Search results

  1. H

    Mutation Database

    Which mutations does she have? I know my daughter has 2 less common ones for here in the US. She has M1101k and 2184delA
  2. H

    enterovirus 68 Virus 1000 cases in Colorado

    I have not posted on here in forever but read daily. We are in CO where there have been over 1000 cases. I called the CF team and they said the same as above. Hygiene, hygiene, hygiene. Wash your hands, use sanitizer, and don't hang out with anyone that is sick. We have also been extra careful...
  3. H

    PFT's, O2 Sats and Finger Clubbing - Survey

    I don't know the number of Hailey's lung function but they are decent O2-93-95% No clubbing as of yet.
  4. H

    PFT's, O2 Sats and Finger Clubbing - Survey

    I don't know the number of Hailey's lung function but they are decent O2-93-95% No clubbing as of yet.
  5. H

    PFT's, O2 Sats and Finger Clubbing - Survey

    I don't know the number of Hailey's lung function but they are decent O2-93-95% No clubbing as of yet.
  6. H

    CF Conference in Denver

    Ours went. But then or team is in Denver<img src="i/expressions/face-icon-small-happy.gif" border="0">
  7. H

    CF Conference in Denver

    Ours went. But then or team is in Denver<img src="i/expressions/face-icon-small-happy.gif" border="0">
  8. H

    CF Conference in Denver

    Ours went. But then or team is in Denver<img src="i/expressions/face-icon-small-happy.gif" border="0">
  9. H

    Tristan, Cassandra and Ryland are home

    That is wonderful. I thought I had plenty of time to send that package that I have had forever for you. I will make myself send it this weekend. I am so glad that the babies are doing well. I will keep your grandmother in my prayers
  10. H

    Tristan, Cassandra and Ryland are home

    That is wonderful. I thought I had plenty of time to send that package that I have had forever for you. I will make myself send it this weekend. I am so glad that the babies are doing well. I will keep your grandmother in my prayers
  11. H

    Tristan, Cassandra and Ryland are home

    That is wonderful. I thought I had plenty of time to send that package that I have had forever for you. I will make myself send it this weekend. I am so glad that the babies are doing well. I will keep your grandmother in my prayers
  12. H

    HELLO MY NAME IS:

    Haileysmommy=Leeann I am 25 H ave been married for 6 yrs. We have 3 girls. Brooke-almost 8 just a carrier, Aaliyah-4 not no CF(unsure if carrier), Hailey-20 months with CF We also have 2 dogs a snake and a frog We live in Colorado
  13. H

    HELLO MY NAME IS:

    Haileysmommy=Leeann I am 25 H ave been married for 6 yrs. We have 3 girls. Brooke-almost 8 just a carrier, Aaliyah-4 not no CF(unsure if carrier), Hailey-20 months with CF We also have 2 dogs a snake and a frog We live in Colorado
  14. H

    HELLO MY NAME IS:

    Haileysmommy=Leeann I am 25 H ave been married for 6 yrs. We have 3 girls. Brooke-almost 8 just a carrier, Aaliyah-4 not no CF(unsure if carrier), Hailey-20 months with CF We also have 2 dogs a snake and a frog We live in Colorado
  15. H

    New triplet pictures

    You all look so great. The babies are beautiful!!!!! Congrats again
  16. H

    Insurance Questions

    I love our PPO. It is nice to be able to go to whatever Dr you want without a referral.
  17. H

    Infant PFT

    Don't worry. Hailey had one done just after her first b-day and did fine. I do second the stroller thing. I had a sling that I carried her in but a stroller wouild be good too. It went a lot quicker than I thought. I went to the cafeteria to get some food cause I was super hungry. When I...
  18. H

    Disability?... I never knew!

    Hailey got approved for disability in May. We don't get any money though just the medicaid that covers what our insurance dosen't cover. I know that if you have a disability, disease, etc that will be with you for the rest of your life or will result in your death you should be eligible as...
  19. H

    Do you have one cf doctor or many cf doctors?

    We always see the same DR unless Hailey is sick they get us in to see whoever is available. I really like seeing the same Dr because he knows everything about her.
  20. H

    pet turtle?

    I don't see a problem with it. We have a snake and a frog and my hubby is begging for a tortise. As long as you make the kids wash their hands after touvhing the turtle they will be fine. We also have the instant hand sanitizer by their cages in case the kids forget to wash.
Top