Who are you in a nut shell

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Turbo101

New member
who are you in a nut shell

My name is Kenny
Im a Dude
21
New York
Diagnosed at birth (a 2 pound infected sack in my intestines gave it away)
Im 5'11" and 147 pounds
Pft's around 85% (fev1)
Pretty healthy (only take enzymes)
I run, work out, not much holds me back
I was a welding machine/plasma cutter tech for 4 years
Ill be starting a new job repairing radar/satallites for Uncle Sam's finest
I love most things in life that are peaceful
Im single (dumped after 3 years for a mexican drug dealer)
I have been told i am quite funny, I've seen it a few times
I have an addiction to high horsepower turbochaged vehicles (especially the Nissan Skyline R32, R33, and R34)
 
G

Genevieve

New member
who are you in a nut shell

I'm so glad I found this website, what a relief.

This is my frothy story... <a target=_blank class=ftalternatingbarlinklarge href="http://spitthappens.blogspot.com/2008/10/my-frothy-story.html
">http://spitthappens.blogspot.c.../my-frothy-story.html
</a>
I'd really appreciate any hope or feedback, I've really been struggling and I've found alot of people do not have patience for this disease other than those who are struggling with the same.
Thank you so much for this website.
 
K

kfw1963

Guest
who are you in a nut shell

My name is Kevin

I am 45
Live in MA
Diagnosed at 3mos(Mom was a nurse and new something was wrong)
Double Delta F508
Chronic Sinusitis(which I hope to get fixed soon)
I am relatively healthy(CFRD is down the road I am told by the doc)
Married 18yrs w/3 kids, twin boys 12, daughter 8 all w/o CF
2 Labs(Black and Yellow) who also are w/o CF!!!
I enjoy sports and try to stay active but not as easy as it used to be
Love to watch my kids play in their games
I would like to travel before I can't(want to go to Europe)
I have been to HK, Taiwan an Japan on business
I guess that's it for now. I live a very unremarkable life and try to enjoy what I have.
 
J

Jeana

New member
who are you in a nut shell

My name is Jeana
I am a mother of a 3-year-old son that I adopted
I am a wife
I am a 7th and 8th grade math teacher
I live in Alaska
I was dx (diagnosed) at 16 months ~stopped breathing
I'm five months pregnant with another boy
I weigh around 135 lbs, and I'm 5'1
My PFT are in the 50-60s, although prior to pregnancy 75
I have two black labs, Ebony--11 and Buddy--1
I have a thing for God
I love the changing colors of the trees in Autumn
I love to read
I am a bit messy (more so when I'm sick)
I love my family (even my mother-in-law)
I love to ride my four-wheeler and fish
I am usually a very positive person


and thats all I got I guess.....
 
C

Capi

New member
who are you in a nut shell

My name is Ariel

I am 36
Live in Miami FL
Diagnosed at 8 years of age
Double Delta F508
Married 7yrs,
1 Pit Bull mix with Australian Shepard
PFTS were great until my right lung decided to take a Cr#$ so now I am in the 40's.

After working pretty much all my life, (Two jobs in High school, Three Jobs during College) Currently was the CEO for the marketing section of a major insurance company and the owner of a motorcycle dealer/shop the Dr's are now saying I need to go into Disability.

I enjoy sports, motorcycles and spending time with my best friend who happens to be my wife.

I was very ignorant about CF and I guess I did not want to know much about it as I wanted to avoid it but I am very happy I came across this forum. I have a billion questions but will continue to read as I am sure all my questions have been answered to others already.
 
C

crazyredhead

New member
who are you in a nut shell

* im courtney or court
*ill be 20 on nov.25
*im a girl kind of a tomboy
*im form mo
*iwas dx. at 9 mths. failure to thrive
*i have 1 puppy (midget) 1 crazy cat (willow) 9 fish tanks
*im adopted by my grandparents
*counting my adopted siblings theres 10 of us.
*my 2 oldest siblings died of cf, before they knew what cf was.
*my parents and my boy friend are my bestest friends ever!
*i like muscle cars ,sand rails, and jacked up trucks.
*im scared of water and cows
*i do my own mechanic work
*i really am i crazy red head!!
*im working on being an obidence trainer.
*im an excellant cook .
*im always up for something new and exciting...
*i love to get dirty!!!!!!
*id rather live in the middle of no-where.then have a neighbor.
**this is me in a nut shell...!!**
 
F

FrenchPoupette

New member
who are you in a nut shell

Hello everybody, I'm elodie, I'm French, I live in dubai and I have the CF which was discovered when I was 3 months.
I'm married with a French pilot, and we are in Dubai since 1 year. I'm an executive assistante. I would like tchat with you to know how the CF is charged in an other country that mine. In France the CF calls Mucoviscidose for people who doesn't know.
I hope my english is not bad !!!
 
R

randomgirl

New member
who are you

My name is Patty
I'm a girl
I'm 20
I live in TX
I was dx in the womb
I weigh around 107bs and I am 5'2"
My PFT's are in the 70s-ish
I'm in a relationship
I love animals
I like be possitive
I try to be thankful for as much as possible
I have no life, but I wish I had one so bad
I've never been to a real party
All I do is school and hangout with my bf
I wish it was different
 
E

emerenta18

Guest
who are you

Hello everybody! I used to come on here but haven't for a while, so I'm back again! It's so brilliant, I'm always the fattest and the tallest person with the cf, the most unusual for being diagnosed late, blah blah blah, then i come here and I see that everyone is very different, and thats perfectly ok ok so my name is Emer, I'm a girl,from Ireland, I'm 20, Diagnosed with cf at 14 years, previously told it was asthma, have MRSA and my FEV1 is 76%, chronic sinusitis and post nasal drip, acid reflux, i am pancreatic sufficient but can't absorb A,D,E and K whats with that ;) I weigh, a lot lol, I'm 5ft 6, I had two guinea pigs but they both died this year, I also had a boyfriend of 3 and a half years but I ended things and am enjoying being single ;) I'm in college, doing computer studies/office admin, am out at the moment on IVs, but will be finished on tuesday, yaaay!! I love ben and jerries, anything covered in chocolate, carbs, cf is not my enemy, its part of me, I love animals, i did animal care in college last year, I live at home but am hoping to move out soon as parents are now driving me insane lol, my genes are DF508 and 384910 kb, I love travelling, nights in front of the fire, going to the cinema, dvds, drinking etc, looking forward to getting to know you all! xx
 
A

Alyssaaaaxo

Guest
who are you in a nut shell

So i might be too young to be in this forum but im giving it a shot anyway

My name is Alyssa
I live in Cali.
I am in college.
I work part-time at aeropostale.
I have a dog named miley who is my baby
I was diagnosed at 9 months cause my mom was convinced i didn't just have a cold.
My lung function is about 50% & i have begun meeting with a transplant team.
I think CF sucks pretty much.
I did cheer and dance during my childhood years & into high school.
I am single because well im just too darn young for anything serious
I love clothes & i have way to many of them.
I can't cook at all so my mom does it for me
I live with my parents still cause im a youngin. lol.
I dont eat red meat or any type of fast food.
I am 5'7" and weigh 130 lbs.
Im very tall and skinny.
i love christmas and im so glad its coming.
 
K

kayleesgrandma

New member
who are you in a nut shell

Wow, we have so many newcomers!!! Welcome to all of you, and Alyssa--you are just the right age!!! I hope to get to know all of you lots better in the future. Come to our chat at 8 eastern time in the advanced chat room! BYOB!
 
S

santid

New member
who are you in a nut shell

Hi Everyone!
My name is Santi
I have a identical twin sister-she has diabetes type 1 and CF as well
We live in Windhoek, Namibia, Africa
we are 2 of only 5 CF patients in Namibia
I am 24 yrs old
was diagnosed at 6 weeks, failure to thrive
I weigh 60kg's and are 1.70 m tall
I have had sinus surgery every 6 months for the last 6 years and am pancreatic insufficient,
I have 2 brothers that doesn'y have CF
No prior CF was known in my family
I work full day but my sister only half day
I am a laser&akin Care technologist, started my own business in June this year
I have a thing for sunglasses
I love sports
I am not married ;) (yet)
 
B

breathe7

New member
who are you

My name is Jeff
I'm 24 years old
I'm a guy
I'm not very educated with CF
I wanna become more educated so I can help myself
I was diagnosed at 20 years old
 
R

Rachael6801

New member
who are you in a nut shell

My name is Rachael
I'm a girl
I'm 26
I live in CA
I was dx (diagnosed) at 3 months
I weigh 120 lbs 5'5"
I recently have had a very long life.. divorce = ( and other daily struggles
I have a thing for living life and takinf care of my beaultiful daughter who doesnt have CF
I have a thing for my family
I'm single
I like to walk on the beach and be out side with the people i love
I like to go snowboarding
I'm super sarcastic- I am too..
I am a MOMMIE.. i work full time take care of ALL of my daughters needs and wants with life, school and her activites. i go to school I also take care of myself and my wants and needs in life. I am starting over sadly but i will make it through i havent made it this far in life to just give up!
 
J

JazzysMom

New member
who are you in a nut shell

Dang.....its been awhile since I visited this section.

I love to get the scoop on our new members!

Welcome Everyone!
 
B

BeccaRN

Guest
who are you in a nut shell

My name is Rebecca
I am a girl
I am 35
I live in West Virginia
I was dx at 17 years old
I weigh 114lbs 5'6"
I am married
I want a baby
I love anything outdoors, yeah I'm a country girl
I am a retired Registered Nurse, I miss my job
I love to draw, paint, bake and decorate cakes, sew, and crochet
I love my family
My PFT are 44% right now, but I am getting over being sick
I have one DF508, one unmapped, positive sweat test
 
J

jenr

New member
who are you in a nut shell

My name is Jennifer
I'm 28 was dx@4
I live in Denver
5'3" & 118lbs
Engaged/no kids
last PFT's were 105%
Pancreatic insufficient
Had my first exacerbation last summer (MRSA abcess in my lung...yuck)
Am probably going to have to have sinus surgery soon (had my first head CT, very interesting, I didn't know sinuses could get that packed!)
I'm a freelance photographer
Am new here...it's nice to hear how other people feel, I've never met anyone else that has cf. I grew up in Wyoming.
My younger sister does not have cf, we don't know if she's a carrier.
 
T

Trigun472

New member
who are you in a nut shell

My name is Jesse
I'm a 17 y/o male
Live in Washington
5'7", weight around 120
CF @ birth, CFRD diagnosed last year
Dozens of sinus surgeries, no more sense of smell
I'm addicted to music, I play the guitar (and a handful of other instruments)
I draw, photoshop, play a lot of video games, and spend too much time on the internet <img src="i/expressions/face-icon-small-tongue.gif" border="0">

Nice to meet ya's.
 
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