Vest questions/opinions

[lilmac7]

I am trying to get financing for the vest and have to do a letter to an organization on why I feel it will be beneficial for me. I feel that it will help to make the regimen allot more manageable therefore it is more likely that I will do the therapy daily and more effectively rather than every now and then when I have time and/or have someone to do the patting/pounding for me. And also I've heard it'll save time because it doesn't take as long as manual CPT plus it can be combined while doing nebulizer treatments.
Anyway, I just wanted some input from you all who use it on ow it has helped improve your life daily and over the years. Thanx

 

[lilmac7]

I am trying to get financing for the vest and have to do a letter to an organization on why I feel it will be beneficial for me. I feel that it will help to make the regimen allot more manageable therefore it is more likely that I will do the therapy daily and more effectively rather than every now and then when I have time and/or have someone to do the patting/pounding for me. And also I've heard it'll save time because it doesn't take as long as manual CPT plus it can be combined while doing nebulizer treatments.
Anyway, I just wanted some input from you all who use it on ow it has helped improve your life daily and over the years. Thanx

 

[lilmac7]

I am trying to get financing for the vest and have to do a letter to an organization on why I feel it will be beneficial for me. I feel that it will help to make the regimen allot more manageable therefore it is more likely that I will do the therapy daily and more effectively rather than every now and then when I have time and/or have someone to do the patting/pounding for me. And also I've heard it'll save time because it doesn't take as long as manual CPT plus it can be combined while doing nebulizer treatments.
Anyway, I just wanted some input from you all who use it on ow it has helped improve your life daily and over the years. Thanx

 

[catboogie]

go to the hill rom, smart vest and incourage system's websites and see what they tout is good about their product. i know that it has been proven that the vest therapy produces more sputum from patients than manual cpt. what kind of vest are you thinking of getting?

 

[catboogie]

go to the hill rom, smart vest and incourage system's websites and see what they tout is good about their product. i know that it has been proven that the vest therapy produces more sputum from patients than manual cpt. what kind of vest are you thinking of getting?

 

[catboogie]

go to the hill rom, smart vest and incourage system's websites and see what they tout is good about their product. i know that it has been proven that the vest therapy produces more sputum from patients than manual cpt. what kind of vest are you thinking of getting?

 

[MCPappy]

I absoutly swear by the vest. I had to flutter for about 6 months when i was first diagnosed at age 14 and then my brother and I got a vest to share. The vest is really helpful and I think it does the best job out of any of the options out there. Two suggestions that I would have to add into your letter would be if you use the HS it works really well in combination with the vest because you can be inhaling the HS and shaking at the same time which helps bring up a whole bunch of stuff. Also the one thing that i did remember when i had to use the flutter was that when I got sick (and needed the treatment the most) it was really difficult to do and I was not able to sit there and blow hard enough to make the flutter do anything. With the vest you dont have to put in any effort, so when you are drained from being sick and can barley make it up the stairs being able to strap on the vest and just sit there is really nice.

I know that some people dont like using the vest though. Have you had the chance to use one either at clinic or while in the hospital? I would definatly make sure you like it before getting one, since you dont want to waste it =)

Hope the suggestions help =) and I hope that your financing goes through =)

<3 Melissa
PS Im vesting right now =) Its a great amount of time twice a day to go online =)

 

[MCPappy]

I absoutly swear by the vest. I had to flutter for about 6 months when i was first diagnosed at age 14 and then my brother and I got a vest to share. The vest is really helpful and I think it does the best job out of any of the options out there. Two suggestions that I would have to add into your letter would be if you use the HS it works really well in combination with the vest because you can be inhaling the HS and shaking at the same time which helps bring up a whole bunch of stuff. Also the one thing that i did remember when i had to use the flutter was that when I got sick (and needed the treatment the most) it was really difficult to do and I was not able to sit there and blow hard enough to make the flutter do anything. With the vest you dont have to put in any effort, so when you are drained from being sick and can barley make it up the stairs being able to strap on the vest and just sit there is really nice.

I know that some people dont like using the vest though. Have you had the chance to use one either at clinic or while in the hospital? I would definatly make sure you like it before getting one, since you dont want to waste it =)

Hope the suggestions help =) and I hope that your financing goes through =)

<3 Melissa
PS Im vesting right now =) Its a great amount of time twice a day to go online =)

 

[MCPappy]

I absoutly swear by the vest. I had to flutter for about 6 months when i was first diagnosed at age 14 and then my brother and I got a vest to share. The vest is really helpful and I think it does the best job out of any of the options out there. Two suggestions that I would have to add into your letter would be if you use the HS it works really well in combination with the vest because you can be inhaling the HS and shaking at the same time which helps bring up a whole bunch of stuff. Also the one thing that i did remember when i had to use the flutter was that when I got sick (and needed the treatment the most) it was really difficult to do and I was not able to sit there and blow hard enough to make the flutter do anything. With the vest you dont have to put in any effort, so when you are drained from being sick and can barley make it up the stairs being able to strap on the vest and just sit there is really nice.

I know that some people dont like using the vest though. Have you had the chance to use one either at clinic or while in the hospital? I would definatly make sure you like it before getting one, since you dont want to waste it =)

Hope the suggestions help =) and I hope that your financing goes through =)

<3 Melissa
PS Im vesting right now =) Its a great amount of time twice a day to go online =)

 

[lilmac7]

Melissa,
Not sure what kind they would get, I believe its "TheVest" one. It's basically a CF Trust that was set up here where I live (Grand Cayman, Cayman Islands) that I am trying to get help with funding from. A lady that is affiliated with the trust (how exactly I'm not sure) is going to present it to the board to see if they'll donate it to me. She has a daughter w/cf who recently got a vest (which she and her husband paid for it on their own and are trying to claim back from insurance). She says it's a real time saver and allows for them to give her daughter the CPT, or at least let the maid set it up for her daughter after school when they are still working, she realised it must be extremely hard for us older cfer's trying to keep a fulltime job and do all the treatments, exercise, etc. So she's trying for me <img src="i/expressions/face-icon-small-smile.gif" border="0">
I really dont care what model I get, any brand will have to do, but I believe that's the one she'll go for as she has contacts with them and has already set up with them for special pricing. I've never tried one but Im sure it will work fine for me.

Thanx for your reply

 

[lilmac7]

Melissa,
Not sure what kind they would get, I believe its "TheVest" one. It's basically a CF Trust that was set up here where I live (Grand Cayman, Cayman Islands) that I am trying to get help with funding from. A lady that is affiliated with the trust (how exactly I'm not sure) is going to present it to the board to see if they'll donate it to me. She has a daughter w/cf who recently got a vest (which she and her husband paid for it on their own and are trying to claim back from insurance). She says it's a real time saver and allows for them to give her daughter the CPT, or at least let the maid set it up for her daughter after school when they are still working, she realised it must be extremely hard for us older cfer's trying to keep a fulltime job and do all the treatments, exercise, etc. So she's trying for me <img src="i/expressions/face-icon-small-smile.gif" border="0">
I really dont care what model I get, any brand will have to do, but I believe that's the one she'll go for as she has contacts with them and has already set up with them for special pricing. I've never tried one but Im sure it will work fine for me.

Thanx for your reply

 

[lilmac7]

Melissa,
Not sure what kind they would get, I believe its "TheVest" one. It's basically a CF Trust that was set up here where I live (Grand Cayman, Cayman Islands) that I am trying to get help with funding from. A lady that is affiliated with the trust (how exactly I'm not sure) is going to present it to the board to see if they'll donate it to me. She has a daughter w/cf who recently got a vest (which she and her husband paid for it on their own and are trying to claim back from insurance). She says it's a real time saver and allows for them to give her daughter the CPT, or at least let the maid set it up for her daughter after school when they are still working, she realised it must be extremely hard for us older cfer's trying to keep a fulltime job and do all the treatments, exercise, etc. So she's trying for me <img src="i/expressions/face-icon-small-smile.gif" border="0">
I really dont care what model I get, any brand will have to do, but I believe that's the one she'll go for as she has contacts with them and has already set up with them for special pricing. I've never tried one but Im sure it will work fine for me.

Thanx for your reply

 

[Scarlett81]

I've been told my improvement from the vest is more unusual than usual, but by learning the correct technique to use when doing the vest-in 2 years my pfts improved by 45% roughly, and I'm now able to consider getting pregnant. I think mine is an extreme case, but anything's possible.

 

[Scarlett81]

I've been told my improvement from the vest is more unusual than usual, but by learning the correct technique to use when doing the vest-in 2 years my pfts improved by 45% roughly, and I'm now able to consider getting pregnant. I think mine is an extreme case, but anything's possible.

 

[Scarlett81]

I've been told my improvement from the vest is more unusual than usual, but by learning the correct technique to use when doing the vest-in 2 years my pfts improved by 45% roughly, and I'm now able to consider getting pregnant. I think mine is an extreme case, but anything's possible.

 

[lilmac7]

Christian,
What were your pft's before if you dont mind me asking and for how long did they stay at that level before you started using the vest?

 

[lilmac7]

Christian,
What were your pft's before if you dont mind me asking and for how long did they stay at that level before you started using the vest?

 

[lilmac7]

Christian,
What were your pft's before if you dont mind me asking and for how long did they stay at that level before you started using the vest?

 

[Scarlett81]

I should clarify-I've always used the vest-that is, since I was 14 I've used it. Prior to that I had chest clapping from mom.
But I was taught to just sit with it on, and not really actively participate in coughing to bring up mucus. I started with my new doctor 2 years ago-my pfts were (roughly) FEV1-45-50%. Now my FEV1 is 75%. But I am very strict about my therapies-specifically the coughing technique St. Vincent's taught me.

 

[Scarlett81]

I should clarify-I've always used the vest-that is, since I was 14 I've used it. Prior to that I had chest clapping from mom.
But I was taught to just sit with it on, and not really actively participate in coughing to bring up mucus. I started with my new doctor 2 years ago-my pfts were (roughly) FEV1-45-50%. Now my FEV1 is 75%. But I am very strict about my therapies-specifically the coughing technique St. Vincent's taught me.