WHAT DID YOU DO

[jfarel]

Yeah, I have always gotten cultures. I culture PA and to my knowledge that's all I ever culture. Good news is my pft's have been trending upward the last few months. In Decembe my FVC was the highest it has been since 2002. Exercise to me is crucial. One reason I didn't exercise in college was that I was so self conscious. I would get coughing in public and stop. Now days I cough much less during exercise, but sometimes after exercising I do have coughing fits, but I should have found a way to exercise in private or something. Like I said before, I just didn't know what I was doing back then, partially my fault for sure.

One thing I will mention is that my first year out of college when I was working full time my pft's dropped more than at college. At least at college I had to do a good deal of walking to get to classes. Once out of college for a year, even my walking was reduced. Not any more though, I consider it a must.

 

[jfarel]

Yeah, I have always gotten cultures. I culture PA and to my knowledge that's all I ever culture. Good news is my pft's have been trending upward the last few months. In Decembe my FVC was the highest it has been since 2002. Exercise to me is crucial. One reason I didn't exercise in college was that I was so self conscious. I would get coughing in public and stop. Now days I cough much less during exercise, but sometimes after exercising I do have coughing fits, but I should have found a way to exercise in private or something. Like I said before, I just didn't know what I was doing back then, partially my fault for sure.

One thing I will mention is that my first year out of college when I was working full time my pft's dropped more than at college. At least at college I had to do a good deal of walking to get to classes. Once out of college for a year, even my walking was reduced. Not any more though, I consider it a must.

 

[jfarel]

Yeah, I have always gotten cultures. I culture PA and to my knowledge that's all I ever culture. Good news is my pft's have been trending upward the last few months. In Decembe my FVC was the highest it has been since 2002. Exercise to me is crucial. One reason I didn't exercise in college was that I was so self conscious. I would get coughing in public and stop. Now days I cough much less during exercise, but sometimes after exercising I do have coughing fits, but I should have found a way to exercise in private or something. Like I said before, I just didn't know what I was doing back then, partially my fault for sure.

One thing I will mention is that my first year out of college when I was working full time my pft's dropped more than at college. At least at college I had to do a good deal of walking to get to classes. Once out of college for a year, even my walking was reduced. Not any more though, I consider it a must.

 

[catboogie]

reguarding seana's post,

it is so interesting to read everyone's responces--i am reminded of myself in so many ways. i think we all agree that we hated being bothered by our parents (moms especially <img src="i/expressions/face-icon-small-smile.gif" border="0"> ). but for those of us who have come around to being compliant, it was the heckling that eventually "registered" that made us this way! i would hate to be a mom who has to sort this out.

i know i drove my mom crazy. in high school, i smoked pot, cigarettes, and experimented with drinking and other drugs. i was very destructive to my body and spent a lot of time in the hospital because of it. i eventually realized that i was slowly killing myself and stopped doing it.

taking pills, however, was a battle my mom and i fought since i can remember. as someone else said, not taking my pills (enzymes) was a combination of being absent minded and of it not being a priority to me. when my mom would talk to me (aka nag <img src="i/expressions/face-icon-small-smile.gif" border="0"> ) what she said made total sense, but i still wouldn't do it for the most part. a lot of why i was able to get away with doing that was b/c i never had trouble with my weight, so it wasn't an issue with my doctor, and because my belly issues just became part of how my life was. when i was 7 or so, my mom even took me to see a shrink b/c she was convinced, i think, that i had a death wish or something. i hate what i put her through, but at the time i was just being a kid.

the biggest time in my life when i stepped up to handle everything with my CF was when i had to--when i went to college and the summer before my senior year when i lived away from home. i no longer had my mom to answer to, only myself. the transition didn't happen over night, but it has stuck ever since.

i would say you might have success with letting her in on some more of the responsibilty of her health. i'm not sure how you would do this, but maybe the more "adult" she feels about her responsibilities, the more adult she will act.

good luck!

 

[catboogie]

reguarding seana's post,

it is so interesting to read everyone's responces--i am reminded of myself in so many ways. i think we all agree that we hated being bothered by our parents (moms especially <img src="i/expressions/face-icon-small-smile.gif" border="0"> ). but for those of us who have come around to being compliant, it was the heckling that eventually "registered" that made us this way! i would hate to be a mom who has to sort this out.

i know i drove my mom crazy. in high school, i smoked pot, cigarettes, and experimented with drinking and other drugs. i was very destructive to my body and spent a lot of time in the hospital because of it. i eventually realized that i was slowly killing myself and stopped doing it.

taking pills, however, was a battle my mom and i fought since i can remember. as someone else said, not taking my pills (enzymes) was a combination of being absent minded and of it not being a priority to me. when my mom would talk to me (aka nag <img src="i/expressions/face-icon-small-smile.gif" border="0"> ) what she said made total sense, but i still wouldn't do it for the most part. a lot of why i was able to get away with doing that was b/c i never had trouble with my weight, so it wasn't an issue with my doctor, and because my belly issues just became part of how my life was. when i was 7 or so, my mom even took me to see a shrink b/c she was convinced, i think, that i had a death wish or something. i hate what i put her through, but at the time i was just being a kid.

the biggest time in my life when i stepped up to handle everything with my CF was when i had to--when i went to college and the summer before my senior year when i lived away from home. i no longer had my mom to answer to, only myself. the transition didn't happen over night, but it has stuck ever since.

i would say you might have success with letting her in on some more of the responsibilty of her health. i'm not sure how you would do this, but maybe the more "adult" she feels about her responsibilities, the more adult she will act.

good luck!

 

[catboogie]

reguarding seana's post,

it is so interesting to read everyone's responces--i am reminded of myself in so many ways. i think we all agree that we hated being bothered by our parents (moms especially <img src="i/expressions/face-icon-small-smile.gif" border="0"> ). but for those of us who have come around to being compliant, it was the heckling that eventually "registered" that made us this way! i would hate to be a mom who has to sort this out.

i know i drove my mom crazy. in high school, i smoked pot, cigarettes, and experimented with drinking and other drugs. i was very destructive to my body and spent a lot of time in the hospital because of it. i eventually realized that i was slowly killing myself and stopped doing it.

taking pills, however, was a battle my mom and i fought since i can remember. as someone else said, not taking my pills (enzymes) was a combination of being absent minded and of it not being a priority to me. when my mom would talk to me (aka nag <img src="i/expressions/face-icon-small-smile.gif" border="0"> ) what she said made total sense, but i still wouldn't do it for the most part. a lot of why i was able to get away with doing that was b/c i never had trouble with my weight, so it wasn't an issue with my doctor, and because my belly issues just became part of how my life was. when i was 7 or so, my mom even took me to see a shrink b/c she was convinced, i think, that i had a death wish or something. i hate what i put her through, but at the time i was just being a kid.

the biggest time in my life when i stepped up to handle everything with my CF was when i had to--when i went to college and the summer before my senior year when i lived away from home. i no longer had my mom to answer to, only myself. the transition didn't happen over night, but it has stuck ever since.

i would say you might have success with letting her in on some more of the responsibilty of her health. i'm not sure how you would do this, but maybe the more "adult" she feels about her responsibilities, the more adult she will act.

good luck!

 

[Lance2020x]

I have to be honest here, I'm kinda shocked.
For me quitting my enzymes was NEVER an option. My parents never nagged me, they didn't need to (they probably wouldn't have anyway, I pretty much took care of myself) I learned REALLY quickly that if I didn't take my enzymes, I would be sick all the next day. Ofcourse I have to take far more enzymes than most people (10-11 with meals) so I really truly rely on them.
<br><br>
Am I hearing right that as a teen most of you went through an enzyme rebellion? What did I miss? Sure I HATED medications, but just like a child fearing a spanking, my belly would spank me if I didn't take my enzymes. <br>I'll say that yes, I am VERY forgetful and VERY irresponsible, but when it came to my health "just not doing it" was never an option in my mind. <br><br>What am I missing here?<br><br>Seana I know that to a 14 year old a 20 year old is probably an annoying old fart, but if you want me to send her a note (or heck, text her) I wouldn't mind. Though unless it's pure forgetfulness, it doesn't sound like I went through exactly what she is going through.

 

[Lance2020x]

I have to be honest here, I'm kinda shocked.
For me quitting my enzymes was NEVER an option. My parents never nagged me, they didn't need to (they probably wouldn't have anyway, I pretty much took care of myself) I learned REALLY quickly that if I didn't take my enzymes, I would be sick all the next day. Ofcourse I have to take far more enzymes than most people (10-11 with meals) so I really truly rely on them.
<br><br>
Am I hearing right that as a teen most of you went through an enzyme rebellion? What did I miss? Sure I HATED medications, but just like a child fearing a spanking, my belly would spank me if I didn't take my enzymes. <br>I'll say that yes, I am VERY forgetful and VERY irresponsible, but when it came to my health "just not doing it" was never an option in my mind. <br><br>What am I missing here?<br><br>Seana I know that to a 14 year old a 20 year old is probably an annoying old fart, but if you want me to send her a note (or heck, text her) I wouldn't mind. Though unless it's pure forgetfulness, it doesn't sound like I went through exactly what she is going through.

 

[Lance2020x]

I have to be honest here, I'm kinda shocked.
For me quitting my enzymes was NEVER an option. My parents never nagged me, they didn't need to (they probably wouldn't have anyway, I pretty much took care of myself) I learned REALLY quickly that if I didn't take my enzymes, I would be sick all the next day. Ofcourse I have to take far more enzymes than most people (10-11 with meals) so I really truly rely on them.
<br><br>
Am I hearing right that as a teen most of you went through an enzyme rebellion? What did I miss? Sure I HATED medications, but just like a child fearing a spanking, my belly would spank me if I didn't take my enzymes. <br>I'll say that yes, I am VERY forgetful and VERY irresponsible, but when it came to my health "just not doing it" was never an option in my mind. <br><br>What am I missing here?<br><br>Seana I know that to a 14 year old a 20 year old is probably an annoying old fart, but if you want me to send her a note (or heck, text her) I wouldn't mind. Though unless it's pure forgetfulness, it doesn't sound like I went through exactly what she is going through.

 

[broncos]

<img src="i/expressions/rose.gif" border="0"> i know how u feel our son who will be 13 in april fights us with all his meds its very hard to deal with him if anyone has any thing i dont know feel free to talk to me i tried talking to the dr nad everything
God Bless
Annette <img src="i/expressions/rose.gif" border="0">

 

[broncos]

<img src="i/expressions/rose.gif" border="0"> i know how u feel our son who will be 13 in april fights us with all his meds its very hard to deal with him if anyone has any thing i dont know feel free to talk to me i tried talking to the dr nad everything
God Bless
Annette <img src="i/expressions/rose.gif" border="0">

 

[broncos]

<img src="i/expressions/rose.gif" border="0"> i know how u feel our son who will be 13 in april fights us with all his meds its very hard to deal with him if anyone has any thing i dont know feel free to talk to me i tried talking to the dr nad everything
God Bless
Annette <img src="i/expressions/rose.gif" border="0">

 

[Kelli]

What works for my niece is just to get a simple letter from the dr and let the school know that she is allowed to keep her enzymes with her and can take them right with her lunch (or before if she wants to hide it from others). This has given my niece a sense of 'fitting in' she too, hated to go to the office to get her meds.

Or you could just tell your daughter to come up with some awesome 'story' as to what the meds are. Like diet pills since she is so fat, etc. heheheh Really get the other kids going. I know lying isn't always great, but hey, she deals with enough, let her have some fun with it. I know high schoolers always want to be different so let her come up with something 'different.'

Just an idea.
Kelli

 

[Kelli]

What works for my niece is just to get a simple letter from the dr and let the school know that she is allowed to keep her enzymes with her and can take them right with her lunch (or before if she wants to hide it from others). This has given my niece a sense of 'fitting in' she too, hated to go to the office to get her meds.

Or you could just tell your daughter to come up with some awesome 'story' as to what the meds are. Like diet pills since she is so fat, etc. heheheh Really get the other kids going. I know lying isn't always great, but hey, she deals with enough, let her have some fun with it. I know high schoolers always want to be different so let her come up with something 'different.'

Just an idea.
Kelli

 

[Kelli]

What works for my niece is just to get a simple letter from the dr and let the school know that she is allowed to keep her enzymes with her and can take them right with her lunch (or before if she wants to hide it from others). This has given my niece a sense of 'fitting in' she too, hated to go to the office to get her meds.

Or you could just tell your daughter to come up with some awesome 'story' as to what the meds are. Like diet pills since she is so fat, etc. heheheh Really get the other kids going. I know lying isn't always great, but hey, she deals with enough, let her have some fun with it. I know high schoolers always want to be different so let her come up with something 'different.'

Just an idea.
Kelli

 

[icefisherman]

I stopped taking my meds when i was 15, it had nothing to do with my parents or school, at that time i just needed a break. I think we all feel that we need a break at some point. Talk with her, and make sure you let her say what is on her mind(even if you disagree). I think all of us have a feeling that we need to do what we want now before its too late. the best thing you can do is just support her through anything. She will come around and do whats right for her. what that is nobody knows, but let her find out for herself.
I think you are doing a great job as a parent. Asking for advice means a lot with things like these. My advise might be useless to you, but the fact that you are selfless enough to get a bigger picture means a lot to people like me. like i said i'm not an example setter for the cf community, but i love life, i'm happy, and that's what i think life is all about.
Best of luck to your family
Ben

 

[icefisherman]

I stopped taking my meds when i was 15, it had nothing to do with my parents or school, at that time i just needed a break. I think we all feel that we need a break at some point. Talk with her, and make sure you let her say what is on her mind(even if you disagree). I think all of us have a feeling that we need to do what we want now before its too late. the best thing you can do is just support her through anything. She will come around and do whats right for her. what that is nobody knows, but let her find out for herself.
I think you are doing a great job as a parent. Asking for advice means a lot with things like these. My advise might be useless to you, but the fact that you are selfless enough to get a bigger picture means a lot to people like me. like i said i'm not an example setter for the cf community, but i love life, i'm happy, and that's what i think life is all about.
Best of luck to your family
Ben

 

[icefisherman]

I stopped taking my meds when i was 15, it had nothing to do with my parents or school, at that time i just needed a break. I think we all feel that we need a break at some point. Talk with her, and make sure you let her say what is on her mind(even if you disagree). I think all of us have a feeling that we need to do what we want now before its too late. the best thing you can do is just support her through anything. She will come around and do whats right for her. what that is nobody knows, but let her find out for herself.
I think you are doing a great job as a parent. Asking for advice means a lot with things like these. My advise might be useless to you, but the fact that you are selfless enough to get a bigger picture means a lot to people like me. like i said i'm not an example setter for the cf community, but i love life, i'm happy, and that's what i think life is all about.
Best of luck to your family
Ben