who are you
I'm Stan, from the Netherlands, 27 and CF.
Diagnosed at birth because my two year older sister was already diagnosed with CF.
Fev1 of 34% , lowest ever which I feel sad about right now because I've been in for 3 weeks a month ago trying to get my slipping fev's up, instead it went down.
I'm 5"8/1.72 meters and 115 pounds/54 kg.
I get cramps just thinking about digestive problems. I've had my nose and forehead cleared of CF related polips 7 times. (get a headache thinking about it)
I'm a winter person. (Right now it's summer, make it stop.) I used to skate and rollerblade a lot, but lately I mainly train at home with tredmill, weights and do things on an empty piece of floor (hard to find, I live on my own) some 4-5x a week. I use O2 at home when excersizing, not or rarely in rest.
I'm a long haired, bearded science-geek/nerd and metalhead. A "thinker", quiet but a lot going on in my mind. I love science, philosophy, and a broad view on things to see how it all comes together. I'm an amateur astronomer with a big manly telescope. I've been playing piano since I was 6 or thereabouts and kept it up ever since. Later I also picked up the guitar. <img src="i/expressions/devil.gif" border="0">
I think of myself as a humorous person. As an absurdist however my humour is too weird for most. It does not work with the ladies.
