What next for our future?

Skye

New member
I am sooooo greatful that abortion was not in my mother's vocabulary. I am the 2nd child of 5. Both my sisters and both of my brothers are CF free. Doctors told my mother she should abort my youngest sister. She is a hotel executive now with 2 small children. Please don't let fear of the unexpected rule your thoughts<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Skye

New member
I am sooooo greatful that abortion was not in my mother's vocabulary. I am the 2nd child of 5. Both my sisters and both of my brothers are CF free. Doctors told my mother she should abort my youngest sister. She is a hotel executive now with 2 small children. Please don't let fear of the unexpected rule your thoughts<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Skye

New member
I am sooooo greatful that abortion was not in my mother's vocabulary. I am the 2nd child of 5. Both my sisters and both of my brothers are CF free. Doctors told my mother she should abort my youngest sister. She is a hotel executive now with 2 small children. Please don't let fear of the unexpected rule your thoughts<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Skye

New member
I am sooooo greatful that abortion was not in my mother's vocabulary. I am the 2nd child of 5. Both my sisters and both of my brothers are CF free. Doctors told my mother she should abort my youngest sister. She is a hotel executive now with 2 small children. Please don't let fear of the unexpected rule your thoughts<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Skye

New member
I am sooooo greatful that abortion was not in my mother's vocabulary. I am the 2nd child of 5. Both my sisters and both of my brothers are CF free. Doctors told my mother she should abort my youngest sister. She is a hotel executive now with 2 small children. Please don't let fear of the unexpected rule your thoughts<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Alyssa

New member
I just skimmed what others have said here and by and large it all looked basically good to me. But there was one thing the original poster mentioned that I haven't seen anyone talk about specifically -- that is she was not so concerned with creating another child with CF for the sake of herself or that new child so much as worrying that the impact of having another with CF would damage the health of the first child with CF or vice versa.... she said <b>"I have read its soooo bad for other CF kids to be together"</b> I'm not sure anyone noticed this part of the post -- I think there are several reasons for questioning whether or not to have more children when you know you are both carriers, but worrying about one making the other's health worse because they are living together is not usually high on the list of concerns.

Yes, we all talk about cross contamination issues when people with CF are in close quarters, but many people raise CF kids together in the same house - some culture the same bacteria and some do not -- I just wanted to point out that if cross contamination issues are you biggest concern for having another child, then I don't think all this other conversation is directed at your actual concerns (it is still very good advice I think, just not directed at one of your primary concerns about possibly having two children with CF)

And just as a side note (I know my kids might not by typical here) but we didn't even know they both had CF until they were teenagers - so they even shared drinks and ate off the same plates and stuff growing up (until we knew better) and they never have cultured the same bugs -- my daughter even had PA once and my son did not get it from her.

I didn't have the time to click on this post until today - so since it's now been about 2 more weeks - do you know if you are pregnant or not?
 

Alyssa

New member
I just skimmed what others have said here and by and large it all looked basically good to me. But there was one thing the original poster mentioned that I haven't seen anyone talk about specifically -- that is she was not so concerned with creating another child with CF for the sake of herself or that new child so much as worrying that the impact of having another with CF would damage the health of the first child with CF or vice versa.... she said <b>"I have read its soooo bad for other CF kids to be together"</b> I'm not sure anyone noticed this part of the post -- I think there are several reasons for questioning whether or not to have more children when you know you are both carriers, but worrying about one making the other's health worse because they are living together is not usually high on the list of concerns.

Yes, we all talk about cross contamination issues when people with CF are in close quarters, but many people raise CF kids together in the same house - some culture the same bacteria and some do not -- I just wanted to point out that if cross contamination issues are you biggest concern for having another child, then I don't think all this other conversation is directed at your actual concerns (it is still very good advice I think, just not directed at one of your primary concerns about possibly having two children with CF)

And just as a side note (I know my kids might not by typical here) but we didn't even know they both had CF until they were teenagers - so they even shared drinks and ate off the same plates and stuff growing up (until we knew better) and they never have cultured the same bugs -- my daughter even had PA once and my son did not get it from her.

I didn't have the time to click on this post until today - so since it's now been about 2 more weeks - do you know if you are pregnant or not?
 

Alyssa

New member
I just skimmed what others have said here and by and large it all looked basically good to me. But there was one thing the original poster mentioned that I haven't seen anyone talk about specifically -- that is she was not so concerned with creating another child with CF for the sake of herself or that new child so much as worrying that the impact of having another with CF would damage the health of the first child with CF or vice versa.... she said <b>"I have read its soooo bad for other CF kids to be together"</b> I'm not sure anyone noticed this part of the post -- I think there are several reasons for questioning whether or not to have more children when you know you are both carriers, but worrying about one making the other's health worse because they are living together is not usually high on the list of concerns.

Yes, we all talk about cross contamination issues when people with CF are in close quarters, but many people raise CF kids together in the same house - some culture the same bacteria and some do not -- I just wanted to point out that if cross contamination issues are you biggest concern for having another child, then I don't think all this other conversation is directed at your actual concerns (it is still very good advice I think, just not directed at one of your primary concerns about possibly having two children with CF)

And just as a side note (I know my kids might not by typical here) but we didn't even know they both had CF until they were teenagers - so they even shared drinks and ate off the same plates and stuff growing up (until we knew better) and they never have cultured the same bugs -- my daughter even had PA once and my son did not get it from her.

I didn't have the time to click on this post until today - so since it's now been about 2 more weeks - do you know if you are pregnant or not?
 

Alyssa

New member
I just skimmed what others have said here and by and large it all looked basically good to me. But there was one thing the original poster mentioned that I haven't seen anyone talk about specifically -- that is she was not so concerned with creating another child with CF for the sake of herself or that new child so much as worrying that the impact of having another with CF would damage the health of the first child with CF or vice versa.... she said <b>"I have read its soooo bad for other CF kids to be together"</b> I'm not sure anyone noticed this part of the post -- I think there are several reasons for questioning whether or not to have more children when you know you are both carriers, but worrying about one making the other's health worse because they are living together is not usually high on the list of concerns.

Yes, we all talk about cross contamination issues when people with CF are in close quarters, but many people raise CF kids together in the same house - some culture the same bacteria and some do not -- I just wanted to point out that if cross contamination issues are you biggest concern for having another child, then I don't think all this other conversation is directed at your actual concerns (it is still very good advice I think, just not directed at one of your primary concerns about possibly having two children with CF)

And just as a side note (I know my kids might not by typical here) but we didn't even know they both had CF until they were teenagers - so they even shared drinks and ate off the same plates and stuff growing up (until we knew better) and they never have cultured the same bugs -- my daughter even had PA once and my son did not get it from her.

I didn't have the time to click on this post until today - so since it's now been about 2 more weeks - do you know if you are pregnant or not?
 

Alyssa

New member
I just skimmed what others have said here and by and large it all looked basically good to me. But there was one thing the original poster mentioned that I haven't seen anyone talk about specifically -- that is she was not so concerned with creating another child with CF for the sake of herself or that new child so much as worrying that the impact of having another with CF would damage the health of the first child with CF or vice versa.... she said <b>"I have read its soooo bad for other CF kids to be together"</b> I'm not sure anyone noticed this part of the post -- I think there are several reasons for questioning whether or not to have more children when you know you are both carriers, but worrying about one making the other's health worse because they are living together is not usually high on the list of concerns.

Yes, we all talk about cross contamination issues when people with CF are in close quarters, but many people raise CF kids together in the same house - some culture the same bacteria and some do not -- I just wanted to point out that if cross contamination issues are you biggest concern for having another child, then I don't think all this other conversation is directed at your actual concerns (it is still very good advice I think, just not directed at one of your primary concerns about possibly having two children with CF)

And just as a side note (I know my kids might not by typical here) but we didn't even know they both had CF until they were teenagers - so they even shared drinks and ate off the same plates and stuff growing up (until we knew better) and they never have cultured the same bugs -- my daughter even had PA once and my son did not get it from her.

I didn't have the time to click on this post until today - so since it's now been about 2 more weeks - do you know if you are pregnant or not?
 

wblakeley

New member
Hello, I know this post was put up a few days ago, maybe you will still see it. I am a 38 year old mother of 4. Our second son was also born with meconnium illius. Our oldest was two at the time of his birth. We had a sweat test done on him, it was neg. I was only 23, my husband 25, these things are not supposed to happen to people this young, or so that is what I kept telling myself. I now know better.<img src="i/expressions/face-icon-small-smile.gif" border="0"> My husband and I always wanted to have 3 kids. It took five years but we went for it and had another baby boy, found out by amnio that he did not have CF. I think that we just decided that Kevin (15 w/cf) was such a blessing, that even if the baby did have it, it would not matter, I truly believe that God only gives us what he knows that we need, and in our case, I think we needed Kevin, and he needed us. When our youngest was 8, I found out I was pregnant again. Now being much older (36) I not only had to worry about CF but all of the other issues. Although, not planned, our family grew by one more. Of course, I would be lying if I said it was never a worry and it did not weigh on our hearts until the results of the amnio were back. But I would not change anything. I am waiting for the day that Kevin asks why me, that day unbelievably has not come yet. He is just the greatest kid. He says often that he thinks God gave him CF to teach other about it. And someday he wants to be a doctor for kids with CF (that is if his NBA career is out)<img src="i/expressions/face-icon-small-smile.gif" border="0">
I guess I am just saying that, in the end, they are only ours for a short time. Love them, try our hardest to keep them healthy and let them live . I think often of the future, but today is a good day, Kevin is playing b-ball and he loves his life.
I realize that things would be very different, had one of my other children had CF, but I can honestly say, that I don't think it would have mattered.
I remember a doctor, we were looking into options before our 3rd child, told me that I could just abort if the baby had CF. To me, that would be like telling Kevin that had I known he had CF I would not have had him.
I know that even though this is sooo hard, you could not imagine your life without your son. Try to remember that you were give this gift for a reason. God knew that Johnny needed to have a special set of parents to take care of him, and he choose you.

Wendy, mom to 4, Kurt 17, no cf, Kev 15, cf, Kyle, 10 no cf, and Kalyn, 2 carrier.

" we try so hard to prepare our children for the future, that we forget that they are someone today."
 

wblakeley

New member
Hello, I know this post was put up a few days ago, maybe you will still see it. I am a 38 year old mother of 4. Our second son was also born with meconnium illius. Our oldest was two at the time of his birth. We had a sweat test done on him, it was neg. I was only 23, my husband 25, these things are not supposed to happen to people this young, or so that is what I kept telling myself. I now know better.<img src="i/expressions/face-icon-small-smile.gif" border="0"> My husband and I always wanted to have 3 kids. It took five years but we went for it and had another baby boy, found out by amnio that he did not have CF. I think that we just decided that Kevin (15 w/cf) was such a blessing, that even if the baby did have it, it would not matter, I truly believe that God only gives us what he knows that we need, and in our case, I think we needed Kevin, and he needed us. When our youngest was 8, I found out I was pregnant again. Now being much older (36) I not only had to worry about CF but all of the other issues. Although, not planned, our family grew by one more. Of course, I would be lying if I said it was never a worry and it did not weigh on our hearts until the results of the amnio were back. But I would not change anything. I am waiting for the day that Kevin asks why me, that day unbelievably has not come yet. He is just the greatest kid. He says often that he thinks God gave him CF to teach other about it. And someday he wants to be a doctor for kids with CF (that is if his NBA career is out)<img src="i/expressions/face-icon-small-smile.gif" border="0">
I guess I am just saying that, in the end, they are only ours for a short time. Love them, try our hardest to keep them healthy and let them live . I think often of the future, but today is a good day, Kevin is playing b-ball and he loves his life.
I realize that things would be very different, had one of my other children had CF, but I can honestly say, that I don't think it would have mattered.
I remember a doctor, we were looking into options before our 3rd child, told me that I could just abort if the baby had CF. To me, that would be like telling Kevin that had I known he had CF I would not have had him.
I know that even though this is sooo hard, you could not imagine your life without your son. Try to remember that you were give this gift for a reason. God knew that Johnny needed to have a special set of parents to take care of him, and he choose you.

Wendy, mom to 4, Kurt 17, no cf, Kev 15, cf, Kyle, 10 no cf, and Kalyn, 2 carrier.

" we try so hard to prepare our children for the future, that we forget that they are someone today."
 

wblakeley

New member
Hello, I know this post was put up a few days ago, maybe you will still see it. I am a 38 year old mother of 4. Our second son was also born with meconnium illius. Our oldest was two at the time of his birth. We had a sweat test done on him, it was neg. I was only 23, my husband 25, these things are not supposed to happen to people this young, or so that is what I kept telling myself. I now know better.<img src="i/expressions/face-icon-small-smile.gif" border="0"> My husband and I always wanted to have 3 kids. It took five years but we went for it and had another baby boy, found out by amnio that he did not have CF. I think that we just decided that Kevin (15 w/cf) was such a blessing, that even if the baby did have it, it would not matter, I truly believe that God only gives us what he knows that we need, and in our case, I think we needed Kevin, and he needed us. When our youngest was 8, I found out I was pregnant again. Now being much older (36) I not only had to worry about CF but all of the other issues. Although, not planned, our family grew by one more. Of course, I would be lying if I said it was never a worry and it did not weigh on our hearts until the results of the amnio were back. But I would not change anything. I am waiting for the day that Kevin asks why me, that day unbelievably has not come yet. He is just the greatest kid. He says often that he thinks God gave him CF to teach other about it. And someday he wants to be a doctor for kids with CF (that is if his NBA career is out)<img src="i/expressions/face-icon-small-smile.gif" border="0">
I guess I am just saying that, in the end, they are only ours for a short time. Love them, try our hardest to keep them healthy and let them live . I think often of the future, but today is a good day, Kevin is playing b-ball and he loves his life.
I realize that things would be very different, had one of my other children had CF, but I can honestly say, that I don't think it would have mattered.
I remember a doctor, we were looking into options before our 3rd child, told me that I could just abort if the baby had CF. To me, that would be like telling Kevin that had I known he had CF I would not have had him.
I know that even though this is sooo hard, you could not imagine your life without your son. Try to remember that you were give this gift for a reason. God knew that Johnny needed to have a special set of parents to take care of him, and he choose you.

Wendy, mom to 4, Kurt 17, no cf, Kev 15, cf, Kyle, 10 no cf, and Kalyn, 2 carrier.

" we try so hard to prepare our children for the future, that we forget that they are someone today."
 

wblakeley

New member
Hello, I know this post was put up a few days ago, maybe you will still see it. I am a 38 year old mother of 4. Our second son was also born with meconnium illius. Our oldest was two at the time of his birth. We had a sweat test done on him, it was neg. I was only 23, my husband 25, these things are not supposed to happen to people this young, or so that is what I kept telling myself. I now know better.<img src="i/expressions/face-icon-small-smile.gif" border="0"> My husband and I always wanted to have 3 kids. It took five years but we went for it and had another baby boy, found out by amnio that he did not have CF. I think that we just decided that Kevin (15 w/cf) was such a blessing, that even if the baby did have it, it would not matter, I truly believe that God only gives us what he knows that we need, and in our case, I think we needed Kevin, and he needed us. When our youngest was 8, I found out I was pregnant again. Now being much older (36) I not only had to worry about CF but all of the other issues. Although, not planned, our family grew by one more. Of course, I would be lying if I said it was never a worry and it did not weigh on our hearts until the results of the amnio were back. But I would not change anything. I am waiting for the day that Kevin asks why me, that day unbelievably has not come yet. He is just the greatest kid. He says often that he thinks God gave him CF to teach other about it. And someday he wants to be a doctor for kids with CF (that is if his NBA career is out)<img src="i/expressions/face-icon-small-smile.gif" border="0">
I guess I am just saying that, in the end, they are only ours for a short time. Love them, try our hardest to keep them healthy and let them live . I think often of the future, but today is a good day, Kevin is playing b-ball and he loves his life.
I realize that things would be very different, had one of my other children had CF, but I can honestly say, that I don't think it would have mattered.
I remember a doctor, we were looking into options before our 3rd child, told me that I could just abort if the baby had CF. To me, that would be like telling Kevin that had I known he had CF I would not have had him.
I know that even though this is sooo hard, you could not imagine your life without your son. Try to remember that you were give this gift for a reason. God knew that Johnny needed to have a special set of parents to take care of him, and he choose you.

Wendy, mom to 4, Kurt 17, no cf, Kev 15, cf, Kyle, 10 no cf, and Kalyn, 2 carrier.

" we try so hard to prepare our children for the future, that we forget that they are someone today."
 

wblakeley

New member
Hello, I know this post was put up a few days ago, maybe you will still see it. I am a 38 year old mother of 4. Our second son was also born with meconnium illius. Our oldest was two at the time of his birth. We had a sweat test done on him, it was neg. I was only 23, my husband 25, these things are not supposed to happen to people this young, or so that is what I kept telling myself. I now know better.<img src="i/expressions/face-icon-small-smile.gif" border="0"> My husband and I always wanted to have 3 kids. It took five years but we went for it and had another baby boy, found out by amnio that he did not have CF. I think that we just decided that Kevin (15 w/cf) was such a blessing, that even if the baby did have it, it would not matter, I truly believe that God only gives us what he knows that we need, and in our case, I think we needed Kevin, and he needed us. When our youngest was 8, I found out I was pregnant again. Now being much older (36) I not only had to worry about CF but all of the other issues. Although, not planned, our family grew by one more. Of course, I would be lying if I said it was never a worry and it did not weigh on our hearts until the results of the amnio were back. But I would not change anything. I am waiting for the day that Kevin asks why me, that day unbelievably has not come yet. He is just the greatest kid. He says often that he thinks God gave him CF to teach other about it. And someday he wants to be a doctor for kids with CF (that is if his NBA career is out)<img src="i/expressions/face-icon-small-smile.gif" border="0">
I guess I am just saying that, in the end, they are only ours for a short time. Love them, try our hardest to keep them healthy and let them live . I think often of the future, but today is a good day, Kevin is playing b-ball and he loves his life.
I realize that things would be very different, had one of my other children had CF, but I can honestly say, that I don't think it would have mattered.
I remember a doctor, we were looking into options before our 3rd child, told me that I could just abort if the baby had CF. To me, that would be like telling Kevin that had I known he had CF I would not have had him.
I know that even though this is sooo hard, you could not imagine your life without your son. Try to remember that you were give this gift for a reason. God knew that Johnny needed to have a special set of parents to take care of him, and he choose you.

Wendy, mom to 4, Kurt 17, no cf, Kev 15, cf, Kyle, 10 no cf, and Kalyn, 2 carrier.

" we try so hard to prepare our children for the future, that we forget that they are someone today."
 

Darinsmom

New member
Wendy,

I love what you wrote. So beautifully said! Your very encouraging. Even though we planned our third it's encouraging to see that parents try again for moe children. You're right about worrying, but I let it up to God and pray my worries to him. He has a plan for my family and that is very comforting to me. Take care!

Laurie
 

Darinsmom

New member
Wendy,

I love what you wrote. So beautifully said! Your very encouraging. Even though we planned our third it's encouraging to see that parents try again for moe children. You're right about worrying, but I let it up to God and pray my worries to him. He has a plan for my family and that is very comforting to me. Take care!

Laurie
 

Darinsmom

New member
Wendy,

I love what you wrote. So beautifully said! Your very encouraging. Even though we planned our third it's encouraging to see that parents try again for moe children. You're right about worrying, but I let it up to God and pray my worries to him. He has a plan for my family and that is very comforting to me. Take care!

Laurie
 

Darinsmom

New member
Wendy,

I love what you wrote. So beautifully said! Your very encouraging. Even though we planned our third it's encouraging to see that parents try again for moe children. You're right about worrying, but I let it up to God and pray my worries to him. He has a plan for my family and that is very comforting to me. Take care!

Laurie
 

Darinsmom

New member
Wendy,

I love what you wrote. So beautifully said! Your very encouraging. Even though we planned our third it's encouraging to see that parents try again for moe children. You're right about worrying, but I let it up to God and pray my worries to him. He has a plan for my family and that is very comforting to me. Take care!

Laurie
 
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