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What is going on with my son?
- Thread starter biz
- Start date
M
Mommafirst
Guest
What is going on with my son? ***Update he's being addmitted***
Elizabeth,
I know that an admission is emotional, overwhelming and difficult. Please know that it gets easier over time -- seems impossible, and I know that hearing this on our first admission was also upsetting because it meant dealing with the idea that this was going to happen again.
The hardest part for Aidan will be getting the PICC line. Please INSIST on having it done under some form of sedation. Our first time in, I didn't know enough to insist on it and it was a very traumatic event (for me, more than her -- she doesn't even remember it).
Once the picc is in, its really not too difficult. I'm glad they are letting you do most of the IVs at home. We usually have to stay in for 4-5 days or until she starts to show some improvement. Then we do the rest at home. Its more to add to your daily treatments, but its temporary.
(((((HUGS))))) Long life with CF is MUCH more possible with aggressive care and this course of IVs is part of that aggressiveness. As hard as it is, you will never be sorry for doing everything to help him.
Elizabeth,
I know that an admission is emotional, overwhelming and difficult. Please know that it gets easier over time -- seems impossible, and I know that hearing this on our first admission was also upsetting because it meant dealing with the idea that this was going to happen again.
The hardest part for Aidan will be getting the PICC line. Please INSIST on having it done under some form of sedation. Our first time in, I didn't know enough to insist on it and it was a very traumatic event (for me, more than her -- she doesn't even remember it).
Once the picc is in, its really not too difficult. I'm glad they are letting you do most of the IVs at home. We usually have to stay in for 4-5 days or until she starts to show some improvement. Then we do the rest at home. Its more to add to your daily treatments, but its temporary.
(((((HUGS))))) Long life with CF is MUCH more possible with aggressive care and this course of IVs is part of that aggressiveness. As hard as it is, you will never be sorry for doing everything to help him.
M
Mommafirst
Guest
What is going on with my son? ***Update he's being addmitted***
Elizabeth,
I know that an admission is emotional, overwhelming and difficult. Please know that it gets easier over time -- seems impossible, and I know that hearing this on our first admission was also upsetting because it meant dealing with the idea that this was going to happen again.
The hardest part for Aidan will be getting the PICC line. Please INSIST on having it done under some form of sedation. Our first time in, I didn't know enough to insist on it and it was a very traumatic event (for me, more than her -- she doesn't even remember it).
Once the picc is in, its really not too difficult. I'm glad they are letting you do most of the IVs at home. We usually have to stay in for 4-5 days or until she starts to show some improvement. Then we do the rest at home. Its more to add to your daily treatments, but its temporary.
(((((HUGS))))) Long life with CF is MUCH more possible with aggressive care and this course of IVs is part of that aggressiveness. As hard as it is, you will never be sorry for doing everything to help him.
Elizabeth,
I know that an admission is emotional, overwhelming and difficult. Please know that it gets easier over time -- seems impossible, and I know that hearing this on our first admission was also upsetting because it meant dealing with the idea that this was going to happen again.
The hardest part for Aidan will be getting the PICC line. Please INSIST on having it done under some form of sedation. Our first time in, I didn't know enough to insist on it and it was a very traumatic event (for me, more than her -- she doesn't even remember it).
Once the picc is in, its really not too difficult. I'm glad they are letting you do most of the IVs at home. We usually have to stay in for 4-5 days or until she starts to show some improvement. Then we do the rest at home. Its more to add to your daily treatments, but its temporary.
(((((HUGS))))) Long life with CF is MUCH more possible with aggressive care and this course of IVs is part of that aggressiveness. As hard as it is, you will never be sorry for doing everything to help him.
M
Mommafirst
Guest
What is going on with my son? ***Update he's being addmitted***
Elizabeth,
I know that an admission is emotional, overwhelming and difficult. Please know that it gets easier over time -- seems impossible, and I know that hearing this on our first admission was also upsetting because it meant dealing with the idea that this was going to happen again.
The hardest part for Aidan will be getting the PICC line. Please INSIST on having it done under some form of sedation. Our first time in, I didn't know enough to insist on it and it was a very traumatic event (for me, more than her -- she doesn't even remember it).
Once the picc is in, its really not too difficult. I'm glad they are letting you do most of the IVs at home. We usually have to stay in for 4-5 days or until she starts to show some improvement. Then we do the rest at home. Its more to add to your daily treatments, but its temporary.
(((((HUGS))))) Long life with CF is MUCH more possible with aggressive care and this course of IVs is part of that aggressiveness. As hard as it is, you will never be sorry for doing everything to help him.
Elizabeth,
I know that an admission is emotional, overwhelming and difficult. Please know that it gets easier over time -- seems impossible, and I know that hearing this on our first admission was also upsetting because it meant dealing with the idea that this was going to happen again.
The hardest part for Aidan will be getting the PICC line. Please INSIST on having it done under some form of sedation. Our first time in, I didn't know enough to insist on it and it was a very traumatic event (for me, more than her -- she doesn't even remember it).
Once the picc is in, its really not too difficult. I'm glad they are letting you do most of the IVs at home. We usually have to stay in for 4-5 days or until she starts to show some improvement. Then we do the rest at home. Its more to add to your daily treatments, but its temporary.
(((((HUGS))))) Long life with CF is MUCH more possible with aggressive care and this course of IVs is part of that aggressiveness. As hard as it is, you will never be sorry for doing everything to help him.
M
Mommafirst
Guest
What is going on with my son? ***Update he's being addmitted***
Elizabeth,
I know that an admission is emotional, overwhelming and difficult. Please know that it gets easier over time -- seems impossible, and I know that hearing this on our first admission was also upsetting because it meant dealing with the idea that this was going to happen again.
The hardest part for Aidan will be getting the PICC line. Please INSIST on having it done under some form of sedation. Our first time in, I didn't know enough to insist on it and it was a very traumatic event (for me, more than her -- she doesn't even remember it).
Once the picc is in, its really not too difficult. I'm glad they are letting you do most of the IVs at home. We usually have to stay in for 4-5 days or until she starts to show some improvement. Then we do the rest at home. Its more to add to your daily treatments, but its temporary.
(((((HUGS))))) Long life with CF is MUCH more possible with aggressive care and this course of IVs is part of that aggressiveness. As hard as it is, you will never be sorry for doing everything to help him.
Elizabeth,
I know that an admission is emotional, overwhelming and difficult. Please know that it gets easier over time -- seems impossible, and I know that hearing this on our first admission was also upsetting because it meant dealing with the idea that this was going to happen again.
The hardest part for Aidan will be getting the PICC line. Please INSIST on having it done under some form of sedation. Our first time in, I didn't know enough to insist on it and it was a very traumatic event (for me, more than her -- she doesn't even remember it).
Once the picc is in, its really not too difficult. I'm glad they are letting you do most of the IVs at home. We usually have to stay in for 4-5 days or until she starts to show some improvement. Then we do the rest at home. Its more to add to your daily treatments, but its temporary.
(((((HUGS))))) Long life with CF is MUCH more possible with aggressive care and this course of IVs is part of that aggressiveness. As hard as it is, you will never be sorry for doing everything to help him.
M
Mommafirst
Guest
What is going on with my son? ***Update he's being addmitted***
Elizabeth,
<br />
<br />I know that an admission is emotional, overwhelming and difficult. Please know that it gets easier over time -- seems impossible, and I know that hearing this on our first admission was also upsetting because it meant dealing with the idea that this was going to happen again.
<br />
<br />The hardest part for Aidan will be getting the PICC line. Please INSIST on having it done under some form of sedation. Our first time in, I didn't know enough to insist on it and it was a very traumatic event (for me, more than her -- she doesn't even remember it).
<br />
<br />Once the picc is in, its really not too difficult. I'm glad they are letting you do most of the IVs at home. We usually have to stay in for 4-5 days or until she starts to show some improvement. Then we do the rest at home. Its more to add to your daily treatments, but its temporary.
<br />
<br />(((((HUGS))))) Long life with CF is MUCH more possible with aggressive care and this course of IVs is part of that aggressiveness. As hard as it is, you will never be sorry for doing everything to help him.
Elizabeth,
<br />
<br />I know that an admission is emotional, overwhelming and difficult. Please know that it gets easier over time -- seems impossible, and I know that hearing this on our first admission was also upsetting because it meant dealing with the idea that this was going to happen again.
<br />
<br />The hardest part for Aidan will be getting the PICC line. Please INSIST on having it done under some form of sedation. Our first time in, I didn't know enough to insist on it and it was a very traumatic event (for me, more than her -- she doesn't even remember it).
<br />
<br />Once the picc is in, its really not too difficult. I'm glad they are letting you do most of the IVs at home. We usually have to stay in for 4-5 days or until she starts to show some improvement. Then we do the rest at home. Its more to add to your daily treatments, but its temporary.
<br />
<br />(((((HUGS))))) Long life with CF is MUCH more possible with aggressive care and this course of IVs is part of that aggressiveness. As hard as it is, you will never be sorry for doing everything to help him.
debs2girls
New member
What is going on with my son? ***Update he's being addmitted***
I am so jealous you dont have to stay for two weeks. I am happy you dont have to. We do a minumum of two weeks in and then two to three weeks of home IV's, every three months. My daughter wasnt diagnosed until she was 5 and had already had numerous bouts of pneumonia.
Starting early, like you are doing, will pay off in the long run for your son.
I dont think you will have any proplems with your son pulling out his PICC line. When we used to have them, I covered it completely with coban.
Good luck to you both. I will keep you in my prayers.
I am so jealous you dont have to stay for two weeks. I am happy you dont have to. We do a minumum of two weeks in and then two to three weeks of home IV's, every three months. My daughter wasnt diagnosed until she was 5 and had already had numerous bouts of pneumonia.
Starting early, like you are doing, will pay off in the long run for your son.
I dont think you will have any proplems with your son pulling out his PICC line. When we used to have them, I covered it completely with coban.
Good luck to you both. I will keep you in my prayers.
debs2girls
New member
What is going on with my son? ***Update he's being addmitted***
I am so jealous you dont have to stay for two weeks. I am happy you dont have to. We do a minumum of two weeks in and then two to three weeks of home IV's, every three months. My daughter wasnt diagnosed until she was 5 and had already had numerous bouts of pneumonia.
Starting early, like you are doing, will pay off in the long run for your son.
I dont think you will have any proplems with your son pulling out his PICC line. When we used to have them, I covered it completely with coban.
Good luck to you both. I will keep you in my prayers.
I am so jealous you dont have to stay for two weeks. I am happy you dont have to. We do a minumum of two weeks in and then two to three weeks of home IV's, every three months. My daughter wasnt diagnosed until she was 5 and had already had numerous bouts of pneumonia.
Starting early, like you are doing, will pay off in the long run for your son.
I dont think you will have any proplems with your son pulling out his PICC line. When we used to have them, I covered it completely with coban.
Good luck to you both. I will keep you in my prayers.
debs2girls
New member
What is going on with my son? ***Update he's being addmitted***
I am so jealous you dont have to stay for two weeks. I am happy you dont have to. We do a minumum of two weeks in and then two to three weeks of home IV's, every three months. My daughter wasnt diagnosed until she was 5 and had already had numerous bouts of pneumonia.
Starting early, like you are doing, will pay off in the long run for your son.
I dont think you will have any proplems with your son pulling out his PICC line. When we used to have them, I covered it completely with coban.
Good luck to you both. I will keep you in my prayers.
I am so jealous you dont have to stay for two weeks. I am happy you dont have to. We do a minumum of two weeks in and then two to three weeks of home IV's, every three months. My daughter wasnt diagnosed until she was 5 and had already had numerous bouts of pneumonia.
Starting early, like you are doing, will pay off in the long run for your son.
I dont think you will have any proplems with your son pulling out his PICC line. When we used to have them, I covered it completely with coban.
Good luck to you both. I will keep you in my prayers.
debs2girls
New member
What is going on with my son? ***Update he's being addmitted***
I am so jealous you dont have to stay for two weeks. I am happy you dont have to. We do a minumum of two weeks in and then two to three weeks of home IV's, every three months. My daughter wasnt diagnosed until she was 5 and had already had numerous bouts of pneumonia.
Starting early, like you are doing, will pay off in the long run for your son.
I dont think you will have any proplems with your son pulling out his PICC line. When we used to have them, I covered it completely with coban.
Good luck to you both. I will keep you in my prayers.
I am so jealous you dont have to stay for two weeks. I am happy you dont have to. We do a minumum of two weeks in and then two to three weeks of home IV's, every three months. My daughter wasnt diagnosed until she was 5 and had already had numerous bouts of pneumonia.
Starting early, like you are doing, will pay off in the long run for your son.
I dont think you will have any proplems with your son pulling out his PICC line. When we used to have them, I covered it completely with coban.
Good luck to you both. I will keep you in my prayers.
debs2girls
New member
What is going on with my son? ***Update he's being addmitted***
I am so jealous you dont have to stay for two weeks. I am happy you dont have to. We do a minumum of two weeks in and then two to three weeks of home IV's, every three months. My daughter wasnt diagnosed until she was 5 and had already had numerous bouts of pneumonia.
<br />Starting early, like you are doing, will pay off in the long run for your son.
<br />I dont think you will have any proplems with your son pulling out his PICC line. When we used to have them, I covered it completely with coban.
<br />
<br />Good luck to you both. I will keep you in my prayers.
I am so jealous you dont have to stay for two weeks. I am happy you dont have to. We do a minumum of two weeks in and then two to three weeks of home IV's, every three months. My daughter wasnt diagnosed until she was 5 and had already had numerous bouts of pneumonia.
<br />Starting early, like you are doing, will pay off in the long run for your son.
<br />I dont think you will have any proplems with your son pulling out his PICC line. When we used to have them, I covered it completely with coban.
<br />
<br />Good luck to you both. I will keep you in my prayers.
What is going on with my son? ***Update he's being addmitted***
Heather, thanks so much for ur advice. Aidan is going to be sedated for the pic line. I wuldnt have it any other way and was happy the doc was on top of that.
All of your feedback has really helped me understand this more. I'm learning that this is a GOOD thing for Aidan. at first we were mad about it and asking why and looking to place blame. Like the ball got dropped along the way by his doc. but i know that sometimes the bugs that thay get are more powerful then oral and EVERYTHING I have done to get Aidan over this and it's time to call in the big guns!
thank you for helping me understand that IV abx isnt bad! and this is a good thing especially early in life.
Got the call this morning we go in tommorow I was really mentally prepared for today but can't control it all. thank again for you help and kind words and prayers.
-----------------------------------------------
Elizabeth
mama to Aidan 4 w/CF
Heather, thanks so much for ur advice. Aidan is going to be sedated for the pic line. I wuldnt have it any other way and was happy the doc was on top of that.
All of your feedback has really helped me understand this more. I'm learning that this is a GOOD thing for Aidan. at first we were mad about it and asking why and looking to place blame. Like the ball got dropped along the way by his doc. but i know that sometimes the bugs that thay get are more powerful then oral and EVERYTHING I have done to get Aidan over this and it's time to call in the big guns!
thank you for helping me understand that IV abx isnt bad! and this is a good thing especially early in life.
Got the call this morning we go in tommorow I was really mentally prepared for today but can't control it all. thank again for you help and kind words and prayers.
-----------------------------------------------
Elizabeth
mama to Aidan 4 w/CF
What is going on with my son? ***Update he's being addmitted***
Heather, thanks so much for ur advice. Aidan is going to be sedated for the pic line. I wuldnt have it any other way and was happy the doc was on top of that.
All of your feedback has really helped me understand this more. I'm learning that this is a GOOD thing for Aidan. at first we were mad about it and asking why and looking to place blame. Like the ball got dropped along the way by his doc. but i know that sometimes the bugs that thay get are more powerful then oral and EVERYTHING I have done to get Aidan over this and it's time to call in the big guns!
thank you for helping me understand that IV abx isnt bad! and this is a good thing especially early in life.
Got the call this morning we go in tommorow I was really mentally prepared for today but can't control it all. thank again for you help and kind words and prayers.
-----------------------------------------------
Elizabeth
mama to Aidan 4 w/CF
Heather, thanks so much for ur advice. Aidan is going to be sedated for the pic line. I wuldnt have it any other way and was happy the doc was on top of that.
All of your feedback has really helped me understand this more. I'm learning that this is a GOOD thing for Aidan. at first we were mad about it and asking why and looking to place blame. Like the ball got dropped along the way by his doc. but i know that sometimes the bugs that thay get are more powerful then oral and EVERYTHING I have done to get Aidan over this and it's time to call in the big guns!
thank you for helping me understand that IV abx isnt bad! and this is a good thing especially early in life.
Got the call this morning we go in tommorow I was really mentally prepared for today but can't control it all. thank again for you help and kind words and prayers.
-----------------------------------------------
Elizabeth
mama to Aidan 4 w/CF
What is going on with my son? ***Update he's being addmitted***
Heather, thanks so much for ur advice. Aidan is going to be sedated for the pic line. I wuldnt have it any other way and was happy the doc was on top of that.
All of your feedback has really helped me understand this more. I'm learning that this is a GOOD thing for Aidan. at first we were mad about it and asking why and looking to place blame. Like the ball got dropped along the way by his doc. but i know that sometimes the bugs that thay get are more powerful then oral and EVERYTHING I have done to get Aidan over this and it's time to call in the big guns!
thank you for helping me understand that IV abx isnt bad! and this is a good thing especially early in life.
Got the call this morning we go in tommorow I was really mentally prepared for today but can't control it all. thank again for you help and kind words and prayers.
-----------------------------------------------
Elizabeth
mama to Aidan 4 w/CF
Heather, thanks so much for ur advice. Aidan is going to be sedated for the pic line. I wuldnt have it any other way and was happy the doc was on top of that.
All of your feedback has really helped me understand this more. I'm learning that this is a GOOD thing for Aidan. at first we were mad about it and asking why and looking to place blame. Like the ball got dropped along the way by his doc. but i know that sometimes the bugs that thay get are more powerful then oral and EVERYTHING I have done to get Aidan over this and it's time to call in the big guns!
thank you for helping me understand that IV abx isnt bad! and this is a good thing especially early in life.
Got the call this morning we go in tommorow I was really mentally prepared for today but can't control it all. thank again for you help and kind words and prayers.
-----------------------------------------------
Elizabeth
mama to Aidan 4 w/CF
What is going on with my son? ***Update he's being addmitted***
Heather, thanks so much for ur advice. Aidan is going to be sedated for the pic line. I wuldnt have it any other way and was happy the doc was on top of that.
All of your feedback has really helped me understand this more. I'm learning that this is a GOOD thing for Aidan. at first we were mad about it and asking why and looking to place blame. Like the ball got dropped along the way by his doc. but i know that sometimes the bugs that thay get are more powerful then oral and EVERYTHING I have done to get Aidan over this and it's time to call in the big guns!
thank you for helping me understand that IV abx isnt bad! and this is a good thing especially early in life.
Got the call this morning we go in tommorow I was really mentally prepared for today but can't control it all. thank again for you help and kind words and prayers.
-----------------------------------------------
Elizabeth
mama to Aidan 4 w/CF
Heather, thanks so much for ur advice. Aidan is going to be sedated for the pic line. I wuldnt have it any other way and was happy the doc was on top of that.
All of your feedback has really helped me understand this more. I'm learning that this is a GOOD thing for Aidan. at first we were mad about it and asking why and looking to place blame. Like the ball got dropped along the way by his doc. but i know that sometimes the bugs that thay get are more powerful then oral and EVERYTHING I have done to get Aidan over this and it's time to call in the big guns!
thank you for helping me understand that IV abx isnt bad! and this is a good thing especially early in life.
Got the call this morning we go in tommorow I was really mentally prepared for today but can't control it all. thank again for you help and kind words and prayers.
-----------------------------------------------
Elizabeth
mama to Aidan 4 w/CF
What is going on with my son? ***Update he's being addmitted***
Heather, thanks so much for ur advice. Aidan is going to be sedated for the pic line. I wuldnt have it any other way and was happy the doc was on top of that.
<br />
<br />All of your feedback has really helped me understand this more. I'm learning that this is a GOOD thing for Aidan. at first we were mad about it and asking why and looking to place blame. Like the ball got dropped along the way by his doc. but i know that sometimes the bugs that thay get are more powerful then oral and EVERYTHING I have done to get Aidan over this and it's time to call in the big guns!
<br />
<br />thank you for helping me understand that IV abx isnt bad! and this is a good thing especially early in life.
<br />
<br />Got the call this morning we go in tommorow I was really mentally prepared for today but can't control it all. thank again for you help and kind words and prayers.
<br />-----------------------------------------------
<br />Elizabeth
<br />mama to Aidan 4 w/CF
Heather, thanks so much for ur advice. Aidan is going to be sedated for the pic line. I wuldnt have it any other way and was happy the doc was on top of that.
<br />
<br />All of your feedback has really helped me understand this more. I'm learning that this is a GOOD thing for Aidan. at first we were mad about it and asking why and looking to place blame. Like the ball got dropped along the way by his doc. but i know that sometimes the bugs that thay get are more powerful then oral and EVERYTHING I have done to get Aidan over this and it's time to call in the big guns!
<br />
<br />thank you for helping me understand that IV abx isnt bad! and this is a good thing especially early in life.
<br />
<br />Got the call this morning we go in tommorow I was really mentally prepared for today but can't control it all. thank again for you help and kind words and prayers.
<br />-----------------------------------------------
<br />Elizabeth
<br />mama to Aidan 4 w/CF