yay CF?! :/

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Alyssaaaaxo

Guest
life and CF. seems like a total contradictory to me. live life, everyone says except how the heck am i supposed to live my life when i take over 30 pills a day, do an hour of treatments before school and before i go out at night, cough insanely and get stared at all the time, am so skinny i get asked if i have an eating disorder, go into the hospital a month at a time, miss school regularly because i don't feel up to walking, get winded when I'm walking, ETC! <img src="i/expressions/face-icon-small-sad.gif" border="0">

i hate CF. I'm a very positive person when it comes to it but really I'm so done with it. i fight so much with my mom now cause she claims "she understands how i feel" but really... she doesn't. only other CF'rs do. if you don't have it, you don't get it, you don't get us.


anyone else feeling like this?! cause I'm sure know i CAN'T be the only one.
 
A

Alyssaaaaxo

Guest
life and CF. seems like a total contradictory to me. live life, everyone says except how the heck am i supposed to live my life when i take over 30 pills a day, do an hour of treatments before school and before i go out at night, cough insanely and get stared at all the time, am so skinny i get asked if i have an eating disorder, go into the hospital a month at a time, miss school regularly because i don't feel up to walking, get winded when I'm walking, ETC! <img src="i/expressions/face-icon-small-sad.gif" border="0">

i hate CF. I'm a very positive person when it comes to it but really I'm so done with it. i fight so much with my mom now cause she claims "she understands how i feel" but really... she doesn't. only other CF'rs do. if you don't have it, you don't get it, you don't get us.


anyone else feeling like this?! cause I'm sure know i CAN'T be the only one.
 
A

Alyssaaaaxo

Guest
life and CF. seems like a total contradictory to me. live life, everyone says except how the heck am i supposed to live my life when i take over 30 pills a day, do an hour of treatments before school and before i go out at night, cough insanely and get stared at all the time, am so skinny i get asked if i have an eating disorder, go into the hospital a month at a time, miss school regularly because i don't feel up to walking, get winded when I'm walking, ETC! <img src="i/expressions/face-icon-small-sad.gif" border="0">

i hate CF. I'm a very positive person when it comes to it but really I'm so done with it. i fight so much with my mom now cause she claims "she understands how i feel" but really... she doesn't. only other CF'rs do. if you don't have it, you don't get it, you don't get us.


anyone else feeling like this?! cause I'm sure know i CAN'T be the only one.
 
A

Alyssaaaaxo

Guest
life and CF. seems like a total contradictory to me. live life, everyone says except how the heck am i supposed to live my life when i take over 30 pills a day, do an hour of treatments before school and before i go out at night, cough insanely and get stared at all the time, am so skinny i get asked if i have an eating disorder, go into the hospital a month at a time, miss school regularly because i don't feel up to walking, get winded when I'm walking, ETC! <img src="i/expressions/face-icon-small-sad.gif" border="0">

i hate CF. I'm a very positive person when it comes to it but really I'm so done with it. i fight so much with my mom now cause she claims "she understands how i feel" but really... she doesn't. only other CF'rs do. if you don't have it, you don't get it, you don't get us.


anyone else feeling like this?! cause I'm sure know i CAN'T be the only one.
 
A

Alyssaaaaxo

Guest
life and CF. seems like a total contradictory to me. live life, everyone says except how the heck am i supposed to live my life when i take over 30 pills a day, do an hour of treatments before school and before i go out at night, cough insanely and get stared at all the time, am so skinny i get asked if i have an eating disorder, go into the hospital a month at a time, miss school regularly because i don't feel up to walking, get winded when I'm walking, ETC! <img src="i/expressions/face-icon-small-sad.gif" border="0">
<br />
<br />i hate CF. I'm a very positive person when it comes to it but really I'm so done with it. i fight so much with my mom now cause she claims "she understands how i feel" but really... she doesn't. only other CF'rs do. if you don't have it, you don't get it, you don't get us.
<br />
<br />
<br />anyone else feeling like this?! cause I'm sure know i CAN'T be the only one.
 
S

smiles123

New member
Omg yes i feel like that ALL THE TIME.
Sometimes I wonder...even with all these treaments how long am I going to last? What's the point, wouldn't it be better to skip them and actually live my life like a normal person? Even if I don't make it as long, well, at least I'd have that little period of freedom. I know, that's horrible, but just how I feel sometimes.
And you are so right, no one understands. Sure, I seem happy, but I get so miserable sometimes...Why me?? I wish I could have just one single day without any of it, I think about that all the time...how much different (and better) my life would be without it. Then I get pulled back down to reality...that's the worst part, because I think about the life I could have without it, and then know it's not going to just magically happen. Oh well. I try to be positive. But I have no advice for you, just saying you're not alone! I HATE CF.
 
S

smiles123

New member
Omg yes i feel like that ALL THE TIME.
Sometimes I wonder...even with all these treaments how long am I going to last? What's the point, wouldn't it be better to skip them and actually live my life like a normal person? Even if I don't make it as long, well, at least I'd have that little period of freedom. I know, that's horrible, but just how I feel sometimes.
And you are so right, no one understands. Sure, I seem happy, but I get so miserable sometimes...Why me?? I wish I could have just one single day without any of it, I think about that all the time...how much different (and better) my life would be without it. Then I get pulled back down to reality...that's the worst part, because I think about the life I could have without it, and then know it's not going to just magically happen. Oh well. I try to be positive. But I have no advice for you, just saying you're not alone! I HATE CF.
 
S

smiles123

New member
Omg yes i feel like that ALL THE TIME.
Sometimes I wonder...even with all these treaments how long am I going to last? What's the point, wouldn't it be better to skip them and actually live my life like a normal person? Even if I don't make it as long, well, at least I'd have that little period of freedom. I know, that's horrible, but just how I feel sometimes.
And you are so right, no one understands. Sure, I seem happy, but I get so miserable sometimes...Why me?? I wish I could have just one single day without any of it, I think about that all the time...how much different (and better) my life would be without it. Then I get pulled back down to reality...that's the worst part, because I think about the life I could have without it, and then know it's not going to just magically happen. Oh well. I try to be positive. But I have no advice for you, just saying you're not alone! I HATE CF.
 
S

smiles123

New member
Omg yes i feel like that ALL THE TIME.
Sometimes I wonder...even with all these treaments how long am I going to last? What's the point, wouldn't it be better to skip them and actually live my life like a normal person? Even if I don't make it as long, well, at least I'd have that little period of freedom. I know, that's horrible, but just how I feel sometimes.
And you are so right, no one understands. Sure, I seem happy, but I get so miserable sometimes...Why me?? I wish I could have just one single day without any of it, I think about that all the time...how much different (and better) my life would be without it. Then I get pulled back down to reality...that's the worst part, because I think about the life I could have without it, and then know it's not going to just magically happen. Oh well. I try to be positive. But I have no advice for you, just saying you're not alone! I HATE CF.
 
S

smiles123

New member
Omg yes i feel like that ALL THE TIME.
<br />Sometimes I wonder...even with all these treaments how long am I going to last? What's the point, wouldn't it be better to skip them and actually live my life like a normal person? Even if I don't make it as long, well, at least I'd have that little period of freedom. I know, that's horrible, but just how I feel sometimes.
<br />And you are so right, no one understands. Sure, I seem happy, but I get so miserable sometimes...Why me?? I wish I could have just one single day without any of it, I think about that all the time...how much different (and better) my life would be without it. Then I get pulled back down to reality...that's the worst part, because I think about the life I could have without it, and then know it's not going to just magically happen. Oh well. I try to be positive. But I have no advice for you, just saying you're not alone! I HATE CF.
<br />
<br />
 
M

morty220

New member
you know what. your worng. i dont like to say that to people who are in pain. but you are. my girlfriend has cf and she has it just as bad as you do. you have no idea how painful it is for a person who is in love with a CFer. yes other people may stair at you. yes some people may say they know what your going through. but the people who love you really do know. there there for it every day and dont look at you diffrent beacuse of it. yeah if i take her out on a date we have to stop let her cough and go slowly but you know what we have some of the best times togather. so if your mom says that she understands and you get mad at her. you need to ask your self why your mad. is it really beacuse she said that or is it beacuse shes just reminding you of how bad you have it. get a boyfriend.
 
M

morty220

New member
you know what. your worng. i dont like to say that to people who are in pain. but you are. my girlfriend has cf and she has it just as bad as you do. you have no idea how painful it is for a person who is in love with a CFer. yes other people may stair at you. yes some people may say they know what your going through. but the people who love you really do know. there there for it every day and dont look at you diffrent beacuse of it. yeah if i take her out on a date we have to stop let her cough and go slowly but you know what we have some of the best times togather. so if your mom says that she understands and you get mad at her. you need to ask your self why your mad. is it really beacuse she said that or is it beacuse shes just reminding you of how bad you have it. get a boyfriend.
 
M

morty220

New member
you know what. your worng. i dont like to say that to people who are in pain. but you are. my girlfriend has cf and she has it just as bad as you do. you have no idea how painful it is for a person who is in love with a CFer. yes other people may stair at you. yes some people may say they know what your going through. but the people who love you really do know. there there for it every day and dont look at you diffrent beacuse of it. yeah if i take her out on a date we have to stop let her cough and go slowly but you know what we have some of the best times togather. so if your mom says that she understands and you get mad at her. you need to ask your self why your mad. is it really beacuse she said that or is it beacuse shes just reminding you of how bad you have it. get a boyfriend.
 
M

morty220

New member
you know what. your worng. i dont like to say that to people who are in pain. but you are. my girlfriend has cf and she has it just as bad as you do. you have no idea how painful it is for a person who is in love with a CFer. yes other people may stair at you. yes some people may say they know what your going through. but the people who love you really do know. there there for it every day and dont look at you diffrent beacuse of it. yeah if i take her out on a date we have to stop let her cough and go slowly but you know what we have some of the best times togather. so if your mom says that she understands and you get mad at her. you need to ask your self why your mad. is it really beacuse she said that or is it beacuse shes just reminding you of how bad you have it. get a boyfriend.
 
M

morty220

New member
you know what. your worng. i dont like to say that to people who are in pain. but you are. my girlfriend has cf and she has it just as bad as you do. you have no idea how painful it is for a person who is in love with a CFer. yes other people may stair at you. yes some people may say they know what your going through. but the people who love you really do know. there there for it every day and dont look at you diffrent beacuse of it. yeah if i take her out on a date we have to stop let her cough and go slowly but you know what we have some of the best times togather. so if your mom says that she understands and you get mad at her. you need to ask your self why your mad. is it really beacuse she said that or is it beacuse shes just reminding you of how bad you have it. get a boyfriend.
 
A

amazinGracie

New member
Okay, morty220...that was really rude! Well I think so. You can't say someone is wrong when they feel pain, pain is pain, they know it and you don't. Yes, you might watch your girlfriend everyday, and do things for her, and love her, and not see her as different, but you don't fully understand unless you are living with it. You told us that we "don't know how hard it is for a person in love with a CFer." Much like you don't know what it is like to be the CFer. We have a general idea, like you do about CF, but we don't go through it, and therefore don't fully understand. And when people say they understand, like a mom, well...they don't, and the only reason I hate that is because it is frustrating when you want them to, and they try, but just don't. When I talk to other people with CF, it helps to know I am not the only one with it, and they can help me cope with my struggles because they have them too. I can't explain it right, but you just feel a connection that you don't find in people without CF. Instead of their sympathy, you get their help. You can say how you feel just like you would for everyone else, but they understand what you are really saying and can't properly put into words, because they've felt like that too. So what you're saying in your message is, if your girlfriend came to you with these complaints, you'd tell her that she can't talk about CF when it gets hard, and that she is wrong about being in pain and is actually feeling fine? Yeah, I'm sure that'd go over well. Everyone has bad days. About this message...it was mean. Sorry.
 
A

amazinGracie

New member
Okay, morty220...that was really rude! Well I think so. You can't say someone is wrong when they feel pain, pain is pain, they know it and you don't. Yes, you might watch your girlfriend everyday, and do things for her, and love her, and not see her as different, but you don't fully understand unless you are living with it. You told us that we "don't know how hard it is for a person in love with a CFer." Much like you don't know what it is like to be the CFer. We have a general idea, like you do about CF, but we don't go through it, and therefore don't fully understand. And when people say they understand, like a mom, well...they don't, and the only reason I hate that is because it is frustrating when you want them to, and they try, but just don't. When I talk to other people with CF, it helps to know I am not the only one with it, and they can help me cope with my struggles because they have them too. I can't explain it right, but you just feel a connection that you don't find in people without CF. Instead of their sympathy, you get their help. You can say how you feel just like you would for everyone else, but they understand what you are really saying and can't properly put into words, because they've felt like that too. So what you're saying in your message is, if your girlfriend came to you with these complaints, you'd tell her that she can't talk about CF when it gets hard, and that she is wrong about being in pain and is actually feeling fine? Yeah, I'm sure that'd go over well. Everyone has bad days. About this message...it was mean. Sorry.
 
A

amazinGracie

New member
Okay, morty220...that was really rude! Well I think so. You can't say someone is wrong when they feel pain, pain is pain, they know it and you don't. Yes, you might watch your girlfriend everyday, and do things for her, and love her, and not see her as different, but you don't fully understand unless you are living with it. You told us that we "don't know how hard it is for a person in love with a CFer." Much like you don't know what it is like to be the CFer. We have a general idea, like you do about CF, but we don't go through it, and therefore don't fully understand. And when people say they understand, like a mom, well...they don't, and the only reason I hate that is because it is frustrating when you want them to, and they try, but just don't. When I talk to other people with CF, it helps to know I am not the only one with it, and they can help me cope with my struggles because they have them too. I can't explain it right, but you just feel a connection that you don't find in people without CF. Instead of their sympathy, you get their help. You can say how you feel just like you would for everyone else, but they understand what you are really saying and can't properly put into words, because they've felt like that too. So what you're saying in your message is, if your girlfriend came to you with these complaints, you'd tell her that she can't talk about CF when it gets hard, and that she is wrong about being in pain and is actually feeling fine? Yeah, I'm sure that'd go over well. Everyone has bad days. About this message...it was mean. Sorry.
 
A

amazinGracie

New member
Okay, morty220...that was really rude! Well I think so. You can't say someone is wrong when they feel pain, pain is pain, they know it and you don't. Yes, you might watch your girlfriend everyday, and do things for her, and love her, and not see her as different, but you don't fully understand unless you are living with it. You told us that we "don't know how hard it is for a person in love with a CFer." Much like you don't know what it is like to be the CFer. We have a general idea, like you do about CF, but we don't go through it, and therefore don't fully understand. And when people say they understand, like a mom, well...they don't, and the only reason I hate that is because it is frustrating when you want them to, and they try, but just don't. When I talk to other people with CF, it helps to know I am not the only one with it, and they can help me cope with my struggles because they have them too. I can't explain it right, but you just feel a connection that you don't find in people without CF. Instead of their sympathy, you get their help. You can say how you feel just like you would for everyone else, but they understand what you are really saying and can't properly put into words, because they've felt like that too. So what you're saying in your message is, if your girlfriend came to you with these complaints, you'd tell her that she can't talk about CF when it gets hard, and that she is wrong about being in pain and is actually feeling fine? Yeah, I'm sure that'd go over well. Everyone has bad days. About this message...it was mean. Sorry.
 
A

amazinGracie

New member
Okay, morty220...that was really rude! Well I think so. You can't say someone is wrong when they feel pain, pain is pain, they know it and you don't. Yes, you might watch your girlfriend everyday, and do things for her, and love her, and not see her as different, but you don't fully understand unless you are living with it. You told us that we "don't know how hard it is for a person in love with a CFer." Much like you don't know what it is like to be the CFer. We have a general idea, like you do about CF, but we don't go through it, and therefore don't fully understand. And when people say they understand, like a mom, well...they don't, and the only reason I hate that is because it is frustrating when you want them to, and they try, but just don't. When I talk to other people with CF, it helps to know I am not the only one with it, and they can help me cope with my struggles because they have them too. I can't explain it right, but you just feel a connection that you don't find in people without CF. Instead of their sympathy, you get their help. You can say how you feel just like you would for everyone else, but they understand what you are really saying and can't properly put into words, because they've felt like that too. So what you're saying in your message is, if your girlfriend came to you with these complaints, you'd tell her that she can't talk about CF when it gets hard, and that she is wrong about being in pain and is actually feeling fine? Yeah, I'm sure that'd go over well. Everyone has bad days. About this message...it was mean. Sorry.
 
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