mom2lillian
New member
alexsmom-Please I beg you to take action and get a new doctor RIGHT AWAY, it sounds like your mother's instincts are spot on and you will never regret trusting them--even if & you are wrong (& I hope that you are).
Please find a list of accredited CF Centers at www.cff.org
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/CFFoundation-accreditedCareCenters/
">http://www.cff.org/LivingWithC...ccreditedCareCenters/
</a>
call that clinic and ask to speak to the cystic fibrosis clinic director, tell them your problem. Or if your insurance allows it refer yourself to a new pulmonologist. Or if your center is the same as mine my CF clinic is an asthma clinci for the worst asthma patients around on MWF so try to get in to them since then either way you will be in the best hands.
The quickest route might be to completely go ballistic on your current pulmonologist --this is probably the route I would take <img src="i/expressions/devil.gif" border="0"> but I dont know your personality.
I was not diagnosed utnil I was 21 years old and there are no 'rules' as to what your sweat test can be and sitll have it or at what age a diagnosis is made. Tell that dumbass of a doctor to read up a bit about 'mild' and 'atypical' and late diagnosis cases. Sorry but this topic gets me in an uproar.
So basically whatever route you take stick to your guns you know what is best for your child, my mom wishes in hindsight something else woudl have been done but she trusted docotrs knew best and then her and my grandma felt terrible when I was diagnosed. If you need any info about the ambry panel or are interested to read about my diagnosis please see my blog.
Please find a list of accredited CF Centers at www.cff.org
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/CFFoundation-accreditedCareCenters/
">http://www.cff.org/LivingWithC...ccreditedCareCenters/
</a>
call that clinic and ask to speak to the cystic fibrosis clinic director, tell them your problem. Or if your insurance allows it refer yourself to a new pulmonologist. Or if your center is the same as mine my CF clinic is an asthma clinci for the worst asthma patients around on MWF so try to get in to them since then either way you will be in the best hands.
The quickest route might be to completely go ballistic on your current pulmonologist --this is probably the route I would take <img src="i/expressions/devil.gif" border="0"> but I dont know your personality.
I was not diagnosed utnil I was 21 years old and there are no 'rules' as to what your sweat test can be and sitll have it or at what age a diagnosis is made. Tell that dumbass of a doctor to read up a bit about 'mild' and 'atypical' and late diagnosis cases. Sorry but this topic gets me in an uproar.
So basically whatever route you take stick to your guns you know what is best for your child, my mom wishes in hindsight something else woudl have been done but she trusted docotrs knew best and then her and my grandma felt terrible when I was diagnosed. If you need any info about the ambry panel or are interested to read about my diagnosis please see my blog.