Hello Sherry and Ashley,
I completely understand how you're feeling. When my son was a baby, his weight was in the 5th percentile at the time he was diagnosed with CF. He's now a college student and doing great; however, digestion and weight gain is always a challenge.
When my son was very young, the doctors recommended high calorie nutrition beverages, but my husband and I just hated the quality of ingredients and the artificial flavors and colors. Since CF kids have serious digestion challenges, the last thing their little bodies need to deal with is dyes, chemicals and low quality ingredients.
Twelve years ago we launched an organic medical food company and introduced the very first organic baby formula in the US. We now have three organic toddler formulas called Baby's Only Organic (available in dairy, soy, & lactose free) that may be appropriate for your babies. We most recently introduced a vanilla and chocolate complete nutrition beverage called PediaSmart. This beverage may also be appropriate if your baby is older than 12-months as PediaSmart is recommended for kids 1 to 13 years of age. Bryce has been drinking PediaSmart to help supplement his diet for several years and has successfully gained weight. PediaSmart is nutritionally comparable to PediaSure and Boost Kid Essentials.
If you are interested in these products, our company offers a 30% medical hardship discount for kids with CF (and other serious medical conditions) as well as free shipping. The products are also available through the CF Pharmacy and can be covered by Medicaid and PediaSmart is WIC eligible. The products can be purchased through medical suppliers and retail stores like Whole Foods.
I apologize for sounding like a commercial, but I believe our organic products may truly help your situation. Please feel free to give me a call or talk with our Dietitian or Health Services Coordinator. We regularly talk with CF Moms and Dads and are happy to help in any way possible.
1-888-227-7122
www.NaturesOne.com