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I guess I just don't understand. It seems like common sense to me that we who suffer from cystic fibrosis should be very bothered by the fact that someone would have to go through the head of Health and Human Services and a judge so their kid doesn't die because they're 10 instead of 12 and just...

Obviously this girl's doctor's thought she was an acceptable candidate for adult lungs it's just her age that caused the issue and a technicality like that shouldn't decide if a person lives or dies. It's just an example that one size rules do not fit all. And what's even more concerning is the...

Well, we are getting a good first glimpse of Obamacare. Kathleen Sebelius could waive the age rule for this girl but she has decided not to. The fact that one person has that much power over someone's life is horrifying...

Maybe I'm just late to the party cause I can't believe this hasn't been posted yet!!! I nearly fail out of my chair. LOL http://www.cff.org/aboutCFFoundation/NewsEvents/3-25-FDA-Approves-TOBI-Powder-Form.cfm I hope I can try it.

I don't think enzymes are a perfect solution I mean based on what people here have written, it's like they help some people better than they help others. I think I understand what you said but it just reads funny to me. You said: "I knew that I didn't process fat differently if I don't take...

Degrassi didn't have a character with CF they just mentioned it. I think one of the characters new someone with a brother who had it or something like that. It was a year or so ago.

I agree that it needs more awareness but lately it has been popping up more, especially on TV shows. I can name a few TV shows within the past few years where it's gotten a mention or had a character with the disease. A Canadian show called Degrassi, a show on TNT called Falling Skies and most...

Thanks for the info Bill. Much appreciated.

Has anyone heard anything about source cf. Have they stopped making them or what?

don't forget the "amen"

Oh yeah!! I'm still watching. The reason this show works and has attracted such a wide audience is because it's not about the dead, it's about the living. The title doesn't refer to the walkers.

I don't know the technical differences between 661 and 809 but they must be different somehow. Correct me if I'm wrong but didn't they do some early trials with 661 and it wasn't as good as they thought it would be, then they did another trial with 809 combined with 770 and those seemed to work...

I was curious so I looked it up, it looks just like the eflow, even says "eflow technology" on it. The eflow has been available for years, I guess they just keep changing the name.

I don't know your full situation and everyone is so different but if your kid is having stomach issues everyday I'd talk to the doc about enzyme dosage. That right there seems to be the time sucker for you.

It seems like there aren't many people posting updates on their experiences with this drug. I hope its just because there aren't that many people on here who are taking it and not because it wasn't all it's cracked up to be.

Cool, big difference between 508 and G551D.

Yep, I've managed to clog quite a few toilets in my day. LOL Glad to know it's not just me.

I had heard that a year or so ago, it was some study done in Ireland. http://www.rcsi.ie/index.jsp?n=110&p=100&a=2179

Man, I'd love to know about this too. I have wondered if there's anything that can be done to help during those times of absolute misery.

Yeah, they've started a new online store and for now it says you have to call to order them. https://store.aptalispharma.com/home.php