said it could have more to do with what the doctor is going through personally. Who know but for reason number two (to follow) it's not really important anyway
2) it is always a good idea to start with the preventative stuff, and if at some point you decide to back off of it I suppose that would be an options -- didn't you start this now because of a cold or RSV or something out of the ordinary right now anyway?..... here's the thing... anytime you can talk your insurance company out of getting a vest, it's a good thing!
We didn't get a vest and start treatment with our son until he turned 21 years old! We didn't even know he had the genes until he was 18 and he didn't have any symptoms until 21.... so when he did start with some symptoms, the CF doctor thought it was possible we were dealing with allergies and exposure to mold spores, not necessarily CF symptoms... so he wanted to hold off on prescribing the vest until he saw if the pulmozyme and moving him out of the basement would make a difference... well.... when I mentioned his health insurance coverage was about to drop and go to Medicaid only....the doctor ordered the vest right then ... now that we have seen a decrease in symptoms and an increase in lung function (to the tune of 11%) the doctor wouldn't even consider letting him go from two times a day to one time a day on the vest, let alone drop it all together.... so anyway.... after all that rambling.... my point is who cares if the pediatrician isn't completely on board with what the CF docs say.... just do it and keep a good rapport with both doctors... <b>I'm sure you can swing it</b>, cuz I know you and you are that good
Sorry for being so blunt... I've had a couple of drinks tonight with dinner so my "politically correct and nice" filters are gone hahahah.
1) you sort of heard it second hand... no offense to your wonderful husband, but men in general hear thing differently than women... so It's possible that his interpretation was different than yours might have been, or like you said it could have more to do with what the doctor is going through personally. Who know but for reason number two (to follow) it's not really important anyway
2) it is always a good idea to start with the preventative stuff, and if at some point you decide to back off of it I suppose that would be an options -- didn't you start this now because of a cold or RSV or something out of the ordinary right now anyway?..... here's the thing... anytime you can talk your insurance company out of getting a vest, it's a good thing!
We didn't get a vest and start treatment with our son until he turned 21 years old! We didn't even know he had the genes until he was 18 and he didn't have any symptoms until 21.... so when he did start with some symptoms, the CF doctor thought it was possible we were dealing with allergies and exposure to mold spores, not necessarily CF symptoms... so he wanted to hold off on prescribing the vest until he saw if the pulmozyme and moving him out of the basement would make a difference... well.... when I mentioned his health insurance coverage was about to drop and go to Medicaid only....the doctor ordered the vest right then ... now that we have seen a decrease in symptoms and an increase in lung function (to the tune of 11%) the doctor wouldn't even consider letting him go from two times a day to one time a day on the vest, let alone drop it all together.... so anyway.... after all that rambling.... my point is who cares if the pediatrician isn't completely on board with what the CF docs say.... just do it and keep a good rapport with both doctors... <b>I'm sure you can swing it
</b>, cuz I know you and you are that good Sorry for being so blunt... I've had a couple of drinks tonight with dinner so my "politically correct and nice" filters are gone
hahahah.Didn't think you were blunt at all Alyssa! Thanks for the pep-talk. I was really considering just totally flaking out about it all!
I don't want to back off of her preventative treatments.
Here's another question:
How do you determine what is "need to know" for the pedi and what isn't? How much do you share?
Hum....all great thoughts. Keeping good relationships with both should be easy. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Em
I don't want to back off of her preventative treatments.
Here's another question:
How do you determine what is "need to know" for the pedi and what isn't? How much do you share?
Hum....all great thoughts. Keeping good relationships with both should be easy. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Em
Didn't think you were blunt at all Alyssa! Thanks for the pep-talk. I was really considering just totally flaking out about it all!
I don't want to back off of her preventative treatments.
Here's another question:
How do you determine what is "need to know" for the pedi and what isn't? How much do you share?
Hum....all great thoughts. Keeping good relationships with both should be easy. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Em
I don't want to back off of her preventative treatments.
Here's another question:
How do you determine what is "need to know" for the pedi and what isn't? How much do you share?
Hum....all great thoughts. Keeping good relationships with both should be easy. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Em
Didn't think you were blunt at all Alyssa! Thanks for the pep-talk. I was really considering just totally flaking out about it all!
I don't want to back off of her preventative treatments.
Here's another question:
How do you determine what is "need to know" for the pedi and what isn't? How much do you share?
Hum....all great thoughts. Keeping good relationships with both should be easy. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Em
I don't want to back off of her preventative treatments.
Here's another question:
How do you determine what is "need to know" for the pedi and what isn't? How much do you share?
Hum....all great thoughts. Keeping good relationships with both should be easy. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Em
Didn't think you were blunt at all Alyssa! Thanks for the pep-talk. I was really considering just totally flaking out about it all!
I don't want to back off of her preventative treatments.
Here's another question:
How do you determine what is "need to know" for the pedi and what isn't? How much do you share?
Hum....all great thoughts. Keeping good relationships with both should be easy. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Em
I don't want to back off of her preventative treatments.
Here's another question:
How do you determine what is "need to know" for the pedi and what isn't? How much do you share?
Hum....all great thoughts. Keeping good relationships with both should be easy. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Em
Didn't think you were blunt at all Alyssa! Thanks for the pep-talk. I was really considering just totally flaking out about it all!
I don't want to back off of her preventative treatments.
Here's another question:
How do you determine what is "need to know" for the pedi and what isn't? How much do you share?
Hum....all great thoughts. Keeping good relationships with both should be easy. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Em
I don't want to back off of her preventative treatments.
Here's another question:
How do you determine what is "need to know" for the pedi and what isn't? How much do you share?
Hum....all great thoughts. Keeping good relationships with both should be easy. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Em