when did your child start breathing treatments?

vmhoward

New member
Garran is 8 and was diagnosed at 2 months old. He started breathing treatments shortly after diagnosis. His first admission with pneumonia I think, when he was 3 months old. And we did Manual CPT on him as often as possible, they said 2 times a day, but it almost became a habbit to pat his back whenever I was holding him.

He did nebulized gentimiacin, nebulized albuterol, and pulmicort when he was a baby, then as he got older he progressed into the Hypertonic Saline, Pulmozyme, Tobi and Xopenex.

The nebulized genamiacin was to combat pseudomonas when he was a baby, and eventually he stopped culturing it. Other icky bugs took its place.

He got the vest when he was about 4, and was using it up to 4 X a day. Then prior to Tx they took him off the vest and we did manual CPT again for the last 8 months. He hated the vest.

His Dr. in VA did some interesting things with the vest, including wrapping the vest around the baby carrier, and the baby could get CPT while in their carrier, via the vest. Not recommended after feeding them....they throw up.

<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

vmhoward

New member
Garran is 8 and was diagnosed at 2 months old. He started breathing treatments shortly after diagnosis. His first admission with pneumonia I think, when he was 3 months old. And we did Manual CPT on him as often as possible, they said 2 times a day, but it almost became a habbit to pat his back whenever I was holding him.

He did nebulized gentimiacin, nebulized albuterol, and pulmicort when he was a baby, then as he got older he progressed into the Hypertonic Saline, Pulmozyme, Tobi and Xopenex.

The nebulized genamiacin was to combat pseudomonas when he was a baby, and eventually he stopped culturing it. Other icky bugs took its place.

He got the vest when he was about 4, and was using it up to 4 X a day. Then prior to Tx they took him off the vest and we did manual CPT again for the last 8 months. He hated the vest.

His Dr. in VA did some interesting things with the vest, including wrapping the vest around the baby carrier, and the baby could get CPT while in their carrier, via the vest. Not recommended after feeding them....they throw up.

<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

vmhoward

New member
Garran is 8 and was diagnosed at 2 months old. He started breathing treatments shortly after diagnosis. His first admission with pneumonia I think, when he was 3 months old. And we did Manual CPT on him as often as possible, they said 2 times a day, but it almost became a habbit to pat his back whenever I was holding him.

He did nebulized gentimiacin, nebulized albuterol, and pulmicort when he was a baby, then as he got older he progressed into the Hypertonic Saline, Pulmozyme, Tobi and Xopenex.

The nebulized genamiacin was to combat pseudomonas when he was a baby, and eventually he stopped culturing it. Other icky bugs took its place.

He got the vest when he was about 4, and was using it up to 4 X a day. Then prior to Tx they took him off the vest and we did manual CPT again for the last 8 months. He hated the vest.

His Dr. in VA did some interesting things with the vest, including wrapping the vest around the baby carrier, and the baby could get CPT while in their carrier, via the vest. Not recommended after feeding them....they throw up.

<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

vmhoward

New member
Garran is 8 and was diagnosed at 2 months old. He started breathing treatments shortly after diagnosis. His first admission with pneumonia I think, when he was 3 months old. And we did Manual CPT on him as often as possible, they said 2 times a day, but it almost became a habbit to pat his back whenever I was holding him.

He did nebulized gentimiacin, nebulized albuterol, and pulmicort when he was a baby, then as he got older he progressed into the Hypertonic Saline, Pulmozyme, Tobi and Xopenex.

The nebulized genamiacin was to combat pseudomonas when he was a baby, and eventually he stopped culturing it. Other icky bugs took its place.

He got the vest when he was about 4, and was using it up to 4 X a day. Then prior to Tx they took him off the vest and we did manual CPT again for the last 8 months. He hated the vest.

His Dr. in VA did some interesting things with the vest, including wrapping the vest around the baby carrier, and the baby could get CPT while in their carrier, via the vest. Not recommended after feeding them....they throw up.

<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

vmhoward

New member
Garran is 8 and was diagnosed at 2 months old. He started breathing treatments shortly after diagnosis. His first admission with pneumonia I think, when he was 3 months old. And we did Manual CPT on him as often as possible, they said 2 times a day, but it almost became a habbit to pat his back whenever I was holding him.
<br />
<br />He did nebulized gentimiacin, nebulized albuterol, and pulmicort when he was a baby, then as he got older he progressed into the Hypertonic Saline, Pulmozyme, Tobi and Xopenex.
<br />
<br />The nebulized genamiacin was to combat pseudomonas when he was a baby, and eventually he stopped culturing it. Other icky bugs took its place.
<br />
<br />He got the vest when he was about 4, and was using it up to 4 X a day. Then prior to Tx they took him off the vest and we did manual CPT again for the last 8 months. He hated the vest.
<br />
<br />His Dr. in VA did some interesting things with the vest, including wrapping the vest around the baby carrier, and the baby could get CPT while in their carrier, via the vest. Not recommended after feeding them....they throw up.
<br />
<br /><img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Ratatosk

Administrator
Staff member
DS was diagnosed shortly after he was born due to a bowel obstruction. We started CPT and albuterol/atrovent nebs when he was about 5 or 6 days old when the test results came back as CF.
 

Ratatosk

Administrator
Staff member
DS was diagnosed shortly after he was born due to a bowel obstruction. We started CPT and albuterol/atrovent nebs when he was about 5 or 6 days old when the test results came back as CF.
 

Ratatosk

Administrator
Staff member
DS was diagnosed shortly after he was born due to a bowel obstruction. We started CPT and albuterol/atrovent nebs when he was about 5 or 6 days old when the test results came back as CF.
 

Ratatosk

Administrator
Staff member
DS was diagnosed shortly after he was born due to a bowel obstruction. We started CPT and albuterol/atrovent nebs when he was about 5 or 6 days old when the test results came back as CF.
 

Ratatosk

Administrator
Staff member
DS was diagnosed shortly after he was born due to a bowel obstruction. We started CPT and albuterol/atrovent nebs when he was about 5 or 6 days old when the test results came back as CF.
 

ashmomo

New member
My daughter did not start on Pulmozyme til she was about 2 years old. They say it is just for prevention at this point as she has not had any lung problems and she is now 4. She did have a cough once that seemed to be lingering and they put her on a neb for about a month, but that ended and we have not had that again. After she has a cold her cough lingers for a bit, but always goes away on its own so we don't worry. She doesn't produce anything, so we don't see a problem.
I think at this point they would only put your son on it if there were a reason. Maybe when he gets a little older they may suggest it for prevention, otherwise I don't think there is a reason. A lot of the kids on here seem to have more lung problems than my daughter and are on all these nebs for that reason. If your son does not have a cough or mucus problem...I would not be concerned. My daughter takes the same meds and treatment as your son at this point, except the fact she does do Pulmozyme daily, but only for prevention and did not start at your sons age. She also is on Boost drink for calories.
Hope this helped!
 

ashmomo

New member
My daughter did not start on Pulmozyme til she was about 2 years old. They say it is just for prevention at this point as she has not had any lung problems and she is now 4. She did have a cough once that seemed to be lingering and they put her on a neb for about a month, but that ended and we have not had that again. After she has a cold her cough lingers for a bit, but always goes away on its own so we don't worry. She doesn't produce anything, so we don't see a problem.
I think at this point they would only put your son on it if there were a reason. Maybe when he gets a little older they may suggest it for prevention, otherwise I don't think there is a reason. A lot of the kids on here seem to have more lung problems than my daughter and are on all these nebs for that reason. If your son does not have a cough or mucus problem...I would not be concerned. My daughter takes the same meds and treatment as your son at this point, except the fact she does do Pulmozyme daily, but only for prevention and did not start at your sons age. She also is on Boost drink for calories.
Hope this helped!
 

ashmomo

New member
My daughter did not start on Pulmozyme til she was about 2 years old. They say it is just for prevention at this point as she has not had any lung problems and she is now 4. She did have a cough once that seemed to be lingering and they put her on a neb for about a month, but that ended and we have not had that again. After she has a cold her cough lingers for a bit, but always goes away on its own so we don't worry. She doesn't produce anything, so we don't see a problem.
I think at this point they would only put your son on it if there were a reason. Maybe when he gets a little older they may suggest it for prevention, otherwise I don't think there is a reason. A lot of the kids on here seem to have more lung problems than my daughter and are on all these nebs for that reason. If your son does not have a cough or mucus problem...I would not be concerned. My daughter takes the same meds and treatment as your son at this point, except the fact she does do Pulmozyme daily, but only for prevention and did not start at your sons age. She also is on Boost drink for calories.
Hope this helped!
 

ashmomo

New member
My daughter did not start on Pulmozyme til she was about 2 years old. They say it is just for prevention at this point as she has not had any lung problems and she is now 4. She did have a cough once that seemed to be lingering and they put her on a neb for about a month, but that ended and we have not had that again. After she has a cold her cough lingers for a bit, but always goes away on its own so we don't worry. She doesn't produce anything, so we don't see a problem.
I think at this point they would only put your son on it if there were a reason. Maybe when he gets a little older they may suggest it for prevention, otherwise I don't think there is a reason. A lot of the kids on here seem to have more lung problems than my daughter and are on all these nebs for that reason. If your son does not have a cough or mucus problem...I would not be concerned. My daughter takes the same meds and treatment as your son at this point, except the fact she does do Pulmozyme daily, but only for prevention and did not start at your sons age. She also is on Boost drink for calories.
Hope this helped!
 

ashmomo

New member
My daughter did not start on Pulmozyme til she was about 2 years old. They say it is just for prevention at this point as she has not had any lung problems and she is now 4. She did have a cough once that seemed to be lingering and they put her on a neb for about a month, but that ended and we have not had that again. After she has a cold her cough lingers for a bit, but always goes away on its own so we don't worry. She doesn't produce anything, so we don't see a problem.
<br />I think at this point they would only put your son on it if there were a reason. Maybe when he gets a little older they may suggest it for prevention, otherwise I don't think there is a reason. A lot of the kids on here seem to have more lung problems than my daughter and are on all these nebs for that reason. If your son does not have a cough or mucus problem...I would not be concerned. My daughter takes the same meds and treatment as your son at this point, except the fact she does do Pulmozyme daily, but only for prevention and did not start at your sons age. She also is on Boost drink for calories.
<br />Hope this helped!
 
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