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- Thread starter Anns
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CFHockeyMom
New member
not doing CPTs
Ok, thanks for clearing that up.
BTW... Just for the record, my husband and I have been "looked down on" at our CF parents group for allowing Sean to miss treatments because he was out playing. It's a balancing act and we think balance (ie. getting to play) is important. A lot of the staff at our clinic feels the same way. However, we've been given the lectures/evil eye when we admit to not being 100% compliant too.
Ok, thanks for clearing that up.
BTW... Just for the record, my husband and I have been "looked down on" at our CF parents group for allowing Sean to miss treatments because he was out playing. It's a balancing act and we think balance (ie. getting to play) is important. A lot of the staff at our clinic feels the same way. However, we've been given the lectures/evil eye when we admit to not being 100% compliant too.
CFHockeyMom
New member
not doing CPTs
Ok, thanks for clearing that up.
BTW... Just for the record, my husband and I have been "looked down on" at our CF parents group for allowing Sean to miss treatments because he was out playing. It's a balancing act and we think balance (ie. getting to play) is important. A lot of the staff at our clinic feels the same way. However, we've been given the lectures/evil eye when we admit to not being 100% compliant too.
Ok, thanks for clearing that up.
BTW... Just for the record, my husband and I have been "looked down on" at our CF parents group for allowing Sean to miss treatments because he was out playing. It's a balancing act and we think balance (ie. getting to play) is important. A lot of the staff at our clinic feels the same way. However, we've been given the lectures/evil eye when we admit to not being 100% compliant too.
CFHockeyMom
New member
not doing CPTs
Ok, thanks for clearing that up.
BTW... Just for the record, my husband and I have been "looked down on" at our CF parents group for allowing Sean to miss treatments because he was out playing. It's a balancing act and we think balance (ie. getting to play) is important. A lot of the staff at our clinic feels the same way. However, we've been given the lectures/evil eye when we admit to not being 100% compliant too.
Ok, thanks for clearing that up.
BTW... Just for the record, my husband and I have been "looked down on" at our CF parents group for allowing Sean to miss treatments because he was out playing. It's a balancing act and we think balance (ie. getting to play) is important. A lot of the staff at our clinic feels the same way. However, we've been given the lectures/evil eye when we admit to not being 100% compliant too.
not doing CPTs
Claudette,<br>
Thanks for the words back. That's exactly what I'm talking
about, the evil eyes? Come on...It's not like parents of CFers need
anymore stress and pressure on top of everything else we face
everyday. I'm sure these people have good intentions just
like someone telling me I should be doing CPTs on a regular basis.
How do u deal with these lectures? Maybe I should
have my friend who does everything by the book everyday w/ here CF
kids and still need antibiotics use reverse psychology on the
doctors and give their docs an evil eye and lecture why they are
not doing enough to keep her kids healthy.
Claudette,<br>
Thanks for the words back. That's exactly what I'm talking
about, the evil eyes? Come on...It's not like parents of CFers need
anymore stress and pressure on top of everything else we face
everyday. I'm sure these people have good intentions just
like someone telling me I should be doing CPTs on a regular basis.
How do u deal with these lectures? Maybe I should
have my friend who does everything by the book everyday w/ here CF
kids and still need antibiotics use reverse psychology on the
doctors and give their docs an evil eye and lecture why they are
not doing enough to keep her kids healthy.
not doing CPTs
Claudette,<br>
Thanks for the words back. That's exactly what I'm talking
about, the evil eyes? Come on...It's not like parents of CFers need
anymore stress and pressure on top of everything else we face
everyday. I'm sure these people have good intentions just
like someone telling me I should be doing CPTs on a regular basis.
How do u deal with these lectures? Maybe I should
have my friend who does everything by the book everyday w/ here CF
kids and still need antibiotics use reverse psychology on the
doctors and give their docs an evil eye and lecture why they are
not doing enough to keep her kids healthy.
Claudette,<br>
Thanks for the words back. That's exactly what I'm talking
about, the evil eyes? Come on...It's not like parents of CFers need
anymore stress and pressure on top of everything else we face
everyday. I'm sure these people have good intentions just
like someone telling me I should be doing CPTs on a regular basis.
How do u deal with these lectures? Maybe I should
have my friend who does everything by the book everyday w/ here CF
kids and still need antibiotics use reverse psychology on the
doctors and give their docs an evil eye and lecture why they are
not doing enough to keep her kids healthy.
not doing CPTs
Claudette,<br>
Thanks for the words back. That's exactly what I'm talking
about, the evil eyes? Come on...It's not like parents of CFers need
anymore stress and pressure on top of everything else we face
everyday. I'm sure these people have good intentions just
like someone telling me I should be doing CPTs on a regular basis.
How do u deal with these lectures? Maybe I should
have my friend who does everything by the book everyday w/ here CF
kids and still need antibiotics use reverse psychology on the
doctors and give their docs an evil eye and lecture why they are
not doing enough to keep her kids healthy.
Claudette,<br>
Thanks for the words back. That's exactly what I'm talking
about, the evil eyes? Come on...It's not like parents of CFers need
anymore stress and pressure on top of everything else we face
everyday. I'm sure these people have good intentions just
like someone telling me I should be doing CPTs on a regular basis.
How do u deal with these lectures? Maybe I should
have my friend who does everything by the book everyday w/ here CF
kids and still need antibiotics use reverse psychology on the
doctors and give their docs an evil eye and lecture why they are
not doing enough to keep her kids healthy.
CFHockeyMom
New member
not doing CPTs
Well, I kind of just blow them off. Sometimes they change their approach to Sean's treatment to accomodate us and sometimes they stick with the lecturing/evil eye. I've also been quite frank with them about what I feel does and doesn't work. Usually, they are receptive and try to work with us. And if all that doesn't work, well then, I send my husband <img src="i/expressions/face-icon-small-wink.gif" border="0"> to get yelled at.
There's a boy with CF that lives in our community. He's in 8th grade now but when he was in 5th grade he had the same teacher Sean has right now. When I was talking with Sean's teacher about CF he asked me how early Sean got up to do his treatments. The question was prompted by the fact that this other boy used to get up at 4:30 in the morning to be able to complete all of his treatments in time for school. That worked for them but there is NO WAY Sean would get up at 4:30. He needs his sleep. Again, it's a balancing act. If Sean were an early riser like his brother then maybe we could pull it off but Sean is still requiring 10 hours of sleep a night. If we were to do everything we were supposed to be doing in the morning, he'd be going to bed at 7pm. So, right now, we feel the rest/sleep is more important and we minimize his morning treatments. When he's sick however, all bets are off. We just go to school late.
I think most Dr.'s know that you can't do it all. Our Dr. loves us and says we are one of the most compliant families that she has even with our short-cuts. No, we're not perfect but we do our best for Sean. What I think is best for him may differ with what someone else thinks is best.
Ya know, Sean just got the vest about a year ago. He's been pretty diligent with it. Not 100% compliant but pretty darn close. Our Dr. was never that big on the vest (she preferred manual CPT) but Sean thought he could be more compliant with the vest so we got one. Sean's never really been a big cougher unless he's sick so we were hopeful that the vest would help him cough up some of that junk. It did the first week then nothing as usual. Actually, Dr. Warwick's coughing technique (see Amy's blog) has helped him more. It goes back to that CF isn't a one size fits all disease.
BTW...I love this...
<div class="FTQUOTE"><begin quote>Maybe I should have my friend who does everything by the book everyday w/ here CF kids and still need antibiotics use reverse psychology on the doctors and give their docs an evil eye and lecture why they are not doing enough to keep her kids healthy.</end quote></div>
Well, I kind of just blow them off. Sometimes they change their approach to Sean's treatment to accomodate us and sometimes they stick with the lecturing/evil eye. I've also been quite frank with them about what I feel does and doesn't work. Usually, they are receptive and try to work with us. And if all that doesn't work, well then, I send my husband <img src="i/expressions/face-icon-small-wink.gif" border="0"> to get yelled at.
There's a boy with CF that lives in our community. He's in 8th grade now but when he was in 5th grade he had the same teacher Sean has right now. When I was talking with Sean's teacher about CF he asked me how early Sean got up to do his treatments. The question was prompted by the fact that this other boy used to get up at 4:30 in the morning to be able to complete all of his treatments in time for school. That worked for them but there is NO WAY Sean would get up at 4:30. He needs his sleep. Again, it's a balancing act. If Sean were an early riser like his brother then maybe we could pull it off but Sean is still requiring 10 hours of sleep a night. If we were to do everything we were supposed to be doing in the morning, he'd be going to bed at 7pm. So, right now, we feel the rest/sleep is more important and we minimize his morning treatments. When he's sick however, all bets are off. We just go to school late.
I think most Dr.'s know that you can't do it all. Our Dr. loves us and says we are one of the most compliant families that she has even with our short-cuts. No, we're not perfect but we do our best for Sean. What I think is best for him may differ with what someone else thinks is best.
Ya know, Sean just got the vest about a year ago. He's been pretty diligent with it. Not 100% compliant but pretty darn close. Our Dr. was never that big on the vest (she preferred manual CPT) but Sean thought he could be more compliant with the vest so we got one. Sean's never really been a big cougher unless he's sick so we were hopeful that the vest would help him cough up some of that junk. It did the first week then nothing as usual. Actually, Dr. Warwick's coughing technique (see Amy's blog) has helped him more. It goes back to that CF isn't a one size fits all disease.
BTW...I love this...
<div class="FTQUOTE"><begin quote>Maybe I should have my friend who does everything by the book everyday w/ here CF kids and still need antibiotics use reverse psychology on the doctors and give their docs an evil eye and lecture why they are not doing enough to keep her kids healthy.</end quote></div>
CFHockeyMom
New member
not doing CPTs
Well, I kind of just blow them off. Sometimes they change their approach to Sean's treatment to accomodate us and sometimes they stick with the lecturing/evil eye. I've also been quite frank with them about what I feel does and doesn't work. Usually, they are receptive and try to work with us. And if all that doesn't work, well then, I send my husband <img src="i/expressions/face-icon-small-wink.gif" border="0"> to get yelled at.
There's a boy with CF that lives in our community. He's in 8th grade now but when he was in 5th grade he had the same teacher Sean has right now. When I was talking with Sean's teacher about CF he asked me how early Sean got up to do his treatments. The question was prompted by the fact that this other boy used to get up at 4:30 in the morning to be able to complete all of his treatments in time for school. That worked for them but there is NO WAY Sean would get up at 4:30. He needs his sleep. Again, it's a balancing act. If Sean were an early riser like his brother then maybe we could pull it off but Sean is still requiring 10 hours of sleep a night. If we were to do everything we were supposed to be doing in the morning, he'd be going to bed at 7pm. So, right now, we feel the rest/sleep is more important and we minimize his morning treatments. When he's sick however, all bets are off. We just go to school late.
I think most Dr.'s know that you can't do it all. Our Dr. loves us and says we are one of the most compliant families that she has even with our short-cuts. No, we're not perfect but we do our best for Sean. What I think is best for him may differ with what someone else thinks is best.
Ya know, Sean just got the vest about a year ago. He's been pretty diligent with it. Not 100% compliant but pretty darn close. Our Dr. was never that big on the vest (she preferred manual CPT) but Sean thought he could be more compliant with the vest so we got one. Sean's never really been a big cougher unless he's sick so we were hopeful that the vest would help him cough up some of that junk. It did the first week then nothing as usual. Actually, Dr. Warwick's coughing technique (see Amy's blog) has helped him more. It goes back to that CF isn't a one size fits all disease.
BTW...I love this...
<div class="FTQUOTE"><begin quote>Maybe I should have my friend who does everything by the book everyday w/ here CF kids and still need antibiotics use reverse psychology on the doctors and give their docs an evil eye and lecture why they are not doing enough to keep her kids healthy.</end quote></div>
Well, I kind of just blow them off. Sometimes they change their approach to Sean's treatment to accomodate us and sometimes they stick with the lecturing/evil eye. I've also been quite frank with them about what I feel does and doesn't work. Usually, they are receptive and try to work with us. And if all that doesn't work, well then, I send my husband <img src="i/expressions/face-icon-small-wink.gif" border="0"> to get yelled at.
There's a boy with CF that lives in our community. He's in 8th grade now but when he was in 5th grade he had the same teacher Sean has right now. When I was talking with Sean's teacher about CF he asked me how early Sean got up to do his treatments. The question was prompted by the fact that this other boy used to get up at 4:30 in the morning to be able to complete all of his treatments in time for school. That worked for them but there is NO WAY Sean would get up at 4:30. He needs his sleep. Again, it's a balancing act. If Sean were an early riser like his brother then maybe we could pull it off but Sean is still requiring 10 hours of sleep a night. If we were to do everything we were supposed to be doing in the morning, he'd be going to bed at 7pm. So, right now, we feel the rest/sleep is more important and we minimize his morning treatments. When he's sick however, all bets are off. We just go to school late.
I think most Dr.'s know that you can't do it all. Our Dr. loves us and says we are one of the most compliant families that she has even with our short-cuts. No, we're not perfect but we do our best for Sean. What I think is best for him may differ with what someone else thinks is best.
Ya know, Sean just got the vest about a year ago. He's been pretty diligent with it. Not 100% compliant but pretty darn close. Our Dr. was never that big on the vest (she preferred manual CPT) but Sean thought he could be more compliant with the vest so we got one. Sean's never really been a big cougher unless he's sick so we were hopeful that the vest would help him cough up some of that junk. It did the first week then nothing as usual. Actually, Dr. Warwick's coughing technique (see Amy's blog) has helped him more. It goes back to that CF isn't a one size fits all disease.
BTW...I love this...
<div class="FTQUOTE"><begin quote>Maybe I should have my friend who does everything by the book everyday w/ here CF kids and still need antibiotics use reverse psychology on the doctors and give their docs an evil eye and lecture why they are not doing enough to keep her kids healthy.</end quote></div>
CFHockeyMom
New member
not doing CPTs
Well, I kind of just blow them off. Sometimes they change their approach to Sean's treatment to accomodate us and sometimes they stick with the lecturing/evil eye. I've also been quite frank with them about what I feel does and doesn't work. Usually, they are receptive and try to work with us. And if all that doesn't work, well then, I send my husband <img src="i/expressions/face-icon-small-wink.gif" border="0"> to get yelled at.
There's a boy with CF that lives in our community. He's in 8th grade now but when he was in 5th grade he had the same teacher Sean has right now. When I was talking with Sean's teacher about CF he asked me how early Sean got up to do his treatments. The question was prompted by the fact that this other boy used to get up at 4:30 in the morning to be able to complete all of his treatments in time for school. That worked for them but there is NO WAY Sean would get up at 4:30. He needs his sleep. Again, it's a balancing act. If Sean were an early riser like his brother then maybe we could pull it off but Sean is still requiring 10 hours of sleep a night. If we were to do everything we were supposed to be doing in the morning, he'd be going to bed at 7pm. So, right now, we feel the rest/sleep is more important and we minimize his morning treatments. When he's sick however, all bets are off. We just go to school late.
I think most Dr.'s know that you can't do it all. Our Dr. loves us and says we are one of the most compliant families that she has even with our short-cuts. No, we're not perfect but we do our best for Sean. What I think is best for him may differ with what someone else thinks is best.
Ya know, Sean just got the vest about a year ago. He's been pretty diligent with it. Not 100% compliant but pretty darn close. Our Dr. was never that big on the vest (she preferred manual CPT) but Sean thought he could be more compliant with the vest so we got one. Sean's never really been a big cougher unless he's sick so we were hopeful that the vest would help him cough up some of that junk. It did the first week then nothing as usual. Actually, Dr. Warwick's coughing technique (see Amy's blog) has helped him more. It goes back to that CF isn't a one size fits all disease.
BTW...I love this...
<div class="FTQUOTE"><begin quote>Maybe I should have my friend who does everything by the book everyday w/ here CF kids and still need antibiotics use reverse psychology on the doctors and give their docs an evil eye and lecture why they are not doing enough to keep her kids healthy.</end quote></div>
Well, I kind of just blow them off. Sometimes they change their approach to Sean's treatment to accomodate us and sometimes they stick with the lecturing/evil eye. I've also been quite frank with them about what I feel does and doesn't work. Usually, they are receptive and try to work with us. And if all that doesn't work, well then, I send my husband <img src="i/expressions/face-icon-small-wink.gif" border="0"> to get yelled at.
There's a boy with CF that lives in our community. He's in 8th grade now but when he was in 5th grade he had the same teacher Sean has right now. When I was talking with Sean's teacher about CF he asked me how early Sean got up to do his treatments. The question was prompted by the fact that this other boy used to get up at 4:30 in the morning to be able to complete all of his treatments in time for school. That worked for them but there is NO WAY Sean would get up at 4:30. He needs his sleep. Again, it's a balancing act. If Sean were an early riser like his brother then maybe we could pull it off but Sean is still requiring 10 hours of sleep a night. If we were to do everything we were supposed to be doing in the morning, he'd be going to bed at 7pm. So, right now, we feel the rest/sleep is more important and we minimize his morning treatments. When he's sick however, all bets are off. We just go to school late.
I think most Dr.'s know that you can't do it all. Our Dr. loves us and says we are one of the most compliant families that she has even with our short-cuts. No, we're not perfect but we do our best for Sean. What I think is best for him may differ with what someone else thinks is best.
Ya know, Sean just got the vest about a year ago. He's been pretty diligent with it. Not 100% compliant but pretty darn close. Our Dr. was never that big on the vest (she preferred manual CPT) but Sean thought he could be more compliant with the vest so we got one. Sean's never really been a big cougher unless he's sick so we were hopeful that the vest would help him cough up some of that junk. It did the first week then nothing as usual. Actually, Dr. Warwick's coughing technique (see Amy's blog) has helped him more. It goes back to that CF isn't a one size fits all disease.
BTW...I love this...
<div class="FTQUOTE"><begin quote>Maybe I should have my friend who does everything by the book everyday w/ here CF kids and still need antibiotics use reverse psychology on the doctors and give their docs an evil eye and lecture why they are not doing enough to keep her kids healthy.</end quote></div>
not doing CPTs
I have a question..how are you going to handle this now? Your child can't continue to lie as it is taught to be wrong. If you are convinced that you are right in not using CPT then why don't you tell your doctor this instead of lie. Seems to me that would be more effective and maybe they would listen to you more then if you just lie to them and are found out.
Just wondering how you are going to do it now.
I have a question..how are you going to handle this now? Your child can't continue to lie as it is taught to be wrong. If you are convinced that you are right in not using CPT then why don't you tell your doctor this instead of lie. Seems to me that would be more effective and maybe they would listen to you more then if you just lie to them and are found out.
Just wondering how you are going to do it now.
not doing CPTs
I have a question..how are you going to handle this now? Your child can't continue to lie as it is taught to be wrong. If you are convinced that you are right in not using CPT then why don't you tell your doctor this instead of lie. Seems to me that would be more effective and maybe they would listen to you more then if you just lie to them and are found out.
Just wondering how you are going to do it now.
I have a question..how are you going to handle this now? Your child can't continue to lie as it is taught to be wrong. If you are convinced that you are right in not using CPT then why don't you tell your doctor this instead of lie. Seems to me that would be more effective and maybe they would listen to you more then if you just lie to them and are found out.
Just wondering how you are going to do it now.
not doing CPTs
I have a question..how are you going to handle this now? Your child can't continue to lie as it is taught to be wrong. If you are convinced that you are right in not using CPT then why don't you tell your doctor this instead of lie. Seems to me that would be more effective and maybe they would listen to you more then if you just lie to them and are found out.
Just wondering how you are going to do it now.
I have a question..how are you going to handle this now? Your child can't continue to lie as it is taught to be wrong. If you are convinced that you are right in not using CPT then why don't you tell your doctor this instead of lie. Seems to me that would be more effective and maybe they would listen to you more then if you just lie to them and are found out.
Just wondering how you are going to do it now.