Your clinic

L

ladybug

New member
thanks, Seven...

yeah, i've actually talked with the NP on the CF floor last time I was inpatient and SHE even said mentally and physically the hospital may not be the right place for me when i'm sick. AND, another doc that visited me there (not a CF doc) also said that many people who are very active at their homes and aren't sick enough to be "tied" to a bed do much much worse in the hospital. so, why can't my doc understand this? and he keeps citing that literature says that CFers do sooo much better inpatient and on continuous IVs, but everyone i've met/talked to usually does them at home and does much better.

i'm wondering at this point if i should just wait to see the Vegas clinic (gulp) on the 12th of March (they won't see me sooner even though i'm actively sick) cause i know they will allow home health. do you think its worth the month wait? or, should i just argue with the slc clinic and try to get my way this time?

urgh..... i never thought i'd have to struggle to do home health. at this point it would be better if my insurance DIDN'T cover an unecessary hospital stay... i have private insurance and it will run out when I'm about 35 (my 1 million cap) so i also don't want to use it up on excessive hospital stays that aren't completely necessary so its there for things that ARE necessary. ya know? urgh...... <img src="i/expressions/face-icon-small-confused.gif" border="0">
 
L

ladybug

New member
thanks, Seven...

yeah, i've actually talked with the NP on the CF floor last time I was inpatient and SHE even said mentally and physically the hospital may not be the right place for me when i'm sick. AND, another doc that visited me there (not a CF doc) also said that many people who are very active at their homes and aren't sick enough to be "tied" to a bed do much much worse in the hospital. so, why can't my doc understand this? and he keeps citing that literature says that CFers do sooo much better inpatient and on continuous IVs, but everyone i've met/talked to usually does them at home and does much better.

i'm wondering at this point if i should just wait to see the Vegas clinic (gulp) on the 12th of March (they won't see me sooner even though i'm actively sick) cause i know they will allow home health. do you think its worth the month wait? or, should i just argue with the slc clinic and try to get my way this time?

urgh..... i never thought i'd have to struggle to do home health. at this point it would be better if my insurance DIDN'T cover an unecessary hospital stay... i have private insurance and it will run out when I'm about 35 (my 1 million cap) so i also don't want to use it up on excessive hospital stays that aren't completely necessary so its there for things that ARE necessary. ya know? urgh...... <img src="i/expressions/face-icon-small-confused.gif" border="0">
 
L

ladybug

New member
thanks, Seven...

yeah, i've actually talked with the NP on the CF floor last time I was inpatient and SHE even said mentally and physically the hospital may not be the right place for me when i'm sick. AND, another doc that visited me there (not a CF doc) also said that many people who are very active at their homes and aren't sick enough to be "tied" to a bed do much much worse in the hospital. so, why can't my doc understand this? and he keeps citing that literature says that CFers do sooo much better inpatient and on continuous IVs, but everyone i've met/talked to usually does them at home and does much better.

i'm wondering at this point if i should just wait to see the Vegas clinic (gulp) on the 12th of March (they won't see me sooner even though i'm actively sick) cause i know they will allow home health. do you think its worth the month wait? or, should i just argue with the slc clinic and try to get my way this time?

urgh..... i never thought i'd have to struggle to do home health. at this point it would be better if my insurance DIDN'T cover an unecessary hospital stay... i have private insurance and it will run out when I'm about 35 (my 1 million cap) so i also don't want to use it up on excessive hospital stays that aren't completely necessary so its there for things that ARE necessary. ya know? urgh...... <img src="i/expressions/face-icon-small-confused.gif" border="0">
 
L

ladybug

New member
thanks, Seven...

yeah, i've actually talked with the NP on the CF floor last time I was inpatient and SHE even said mentally and physically the hospital may not be the right place for me when i'm sick. AND, another doc that visited me there (not a CF doc) also said that many people who are very active at their homes and aren't sick enough to be "tied" to a bed do much much worse in the hospital. so, why can't my doc understand this? and he keeps citing that literature says that CFers do sooo much better inpatient and on continuous IVs, but everyone i've met/talked to usually does them at home and does much better.

i'm wondering at this point if i should just wait to see the Vegas clinic (gulp) on the 12th of March (they won't see me sooner even though i'm actively sick) cause i know they will allow home health. do you think its worth the month wait? or, should i just argue with the slc clinic and try to get my way this time?

urgh..... i never thought i'd have to struggle to do home health. at this point it would be better if my insurance DIDN'T cover an unecessary hospital stay... i have private insurance and it will run out when I'm about 35 (my 1 million cap) so i also don't want to use it up on excessive hospital stays that aren't completely necessary so its there for things that ARE necessary. ya know? urgh...... <img src="i/expressions/face-icon-small-confused.gif" border="0">
 
L

ladybug

New member
thanks, Seven...

yeah, i've actually talked with the NP on the CF floor last time I was inpatient and SHE even said mentally and physically the hospital may not be the right place for me when i'm sick. AND, another doc that visited me there (not a CF doc) also said that many people who are very active at their homes and aren't sick enough to be "tied" to a bed do much much worse in the hospital. so, why can't my doc understand this? and he keeps citing that literature says that CFers do sooo much better inpatient and on continuous IVs, but everyone i've met/talked to usually does them at home and does much better.

i'm wondering at this point if i should just wait to see the Vegas clinic (gulp) on the 12th of March (they won't see me sooner even though i'm actively sick) cause i know they will allow home health. do you think its worth the month wait? or, should i just argue with the slc clinic and try to get my way this time?

urgh..... i never thought i'd have to struggle to do home health. at this point it would be better if my insurance DIDN'T cover an unecessary hospital stay... i have private insurance and it will run out when I'm about 35 (my 1 million cap) so i also don't want to use it up on excessive hospital stays that aren't completely necessary so its there for things that ARE necessary. ya know? urgh...... <img src="i/expressions/face-icon-small-confused.gif" border="0">
 
A

Aspiemom

Guest
May I ask who you talked to about getting into the clinic for the appt? If I just talk to the scheduler, I will get the "next date open" which would be long away. But when I talk to the CF nurse and tell her the problems I'm having she get's me in right away.

I was just wondering if the CF nurse is aware of how sick you are. I can't imagine them not working you in. Mine has even had me come in on a nonclinic day in order to get me in!

As far as where to get treatment: Johns Hopkins had me an inpatient but said it was up to the patient and their insurance. It wasn't "their policy." Down here, Vanderbilt wants their patients at home (for all of the reasons you mentioned) unless they are extremely critical.
 
A

Aspiemom

Guest
May I ask who you talked to about getting into the clinic for the appt? If I just talk to the scheduler, I will get the "next date open" which would be long away. But when I talk to the CF nurse and tell her the problems I'm having she get's me in right away.

I was just wondering if the CF nurse is aware of how sick you are. I can't imagine them not working you in. Mine has even had me come in on a nonclinic day in order to get me in!

As far as where to get treatment: Johns Hopkins had me an inpatient but said it was up to the patient and their insurance. It wasn't "their policy." Down here, Vanderbilt wants their patients at home (for all of the reasons you mentioned) unless they are extremely critical.
 
A

Aspiemom

Guest
May I ask who you talked to about getting into the clinic for the appt? If I just talk to the scheduler, I will get the "next date open" which would be long away. But when I talk to the CF nurse and tell her the problems I'm having she get's me in right away.

I was just wondering if the CF nurse is aware of how sick you are. I can't imagine them not working you in. Mine has even had me come in on a nonclinic day in order to get me in!

As far as where to get treatment: Johns Hopkins had me an inpatient but said it was up to the patient and their insurance. It wasn't "their policy." Down here, Vanderbilt wants their patients at home (for all of the reasons you mentioned) unless they are extremely critical.
 
A

Aspiemom

Guest
May I ask who you talked to about getting into the clinic for the appt? If I just talk to the scheduler, I will get the "next date open" which would be long away. But when I talk to the CF nurse and tell her the problems I'm having she get's me in right away.

I was just wondering if the CF nurse is aware of how sick you are. I can't imagine them not working you in. Mine has even had me come in on a nonclinic day in order to get me in!

As far as where to get treatment: Johns Hopkins had me an inpatient but said it was up to the patient and their insurance. It wasn't "their policy." Down here, Vanderbilt wants their patients at home (for all of the reasons you mentioned) unless they are extremely critical.
 
A

Aspiemom

Guest
May I ask who you talked to about getting into the clinic for the appt? If I just talk to the scheduler, I will get the "next date open" which would be long away. But when I talk to the CF nurse and tell her the problems I'm having she get's me in right away.

I was just wondering if the CF nurse is aware of how sick you are. I can't imagine them not working you in. Mine has even had me come in on a nonclinic day in order to get me in!

As far as where to get treatment: Johns Hopkins had me an inpatient but said it was up to the patient and their insurance. It wasn't "their policy." Down here, Vanderbilt wants their patients at home (for all of the reasons you mentioned) unless they are extremely critical.
 
S

Solo

New member
The times I'm in the hospital the doctors always seem to push for my staying in the full course of antibiotics. I mean, they do let me choose, but usually they discontinue the antibiotics anyway after 10 days or so, because I'm totally better after a few days on them. Last time they told me they don't like to keep "normal" people in the hospital. I did feel kinda bad last time, I mean I was out walking around floors and everything, and these other patients looked like something out of Mel Gibson's Deliverance- they clearly needed help.
 
S

Solo

New member
The times I'm in the hospital the doctors always seem to push for my staying in the full course of antibiotics. I mean, they do let me choose, but usually they discontinue the antibiotics anyway after 10 days or so, because I'm totally better after a few days on them. Last time they told me they don't like to keep "normal" people in the hospital. I did feel kinda bad last time, I mean I was out walking around floors and everything, and these other patients looked like something out of Mel Gibson's Deliverance- they clearly needed help.
 
S

Solo

New member
The times I'm in the hospital the doctors always seem to push for my staying in the full course of antibiotics. I mean, they do let me choose, but usually they discontinue the antibiotics anyway after 10 days or so, because I'm totally better after a few days on them. Last time they told me they don't like to keep "normal" people in the hospital. I did feel kinda bad last time, I mean I was out walking around floors and everything, and these other patients looked like something out of Mel Gibson's Deliverance- they clearly needed help.
 
S

Solo

New member
The times I'm in the hospital the doctors always seem to push for my staying in the full course of antibiotics. I mean, they do let me choose, but usually they discontinue the antibiotics anyway after 10 days or so, because I'm totally better after a few days on them. Last time they told me they don't like to keep "normal" people in the hospital. I did feel kinda bad last time, I mean I was out walking around floors and everything, and these other patients looked like something out of Mel Gibson's Deliverance- they clearly needed help.
 
S

Solo

New member
The times I'm in the hospital the doctors always seem to push for my staying in the full course of antibiotics. I mean, they do let me choose, but usually they discontinue the antibiotics anyway after 10 days or so, because I'm totally better after a few days on them. Last time they told me they don't like to keep "normal" people in the hospital. I did feel kinda bad last time, I mean I was out walking around floors and everything, and these other patients looked like something out of Mel Gibson's Deliverance- they clearly needed help.
 
L

leothelioness26

New member
Where I go it depends on how sick you are on whether or not they allow home IVs. Alot of centers like to do them inpatient because of the risks of the antibiotics. It is also considered a controlled enviornment at the hospital. I used to do home IVs every chance they would let me because I hate going in the hospital. After I had kidney failure from Vanco. I have to go in the hospital. The number one thing about seeing the doctors is communication. You need to listen to their reasons of why they don't want to do home IVs. Be sure to tell them how you feel and your reasons behind wanting to be outpatient. If you listen to them and they listen to you things will go a lot smoother. The number one thing is that you get better. You have to remember that sometimes going in is better. It may not be what you want to do but you can't chage doctors everytime they don't want to do home IVs. I'm not trying to be mean or tell you what to do, but you have to realize that they probably have you best interest. You need to be open and LISTEN to their reasons also. Sorry about sounding so demanding it's I've been in you position before. Not exactly but similar. Hope you get better. Keep your head up!
 
L

leothelioness26

New member
Where I go it depends on how sick you are on whether or not they allow home IVs. Alot of centers like to do them inpatient because of the risks of the antibiotics. It is also considered a controlled enviornment at the hospital. I used to do home IVs every chance they would let me because I hate going in the hospital. After I had kidney failure from Vanco. I have to go in the hospital. The number one thing about seeing the doctors is communication. You need to listen to their reasons of why they don't want to do home IVs. Be sure to tell them how you feel and your reasons behind wanting to be outpatient. If you listen to them and they listen to you things will go a lot smoother. The number one thing is that you get better. You have to remember that sometimes going in is better. It may not be what you want to do but you can't chage doctors everytime they don't want to do home IVs. I'm not trying to be mean or tell you what to do, but you have to realize that they probably have you best interest. You need to be open and LISTEN to their reasons also. Sorry about sounding so demanding it's I've been in you position before. Not exactly but similar. Hope you get better. Keep your head up!
 
L

leothelioness26

New member
Where I go it depends on how sick you are on whether or not they allow home IVs. Alot of centers like to do them inpatient because of the risks of the antibiotics. It is also considered a controlled enviornment at the hospital. I used to do home IVs every chance they would let me because I hate going in the hospital. After I had kidney failure from Vanco. I have to go in the hospital. The number one thing about seeing the doctors is communication. You need to listen to their reasons of why they don't want to do home IVs. Be sure to tell them how you feel and your reasons behind wanting to be outpatient. If you listen to them and they listen to you things will go a lot smoother. The number one thing is that you get better. You have to remember that sometimes going in is better. It may not be what you want to do but you can't chage doctors everytime they don't want to do home IVs. I'm not trying to be mean or tell you what to do, but you have to realize that they probably have you best interest. You need to be open and LISTEN to their reasons also. Sorry about sounding so demanding it's I've been in you position before. Not exactly but similar. Hope you get better. Keep your head up!
 
L

leothelioness26

New member
Where I go it depends on how sick you are on whether or not they allow home IVs. Alot of centers like to do them inpatient because of the risks of the antibiotics. It is also considered a controlled enviornment at the hospital. I used to do home IVs every chance they would let me because I hate going in the hospital. After I had kidney failure from Vanco. I have to go in the hospital. The number one thing about seeing the doctors is communication. You need to listen to their reasons of why they don't want to do home IVs. Be sure to tell them how you feel and your reasons behind wanting to be outpatient. If you listen to them and they listen to you things will go a lot smoother. The number one thing is that you get better. You have to remember that sometimes going in is better. It may not be what you want to do but you can't chage doctors everytime they don't want to do home IVs. I'm not trying to be mean or tell you what to do, but you have to realize that they probably have you best interest. You need to be open and LISTEN to their reasons also. Sorry about sounding so demanding it's I've been in you position before. Not exactly but similar. Hope you get better. Keep your head up!
 
L

leothelioness26

New member
Where I go it depends on how sick you are on whether or not they allow home IVs. Alot of centers like to do them inpatient because of the risks of the antibiotics. It is also considered a controlled enviornment at the hospital. I used to do home IVs every chance they would let me because I hate going in the hospital. After I had kidney failure from Vanco. I have to go in the hospital. The number one thing about seeing the doctors is communication. You need to listen to their reasons of why they don't want to do home IVs. Be sure to tell them how you feel and your reasons behind wanting to be outpatient. If you listen to them and they listen to you things will go a lot smoother. The number one thing is that you get better. You have to remember that sometimes going in is better. It may not be what you want to do but you can't chage doctors everytime they don't want to do home IVs. I'm not trying to be mean or tell you what to do, but you have to realize that they probably have you best interest. You need to be open and LISTEN to their reasons also. Sorry about sounding so demanding it's I've been in you position before. Not exactly but similar. Hope you get better. Keep your head up!
 
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