What is pain?

robert321

New member
Well, according to those stupid charts in the hospital the nurses carry around, i would say that anything past the third face would be pain <img src="i/expressions/face-icon-small-happy.gif" border="0"><img src="i/expressions/face-icon-small-frown.gif" border="0"> lol yeah, with cf you deal with pain a lot of times, but you learn to deal with it, take 400mg of ibuprophen and keep going, if that doesn't get the job done, bust out the "happy pills" the dr gave you lol. i try not to complain too much about the various aches and pains, specifically my knees, hips, gut, lungs, and head but yeah i guess i would call that pain but one of the lesser degrees of it
 

robert321

New member
Well, according to those stupid charts in the hospital the nurses carry around, i would say that anything past the third face would be pain <img src="i/expressions/face-icon-small-happy.gif" border="0"><img src="i/expressions/face-icon-small-frown.gif" border="0"> lol yeah, with cf you deal with pain a lot of times, but you learn to deal with it, take 400mg of ibuprophen and keep going, if that doesn't get the job done, bust out the "happy pills" the dr gave you lol. i try not to complain too much about the various aches and pains, specifically my knees, hips, gut, lungs, and head but yeah i guess i would call that pain but one of the lesser degrees of it
 

robert321

New member
Well, according to those stupid charts in the hospital the nurses carry around, i would say that anything past the third face would be pain <img src="i/expressions/face-icon-small-happy.gif" border="0"><img src="i/expressions/face-icon-small-frown.gif" border="0"> lol yeah, with cf you deal with pain a lot of times, but you learn to deal with it, take 400mg of ibuprophen and keep going, if that doesn't get the job done, bust out the "happy pills" the dr gave you lol. i try not to complain too much about the various aches and pains, specifically my knees, hips, gut, lungs, and head but yeah i guess i would call that pain but one of the lesser degrees of it
 

robert321

New member
Well, according to those stupid charts in the hospital the nurses carry around, i would say that anything past the third face would be pain <img src="i/expressions/face-icon-small-happy.gif" border="0"><img src="i/expressions/face-icon-small-frown.gif" border="0"> lol yeah, with cf you deal with pain a lot of times, but you learn to deal with it, take 400mg of ibuprophen and keep going, if that doesn't get the job done, bust out the "happy pills" the dr gave you lol. i try not to complain too much about the various aches and pains, specifically my knees, hips, gut, lungs, and head but yeah i guess i would call that pain but one of the lesser degrees of it
 

robert321

New member
Well, according to those stupid charts in the hospital the nurses carry around, i would say that anything past the third face would be pain <img src="i/expressions/face-icon-small-happy.gif" border="0"><img src="i/expressions/face-icon-small-frown.gif" border="0"> lol yeah, with cf you deal with pain a lot of times, but you learn to deal with it, take 400mg of ibuprophen and keep going, if that doesn't get the job done, bust out the "happy pills" the dr gave you lol. i try not to complain too much about the various aches and pains, specifically my knees, hips, gut, lungs, and head but yeah i guess i would call that pain but one of the lesser degrees of it
 

coltsfan715

New member
I think pain is partly based on perception. I too experienced ALOT of discomfort before I had my transplant. I can honestly say I had back pain for years - middle and upper back pain. The only time I ever really considered taking prescribed pain meds was when I had popped a rib out of place coughing. I could barely breathe I was in so much pain with that.

I was hesitant to use pain meds - not because I wanted to "be strong" and go against the grain by refusing them. I just didn't want to take something ELSE ya know what I mean. I hate taking even tylenol or any other over the counter pain med too if my pain can be managed some other way.

I would maybe talk to your doctor about therapy of some sort. Physical therapy or cardio pulmonary rehab or a combination of both. Also maybe massage therapy. I know it is possible to get all of those covered by insurance if your doctor will work with you and perscribe the therapy to treat muscle spasms and cramping due to Cystic Fibrosis.

I had my docs write me several scripts for this in the past and each time they were able to help me get my pain to a VERY manageable level. Basically they lessened my pain just as much if not more so than any pain med ever could have. I have also found since my transplant that a part of my back pain was caused by my breathing but a major part of it was that I was SOOO incredibly deconditioned. As I have built up my strength and egun exercising almost daily I have noticed that in recent months my back pain is about 98% gone. Something that I dealt with for probably about 15 years is finally gone or on its way too gone.

I will say I had pain meds after my transplant but ended up with a mild addiction - I say addiction I did not have to go to rehab or anything and I was able to come off the meds without assistance BUT my body was definitely addicted and I had some pretty unpleasant withdrawal symptoms from it. I have promised myself after that experience that I will not be taking pain meds regularly for anything that can be managed without them. Some things I think you need pain meds for BUT like Mel said exercise can help alot. So if you have NOT tried exercise (not even heavy exercise just something like using resistance bands to strengthen your upper body, back and arms) or even therapy I would maybe try to pursue those before jumping right to pain meds. That is just me though I do not know how much pain you are in. I only have my pain to compare too and those things helped me tremendously.

I wish you all the best and regardless of what you do to manage your pain/discomfort I hope that you get some relief.

Love Lindsey
 

coltsfan715

New member
I think pain is partly based on perception. I too experienced ALOT of discomfort before I had my transplant. I can honestly say I had back pain for years - middle and upper back pain. The only time I ever really considered taking prescribed pain meds was when I had popped a rib out of place coughing. I could barely breathe I was in so much pain with that.

I was hesitant to use pain meds - not because I wanted to "be strong" and go against the grain by refusing them. I just didn't want to take something ELSE ya know what I mean. I hate taking even tylenol or any other over the counter pain med too if my pain can be managed some other way.

I would maybe talk to your doctor about therapy of some sort. Physical therapy or cardio pulmonary rehab or a combination of both. Also maybe massage therapy. I know it is possible to get all of those covered by insurance if your doctor will work with you and perscribe the therapy to treat muscle spasms and cramping due to Cystic Fibrosis.

I had my docs write me several scripts for this in the past and each time they were able to help me get my pain to a VERY manageable level. Basically they lessened my pain just as much if not more so than any pain med ever could have. I have also found since my transplant that a part of my back pain was caused by my breathing but a major part of it was that I was SOOO incredibly deconditioned. As I have built up my strength and egun exercising almost daily I have noticed that in recent months my back pain is about 98% gone. Something that I dealt with for probably about 15 years is finally gone or on its way too gone.

I will say I had pain meds after my transplant but ended up with a mild addiction - I say addiction I did not have to go to rehab or anything and I was able to come off the meds without assistance BUT my body was definitely addicted and I had some pretty unpleasant withdrawal symptoms from it. I have promised myself after that experience that I will not be taking pain meds regularly for anything that can be managed without them. Some things I think you need pain meds for BUT like Mel said exercise can help alot. So if you have NOT tried exercise (not even heavy exercise just something like using resistance bands to strengthen your upper body, back and arms) or even therapy I would maybe try to pursue those before jumping right to pain meds. That is just me though I do not know how much pain you are in. I only have my pain to compare too and those things helped me tremendously.

I wish you all the best and regardless of what you do to manage your pain/discomfort I hope that you get some relief.

Love Lindsey
 

coltsfan715

New member
I think pain is partly based on perception. I too experienced ALOT of discomfort before I had my transplant. I can honestly say I had back pain for years - middle and upper back pain. The only time I ever really considered taking prescribed pain meds was when I had popped a rib out of place coughing. I could barely breathe I was in so much pain with that.

I was hesitant to use pain meds - not because I wanted to "be strong" and go against the grain by refusing them. I just didn't want to take something ELSE ya know what I mean. I hate taking even tylenol or any other over the counter pain med too if my pain can be managed some other way.

I would maybe talk to your doctor about therapy of some sort. Physical therapy or cardio pulmonary rehab or a combination of both. Also maybe massage therapy. I know it is possible to get all of those covered by insurance if your doctor will work with you and perscribe the therapy to treat muscle spasms and cramping due to Cystic Fibrosis.

I had my docs write me several scripts for this in the past and each time they were able to help me get my pain to a VERY manageable level. Basically they lessened my pain just as much if not more so than any pain med ever could have. I have also found since my transplant that a part of my back pain was caused by my breathing but a major part of it was that I was SOOO incredibly deconditioned. As I have built up my strength and egun exercising almost daily I have noticed that in recent months my back pain is about 98% gone. Something that I dealt with for probably about 15 years is finally gone or on its way too gone.

I will say I had pain meds after my transplant but ended up with a mild addiction - I say addiction I did not have to go to rehab or anything and I was able to come off the meds without assistance BUT my body was definitely addicted and I had some pretty unpleasant withdrawal symptoms from it. I have promised myself after that experience that I will not be taking pain meds regularly for anything that can be managed without them. Some things I think you need pain meds for BUT like Mel said exercise can help alot. So if you have NOT tried exercise (not even heavy exercise just something like using resistance bands to strengthen your upper body, back and arms) or even therapy I would maybe try to pursue those before jumping right to pain meds. That is just me though I do not know how much pain you are in. I only have my pain to compare too and those things helped me tremendously.

I wish you all the best and regardless of what you do to manage your pain/discomfort I hope that you get some relief.

Love Lindsey
 

coltsfan715

New member
I think pain is partly based on perception. I too experienced ALOT of discomfort before I had my transplant. I can honestly say I had back pain for years - middle and upper back pain. The only time I ever really considered taking prescribed pain meds was when I had popped a rib out of place coughing. I could barely breathe I was in so much pain with that.

I was hesitant to use pain meds - not because I wanted to "be strong" and go against the grain by refusing them. I just didn't want to take something ELSE ya know what I mean. I hate taking even tylenol or any other over the counter pain med too if my pain can be managed some other way.

I would maybe talk to your doctor about therapy of some sort. Physical therapy or cardio pulmonary rehab or a combination of both. Also maybe massage therapy. I know it is possible to get all of those covered by insurance if your doctor will work with you and perscribe the therapy to treat muscle spasms and cramping due to Cystic Fibrosis.

I had my docs write me several scripts for this in the past and each time they were able to help me get my pain to a VERY manageable level. Basically they lessened my pain just as much if not more so than any pain med ever could have. I have also found since my transplant that a part of my back pain was caused by my breathing but a major part of it was that I was SOOO incredibly deconditioned. As I have built up my strength and egun exercising almost daily I have noticed that in recent months my back pain is about 98% gone. Something that I dealt with for probably about 15 years is finally gone or on its way too gone.

I will say I had pain meds after my transplant but ended up with a mild addiction - I say addiction I did not have to go to rehab or anything and I was able to come off the meds without assistance BUT my body was definitely addicted and I had some pretty unpleasant withdrawal symptoms from it. I have promised myself after that experience that I will not be taking pain meds regularly for anything that can be managed without them. Some things I think you need pain meds for BUT like Mel said exercise can help alot. So if you have NOT tried exercise (not even heavy exercise just something like using resistance bands to strengthen your upper body, back and arms) or even therapy I would maybe try to pursue those before jumping right to pain meds. That is just me though I do not know how much pain you are in. I only have my pain to compare too and those things helped me tremendously.

I wish you all the best and regardless of what you do to manage your pain/discomfort I hope that you get some relief.

Love Lindsey
 

coltsfan715

New member
I think pain is partly based on perception. I too experienced ALOT of discomfort before I had my transplant. I can honestly say I had back pain for years - middle and upper back pain. The only time I ever really considered taking prescribed pain meds was when I had popped a rib out of place coughing. I could barely breathe I was in so much pain with that.

I was hesitant to use pain meds - not because I wanted to "be strong" and go against the grain by refusing them. I just didn't want to take something ELSE ya know what I mean. I hate taking even tylenol or any other over the counter pain med too if my pain can be managed some other way.

I would maybe talk to your doctor about therapy of some sort. Physical therapy or cardio pulmonary rehab or a combination of both. Also maybe massage therapy. I know it is possible to get all of those covered by insurance if your doctor will work with you and perscribe the therapy to treat muscle spasms and cramping due to Cystic Fibrosis.

I had my docs write me several scripts for this in the past and each time they were able to help me get my pain to a VERY manageable level. Basically they lessened my pain just as much if not more so than any pain med ever could have. I have also found since my transplant that a part of my back pain was caused by my breathing but a major part of it was that I was SOOO incredibly deconditioned. As I have built up my strength and egun exercising almost daily I have noticed that in recent months my back pain is about 98% gone. Something that I dealt with for probably about 15 years is finally gone or on its way too gone.

I will say I had pain meds after my transplant but ended up with a mild addiction - I say addiction I did not have to go to rehab or anything and I was able to come off the meds without assistance BUT my body was definitely addicted and I had some pretty unpleasant withdrawal symptoms from it. I have promised myself after that experience that I will not be taking pain meds regularly for anything that can be managed without them. Some things I think you need pain meds for BUT like Mel said exercise can help alot. So if you have NOT tried exercise (not even heavy exercise just something like using resistance bands to strengthen your upper body, back and arms) or even therapy I would maybe try to pursue those before jumping right to pain meds. That is just me though I do not know how much pain you are in. I only have my pain to compare too and those things helped me tremendously.

I wish you all the best and regardless of what you do to manage your pain/discomfort I hope that you get some relief.

Love Lindsey
 

ariesapie

New member
Thanks to all of you who responded. I agree with colts, alot of times I dont want to take more crap(meds). I definitely dont want any kind of narcotic. I have enough digestive problems and dont need the added constipation that goes along with anything like percoset or vicodin and anything like that. I guess maybe what I want more than anything is at least to be taken seriously when I feel like I need a little relief. My dr gives me the 800mg ibuprofen which actually work really well. But sometimes It doesnt help everything. At one point I was excersizing .. I would walk on the treadmill for about 20-30 minutes every other day for about 3 months. Then one morning I woke up with the worst aches in my knees and back I had ever had. I dont know if it was the change in the weather or if I over did it, but ever since then even if I walk around the grocery store too long I feel it all the next day. Massage therapy sounds like its worth a try, I think I will look into that. Thanks for all of your suggestions!!
 

ariesapie

New member
Thanks to all of you who responded. I agree with colts, alot of times I dont want to take more crap(meds). I definitely dont want any kind of narcotic. I have enough digestive problems and dont need the added constipation that goes along with anything like percoset or vicodin and anything like that. I guess maybe what I want more than anything is at least to be taken seriously when I feel like I need a little relief. My dr gives me the 800mg ibuprofen which actually work really well. But sometimes It doesnt help everything. At one point I was excersizing .. I would walk on the treadmill for about 20-30 minutes every other day for about 3 months. Then one morning I woke up with the worst aches in my knees and back I had ever had. I dont know if it was the change in the weather or if I over did it, but ever since then even if I walk around the grocery store too long I feel it all the next day. Massage therapy sounds like its worth a try, I think I will look into that. Thanks for all of your suggestions!!
 

ariesapie

New member
Thanks to all of you who responded. I agree with colts, alot of times I dont want to take more crap(meds). I definitely dont want any kind of narcotic. I have enough digestive problems and dont need the added constipation that goes along with anything like percoset or vicodin and anything like that. I guess maybe what I want more than anything is at least to be taken seriously when I feel like I need a little relief. My dr gives me the 800mg ibuprofen which actually work really well. But sometimes It doesnt help everything. At one point I was excersizing .. I would walk on the treadmill for about 20-30 minutes every other day for about 3 months. Then one morning I woke up with the worst aches in my knees and back I had ever had. I dont know if it was the change in the weather or if I over did it, but ever since then even if I walk around the grocery store too long I feel it all the next day. Massage therapy sounds like its worth a try, I think I will look into that. Thanks for all of your suggestions!!
 

ariesapie

New member
Thanks to all of you who responded. I agree with colts, alot of times I dont want to take more crap(meds). I definitely dont want any kind of narcotic. I have enough digestive problems and dont need the added constipation that goes along with anything like percoset or vicodin and anything like that. I guess maybe what I want more than anything is at least to be taken seriously when I feel like I need a little relief. My dr gives me the 800mg ibuprofen which actually work really well. But sometimes It doesnt help everything. At one point I was excersizing .. I would walk on the treadmill for about 20-30 minutes every other day for about 3 months. Then one morning I woke up with the worst aches in my knees and back I had ever had. I dont know if it was the change in the weather or if I over did it, but ever since then even if I walk around the grocery store too long I feel it all the next day. Massage therapy sounds like its worth a try, I think I will look into that. Thanks for all of your suggestions!!
 

ariesapie

New member
Thanks to all of you who responded. I agree with colts, alot of times I dont want to take more crap(meds). I definitely dont want any kind of narcotic. I have enough digestive problems and dont need the added constipation that goes along with anything like percoset or vicodin and anything like that. I guess maybe what I want more than anything is at least to be taken seriously when I feel like I need a little relief. My dr gives me the 800mg ibuprofen which actually work really well. But sometimes It doesnt help everything. At one point I was excersizing .. I would walk on the treadmill for about 20-30 minutes every other day for about 3 months. Then one morning I woke up with the worst aches in my knees and back I had ever had. I dont know if it was the change in the weather or if I over did it, but ever since then even if I walk around the grocery store too long I feel it all the next day. Massage therapy sounds like its worth a try, I think I will look into that. Thanks for all of your suggestions!!
 

jesta36

New member
hello my name is Jay im from TN. diagnosed at birth. I have issues with pain also but i add to the pain, im 29 and a skateboarder so that helps add to the pain.lol. I know what you mean bou the back pains. ibuprofen iz all i take unless the pain iz to unbearable. then i unfortunately drink a little. but have been sober for 3 weekz. yey! good luck with life people
One.
 

jesta36

New member
hello my name is Jay im from TN. diagnosed at birth. I have issues with pain also but i add to the pain, im 29 and a skateboarder so that helps add to the pain.lol. I know what you mean bou the back pains. ibuprofen iz all i take unless the pain iz to unbearable. then i unfortunately drink a little. but have been sober for 3 weekz. yey! good luck with life people
One.
 

jesta36

New member
hello my name is Jay im from TN. diagnosed at birth. I have issues with pain also but i add to the pain, im 29 and a skateboarder so that helps add to the pain.lol. I know what you mean bou the back pains. ibuprofen iz all i take unless the pain iz to unbearable. then i unfortunately drink a little. but have been sober for 3 weekz. yey! good luck with life people
One.
 

jesta36

New member
hello my name is Jay im from TN. diagnosed at birth. I have issues with pain also but i add to the pain, im 29 and a skateboarder so that helps add to the pain.lol. I know what you mean bou the back pains. ibuprofen iz all i take unless the pain iz to unbearable. then i unfortunately drink a little. but have been sober for 3 weekz. yey! good luck with life people
One.
 

jesta36

New member
hello my name is Jay im from TN. diagnosed at birth. I have issues with pain also but i add to the pain, im 29 and a skateboarder so that helps add to the pain.lol. I know what you mean bou the back pains. ibuprofen iz all i take unless the pain iz to unbearable. then i unfortunately drink a little. but have been sober for 3 weekz. yey! good luck with life people
One.
 
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