madisonsmom
New member
Breezy,
Thank you for your caring words.
kathy
Thank you for your caring words.
kathy
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We're back from evaluation
- Thread starter Liza
- Start date
madisonsmom
New member
Breezy,
Thank you for your caring words.
kathy
Thank you for your caring words.
kathy
Well the day is finally coming, tomorrow. Anna will be on her way to Stanford. Did I mention that yesterday was a good day?! She went and got her filling done and then we went to Michael's. Everyone know's what Michael's is right? I'm guessing they are all over the US, the craft store? Anyhow, we were there for at least an hour. She's decided to make necklaces and bracelets to pass the time. I have a scrap book to finish. <img src="i/expressions/face-icon-small-blush.gif" border="0"> her senior one <img src="i/expressions/face-icon-small-blush.gif" border="0"> I have about 6 pages or so to go on that one. Then I am supposed to start Rachel's. Have you guys ever had half your post just dissappear? That just happened! OK, I'll try and remember what I just typed. Oh... I just remembered that I have an e-bay payment I have to make. I bought some iron on "N's" (for the University of Nebraska) to put on Anna's hospital gowns. Maybe I'll take up knitting if I actually get those scrap books finished. Do you think time will really allow me to finish all these things? Today was a good day too. We went to Grapevine Mills Mall (outlet), just two stores but that was good. Anna got tired out on the walk back to the car. I wanted to bring the car closer but that would have required me to drive up on the sidewalk between the theater and the mall doors, they probably wouldn't have liked that too much. It turned windy and a bit colder in the hour or so we were in the mall. She recovered fairly quickly. She got her handicap packard in the mail just before she went into the hospital so we were able to park close but the walk was still a bit. Her pain seems to be managed. Only one pain dose at 5:30am, and then at 3:00pm when we got home from the mall. Tonight she is at the movies with a friend. We had gone to her babyshower (the friend) on Sunday and Anna hadn't had a chance to talk with her much. Being away from school means not having many friends around. That's a tough thing. So, we've had two good days in a row <img src="i/expressions/face-icon-small-smile.gif" border="0"> ! I'll be flying outta here on Friday sometime. It seems like I have a ton of things to do yet. Get the dog his shots, reserve a kennel, repack and wash the last minute things and get a box or two in the mail. Oh, and spend some time with Rachel! We did get good news yesterday though... the phone call from Anna's transplant caseworker saying that the insurance has approved it all, and that in the event that lungs became available last night or today, reserving a chartered flight. That one kinda confused us but we said, OK. I am beginnning to feel like things are coming along now. False sense of "comfort"? I hope not. How nice it would be to not have a very long wait.
Lisa, seeing Anna get so tired today gave me a look at what you must see when watching Kari try to give her little one a birthday party. I know you must be counting down the days to her appt. I will have that day etched in my mind sending good thoughts and vibes that everything goes well. I think of you and Kari and wonder each day how she is doing. From what I understand they will not actually list Anna until we are there in CA. So they are just waiting for us to get there to put her on the list. I think... I'm fairly positive.
Kathy, I am so glad to hear that Maddy is steady at the moment. 34% is still transplant level I think. When they had told Anna she was not ready her pft's were 42%. I think 40's are a no go but mid to low 30's are listing numbers. When is her appt? I know you mentioned it before but I can't remember. It's so nice to hear when they can do the normal things no matter how little or simple they may seem. Things most people take for granted mean so much to us. I am so sorry to hear about your uncle. My thoughts are with you and your family.
Well guys, I've got to get. I just know I"m going to forget to make that payment on e-bay! Oh, Breezy! I almost forgot, thanks so much for your thoughts. You really don't know how much it means to me. Tell us how you are doing. Your signature doesn't mention that you have CF, do you? I am not familiar with Bronchiatasis but will ask my husband about it when he gets home tonight. He's off at the monthly VFW meeting. If it weren't for our fellow veterans I don't know where we'd be going when we got to CA.
Before I forget... Lisa, did you guys do any fundraising for Kari's transplants? I haven't found the time to research COTA (?). Anna's social worker (from UNMC)really likes them and says they are great.
OK,now I"m really calling it a night! G'nite my friends.<img src="i/expressions/moon.gif" border="0">
Lisa, seeing Anna get so tired today gave me a look at what you must see when watching Kari try to give her little one a birthday party. I know you must be counting down the days to her appt. I will have that day etched in my mind sending good thoughts and vibes that everything goes well. I think of you and Kari and wonder each day how she is doing. From what I understand they will not actually list Anna until we are there in CA. So they are just waiting for us to get there to put her on the list. I think... I'm fairly positive.
Kathy, I am so glad to hear that Maddy is steady at the moment. 34% is still transplant level I think. When they had told Anna she was not ready her pft's were 42%. I think 40's are a no go but mid to low 30's are listing numbers. When is her appt? I know you mentioned it before but I can't remember. It's so nice to hear when they can do the normal things no matter how little or simple they may seem. Things most people take for granted mean so much to us. I am so sorry to hear about your uncle. My thoughts are with you and your family.
Well guys, I've got to get. I just know I"m going to forget to make that payment on e-bay! Oh, Breezy! I almost forgot, thanks so much for your thoughts. You really don't know how much it means to me. Tell us how you are doing. Your signature doesn't mention that you have CF, do you? I am not familiar with Bronchiatasis but will ask my husband about it when he gets home tonight. He's off at the monthly VFW meeting. If it weren't for our fellow veterans I don't know where we'd be going when we got to CA.
Before I forget... Lisa, did you guys do any fundraising for Kari's transplants? I haven't found the time to research COTA (?). Anna's social worker (from UNMC)really likes them and says they are great.
OK,now I"m really calling it a night! G'nite my friends.<img src="i/expressions/moon.gif" border="0">
Well the day is finally coming, tomorrow. Anna will be on her way to Stanford. Did I mention that yesterday was a good day?! She went and got her filling done and then we went to Michael's. Everyone know's what Michael's is right? I'm guessing they are all over the US, the craft store? Anyhow, we were there for at least an hour. She's decided to make necklaces and bracelets to pass the time. I have a scrap book to finish. <img src="i/expressions/face-icon-small-blush.gif" border="0"> her senior one <img src="i/expressions/face-icon-small-blush.gif" border="0"> I have about 6 pages or so to go on that one. Then I am supposed to start Rachel's. Have you guys ever had half your post just dissappear? That just happened! OK, I'll try and remember what I just typed. Oh... I just remembered that I have an e-bay payment I have to make. I bought some iron on "N's" (for the University of Nebraska) to put on Anna's hospital gowns. Maybe I'll take up knitting if I actually get those scrap books finished. Do you think time will really allow me to finish all these things? Today was a good day too. We went to Grapevine Mills Mall (outlet), just two stores but that was good. Anna got tired out on the walk back to the car. I wanted to bring the car closer but that would have required me to drive up on the sidewalk between the theater and the mall doors, they probably wouldn't have liked that too much. It turned windy and a bit colder in the hour or so we were in the mall. She recovered fairly quickly. She got her handicap packard in the mail just before she went into the hospital so we were able to park close but the walk was still a bit. Her pain seems to be managed. Only one pain dose at 5:30am, and then at 3:00pm when we got home from the mall. Tonight she is at the movies with a friend. We had gone to her babyshower (the friend) on Sunday and Anna hadn't had a chance to talk with her much. Being away from school means not having many friends around. That's a tough thing. So, we've had two good days in a row <img src="i/expressions/face-icon-small-smile.gif" border="0"> ! I'll be flying outta here on Friday sometime. It seems like I have a ton of things to do yet. Get the dog his shots, reserve a kennel, repack and wash the last minute things and get a box or two in the mail. Oh, and spend some time with Rachel! We did get good news yesterday though... the phone call from Anna's transplant caseworker saying that the insurance has approved it all, and that in the event that lungs became available last night or today, reserving a chartered flight. That one kinda confused us but we said, OK. I am beginnning to feel like things are coming along now. False sense of "comfort"? I hope not. How nice it would be to not have a very long wait.
Lisa, seeing Anna get so tired today gave me a look at what you must see when watching Kari try to give her little one a birthday party. I know you must be counting down the days to her appt. I will have that day etched in my mind sending good thoughts and vibes that everything goes well. I think of you and Kari and wonder each day how she is doing. From what I understand they will not actually list Anna until we are there in CA. So they are just waiting for us to get there to put her on the list. I think... I'm fairly positive.
Kathy, I am so glad to hear that Maddy is steady at the moment. 34% is still transplant level I think. When they had told Anna she was not ready her pft's were 42%. I think 40's are a no go but mid to low 30's are listing numbers. When is her appt? I know you mentioned it before but I can't remember. It's so nice to hear when they can do the normal things no matter how little or simple they may seem. Things most people take for granted mean so much to us. I am so sorry to hear about your uncle. My thoughts are with you and your family.
Well guys, I've got to get. I just know I"m going to forget to make that payment on e-bay! Oh, Breezy! I almost forgot, thanks so much for your thoughts. You really don't know how much it means to me. Tell us how you are doing. Your signature doesn't mention that you have CF, do you? I am not familiar with Bronchiatasis but will ask my husband about it when he gets home tonight. He's off at the monthly VFW meeting. If it weren't for our fellow veterans I don't know where we'd be going when we got to CA.
Before I forget... Lisa, did you guys do any fundraising for Kari's transplants? I haven't found the time to research COTA (?). Anna's social worker (from UNMC)really likes them and says they are great.
OK,now I"m really calling it a night! G'nite my friends.<img src="i/expressions/moon.gif" border="0">
Lisa, seeing Anna get so tired today gave me a look at what you must see when watching Kari try to give her little one a birthday party. I know you must be counting down the days to her appt. I will have that day etched in my mind sending good thoughts and vibes that everything goes well. I think of you and Kari and wonder each day how she is doing. From what I understand they will not actually list Anna until we are there in CA. So they are just waiting for us to get there to put her on the list. I think... I'm fairly positive.
Kathy, I am so glad to hear that Maddy is steady at the moment. 34% is still transplant level I think. When they had told Anna she was not ready her pft's were 42%. I think 40's are a no go but mid to low 30's are listing numbers. When is her appt? I know you mentioned it before but I can't remember. It's so nice to hear when they can do the normal things no matter how little or simple they may seem. Things most people take for granted mean so much to us. I am so sorry to hear about your uncle. My thoughts are with you and your family.
Well guys, I've got to get. I just know I"m going to forget to make that payment on e-bay! Oh, Breezy! I almost forgot, thanks so much for your thoughts. You really don't know how much it means to me. Tell us how you are doing. Your signature doesn't mention that you have CF, do you? I am not familiar with Bronchiatasis but will ask my husband about it when he gets home tonight. He's off at the monthly VFW meeting. If it weren't for our fellow veterans I don't know where we'd be going when we got to CA.
Before I forget... Lisa, did you guys do any fundraising for Kari's transplants? I haven't found the time to research COTA (?). Anna's social worker (from UNMC)really likes them and says they are great.
OK,now I"m really calling it a night! G'nite my friends.<img src="i/expressions/moon.gif" border="0">
Well the day is finally coming, tomorrow. Anna will be on her way to Stanford. Did I mention that yesterday was a good day?! She went and got her filling done and then we went to Michael's. Everyone know's what Michael's is right? I'm guessing they are all over the US, the craft store? Anyhow, we were there for at least an hour. She's decided to make necklaces and bracelets to pass the time. I have a scrap book to finish. <img src="i/expressions/face-icon-small-blush.gif" border="0"> her senior one <img src="i/expressions/face-icon-small-blush.gif" border="0"> I have about 6 pages or so to go on that one. Then I am supposed to start Rachel's. Have you guys ever had half your post just dissappear? That just happened! OK, I'll try and remember what I just typed. Oh... I just remembered that I have an e-bay payment I have to make. I bought some iron on "N's" (for the University of Nebraska) to put on Anna's hospital gowns. Maybe I'll take up knitting if I actually get those scrap books finished. Do you think time will really allow me to finish all these things? Today was a good day too. We went to Grapevine Mills Mall (outlet), just two stores but that was good. Anna got tired out on the walk back to the car. I wanted to bring the car closer but that would have required me to drive up on the sidewalk between the theater and the mall doors, they probably wouldn't have liked that too much. It turned windy and a bit colder in the hour or so we were in the mall. She recovered fairly quickly. She got her handicap packard in the mail just before she went into the hospital so we were able to park close but the walk was still a bit. Her pain seems to be managed. Only one pain dose at 5:30am, and then at 3:00pm when we got home from the mall. Tonight she is at the movies with a friend. We had gone to her babyshower (the friend) on Sunday and Anna hadn't had a chance to talk with her much. Being away from school means not having many friends around. That's a tough thing. So, we've had two good days in a row <img src="i/expressions/face-icon-small-smile.gif" border="0"> ! I'll be flying outta here on Friday sometime. It seems like I have a ton of things to do yet. Get the dog his shots, reserve a kennel, repack and wash the last minute things and get a box or two in the mail. Oh, and spend some time with Rachel! We did get good news yesterday though... the phone call from Anna's transplant caseworker saying that the insurance has approved it all, and that in the event that lungs became available last night or today, reserving a chartered flight. That one kinda confused us but we said, OK. I am beginnning to feel like things are coming along now. False sense of "comfort"? I hope not. How nice it would be to not have a very long wait.
Lisa, seeing Anna get so tired today gave me a look at what you must see when watching Kari try to give her little one a birthday party. I know you must be counting down the days to her appt. I will have that day etched in my mind sending good thoughts and vibes that everything goes well. I think of you and Kari and wonder each day how she is doing. From what I understand they will not actually list Anna until we are there in CA. So they are just waiting for us to get there to put her on the list. I think... I'm fairly positive.
Kathy, I am so glad to hear that Maddy is steady at the moment. 34% is still transplant level I think. When they had told Anna she was not ready her pft's were 42%. I think 40's are a no go but mid to low 30's are listing numbers. When is her appt? I know you mentioned it before but I can't remember. It's so nice to hear when they can do the normal things no matter how little or simple they may seem. Things most people take for granted mean so much to us. I am so sorry to hear about your uncle. My thoughts are with you and your family.
Well guys, I've got to get. I just know I"m going to forget to make that payment on e-bay! Oh, Breezy! I almost forgot, thanks so much for your thoughts. You really don't know how much it means to me. Tell us how you are doing. Your signature doesn't mention that you have CF, do you? I am not familiar with Bronchiatasis but will ask my husband about it when he gets home tonight. He's off at the monthly VFW meeting. If it weren't for our fellow veterans I don't know where we'd be going when we got to CA.
Before I forget... Lisa, did you guys do any fundraising for Kari's transplants? I haven't found the time to research COTA (?). Anna's social worker (from UNMC)really likes them and says they are great.
OK,now I"m really calling it a night! G'nite my friends.<img src="i/expressions/moon.gif" border="0">
Lisa, seeing Anna get so tired today gave me a look at what you must see when watching Kari try to give her little one a birthday party. I know you must be counting down the days to her appt. I will have that day etched in my mind sending good thoughts and vibes that everything goes well. I think of you and Kari and wonder each day how she is doing. From what I understand they will not actually list Anna until we are there in CA. So they are just waiting for us to get there to put her on the list. I think... I'm fairly positive.
Kathy, I am so glad to hear that Maddy is steady at the moment. 34% is still transplant level I think. When they had told Anna she was not ready her pft's were 42%. I think 40's are a no go but mid to low 30's are listing numbers. When is her appt? I know you mentioned it before but I can't remember. It's so nice to hear when they can do the normal things no matter how little or simple they may seem. Things most people take for granted mean so much to us. I am so sorry to hear about your uncle. My thoughts are with you and your family.
Well guys, I've got to get. I just know I"m going to forget to make that payment on e-bay! Oh, Breezy! I almost forgot, thanks so much for your thoughts. You really don't know how much it means to me. Tell us how you are doing. Your signature doesn't mention that you have CF, do you? I am not familiar with Bronchiatasis but will ask my husband about it when he gets home tonight. He's off at the monthly VFW meeting. If it weren't for our fellow veterans I don't know where we'd be going when we got to CA.
Before I forget... Lisa, did you guys do any fundraising for Kari's transplants? I haven't found the time to research COTA (?). Anna's social worker (from UNMC)really likes them and says they are great.
OK,now I"m really calling it a night! G'nite my friends.<img src="i/expressions/moon.gif" border="0">
liza and kathy,
WOW! i just wanted to tell you BOTH how much i thank god i have found you to talk to! i look forward every day to get my liza and kathy "fix"!!! it REALLY helps to have someone to talk to. someone who TRULY UNDERSTANDS!!! you are BOTH AWESOME! oh liza i hope that anna gets her lungs quickly. and the person that will be your main support will be Allison Rupp at Stanford. she is just SO WONDERFUL!!! kari and i really LOVE that girl. she is SO COOL! when you get there and meet her tell her we said hi! we did not have to do any fundraising, medi cal paid for all both times. kari and holli and their dad had to move down to Ca. so she could have them pay cuz nevada does not cover lungs yet. they live there and i live in reno, but it is only about 2 hrs from rocklin where they live. and my ex and i are BEST BEST friends which makes it so easy for all. well i have some good news! i am getting married tomorrow! on valentines day. no big deal we have been together for 12 yrs so its time. jut a j of the peace sort of deal but i am excited and nervous just the same. liza i have been meaning to ask about your other daughter, she has cf too? i feel bad that i never mention my holli jade but she has never been real sick and i forget that she has cf sometimes! she is 21 yrs old now and starting to have a few probs but nothing real bad YET. knock on wood. i have to get going but will write in a day or two, as always my prayers are with you ALL. keep us posted everyone ok?
Breezy THANKS for your thoughts and prayers. i want to get to know you as well soon ok?
take care all.
lisa <img src="i/expressions/rose.gif" border="0">
WOW! i just wanted to tell you BOTH how much i thank god i have found you to talk to! i look forward every day to get my liza and kathy "fix"!!! it REALLY helps to have someone to talk to. someone who TRULY UNDERSTANDS!!! you are BOTH AWESOME! oh liza i hope that anna gets her lungs quickly. and the person that will be your main support will be Allison Rupp at Stanford. she is just SO WONDERFUL!!! kari and i really LOVE that girl. she is SO COOL! when you get there and meet her tell her we said hi! we did not have to do any fundraising, medi cal paid for all both times. kari and holli and their dad had to move down to Ca. so she could have them pay cuz nevada does not cover lungs yet. they live there and i live in reno, but it is only about 2 hrs from rocklin where they live. and my ex and i are BEST BEST friends which makes it so easy for all. well i have some good news! i am getting married tomorrow! on valentines day. no big deal we have been together for 12 yrs so its time. jut a j of the peace sort of deal but i am excited and nervous just the same. liza i have been meaning to ask about your other daughter, she has cf too? i feel bad that i never mention my holli jade but she has never been real sick and i forget that she has cf sometimes! she is 21 yrs old now and starting to have a few probs but nothing real bad YET. knock on wood. i have to get going but will write in a day or two, as always my prayers are with you ALL. keep us posted everyone ok?
Breezy THANKS for your thoughts and prayers. i want to get to know you as well soon ok?
take care all.
lisa <img src="i/expressions/rose.gif" border="0">
liza and kathy,
WOW! i just wanted to tell you BOTH how much i thank god i have found you to talk to! i look forward every day to get my liza and kathy "fix"!!! it REALLY helps to have someone to talk to. someone who TRULY UNDERSTANDS!!! you are BOTH AWESOME! oh liza i hope that anna gets her lungs quickly. and the person that will be your main support will be Allison Rupp at Stanford. she is just SO WONDERFUL!!! kari and i really LOVE that girl. she is SO COOL! when you get there and meet her tell her we said hi! we did not have to do any fundraising, medi cal paid for all both times. kari and holli and their dad had to move down to Ca. so she could have them pay cuz nevada does not cover lungs yet. they live there and i live in reno, but it is only about 2 hrs from rocklin where they live. and my ex and i are BEST BEST friends which makes it so easy for all. well i have some good news! i am getting married tomorrow! on valentines day. no big deal we have been together for 12 yrs so its time. jut a j of the peace sort of deal but i am excited and nervous just the same. liza i have been meaning to ask about your other daughter, she has cf too? i feel bad that i never mention my holli jade but she has never been real sick and i forget that she has cf sometimes! she is 21 yrs old now and starting to have a few probs but nothing real bad YET. knock on wood. i have to get going but will write in a day or two, as always my prayers are with you ALL. keep us posted everyone ok?
Breezy THANKS for your thoughts and prayers. i want to get to know you as well soon ok?
take care all.
lisa <img src="i/expressions/rose.gif" border="0">
WOW! i just wanted to tell you BOTH how much i thank god i have found you to talk to! i look forward every day to get my liza and kathy "fix"!!! it REALLY helps to have someone to talk to. someone who TRULY UNDERSTANDS!!! you are BOTH AWESOME! oh liza i hope that anna gets her lungs quickly. and the person that will be your main support will be Allison Rupp at Stanford. she is just SO WONDERFUL!!! kari and i really LOVE that girl. she is SO COOL! when you get there and meet her tell her we said hi! we did not have to do any fundraising, medi cal paid for all both times. kari and holli and their dad had to move down to Ca. so she could have them pay cuz nevada does not cover lungs yet. they live there and i live in reno, but it is only about 2 hrs from rocklin where they live. and my ex and i are BEST BEST friends which makes it so easy for all. well i have some good news! i am getting married tomorrow! on valentines day. no big deal we have been together for 12 yrs so its time. jut a j of the peace sort of deal but i am excited and nervous just the same. liza i have been meaning to ask about your other daughter, she has cf too? i feel bad that i never mention my holli jade but she has never been real sick and i forget that she has cf sometimes! she is 21 yrs old now and starting to have a few probs but nothing real bad YET. knock on wood. i have to get going but will write in a day or two, as always my prayers are with you ALL. keep us posted everyone ok?
Breezy THANKS for your thoughts and prayers. i want to get to know you as well soon ok?
take care all.
lisa <img src="i/expressions/rose.gif" border="0">
liza and kathy,
WOW! i just wanted to tell you BOTH how much i thank god i have found you to talk to! i look forward every day to get my liza and kathy "fix"!!! it REALLY helps to have someone to talk to. someone who TRULY UNDERSTANDS!!! you are BOTH AWESOME! oh liza i hope that anna gets her lungs quickly. and the person that will be your main support will be Allison Rupp at Stanford. she is just SO WONDERFUL!!! kari and i really LOVE that girl. she is SO COOL! when you get there and meet her tell her we said hi! we did not have to do any fundraising, medi cal paid for all both times. kari and holli and their dad had to move down to Ca. so she could have them pay cuz nevada does not cover lungs yet. they live there and i live in reno, but it is only about 2 hrs from rocklin where they live. and my ex and i are BEST BEST friends which makes it so easy for all. well i have some good news! i am getting married tomorrow! on valentines day. no big deal we have been together for 12 yrs so its time. jut a j of the peace sort of deal but i am excited and nervous just the same. liza i have been meaning to ask about your other daughter, she has cf too? i feel bad that i never mention my holli jade but she has never been real sick and i forget that she has cf sometimes! she is 21 yrs old now and starting to have a few probs but nothing real bad YET. knock on wood. i have to get going but will write in a day or two, as always my prayers are with you ALL. keep us posted everyone ok?
Breezy THANKS for your thoughts and prayers. i want to get to know you as well soon ok?
take care all.
lisa <img src="i/expressions/rose.gif" border="0">
WOW! i just wanted to tell you BOTH how much i thank god i have found you to talk to! i look forward every day to get my liza and kathy "fix"!!! it REALLY helps to have someone to talk to. someone who TRULY UNDERSTANDS!!! you are BOTH AWESOME! oh liza i hope that anna gets her lungs quickly. and the person that will be your main support will be Allison Rupp at Stanford. she is just SO WONDERFUL!!! kari and i really LOVE that girl. she is SO COOL! when you get there and meet her tell her we said hi! we did not have to do any fundraising, medi cal paid for all both times. kari and holli and their dad had to move down to Ca. so she could have them pay cuz nevada does not cover lungs yet. they live there and i live in reno, but it is only about 2 hrs from rocklin where they live. and my ex and i are BEST BEST friends which makes it so easy for all. well i have some good news! i am getting married tomorrow! on valentines day. no big deal we have been together for 12 yrs so its time. jut a j of the peace sort of deal but i am excited and nervous just the same. liza i have been meaning to ask about your other daughter, she has cf too? i feel bad that i never mention my holli jade but she has never been real sick and i forget that she has cf sometimes! she is 21 yrs old now and starting to have a few probs but nothing real bad YET. knock on wood. i have to get going but will write in a day or two, as always my prayers are with you ALL. keep us posted everyone ok?
Breezy THANKS for your thoughts and prayers. i want to get to know you as well soon ok?
take care all.
lisa <img src="i/expressions/rose.gif" border="0">
Well you guys, I think it will be time to start another topic in a day or two or three. After I find out how Anna's appt. went. Tomorrow. Her dad is with her and I just finished my reservations for my flight out there on Friday.
Lisa, I too look forward to reading how ya'll are doing just like I look forward to hearing from Kathy and seeing how Maddy is doing. You guys have been a life saver for me. I get so emotional talking to my family. They are great and want to help any way they can but it hurts so much to tell them what is going on. I have a large family on my dad's side, 13 aunts and uncles and out of those 13 only three aren't married. All but two have children and a few are starting their own families. (here's what many think is interesting, my youngest aunt is one year older than me... 42) My grandparents (dad's side) are still alive. I usually just let my aunts tell my grandma what's going on. She has a heart condition and I never really know just how much info to give her. She cries every time we go see her and it's time to leave, she blesses the girls with tears in her eyes and I know she worries for them. My girls are the only ones in the family to have CF. With such a large family I often used to wonder if my mom and dad should be tested to see who is the one that is the carrier. My mom's family isn't too big, only 5 brothers, all with children that have children. Again, no one else w/CF.
My Rachel is doing well. She has only had to go into the hospital three times, ever. The first time was in 2001. And get this, the doctor said that since she had never been in that it was time she have IV antibiotics. Her pft's weren't very low, like 92 or something. He really should have just given her oral antibiotics and let her go home. So she was admitted her first Halloween back from Germany. She was crushed. She was really active and into riding her bike all over base housing so my husband took her bike w/ his trainer and set it up in her hospital room. She peddled away while playing nintendo or watching TV. On about day 7 the docs pretty much said, what are you doing here? Get outta here. She was a freshman cheerleader back in NE where she was admitted once after trying oral antibiotics. She went during spring break so as not to miss too much school. This last time was here in TX. Only because she was admitted for dehydration, he said "while you're here... why don't we..." Fine she said and he kept her for two weeks. She's not as active anymore. After moving here her sophomore year she didn't feel she could make it as a TX cheerleader and gave it up. She is an athletic trainer now. Her pft's are still in the low 90's. She has more stomach problems than lung problems. We have that pretty much under control and know that she is doing so much better than Anna was at this same age. We pray that she will continue to do well. I often wonder if not knowing about Anna's CF until she was 3 has anything to do with how well Rachel is doing. Anna was diagnosed one week before Rachel was born. Rachel is pretty open about her CF, she tells most people if they ask why she coughs so much. Anna always liked to keep it to just her closest friends. Now she doesn't really care but I think, doesn't like to be the one to tell new people. Her friends are usually the ones that tell. She's OK with that. She doesn't seem to mind telling them about it, I think it's just the initial "I have CF" thing.
Well super congratulations on your wedding today!<img src="i/expressions/face-icon-small-smile.gif" border="0"> Have a great day.
I will need to get going now. Rachel fell asleep on the couch, she's fighting a cold and the basketball game last night didn't do her throat much good. She's a little hoarse today. Not to mention the packing and cleaning I need to do. Wherever will I find the time to get it all done. I hate the thought of not leaving my house spik and span even though I know it will not be that way when I come back. I just have to let it go though HUH?
How's Maddy, Kathy?
Just got the phone call from my husband. They have arrived to CA and everything went well. Preboarded, had a wheel chair, no probs through security with all the meds and equipment. She said she had a better flight there than when we came back from Germany. G'night all. I'll check in one last time tomorrow then it may be a couple of days. Hugs to you my friends!
Lisa, I too look forward to reading how ya'll are doing just like I look forward to hearing from Kathy and seeing how Maddy is doing. You guys have been a life saver for me. I get so emotional talking to my family. They are great and want to help any way they can but it hurts so much to tell them what is going on. I have a large family on my dad's side, 13 aunts and uncles and out of those 13 only three aren't married. All but two have children and a few are starting their own families. (here's what many think is interesting, my youngest aunt is one year older than me... 42) My grandparents (dad's side) are still alive. I usually just let my aunts tell my grandma what's going on. She has a heart condition and I never really know just how much info to give her. She cries every time we go see her and it's time to leave, she blesses the girls with tears in her eyes and I know she worries for them. My girls are the only ones in the family to have CF. With such a large family I often used to wonder if my mom and dad should be tested to see who is the one that is the carrier. My mom's family isn't too big, only 5 brothers, all with children that have children. Again, no one else w/CF.
My Rachel is doing well. She has only had to go into the hospital three times, ever. The first time was in 2001. And get this, the doctor said that since she had never been in that it was time she have IV antibiotics. Her pft's weren't very low, like 92 or something. He really should have just given her oral antibiotics and let her go home. So she was admitted her first Halloween back from Germany. She was crushed. She was really active and into riding her bike all over base housing so my husband took her bike w/ his trainer and set it up in her hospital room. She peddled away while playing nintendo or watching TV. On about day 7 the docs pretty much said, what are you doing here? Get outta here. She was a freshman cheerleader back in NE where she was admitted once after trying oral antibiotics. She went during spring break so as not to miss too much school. This last time was here in TX. Only because she was admitted for dehydration, he said "while you're here... why don't we..." Fine she said and he kept her for two weeks. She's not as active anymore. After moving here her sophomore year she didn't feel she could make it as a TX cheerleader and gave it up. She is an athletic trainer now. Her pft's are still in the low 90's. She has more stomach problems than lung problems. We have that pretty much under control and know that she is doing so much better than Anna was at this same age. We pray that she will continue to do well. I often wonder if not knowing about Anna's CF until she was 3 has anything to do with how well Rachel is doing. Anna was diagnosed one week before Rachel was born. Rachel is pretty open about her CF, she tells most people if they ask why she coughs so much. Anna always liked to keep it to just her closest friends. Now she doesn't really care but I think, doesn't like to be the one to tell new people. Her friends are usually the ones that tell. She's OK with that. She doesn't seem to mind telling them about it, I think it's just the initial "I have CF" thing.
Well super congratulations on your wedding today!<img src="i/expressions/face-icon-small-smile.gif" border="0"> Have a great day.
I will need to get going now. Rachel fell asleep on the couch, she's fighting a cold and the basketball game last night didn't do her throat much good. She's a little hoarse today. Not to mention the packing and cleaning I need to do. Wherever will I find the time to get it all done. I hate the thought of not leaving my house spik and span even though I know it will not be that way when I come back. I just have to let it go though HUH?
How's Maddy, Kathy?
Just got the phone call from my husband. They have arrived to CA and everything went well. Preboarded, had a wheel chair, no probs through security with all the meds and equipment. She said she had a better flight there than when we came back from Germany. G'night all. I'll check in one last time tomorrow then it may be a couple of days. Hugs to you my friends!
Well you guys, I think it will be time to start another topic in a day or two or three. After I find out how Anna's appt. went. Tomorrow. Her dad is with her and I just finished my reservations for my flight out there on Friday.
Lisa, I too look forward to reading how ya'll are doing just like I look forward to hearing from Kathy and seeing how Maddy is doing. You guys have been a life saver for me. I get so emotional talking to my family. They are great and want to help any way they can but it hurts so much to tell them what is going on. I have a large family on my dad's side, 13 aunts and uncles and out of those 13 only three aren't married. All but two have children and a few are starting their own families. (here's what many think is interesting, my youngest aunt is one year older than me... 42) My grandparents (dad's side) are still alive. I usually just let my aunts tell my grandma what's going on. She has a heart condition and I never really know just how much info to give her. She cries every time we go see her and it's time to leave, she blesses the girls with tears in her eyes and I know she worries for them. My girls are the only ones in the family to have CF. With such a large family I often used to wonder if my mom and dad should be tested to see who is the one that is the carrier. My mom's family isn't too big, only 5 brothers, all with children that have children. Again, no one else w/CF.
My Rachel is doing well. She has only had to go into the hospital three times, ever. The first time was in 2001. And get this, the doctor said that since she had never been in that it was time she have IV antibiotics. Her pft's weren't very low, like 92 or something. He really should have just given her oral antibiotics and let her go home. So she was admitted her first Halloween back from Germany. She was crushed. She was really active and into riding her bike all over base housing so my husband took her bike w/ his trainer and set it up in her hospital room. She peddled away while playing nintendo or watching TV. On about day 7 the docs pretty much said, what are you doing here? Get outta here. She was a freshman cheerleader back in NE where she was admitted once after trying oral antibiotics. She went during spring break so as not to miss too much school. This last time was here in TX. Only because she was admitted for dehydration, he said "while you're here... why don't we..." Fine she said and he kept her for two weeks. She's not as active anymore. After moving here her sophomore year she didn't feel she could make it as a TX cheerleader and gave it up. She is an athletic trainer now. Her pft's are still in the low 90's. She has more stomach problems than lung problems. We have that pretty much under control and know that she is doing so much better than Anna was at this same age. We pray that she will continue to do well. I often wonder if not knowing about Anna's CF until she was 3 has anything to do with how well Rachel is doing. Anna was diagnosed one week before Rachel was born. Rachel is pretty open about her CF, she tells most people if they ask why she coughs so much. Anna always liked to keep it to just her closest friends. Now she doesn't really care but I think, doesn't like to be the one to tell new people. Her friends are usually the ones that tell. She's OK with that. She doesn't seem to mind telling them about it, I think it's just the initial "I have CF" thing.
Well super congratulations on your wedding today!<img src="i/expressions/face-icon-small-smile.gif" border="0"> Have a great day.
I will need to get going now. Rachel fell asleep on the couch, she's fighting a cold and the basketball game last night didn't do her throat much good. She's a little hoarse today. Not to mention the packing and cleaning I need to do. Wherever will I find the time to get it all done. I hate the thought of not leaving my house spik and span even though I know it will not be that way when I come back. I just have to let it go though HUH?
How's Maddy, Kathy?
Just got the phone call from my husband. They have arrived to CA and everything went well. Preboarded, had a wheel chair, no probs through security with all the meds and equipment. She said she had a better flight there than when we came back from Germany. G'night all. I'll check in one last time tomorrow then it may be a couple of days. Hugs to you my friends!
Lisa, I too look forward to reading how ya'll are doing just like I look forward to hearing from Kathy and seeing how Maddy is doing. You guys have been a life saver for me. I get so emotional talking to my family. They are great and want to help any way they can but it hurts so much to tell them what is going on. I have a large family on my dad's side, 13 aunts and uncles and out of those 13 only three aren't married. All but two have children and a few are starting their own families. (here's what many think is interesting, my youngest aunt is one year older than me... 42) My grandparents (dad's side) are still alive. I usually just let my aunts tell my grandma what's going on. She has a heart condition and I never really know just how much info to give her. She cries every time we go see her and it's time to leave, she blesses the girls with tears in her eyes and I know she worries for them. My girls are the only ones in the family to have CF. With such a large family I often used to wonder if my mom and dad should be tested to see who is the one that is the carrier. My mom's family isn't too big, only 5 brothers, all with children that have children. Again, no one else w/CF.
My Rachel is doing well. She has only had to go into the hospital three times, ever. The first time was in 2001. And get this, the doctor said that since she had never been in that it was time she have IV antibiotics. Her pft's weren't very low, like 92 or something. He really should have just given her oral antibiotics and let her go home. So she was admitted her first Halloween back from Germany. She was crushed. She was really active and into riding her bike all over base housing so my husband took her bike w/ his trainer and set it up in her hospital room. She peddled away while playing nintendo or watching TV. On about day 7 the docs pretty much said, what are you doing here? Get outta here. She was a freshman cheerleader back in NE where she was admitted once after trying oral antibiotics. She went during spring break so as not to miss too much school. This last time was here in TX. Only because she was admitted for dehydration, he said "while you're here... why don't we..." Fine she said and he kept her for two weeks. She's not as active anymore. After moving here her sophomore year she didn't feel she could make it as a TX cheerleader and gave it up. She is an athletic trainer now. Her pft's are still in the low 90's. She has more stomach problems than lung problems. We have that pretty much under control and know that she is doing so much better than Anna was at this same age. We pray that she will continue to do well. I often wonder if not knowing about Anna's CF until she was 3 has anything to do with how well Rachel is doing. Anna was diagnosed one week before Rachel was born. Rachel is pretty open about her CF, she tells most people if they ask why she coughs so much. Anna always liked to keep it to just her closest friends. Now she doesn't really care but I think, doesn't like to be the one to tell new people. Her friends are usually the ones that tell. She's OK with that. She doesn't seem to mind telling them about it, I think it's just the initial "I have CF" thing.
Well super congratulations on your wedding today!<img src="i/expressions/face-icon-small-smile.gif" border="0"> Have a great day.
I will need to get going now. Rachel fell asleep on the couch, she's fighting a cold and the basketball game last night didn't do her throat much good. She's a little hoarse today. Not to mention the packing and cleaning I need to do. Wherever will I find the time to get it all done. I hate the thought of not leaving my house spik and span even though I know it will not be that way when I come back. I just have to let it go though HUH?
How's Maddy, Kathy?
Just got the phone call from my husband. They have arrived to CA and everything went well. Preboarded, had a wheel chair, no probs through security with all the meds and equipment. She said she had a better flight there than when we came back from Germany. G'night all. I'll check in one last time tomorrow then it may be a couple of days. Hugs to you my friends!
Well you guys, I think it will be time to start another topic in a day or two or three. After I find out how Anna's appt. went. Tomorrow. Her dad is with her and I just finished my reservations for my flight out there on Friday.
Lisa, I too look forward to reading how ya'll are doing just like I look forward to hearing from Kathy and seeing how Maddy is doing. You guys have been a life saver for me. I get so emotional talking to my family. They are great and want to help any way they can but it hurts so much to tell them what is going on. I have a large family on my dad's side, 13 aunts and uncles and out of those 13 only three aren't married. All but two have children and a few are starting their own families. (here's what many think is interesting, my youngest aunt is one year older than me... 42) My grandparents (dad's side) are still alive. I usually just let my aunts tell my grandma what's going on. She has a heart condition and I never really know just how much info to give her. She cries every time we go see her and it's time to leave, she blesses the girls with tears in her eyes and I know she worries for them. My girls are the only ones in the family to have CF. With such a large family I often used to wonder if my mom and dad should be tested to see who is the one that is the carrier. My mom's family isn't too big, only 5 brothers, all with children that have children. Again, no one else w/CF.
My Rachel is doing well. She has only had to go into the hospital three times, ever. The first time was in 2001. And get this, the doctor said that since she had never been in that it was time she have IV antibiotics. Her pft's weren't very low, like 92 or something. He really should have just given her oral antibiotics and let her go home. So she was admitted her first Halloween back from Germany. She was crushed. She was really active and into riding her bike all over base housing so my husband took her bike w/ his trainer and set it up in her hospital room. She peddled away while playing nintendo or watching TV. On about day 7 the docs pretty much said, what are you doing here? Get outta here. She was a freshman cheerleader back in NE where she was admitted once after trying oral antibiotics. She went during spring break so as not to miss too much school. This last time was here in TX. Only because she was admitted for dehydration, he said "while you're here... why don't we..." Fine she said and he kept her for two weeks. She's not as active anymore. After moving here her sophomore year she didn't feel she could make it as a TX cheerleader and gave it up. She is an athletic trainer now. Her pft's are still in the low 90's. She has more stomach problems than lung problems. We have that pretty much under control and know that she is doing so much better than Anna was at this same age. We pray that she will continue to do well. I often wonder if not knowing about Anna's CF until she was 3 has anything to do with how well Rachel is doing. Anna was diagnosed one week before Rachel was born. Rachel is pretty open about her CF, she tells most people if they ask why she coughs so much. Anna always liked to keep it to just her closest friends. Now she doesn't really care but I think, doesn't like to be the one to tell new people. Her friends are usually the ones that tell. She's OK with that. She doesn't seem to mind telling them about it, I think it's just the initial "I have CF" thing.
Well super congratulations on your wedding today!<img src="i/expressions/face-icon-small-smile.gif" border="0"> Have a great day.
I will need to get going now. Rachel fell asleep on the couch, she's fighting a cold and the basketball game last night didn't do her throat much good. She's a little hoarse today. Not to mention the packing and cleaning I need to do. Wherever will I find the time to get it all done. I hate the thought of not leaving my house spik and span even though I know it will not be that way when I come back. I just have to let it go though HUH?
How's Maddy, Kathy?
Just got the phone call from my husband. They have arrived to CA and everything went well. Preboarded, had a wheel chair, no probs through security with all the meds and equipment. She said she had a better flight there than when we came back from Germany. G'night all. I'll check in one last time tomorrow then it may be a couple of days. Hugs to you my friends!
Lisa, I too look forward to reading how ya'll are doing just like I look forward to hearing from Kathy and seeing how Maddy is doing. You guys have been a life saver for me. I get so emotional talking to my family. They are great and want to help any way they can but it hurts so much to tell them what is going on. I have a large family on my dad's side, 13 aunts and uncles and out of those 13 only three aren't married. All but two have children and a few are starting their own families. (here's what many think is interesting, my youngest aunt is one year older than me... 42) My grandparents (dad's side) are still alive. I usually just let my aunts tell my grandma what's going on. She has a heart condition and I never really know just how much info to give her. She cries every time we go see her and it's time to leave, she blesses the girls with tears in her eyes and I know she worries for them. My girls are the only ones in the family to have CF. With such a large family I often used to wonder if my mom and dad should be tested to see who is the one that is the carrier. My mom's family isn't too big, only 5 brothers, all with children that have children. Again, no one else w/CF.
My Rachel is doing well. She has only had to go into the hospital three times, ever. The first time was in 2001. And get this, the doctor said that since she had never been in that it was time she have IV antibiotics. Her pft's weren't very low, like 92 or something. He really should have just given her oral antibiotics and let her go home. So she was admitted her first Halloween back from Germany. She was crushed. She was really active and into riding her bike all over base housing so my husband took her bike w/ his trainer and set it up in her hospital room. She peddled away while playing nintendo or watching TV. On about day 7 the docs pretty much said, what are you doing here? Get outta here. She was a freshman cheerleader back in NE where she was admitted once after trying oral antibiotics. She went during spring break so as not to miss too much school. This last time was here in TX. Only because she was admitted for dehydration, he said "while you're here... why don't we..." Fine she said and he kept her for two weeks. She's not as active anymore. After moving here her sophomore year she didn't feel she could make it as a TX cheerleader and gave it up. She is an athletic trainer now. Her pft's are still in the low 90's. She has more stomach problems than lung problems. We have that pretty much under control and know that she is doing so much better than Anna was at this same age. We pray that she will continue to do well. I often wonder if not knowing about Anna's CF until she was 3 has anything to do with how well Rachel is doing. Anna was diagnosed one week before Rachel was born. Rachel is pretty open about her CF, she tells most people if they ask why she coughs so much. Anna always liked to keep it to just her closest friends. Now she doesn't really care but I think, doesn't like to be the one to tell new people. Her friends are usually the ones that tell. She's OK with that. She doesn't seem to mind telling them about it, I think it's just the initial "I have CF" thing.
Well super congratulations on your wedding today!<img src="i/expressions/face-icon-small-smile.gif" border="0"> Have a great day.
I will need to get going now. Rachel fell asleep on the couch, she's fighting a cold and the basketball game last night didn't do her throat much good. She's a little hoarse today. Not to mention the packing and cleaning I need to do. Wherever will I find the time to get it all done. I hate the thought of not leaving my house spik and span even though I know it will not be that way when I come back. I just have to let it go though HUH?
How's Maddy, Kathy?
Just got the phone call from my husband. They have arrived to CA and everything went well. Preboarded, had a wheel chair, no probs through security with all the meds and equipment. She said she had a better flight there than when we came back from Germany. G'night all. I'll check in one last time tomorrow then it may be a couple of days. Hugs to you my friends!
liza
rachel and holli's stories are SO similar!!! it is so weird that one can be SO sick and the other.........? thank god tho. i am SO glad that anna made it to ca safely. will be looking forward to hearing about her incredible journey and feel honored that you are allowing me to share in your most private and precious moments. hang in there hon. you CAN and WILL get throught this! and if all goes well (it will have faith) oh you will never again experience such a wonderful MIRACLE. even tho kari's went awry, i still got to experience the most AWESOME thing. she was healthy for a minute anyway. and i still have her now no matter how sick she is and i THANK GOD each and every day for that. i will be here for you each and every step of the Stanford way. i know ALL about the hospital and where to go and what to do etc. so do not worry. you and your girl will be FINE!!! i would REALLY like it if Kari and Anna could "talk". Kari has alot of advice and words of encouragement she would love to share. so if ya guys want and when the time is right let me know ok? hugs to you as well.
HI KATHY!!! how is madison doing? thinking of you both every day.
take care all will write again soon.
as always
lisa <img src="i/expressions/rose.gif" border="0">
rachel and holli's stories are SO similar!!! it is so weird that one can be SO sick and the other.........? thank god tho. i am SO glad that anna made it to ca safely. will be looking forward to hearing about her incredible journey and feel honored that you are allowing me to share in your most private and precious moments. hang in there hon. you CAN and WILL get throught this! and if all goes well (it will have faith) oh you will never again experience such a wonderful MIRACLE. even tho kari's went awry, i still got to experience the most AWESOME thing. she was healthy for a minute anyway. and i still have her now no matter how sick she is and i THANK GOD each and every day for that. i will be here for you each and every step of the Stanford way. i know ALL about the hospital and where to go and what to do etc. so do not worry. you and your girl will be FINE!!! i would REALLY like it if Kari and Anna could "talk". Kari has alot of advice and words of encouragement she would love to share. so if ya guys want and when the time is right let me know ok? hugs to you as well.
HI KATHY!!! how is madison doing? thinking of you both every day.
take care all will write again soon.
as always
lisa <img src="i/expressions/rose.gif" border="0">
liza
rachel and holli's stories are SO similar!!! it is so weird that one can be SO sick and the other.........? thank god tho. i am SO glad that anna made it to ca safely. will be looking forward to hearing about her incredible journey and feel honored that you are allowing me to share in your most private and precious moments. hang in there hon. you CAN and WILL get throught this! and if all goes well (it will have faith) oh you will never again experience such a wonderful MIRACLE. even tho kari's went awry, i still got to experience the most AWESOME thing. she was healthy for a minute anyway. and i still have her now no matter how sick she is and i THANK GOD each and every day for that. i will be here for you each and every step of the Stanford way. i know ALL about the hospital and where to go and what to do etc. so do not worry. you and your girl will be FINE!!! i would REALLY like it if Kari and Anna could "talk". Kari has alot of advice and words of encouragement she would love to share. so if ya guys want and when the time is right let me know ok? hugs to you as well.
HI KATHY!!! how is madison doing? thinking of you both every day.
take care all will write again soon.
as always
lisa <img src="i/expressions/rose.gif" border="0">
rachel and holli's stories are SO similar!!! it is so weird that one can be SO sick and the other.........? thank god tho. i am SO glad that anna made it to ca safely. will be looking forward to hearing about her incredible journey and feel honored that you are allowing me to share in your most private and precious moments. hang in there hon. you CAN and WILL get throught this! and if all goes well (it will have faith) oh you will never again experience such a wonderful MIRACLE. even tho kari's went awry, i still got to experience the most AWESOME thing. she was healthy for a minute anyway. and i still have her now no matter how sick she is and i THANK GOD each and every day for that. i will be here for you each and every step of the Stanford way. i know ALL about the hospital and where to go and what to do etc. so do not worry. you and your girl will be FINE!!! i would REALLY like it if Kari and Anna could "talk". Kari has alot of advice and words of encouragement she would love to share. so if ya guys want and when the time is right let me know ok? hugs to you as well.
HI KATHY!!! how is madison doing? thinking of you both every day.
take care all will write again soon.
as always
lisa <img src="i/expressions/rose.gif" border="0">
liza
rachel and holli's stories are SO similar!!! it is so weird that one can be SO sick and the other.........? thank god tho. i am SO glad that anna made it to ca safely. will be looking forward to hearing about her incredible journey and feel honored that you are allowing me to share in your most private and precious moments. hang in there hon. you CAN and WILL get throught this! and if all goes well (it will have faith) oh you will never again experience such a wonderful MIRACLE. even tho kari's went awry, i still got to experience the most AWESOME thing. she was healthy for a minute anyway. and i still have her now no matter how sick she is and i THANK GOD each and every day for that. i will be here for you each and every step of the Stanford way. i know ALL about the hospital and where to go and what to do etc. so do not worry. you and your girl will be FINE!!! i would REALLY like it if Kari and Anna could "talk". Kari has alot of advice and words of encouragement she would love to share. so if ya guys want and when the time is right let me know ok? hugs to you as well.
HI KATHY!!! how is madison doing? thinking of you both every day.
take care all will write again soon.
as always
lisa <img src="i/expressions/rose.gif" border="0">
rachel and holli's stories are SO similar!!! it is so weird that one can be SO sick and the other.........? thank god tho. i am SO glad that anna made it to ca safely. will be looking forward to hearing about her incredible journey and feel honored that you are allowing me to share in your most private and precious moments. hang in there hon. you CAN and WILL get throught this! and if all goes well (it will have faith) oh you will never again experience such a wonderful MIRACLE. even tho kari's went awry, i still got to experience the most AWESOME thing. she was healthy for a minute anyway. and i still have her now no matter how sick she is and i THANK GOD each and every day for that. i will be here for you each and every step of the Stanford way. i know ALL about the hospital and where to go and what to do etc. so do not worry. you and your girl will be FINE!!! i would REALLY like it if Kari and Anna could "talk". Kari has alot of advice and words of encouragement she would love to share. so if ya guys want and when the time is right let me know ok? hugs to you as well.
HI KATHY!!! how is madison doing? thinking of you both every day.
take care all will write again soon.
as always
lisa <img src="i/expressions/rose.gif" border="0">
madisonsmom
New member
Hi Liza,
just want to wish you well and god speed on the next venture for you and your family.Stay in touch, i hope it all goes well.
Lisa, we will have to hold the fort down for now. I leave for the east coast friday for the funeral. It's going to be a huge ordeal, my uncle was well known so the family is planning a huge 'cellebration of life"
I'm just having a ruff time with life right now... I usually glide through with out too many issues and feel pretty much in controll. Not now though, I'm slipping... and my steam is running low.
How's Kari doing? is she okay?
take care,
K
just want to wish you well and god speed on the next venture for you and your family.Stay in touch, i hope it all goes well.
Lisa, we will have to hold the fort down for now. I leave for the east coast friday for the funeral. It's going to be a huge ordeal, my uncle was well known so the family is planning a huge 'cellebration of life"
I'm just having a ruff time with life right now... I usually glide through with out too many issues and feel pretty much in controll. Not now though, I'm slipping... and my steam is running low.
How's Kari doing? is she okay?
take care,
K
madisonsmom
New member
Hi Liza,
just want to wish you well and god speed on the next venture for you and your family.Stay in touch, i hope it all goes well.
Lisa, we will have to hold the fort down for now. I leave for the east coast friday for the funeral. It's going to be a huge ordeal, my uncle was well known so the family is planning a huge 'cellebration of life"
I'm just having a ruff time with life right now... I usually glide through with out too many issues and feel pretty much in controll. Not now though, I'm slipping... and my steam is running low.
How's Kari doing? is she okay?
take care,
K
just want to wish you well and god speed on the next venture for you and your family.Stay in touch, i hope it all goes well.
Lisa, we will have to hold the fort down for now. I leave for the east coast friday for the funeral. It's going to be a huge ordeal, my uncle was well known so the family is planning a huge 'cellebration of life"
I'm just having a ruff time with life right now... I usually glide through with out too many issues and feel pretty much in controll. Not now though, I'm slipping... and my steam is running low.
How's Kari doing? is she okay?
take care,
K
madisonsmom
New member
Hi Liza,
just want to wish you well and god speed on the next venture for you and your family.Stay in touch, i hope it all goes well.
Lisa, we will have to hold the fort down for now. I leave for the east coast friday for the funeral. It's going to be a huge ordeal, my uncle was well known so the family is planning a huge 'cellebration of life"
I'm just having a ruff time with life right now... I usually glide through with out too many issues and feel pretty much in controll. Not now though, I'm slipping... and my steam is running low.
How's Kari doing? is she okay?
take care,
K
just want to wish you well and god speed on the next venture for you and your family.Stay in touch, i hope it all goes well.
Lisa, we will have to hold the fort down for now. I leave for the east coast friday for the funeral. It's going to be a huge ordeal, my uncle was well known so the family is planning a huge 'cellebration of life"
I'm just having a ruff time with life right now... I usually glide through with out too many issues and feel pretty much in controll. Not now though, I'm slipping... and my steam is running low.
How's Kari doing? is she okay?
take care,
K
kathy
hang in there girl. i KNOW. it is hard enough to deal with the devastation re our "chix", than to have stuff like a death or ANYTHING else to deal with. "normal" moms (you know what i mean by that right?) who whine and complain just don't have any idea how hard it is to juggle ALL of it. not talking about anyone in particular, just.................. its just HARD. just trying to convey how bad i feel for you. my nerves and level of tolerance for ANYTHING else these days is at an ALL TIME low!!! when i had to go for my THIRD mammo and an ultrasound here recently i thought that i was gonna FLIP OUT TOTALLY! IT WAS LIKE.... oh great, along with Kari's deal now this!!! every day it's just like "please god NOTHING else OK? my prayers are with ya Kathy. its gonna be OK!!! i am always here to talk when ya need a friend.
Liza that goes "ditto" for you!!!
Luv ya guys.
take care, talk to ya all soon.
lisa <img src="i/expressions/rose.gif" border="0">
hang in there girl. i KNOW. it is hard enough to deal with the devastation re our "chix", than to have stuff like a death or ANYTHING else to deal with. "normal" moms (you know what i mean by that right?) who whine and complain just don't have any idea how hard it is to juggle ALL of it. not talking about anyone in particular, just.................. its just HARD. just trying to convey how bad i feel for you. my nerves and level of tolerance for ANYTHING else these days is at an ALL TIME low!!! when i had to go for my THIRD mammo and an ultrasound here recently i thought that i was gonna FLIP OUT TOTALLY! IT WAS LIKE.... oh great, along with Kari's deal now this!!! every day it's just like "please god NOTHING else OK? my prayers are with ya Kathy. its gonna be OK!!! i am always here to talk when ya need a friend.
Liza that goes "ditto" for you!!!
Luv ya guys.
take care, talk to ya all soon.
lisa <img src="i/expressions/rose.gif" border="0">
kathy
hang in there girl. i KNOW. it is hard enough to deal with the devastation re our "chix", than to have stuff like a death or ANYTHING else to deal with. "normal" moms (you know what i mean by that right?) who whine and complain just don't have any idea how hard it is to juggle ALL of it. not talking about anyone in particular, just.................. its just HARD. just trying to convey how bad i feel for you. my nerves and level of tolerance for ANYTHING else these days is at an ALL TIME low!!! when i had to go for my THIRD mammo and an ultrasound here recently i thought that i was gonna FLIP OUT TOTALLY! IT WAS LIKE.... oh great, along with Kari's deal now this!!! every day it's just like "please god NOTHING else OK? my prayers are with ya Kathy. its gonna be OK!!! i am always here to talk when ya need a friend.
Liza that goes "ditto" for you!!!
Luv ya guys.
take care, talk to ya all soon.
lisa <img src="i/expressions/rose.gif" border="0">
hang in there girl. i KNOW. it is hard enough to deal with the devastation re our "chix", than to have stuff like a death or ANYTHING else to deal with. "normal" moms (you know what i mean by that right?) who whine and complain just don't have any idea how hard it is to juggle ALL of it. not talking about anyone in particular, just.................. its just HARD. just trying to convey how bad i feel for you. my nerves and level of tolerance for ANYTHING else these days is at an ALL TIME low!!! when i had to go for my THIRD mammo and an ultrasound here recently i thought that i was gonna FLIP OUT TOTALLY! IT WAS LIKE.... oh great, along with Kari's deal now this!!! every day it's just like "please god NOTHING else OK? my prayers are with ya Kathy. its gonna be OK!!! i am always here to talk when ya need a friend.
Liza that goes "ditto" for you!!!
Luv ya guys.
take care, talk to ya all soon.
lisa <img src="i/expressions/rose.gif" border="0">
kathy
hang in there girl. i KNOW. it is hard enough to deal with the devastation re our "chix", than to have stuff like a death or ANYTHING else to deal with. "normal" moms (you know what i mean by that right?) who whine and complain just don't have any idea how hard it is to juggle ALL of it. not talking about anyone in particular, just.................. its just HARD. just trying to convey how bad i feel for you. my nerves and level of tolerance for ANYTHING else these days is at an ALL TIME low!!! when i had to go for my THIRD mammo and an ultrasound here recently i thought that i was gonna FLIP OUT TOTALLY! IT WAS LIKE.... oh great, along with Kari's deal now this!!! every day it's just like "please god NOTHING else OK? my prayers are with ya Kathy. its gonna be OK!!! i am always here to talk when ya need a friend.
Liza that goes "ditto" for you!!!
Luv ya guys.
take care, talk to ya all soon.
lisa <img src="i/expressions/rose.gif" border="0">
hang in there girl. i KNOW. it is hard enough to deal with the devastation re our "chix", than to have stuff like a death or ANYTHING else to deal with. "normal" moms (you know what i mean by that right?) who whine and complain just don't have any idea how hard it is to juggle ALL of it. not talking about anyone in particular, just.................. its just HARD. just trying to convey how bad i feel for you. my nerves and level of tolerance for ANYTHING else these days is at an ALL TIME low!!! when i had to go for my THIRD mammo and an ultrasound here recently i thought that i was gonna FLIP OUT TOTALLY! IT WAS LIKE.... oh great, along with Kari's deal now this!!! every day it's just like "please god NOTHING else OK? my prayers are with ya Kathy. its gonna be OK!!! i am always here to talk when ya need a friend.
Liza that goes "ditto" for you!!!
Luv ya guys.
take care, talk to ya all soon.
lisa <img src="i/expressions/rose.gif" border="0">