Hello, I know this post was put up a few days ago, maybe you will still see it. I am a 38 year old mother of 4. Our second son was also born with meconnium illius. Our oldest was two at the time of his birth. We had a sweat test done on him, it was neg. I was only 23, my husband 25, these things are not supposed to happen to people this young, or so that is what I kept telling myself. I now know better.<img src="i/expressions/face-icon-small-smile.gif" border="0"> My husband and I always wanted to have 3 kids. It took five years but we went for it and had another baby boy, found out by amnio that he did not have CF. I think that we just decided that Kevin (15 w/cf) was such a blessing, that even if the baby did have it, it would not matter, I truly believe that God only gives us what he knows that we need, and in our case, I think we needed Kevin, and he needed us. When our youngest was 8, I found out I was pregnant again. Now being much older (36) I not only had to worry about CF but all of the other issues. Although, not planned, our family grew by one more. Of course, I would be lying if I said it was never a worry and it did not weigh on our hearts until the results of the amnio were back. But I would not change anything. I am waiting for the day that Kevin asks why me, that day unbelievably has not come yet. He is just the greatest kid. He says often that he thinks God gave him CF to teach other about it. And someday he wants to be a doctor for kids with CF (that is if his NBA career is out)<img src="i/expressions/face-icon-small-smile.gif" border="0">
I guess I am just saying that, in the end, they are only ours for a short time. Love them, try our hardest to keep them healthy and let them live . I think often of the future, but today is a good day, Kevin is playing b-ball and he loves his life.
I realize that things would be very different, had one of my other children had CF, but I can honestly say, that I don't think it would have mattered.
I remember a doctor, we were looking into options before our 3rd child, told me that I could just abort if the baby had CF. To me, that would be like telling Kevin that had I known he had CF I would not have had him.
I know that even though this is sooo hard, you could not imagine your life without your son. Try to remember that you were give this gift for a reason. God knew that Johnny needed to have a special set of parents to take care of him, and he choose you.
Wendy, mom to 4, Kurt 17, no cf, Kev 15, cf, Kyle, 10 no cf, and Kalyn, 2 carrier.
" we try so hard to prepare our children for the future, that we forget that they are someone today."