Your clinic

[leothelioness26]

At the hospital that I go to they have a treadmill for the CFers to use while being in the hospital. That's so there can be some kind of excerise. It's in a room on the floor and they have oxygen hook ups and a sat machine to monitor you sat and pulse while you walk. We chart our own progress and can go walk anytime we want. They keep santization wipes to wipe done the treadmill before it's used. All we have to do is get permission from the nurse and make sure no one else is using the treadmill. So we don't have to be bed bound. Good luck!

 

[leothelioness26]

At the hospital that I go to they have a treadmill for the CFers to use while being in the hospital. That's so there can be some kind of excerise. It's in a room on the floor and they have oxygen hook ups and a sat machine to monitor you sat and pulse while you walk. We chart our own progress and can go walk anytime we want. They keep santization wipes to wipe done the treadmill before it's used. All we have to do is get permission from the nurse and make sure no one else is using the treadmill. So we don't have to be bed bound. Good luck!

 

[leothelioness26]

At the hospital that I go to they have a treadmill for the CFers to use while being in the hospital. That's so there can be some kind of excerise. It's in a room on the floor and they have oxygen hook ups and a sat machine to monitor you sat and pulse while you walk. We chart our own progress and can go walk anytime we want. They keep santization wipes to wipe done the treadmill before it's used. All we have to do is get permission from the nurse and make sure no one else is using the treadmill. So we don't have to be bed bound. Good luck!

 

[leothelioness26]

At the hospital that I go to they have a treadmill for the CFers to use while being in the hospital. That's so there can be some kind of excerise. It's in a room on the floor and they have oxygen hook ups and a sat machine to monitor you sat and pulse while you walk. We chart our own progress and can go walk anytime we want. They keep santization wipes to wipe done the treadmill before it's used. All we have to do is get permission from the nurse and make sure no one else is using the treadmill. So we don't have to be bed bound. Good luck!

 

[leothelioness26]

At the hospital that I go to they have a treadmill for the CFers to use while being in the hospital. That's so there can be some kind of excerise. It's in a room on the floor and they have oxygen hook ups and a sat machine to monitor you sat and pulse while you walk. We chart our own progress and can go walk anytime we want. They keep santization wipes to wipe done the treadmill before it's used. All we have to do is get permission from the nurse and make sure no one else is using the treadmill. So we don't have to be bed bound. Good luck!

 

[ladybug]

Thanks, everyone for the great responses.

I did actually tell the receptionist that I'm sick and think I need IVs and she said, "if you're really sick, you should go to the ER or quickcare." Are you kidding me??? Cause they have CF docs there? WTF! What would they do besides refer me to a CF doc, which is YOU. duh. So, even though I told her I was sick enough for IVs, I have to wait 4 weeks to be seen.

As far as my inpatient hospitalizations, I also have rehab for 30 minutes every weekday which is mandatory. However, the thing is I already do that at home the way it is, and in addition I am cooking, cleaning, running errands, and staying ACTIVE at home with very little laying on the couch or bed all day.... This is different in the hospital. Even though I could walk the halls and stairs (which are also germ-ridden in the hospital) that is the maximum amount of activity I could get, ya know? Not really good for someone who usually plays with their dogs, shops, cooks, cleans, walks around, etc.... ya know?

Plus, with my last results of hospitalizations NOT being very productive and the times before that being at home, there obviously is something that is more beneficial for me going home. If I were sick and couldn't cook, clean, do my own treatmnets, etc. I would agree the hospital is the place to be. However, I loose weight cause I don't eat at the hospital, loose sleep cause I don't sleep in the hospital, get anxious in the hospital and just lay in bed. Not a very good way to get well.

 

[ladybug]

Thanks, everyone for the great responses.

I did actually tell the receptionist that I'm sick and think I need IVs and she said, "if you're really sick, you should go to the ER or quickcare." Are you kidding me??? Cause they have CF docs there? WTF! What would they do besides refer me to a CF doc, which is YOU. duh. So, even though I told her I was sick enough for IVs, I have to wait 4 weeks to be seen.

As far as my inpatient hospitalizations, I also have rehab for 30 minutes every weekday which is mandatory. However, the thing is I already do that at home the way it is, and in addition I am cooking, cleaning, running errands, and staying ACTIVE at home with very little laying on the couch or bed all day.... This is different in the hospital. Even though I could walk the halls and stairs (which are also germ-ridden in the hospital) that is the maximum amount of activity I could get, ya know? Not really good for someone who usually plays with their dogs, shops, cooks, cleans, walks around, etc.... ya know?

Plus, with my last results of hospitalizations NOT being very productive and the times before that being at home, there obviously is something that is more beneficial for me going home. If I were sick and couldn't cook, clean, do my own treatmnets, etc. I would agree the hospital is the place to be. However, I loose weight cause I don't eat at the hospital, loose sleep cause I don't sleep in the hospital, get anxious in the hospital and just lay in bed. Not a very good way to get well.

 

[ladybug]

Thanks, everyone for the great responses.

I did actually tell the receptionist that I'm sick and think I need IVs and she said, "if you're really sick, you should go to the ER or quickcare." Are you kidding me??? Cause they have CF docs there? WTF! What would they do besides refer me to a CF doc, which is YOU. duh. So, even though I told her I was sick enough for IVs, I have to wait 4 weeks to be seen.

As far as my inpatient hospitalizations, I also have rehab for 30 minutes every weekday which is mandatory. However, the thing is I already do that at home the way it is, and in addition I am cooking, cleaning, running errands, and staying ACTIVE at home with very little laying on the couch or bed all day.... This is different in the hospital. Even though I could walk the halls and stairs (which are also germ-ridden in the hospital) that is the maximum amount of activity I could get, ya know? Not really good for someone who usually plays with their dogs, shops, cooks, cleans, walks around, etc.... ya know?

Plus, with my last results of hospitalizations NOT being very productive and the times before that being at home, there obviously is something that is more beneficial for me going home. If I were sick and couldn't cook, clean, do my own treatmnets, etc. I would agree the hospital is the place to be. However, I loose weight cause I don't eat at the hospital, loose sleep cause I don't sleep in the hospital, get anxious in the hospital and just lay in bed. Not a very good way to get well.

 

[ladybug]

Thanks, everyone for the great responses.

I did actually tell the receptionist that I'm sick and think I need IVs and she said, "if you're really sick, you should go to the ER or quickcare." Are you kidding me??? Cause they have CF docs there? WTF! What would they do besides refer me to a CF doc, which is YOU. duh. So, even though I told her I was sick enough for IVs, I have to wait 4 weeks to be seen.

As far as my inpatient hospitalizations, I also have rehab for 30 minutes every weekday which is mandatory. However, the thing is I already do that at home the way it is, and in addition I am cooking, cleaning, running errands, and staying ACTIVE at home with very little laying on the couch or bed all day.... This is different in the hospital. Even though I could walk the halls and stairs (which are also germ-ridden in the hospital) that is the maximum amount of activity I could get, ya know? Not really good for someone who usually plays with their dogs, shops, cooks, cleans, walks around, etc.... ya know?

Plus, with my last results of hospitalizations NOT being very productive and the times before that being at home, there obviously is something that is more beneficial for me going home. If I were sick and couldn't cook, clean, do my own treatmnets, etc. I would agree the hospital is the place to be. However, I loose weight cause I don't eat at the hospital, loose sleep cause I don't sleep in the hospital, get anxious in the hospital and just lay in bed. Not a very good way to get well.

 

[ladybug]

Thanks, everyone for the great responses.

I did actually tell the receptionist that I'm sick and think I need IVs and she said, "if you're really sick, you should go to the ER or quickcare." Are you kidding me??? Cause they have CF docs there? WTF! What would they do besides refer me to a CF doc, which is YOU. duh. So, even though I told her I was sick enough for IVs, I have to wait 4 weeks to be seen.

As far as my inpatient hospitalizations, I also have rehab for 30 minutes every weekday which is mandatory. However, the thing is I already do that at home the way it is, and in addition I am cooking, cleaning, running errands, and staying ACTIVE at home with very little laying on the couch or bed all day.... This is different in the hospital. Even though I could walk the halls and stairs (which are also germ-ridden in the hospital) that is the maximum amount of activity I could get, ya know? Not really good for someone who usually plays with their dogs, shops, cooks, cleans, walks around, etc.... ya know?

Plus, with my last results of hospitalizations NOT being very productive and the times before that being at home, there obviously is something that is more beneficial for me going home. If I were sick and couldn't cook, clean, do my own treatmnets, etc. I would agree the hospital is the place to be. However, I loose weight cause I don't eat at the hospital, loose sleep cause I don't sleep in the hospital, get anxious in the hospital and just lay in bed. Not a very good way to get well.

 

[thefrogprincess]

Uuuuh, WHAT?! They don't understand that you are exposed to all kinds of contagiouns while in the hospital? This is definately backwards and from what I understand NOT the norm. If anything you'd think that your insurance would push for home IVs since its so much cheaper than inpatient. My entire 2 weeks of IVs at home cost what 2 days of inpatient care would. I don't have any advice for you, but I wish you the best of luck.

Oh, one more thing. Does this clinic have a nurse you can talk to? My clinic has 2 nurses that oversee the whole operation there. Any time I need anything I call one of them. The receptionist probably knows little to nothing about CF which is why you are getting the run around about getting in sooner. Talk to the nurse! I only talk to a receptionist to schedule my REGULAR appointment, nothing else. When I needed IVs I called the nurse and had my PICC placed 2 days later.

 

[thefrogprincess]

Uuuuh, WHAT?! They don't understand that you are exposed to all kinds of contagiouns while in the hospital? This is definately backwards and from what I understand NOT the norm. If anything you'd think that your insurance would push for home IVs since its so much cheaper than inpatient. My entire 2 weeks of IVs at home cost what 2 days of inpatient care would. I don't have any advice for you, but I wish you the best of luck.

Oh, one more thing. Does this clinic have a nurse you can talk to? My clinic has 2 nurses that oversee the whole operation there. Any time I need anything I call one of them. The receptionist probably knows little to nothing about CF which is why you are getting the run around about getting in sooner. Talk to the nurse! I only talk to a receptionist to schedule my REGULAR appointment, nothing else. When I needed IVs I called the nurse and had my PICC placed 2 days later.

 

[thefrogprincess]

Uuuuh, WHAT?! They don't understand that you are exposed to all kinds of contagiouns while in the hospital? This is definately backwards and from what I understand NOT the norm. If anything you'd think that your insurance would push for home IVs since its so much cheaper than inpatient. My entire 2 weeks of IVs at home cost what 2 days of inpatient care would. I don't have any advice for you, but I wish you the best of luck.

Oh, one more thing. Does this clinic have a nurse you can talk to? My clinic has 2 nurses that oversee the whole operation there. Any time I need anything I call one of them. The receptionist probably knows little to nothing about CF which is why you are getting the run around about getting in sooner. Talk to the nurse! I only talk to a receptionist to schedule my REGULAR appointment, nothing else. When I needed IVs I called the nurse and had my PICC placed 2 days later.

 

[thefrogprincess]

Uuuuh, WHAT?! They don't understand that you are exposed to all kinds of contagiouns while in the hospital? This is definately backwards and from what I understand NOT the norm. If anything you'd think that your insurance would push for home IVs since its so much cheaper than inpatient. My entire 2 weeks of IVs at home cost what 2 days of inpatient care would. I don't have any advice for you, but I wish you the best of luck.

Oh, one more thing. Does this clinic have a nurse you can talk to? My clinic has 2 nurses that oversee the whole operation there. Any time I need anything I call one of them. The receptionist probably knows little to nothing about CF which is why you are getting the run around about getting in sooner. Talk to the nurse! I only talk to a receptionist to schedule my REGULAR appointment, nothing else. When I needed IVs I called the nurse and had my PICC placed 2 days later.

 

[thefrogprincess]

Uuuuh, WHAT?! They don't understand that you are exposed to all kinds of contagiouns while in the hospital? This is definately backwards and from what I understand NOT the norm. If anything you'd think that your insurance would push for home IVs since its so much cheaper than inpatient. My entire 2 weeks of IVs at home cost what 2 days of inpatient care would. I don't have any advice for you, but I wish you the best of luck.

Oh, one more thing. Does this clinic have a nurse you can talk to? My clinic has 2 nurses that oversee the whole operation there. Any time I need anything I call one of them. The receptionist probably knows little to nothing about CF which is why you are getting the run around about getting in sooner. Talk to the nurse! I only talk to a receptionist to schedule my REGULAR appointment, nothing else. When I needed IVs I called the nurse and had my PICC placed 2 days later.

 

[Diane]

I always do my iv's at home unless there are other problems like hemoptysis that may require attention. Needless to say at home i will be more active, which will help to get my lung function back up or prevent it from going down. I also eat more at home, hospital food isnt appetizing. I am mentally better off at home, being in the hospital makes me so depressed which in turn will not do me any good. I rest better at home, and dont have to fear every germ on the planet like i would in the hospital. My Dr. never gives me an argument on doing i'v at home. She orders up the prescriptions over the phone, faxes them in to the home infusion service, and they come out that night deliver the meds and supplies and insert the iv and i'm good to go. It's a win win solution for everyone.
<b>- I get to be more comfy at home and avoid germs and other ilness's
- the insurance co. is happy because it costs way less to do this at home
- i keep in contact with my nurse and give them updates on me and so does my home nurse
- i stay active and happy which helps me all around
- it saves a bed in the hospital for someone who may really need it.</b>

 

[Diane]

I always do my iv's at home unless there are other problems like hemoptysis that may require attention. Needless to say at home i will be more active, which will help to get my lung function back up or prevent it from going down. I also eat more at home, hospital food isnt appetizing. I am mentally better off at home, being in the hospital makes me so depressed which in turn will not do me any good. I rest better at home, and dont have to fear every germ on the planet like i would in the hospital. My Dr. never gives me an argument on doing i'v at home. She orders up the prescriptions over the phone, faxes them in to the home infusion service, and they come out that night deliver the meds and supplies and insert the iv and i'm good to go. It's a win win solution for everyone.
<b>- I get to be more comfy at home and avoid germs and other ilness's
- the insurance co. is happy because it costs way less to do this at home
- i keep in contact with my nurse and give them updates on me and so does my home nurse
- i stay active and happy which helps me all around
- it saves a bed in the hospital for someone who may really need it.</b>

 

[Diane]

I always do my iv's at home unless there are other problems like hemoptysis that may require attention. Needless to say at home i will be more active, which will help to get my lung function back up or prevent it from going down. I also eat more at home, hospital food isnt appetizing. I am mentally better off at home, being in the hospital makes me so depressed which in turn will not do me any good. I rest better at home, and dont have to fear every germ on the planet like i would in the hospital. My Dr. never gives me an argument on doing i'v at home. She orders up the prescriptions over the phone, faxes them in to the home infusion service, and they come out that night deliver the meds and supplies and insert the iv and i'm good to go. It's a win win solution for everyone.
<b>- I get to be more comfy at home and avoid germs and other ilness's
- the insurance co. is happy because it costs way less to do this at home
- i keep in contact with my nurse and give them updates on me and so does my home nurse
- i stay active and happy which helps me all around
- it saves a bed in the hospital for someone who may really need it.</b>

 

[Diane]

I always do my iv's at home unless there are other problems like hemoptysis that may require attention. Needless to say at home i will be more active, which will help to get my lung function back up or prevent it from going down. I also eat more at home, hospital food isnt appetizing. I am mentally better off at home, being in the hospital makes me so depressed which in turn will not do me any good. I rest better at home, and dont have to fear every germ on the planet like i would in the hospital. My Dr. never gives me an argument on doing i'v at home. She orders up the prescriptions over the phone, faxes them in to the home infusion service, and they come out that night deliver the meds and supplies and insert the iv and i'm good to go. It's a win win solution for everyone.
<b>- I get to be more comfy at home and avoid germs and other ilness's
- the insurance co. is happy because it costs way less to do this at home
- i keep in contact with my nurse and give them updates on me and so does my home nurse
- i stay active and happy which helps me all around
- it saves a bed in the hospital for someone who may really need it.</b>

 

[Diane]

I always do my iv's at home unless there are other problems like hemoptysis that may require attention. Needless to say at home i will be more active, which will help to get my lung function back up or prevent it from going down. I also eat more at home, hospital food isnt appetizing. I am mentally better off at home, being in the hospital makes me so depressed which in turn will not do me any good. I rest better at home, and dont have to fear every germ on the planet like i would in the hospital. My Dr. never gives me an argument on doing i'v at home. She orders up the prescriptions over the phone, faxes them in to the home infusion service, and they come out that night deliver the meds and supplies and insert the iv and i'm good to go. It's a win win solution for everyone.
<b>- I get to be more comfy at home and avoid germs and other ilness's
- the insurance co. is happy because it costs way less to do this at home
- i keep in contact with my nurse and give them updates on me and so does my home nurse
- i stay active and happy which helps me all around
- it saves a bed in the hospital for someone who may really need it.</b>