bittyhorse23
New member
I haven't read all the responses - lunch is almost over haha!!
I don't usually get to chose with my clinic. They like you to go in for at least 5 days to get your PICC and be monitored. I am usually in 8-10 days before they will release me. My nurse told me they do this because when someone is really sick and in need of resting, when they are home they won't do it. They will do the dishes and laundry and clean and cook when they whould be resting to gain their strength back. Works for, less I have to do at home haha! But it does suck when you feel great and are chained to a room that is 10x10!!!
Oh and I WOULD NOT WAIT until the 12th to go to Vegas! If you need IVs now waiting a whole month will make you so much worse! Call your clinic and speak to the CF nurse and tell her you are sick and need to be seen. If they make you go to the ER that is ridiculous. Or talk to the nurse at the clinic in Vegas and see if she can get you in sooner too. The receptonists won't always pull for you. Especially if they see more than just CFers. The receptionists know me at my clinic now and if I call and ask for an appt sooner than the one I am scheduled for the will finigle things to get me in that day or the following week (clinic is once a week).
I don't usually get to chose with my clinic. They like you to go in for at least 5 days to get your PICC and be monitored. I am usually in 8-10 days before they will release me. My nurse told me they do this because when someone is really sick and in need of resting, when they are home they won't do it. They will do the dishes and laundry and clean and cook when they whould be resting to gain their strength back. Works for, less I have to do at home haha! But it does suck when you feel great and are chained to a room that is 10x10!!!
Oh and I WOULD NOT WAIT until the 12th to go to Vegas! If you need IVs now waiting a whole month will make you so much worse! Call your clinic and speak to the CF nurse and tell her you are sick and need to be seen. If they make you go to the ER that is ridiculous. Or talk to the nurse at the clinic in Vegas and see if she can get you in sooner too. The receptonists won't always pull for you. Especially if they see more than just CFers. The receptionists know me at my clinic now and if I call and ask for an appt sooner than the one I am scheduled for the will finigle things to get me in that day or the following week (clinic is once a week).