My3wsonsljj
New member
Hello, I am a mother of twins with cf. They are 8 yrs old and they weigh 44 lbs. We just had our clinic visit and our dr is still suggesting a gtube for the boys. I wanted to know if there is anyone our there that has had weight gain with one. We have tried everything to put weight on them. I feel like I am at the end with this. I am so tired of trying to add fat to everything and making sure they eat everything on their plate. Making sure they always have a snack. I think I am just tired and stressed. I was wondering also what everyones routines are like with their cf child. Ex. what meds through the day, how many treatments, vest to manual cpt, what types of breathing meds, neb meds or inhalers. Sometimes I just feel like we are not doing what everyone else does and I just wanted to find out what your cf schedule is like. Our boys do two treatments per day(vest) with a neb of pulmozyme. They do TOBI 30 days on and 30 days off(a neb treatment), they have inhalers for their albuterol and flovent, they take 3 ultrase mt 12 with meals and 2 with snacks, vitamins adek and a weight gain med called magaze(spelling?) and one takes a med for irritial bowel, he has a lot more stomach issues than the other. I know that is enough. Lord knows sometimes I don't know how we get it all in. I was just wondering what everyone else went through in a day. If you have any weight gain suggestions I would love to hear it. I am usually so upbeat with their cf because they are pretty healthy.(As healthy as you can be with CF) but, I have been so depressed with all this lately. I know everyone here knows what that is like. Any help would be great
Mom to 3 sons
twins with cf
single with out cf
Mom to 3 sons
twins with cf
single with out cf