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    Market Research Opportunity - Adults only

    Market research opportunity: 1 on 1, 1 hour session talking about experience with elastomeric pumps (Example: Ambulatory elastomeric, Ambulatory electronic or large volume infusion pumps). Participant must have used one of these pumps within the last 6 months. Sessions will be held in...
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    Live int'l call featuring ME: re: nutrition, CF, & a work from home opportunity

    I'm grateful and honored to announce that I will be speaking TONIGHT on an International Call and would like to invite you all to join in! I will speak to the importance of nutrition in my battle against Cystic Fibrosis and how I am am stronger than ever! (I'm on the far left in the picture -...
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    New Great Strides website question

    Is it possible to add a walker manually like a team leader could on the old site or must every walker sign up for themselves?
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    Anyone set up a self insured medical plan to lower the tax deduction threshold?

    Some of you may remember the tax videos a few of us made a few years ago. I'm all about deducting everything I can due to cf or business, etc. If you and your spouse have a business (self employeed) you can set up a self insured medical plan to deduct any unreimbursed medical expenses. This is...
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    Coughing out plugs daily

    I'm wondering what is going on with my body and why I am either producing these plugs or getting rid of old plugs. They do not seem very old and are light in color. Strange! I guess better out than in but still a little concerning. I do feel a bit victorious after clearing one though! Anyone go...
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    friend's child had a mycobacteria absess

    One of my very closest friend's daughter (age 4 now) had a lymph node swell so much it was visible on her neck. The area was also reddened. After much go round and various treatments (draining, antibiotics, etc.) it was managed at a big hospital under infectious disease and was found to be a...
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    Two cfers need your prayers

    Kelly Langs, (mom2newfie, cowtown) had a transplant a few days ago. Drs suspect pneumonia and have placed her on ECMO. Rhiannon- ("Rhi," wife of Kevin...both with cf) - Rhi was admitted and has been placed on the vent. Please pray for these folks and all of our other cfers suffering with...
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    spirometry app in development

    <a href="http://news.cnet.com/8301-17938_105-57516173-1/see-how-healthy-your-lungs-are-just-blow-into-your-phone/?part=rss&subj=news&tag=title" target="_blank"> What do you think of this? Sounds cool but not highly accurate. If I have an ability to measure at home I would want to see what my...
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    Do you like the new CFF logo?

    When I saw it today I thought someone had hacked the website. The site is still not fully operational. My hope is that the logo that is showing with 3 balls rising isn't it. I hate it! I liked the last logo. I thought it was very versatile. This one with the colored background is not ideal. It...
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    Praying for Micah

    All day I have been thinking about Micah and praying for a smooth, peaceful departure. I'm also thinking of his sweet siblings and parents. Peace and love at this difficult time.
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    SSDI re-evaluation and Kalydeco

    I've been on Social Security Disability Income since July 2008. If I remember correctly, when they awarded me benefits they said my case would be reviewed in 3 years. Anyone know from experience should I be expectinga notice of a case evaluation this month or do you think that was just a...
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    Indulge for a Cure - CFF fundraiser in Southbury, CT

    Buy your tickets here - <a href="http://www.southburywomensclub.org/">http://www.southburywomensclub.org/</a> <img src="http://i1070.photobucket.com/albums/u493/laurenbrenneman/IndulgeforaCure2012.jpg">
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    Worrisome topic - Large Corporations are self insuring

    I just read an article. <a href="http://www.businessweek.com/articles/2012-04-05/small-business-makes-a-risky-bet-on-health-care">http://www.businessweek.com/articles/2012-04-05/small-business-makes-a-risky-bet-on-health-care</a> In a nutshell, 80% of companies with over 1,000 employees are...
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    Jerry Cahill got the call for Lung Transplant

    Good luck to Jerry who got the call for his new lungs. 9pm he was awaiting the news of whether or not the lungs were any good. The lungs are in another state.
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    Chicago Family Photographer giving away a $1350 photo package

    A definite must read. This is one of my friends. Please consider applying if you live in Chicagolandor know someone who does. It is so important to take pictures of the good timesand the bad ones. They havejust as many uses and can promote healing to show how far someone has come.Read her...
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    Chicago Family Photographer giving away $1350 valued photo package

    A definite must read. This is one of my friends. Please consider applying if you live in Chicagolandor know someone who does. It is so important to take pictures of the good timesand the bad ones. They havejust as many uses and can promote healing to show how far someone has come.Read her...
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    Philadelphia area and have Cayston? You can help!! I am on trial trip and forgot it :-(

    Philadelphia area and have Cayston? You can help!! I am on trial trip and forgot it :-( <P>Hi, I'm on my 1 hr. drive to on myway to catch the 3 hr train ride to Philadelphia to check in for my Vertex 770 trial. I've forgotten my Cayston. I need3-4 doses (so 3 vials medicationand 3 ampules...
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    Traveling to Phila and forgot my Cayston - can you help?

    <P>Hi, I'm on my 1 hr. drive to on myway to catch the 3 hr train ride to Philadelphia to check in for my Vertex 770 trial. I've forgotten my Cayston. I need3-4 doses (so 3 vials medicationand 3 ampules saline) to get me through until I return home tomorrow afternoon. </P> <P></P> <P>Can you help...
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    Green Cleaning Law effecting our schools - Activeion

    <P>I recently started digging into the CT Green Law that went into effect this summer for all CT schools. (<A href="http://www.ct.gov/dph/lib/dph/environmental_health/eoha/pdf/ct_green_cleaning_products_in_schools_law_summary.pdf" target=_blank><U><FONT...
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    "Green" Cleaning in Schools/Hospitals - Activeion

    <P>I recently started digging into the CT Green Law that went into effect this summer for all CT schools. (<A href="http://www.ct.gov/dph/lib/dph/environmental_health/eoha/pdf/ct_green_cleaning_products_in_schools_law_summary.pdf" target=_blank><U><FONT...
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