For us the issue is all the meds DS is on, prescribed by his CF doctor in the City 250 miles away. Every time we have a well child appointment they verify what meds he's on and there's usually a question as to why he's on septra and another antibiotic. Can't really hide those things. We just go to the local cf/peds doctor a few times a year, have him checked over, lab work, culutures and forward the info on to his CF doctor in the City. I've gotten to frustrated in the past with his care locally and I just want to get in and out quickly. If I have a question, I can call the city and either the doctor's service will have him call me back personally or I can visit with his nurse and she'll get back to us right away.
You're fortunate that you have a rapport with her peds doctor. When DS was first diagnosed, his primary doctor said he'd try to do some checking for us, find someone locally. He did check out our peds doctor and said, "I guess he'll be okay" and I swear under his breath said, though I've gotten burned before. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I think the comment at the time was that some people consider the 3 1/2 hour drive a commute if their child is sick. That should've been a major clue that we weren't going to have much luck with finding someone who could work well with everyone involved in DS' care.
Maybe the peds doctor was just thinking in the best interest of you as parents -- thinking that you've got a lot on your plate and if you don't need to spend time doing treatments, you shouldn't do so. Me personally, I'd continue the treatments. If you're asked, you can just say you want to do every thing possible to insure that your daughter's lungs remain healthy.
You're fortunate that you have a rapport with her peds doctor. When DS was first diagnosed, his primary doctor said he'd try to do some checking for us, find someone locally. He did check out our peds doctor and said, "I guess he'll be okay" and I swear under his breath said, though I've gotten burned before. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I think the comment at the time was that some people consider the 3 1/2 hour drive a commute if their child is sick. That should've been a major clue that we weren't going to have much luck with finding someone who could work well with everyone involved in DS' care.
Maybe the peds doctor was just thinking in the best interest of you as parents -- thinking that you've got a lot on your plate and if you don't need to spend time doing treatments, you shouldn't do so. Me personally, I'd continue the treatments. If you're asked, you can just say you want to do every thing possible to insure that your daughter's lungs remain healthy.