When it's time for a tune up...

A

AnD

New member
I admit, this is just curiousity, but do prefer to stay in the hospital or do home iv's? I prefer going home because
1) I have a 3 year old at home and plenty of babysitters,
2) less new germs at home
3) I have gotten some really dirty rooms at the hospital before- not a good thing. (And I'm a little miffed that they moved the cardiac patients to the new wing and left the pulmonary patients in the old, dirty rooms -I'm hoping that's changed since last time I was in<img src="i/expressions/face-icon-small-wink.gif" border="0"> )
and lastly
4) I actually get more sleep at home with4 cats, a dog, a snoring DH and a toddler than I do at the hospital! LOL<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
A

AnD

New member
I admit, this is just curiousity, but do prefer to stay in the hospital or do home iv's? I prefer going home because
1) I have a 3 year old at home and plenty of babysitters,
2) less new germs at home
3) I have gotten some really dirty rooms at the hospital before- not a good thing. (And I'm a little miffed that they moved the cardiac patients to the new wing and left the pulmonary patients in the old, dirty rooms -I'm hoping that's changed since last time I was in<img src="i/expressions/face-icon-small-wink.gif" border="0"> )
and lastly
4) I actually get more sleep at home with4 cats, a dog, a snoring DH and a toddler than I do at the hospital! LOL<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
A

AnD

New member
I admit, this is just curiousity, but do prefer to stay in the hospital or do home iv's? I prefer going home because
1) I have a 3 year old at home and plenty of babysitters,
2) less new germs at home
3) I have gotten some really dirty rooms at the hospital before- not a good thing. (And I'm a little miffed that they moved the cardiac patients to the new wing and left the pulmonary patients in the old, dirty rooms -I'm hoping that's changed since last time I was in<img src="i/expressions/face-icon-small-wink.gif" border="0"> )
and lastly
4) I actually get more sleep at home with4 cats, a dog, a snoring DH and a toddler than I do at the hospital! LOL<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
N

NoExcuses

New member
My doc tries to show me data that CF centers with higher FEV1's have patients that stay in the hospital for all 14 days. The rest of not having to deal with chores, family, etc. helps the body recover better from infection.

I ahven't seen the data yet, and i don't believe that correlation necessarily means causation. So I tell me doc this: hang out in the hospital for 14 days and watch all the nurses change your IV without washing their hands, RT's rinsing your nebs with tap water, cepacia patients not staying in their room and roaming the hallways and Vest machines passing between CFer's rooms without being wiped down <i> and then come talk to me about being in the hospital for 14 days straight. </i>

I dont buy into the idea. But i reserve the right to change my mind pending data about better FEV1 outcomes and/or hospitals not being filled with morons.
 
N

NoExcuses

New member
My doc tries to show me data that CF centers with higher FEV1's have patients that stay in the hospital for all 14 days. The rest of not having to deal with chores, family, etc. helps the body recover better from infection.

I ahven't seen the data yet, and i don't believe that correlation necessarily means causation. So I tell me doc this: hang out in the hospital for 14 days and watch all the nurses change your IV without washing their hands, RT's rinsing your nebs with tap water, cepacia patients not staying in their room and roaming the hallways and Vest machines passing between CFer's rooms without being wiped down <i> and then come talk to me about being in the hospital for 14 days straight. </i>

I dont buy into the idea. But i reserve the right to change my mind pending data about better FEV1 outcomes and/or hospitals not being filled with morons.
 
N

NoExcuses

New member
My doc tries to show me data that CF centers with higher FEV1's have patients that stay in the hospital for all 14 days. The rest of not having to deal with chores, family, etc. helps the body recover better from infection.

I ahven't seen the data yet, and i don't believe that correlation necessarily means causation. So I tell me doc this: hang out in the hospital for 14 days and watch all the nurses change your IV without washing their hands, RT's rinsing your nebs with tap water, cepacia patients not staying in their room and roaming the hallways and Vest machines passing between CFer's rooms without being wiped down <i> and then come talk to me about being in the hospital for 14 days straight. </i>

I dont buy into the idea. But i reserve the right to change my mind pending data about better FEV1 outcomes and/or hospitals not being filled with morons.
 
A

AnD

New member
Hmm. Interesting. I wonder if those patients don't mind staying in the hospital because the staff at their hospitals practice good germ control?
 
A

AnD

New member
Hmm. Interesting. I wonder if those patients don't mind staying in the hospital because the staff at their hospitals practice good germ control?
 
A

AnD

New member
Hmm. Interesting. I wonder if those patients don't mind staying in the hospital because the staff at their hospitals practice good germ control?
 
L

lightNlife

New member
Personal preference aside, I thought I'd share some information that was shared by a CF doc at a local CFF meeting. The CFF has recently made care center data available online. The goal of this is to provide an across the board look at how each CF center does compared to the rest of the nation in terms of patients' FEV1, nutritional status, and predicted age. This encourages each CF clinic to look at what is working for certain centers, and look for ways to improve their own methods, thereby giving us, the patients, the best available.

One of the things that doctors are finding helps "boost" the averages for their care center, is to favor hospitalization over home treatment for a tune-up. This is because, ideally, hospitalization enables the CF team to work on everything at once for a patient. CPT, nebs, IV antibiotics, closer attention to diet, and even the access to a social worker, psychologist or psychiatrist, not to much more controlled environment in terms of exposure to negative environmental factors, can make a big difference.

Other reasons to favor hospitalization include social considerations, such as some patients may not have a good home environment where there is an emphasis placed on sticking with routine healthcare. Undoubtedly there are patients who cannot receive the medication and equipment they need for a full tune-up because of financial reasons. Granted, this is a conclusion that is drawn by looking at largely quantitative data, and from that extrapolating the qualitative ones.

Hospitalization, particularly for pediatric CFers and the newly diagnosed, is currently the favored approach. It seems to be working, so don't be surprised if the next time your CF team recommends a tuneup, that they also place a lot of emphasis on being inpatient.
 
L

lightNlife

New member
Personal preference aside, I thought I'd share some information that was shared by a CF doc at a local CFF meeting. The CFF has recently made care center data available online. The goal of this is to provide an across the board look at how each CF center does compared to the rest of the nation in terms of patients' FEV1, nutritional status, and predicted age. This encourages each CF clinic to look at what is working for certain centers, and look for ways to improve their own methods, thereby giving us, the patients, the best available.

One of the things that doctors are finding helps "boost" the averages for their care center, is to favor hospitalization over home treatment for a tune-up. This is because, ideally, hospitalization enables the CF team to work on everything at once for a patient. CPT, nebs, IV antibiotics, closer attention to diet, and even the access to a social worker, psychologist or psychiatrist, not to much more controlled environment in terms of exposure to negative environmental factors, can make a big difference.

Other reasons to favor hospitalization include social considerations, such as some patients may not have a good home environment where there is an emphasis placed on sticking with routine healthcare. Undoubtedly there are patients who cannot receive the medication and equipment they need for a full tune-up because of financial reasons. Granted, this is a conclusion that is drawn by looking at largely quantitative data, and from that extrapolating the qualitative ones.

Hospitalization, particularly for pediatric CFers and the newly diagnosed, is currently the favored approach. It seems to be working, so don't be surprised if the next time your CF team recommends a tuneup, that they also place a lot of emphasis on being inpatient.
 
L

lightNlife

New member
Personal preference aside, I thought I'd share some information that was shared by a CF doc at a local CFF meeting. The CFF has recently made care center data available online. The goal of this is to provide an across the board look at how each CF center does compared to the rest of the nation in terms of patients' FEV1, nutritional status, and predicted age. This encourages each CF clinic to look at what is working for certain centers, and look for ways to improve their own methods, thereby giving us, the patients, the best available.

One of the things that doctors are finding helps "boost" the averages for their care center, is to favor hospitalization over home treatment for a tune-up. This is because, ideally, hospitalization enables the CF team to work on everything at once for a patient. CPT, nebs, IV antibiotics, closer attention to diet, and even the access to a social worker, psychologist or psychiatrist, not to much more controlled environment in terms of exposure to negative environmental factors, can make a big difference.

Other reasons to favor hospitalization include social considerations, such as some patients may not have a good home environment where there is an emphasis placed on sticking with routine healthcare. Undoubtedly there are patients who cannot receive the medication and equipment they need for a full tune-up because of financial reasons. Granted, this is a conclusion that is drawn by looking at largely quantitative data, and from that extrapolating the qualitative ones.

Hospitalization, particularly for pediatric CFers and the newly diagnosed, is currently the favored approach. It seems to be working, so don't be surprised if the next time your CF team recommends a tuneup, that they also place a lot of emphasis on being inpatient.
 
K

kybert

New member
i almost always do mine at home. i have responsibilities and i cant deal with them if im stuck in hospital. my hospital is also extremely unhygenic and noisy and i get better faster at home anyway.
 
K

kybert

New member
i almost always do mine at home. i have responsibilities and i cant deal with them if im stuck in hospital. my hospital is also extremely unhygenic and noisy and i get better faster at home anyway.
 
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