G
gunelle
Guest
Hi all,
I was reading a post in the pregnancy section, on working full time while pregnant, and it made me think about my sistuation. I am not pregnant, but I work full time, and have a long way to work and back, and I find it very exhausting. About two weeks ago, I had an issue at work, which had bee builing up, regarding this. And I feel like I need to share this, because I've only discussed it with my boyfriend, but I don't think really he understands completely. Let me sum up.
I have a mild form of CF, which was discoverd in October 2008. I am from the the Faroe Islands, but live in Spain, becuase my boyfriend is from here. I work 8 hours, with 1 hour for lunch, so 9 hrs in the work place. I wake up at 6:30 to get ready and do my treatments, and leave the house at 07:45 to return back home at 19:25. I do my treatments, eat, watch some tv and spend time with my boyfriend, and around 22 I'm in bed. Since being diagnosed, living in a new country and with a new job, I am feeling overwhelmed, it's a lot to take in. My life has changed completely. I am trying to come to terms with this change, to learn with my illness, and have a good life, but of course it take time, and is emotional.
Regarding the work issue I had a about two weeks ago: I had a few month earlier requested to the managment to change my working schedule, so I could start at 08:30, have a half hour for lunch, and be able to leave at 17(insted of working 9-18 as now, with 1 hour for lunch). This would mean that I had one hour more at home, to do my treatments, and have more space in my day. This was agreed by the managment, and I was happy. But then, there was one colleauge of mine who wasn't happy with the arrangment, he wanted it also, and got some of the others to requested it too. Resulting in that managment took the agreement back, and I'm again working 9-18. Of course I was dissapointed by this, but didn't want to blurt out to everyone why I wanted the arrangement, because of my cf, I don't want to be treated differently, but I had earlier told this particular colleauge about my condition, so I assumed that he would understand, but no. Time went on, and I began to try to catch the earliest bus that I could, so I could catch a train to make the connecting train back home where I live. This would give me an extra 10 min at home, and I really needed that. I am grasping at everything I can get. But so two weeks ago, the same colleague starting to ask me why I did that, left 10 min earlier than the rest, if I had an agreement with managment, I said no (the other take an half hour for coffee in the morning, while I stay at my desk, becuase the coffe shop is full of smoke). We had a discussing about that, and my frustrations about the earlier agreement that he spoiled for me, came out, and I starting sobbing, in the office, it was so embarrasing. But I felt so betrayed. I know he knows what I have, but he said that it doesn't matter what excused we have to changing working schedule, it should be the same for all.
Sorry for the long post, I'm rambling. I just need to tell someone.
I am trying to find a work closer to home, but it's hard in this time of crisis, my boyfriend was fired about a year ago, and has since worked temperal jobs, so we need the money. I can't leave the work. And to work half time, would also mean less money, which we can't afford.
But I am exhauseted when I get home, especially on friday, at the week's end. I have no time for anything else in the week, other than work, medicin, food and sleep. It's not the life I've planned. And when we have children, if we have, how on Earth are we going to fit that in, in this schedule?
Well, I don't know what to do, ask my doctor for some papers to give to the office...? Ufff...
How do you all manage your lives?
Sorry for the long post, hope someone will reply <img src="i/expressions/face-icon-small-smile.gif" border="0">
I was reading a post in the pregnancy section, on working full time while pregnant, and it made me think about my sistuation. I am not pregnant, but I work full time, and have a long way to work and back, and I find it very exhausting. About two weeks ago, I had an issue at work, which had bee builing up, regarding this. And I feel like I need to share this, because I've only discussed it with my boyfriend, but I don't think really he understands completely. Let me sum up.
I have a mild form of CF, which was discoverd in October 2008. I am from the the Faroe Islands, but live in Spain, becuase my boyfriend is from here. I work 8 hours, with 1 hour for lunch, so 9 hrs in the work place. I wake up at 6:30 to get ready and do my treatments, and leave the house at 07:45 to return back home at 19:25. I do my treatments, eat, watch some tv and spend time with my boyfriend, and around 22 I'm in bed. Since being diagnosed, living in a new country and with a new job, I am feeling overwhelmed, it's a lot to take in. My life has changed completely. I am trying to come to terms with this change, to learn with my illness, and have a good life, but of course it take time, and is emotional.
Regarding the work issue I had a about two weeks ago: I had a few month earlier requested to the managment to change my working schedule, so I could start at 08:30, have a half hour for lunch, and be able to leave at 17(insted of working 9-18 as now, with 1 hour for lunch). This would mean that I had one hour more at home, to do my treatments, and have more space in my day. This was agreed by the managment, and I was happy. But then, there was one colleauge of mine who wasn't happy with the arrangment, he wanted it also, and got some of the others to requested it too. Resulting in that managment took the agreement back, and I'm again working 9-18. Of course I was dissapointed by this, but didn't want to blurt out to everyone why I wanted the arrangement, because of my cf, I don't want to be treated differently, but I had earlier told this particular colleauge about my condition, so I assumed that he would understand, but no. Time went on, and I began to try to catch the earliest bus that I could, so I could catch a train to make the connecting train back home where I live. This would give me an extra 10 min at home, and I really needed that. I am grasping at everything I can get. But so two weeks ago, the same colleague starting to ask me why I did that, left 10 min earlier than the rest, if I had an agreement with managment, I said no (the other take an half hour for coffee in the morning, while I stay at my desk, becuase the coffe shop is full of smoke). We had a discussing about that, and my frustrations about the earlier agreement that he spoiled for me, came out, and I starting sobbing, in the office, it was so embarrasing. But I felt so betrayed. I know he knows what I have, but he said that it doesn't matter what excused we have to changing working schedule, it should be the same for all.
Sorry for the long post, I'm rambling. I just need to tell someone.
I am trying to find a work closer to home, but it's hard in this time of crisis, my boyfriend was fired about a year ago, and has since worked temperal jobs, so we need the money. I can't leave the work. And to work half time, would also mean less money, which we can't afford.
But I am exhauseted when I get home, especially on friday, at the week's end. I have no time for anything else in the week, other than work, medicin, food and sleep. It's not the life I've planned. And when we have children, if we have, how on Earth are we going to fit that in, in this schedule?
Well, I don't know what to do, ask my doctor for some papers to give to the office...? Ufff...
How do you all manage your lives?
Sorry for the long post, hope someone will reply <img src="i/expressions/face-icon-small-smile.gif" border="0">