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  1. P

    New Port - catheter over collarbone...is this right?

    I've had several ports. The tube going over the collarbone is pretty normal. It should be a lot more comfortable after the sutures are removed & the swelling goes down. Best luck!
  2. P

    New Port - catheter over collarbone...is this right?

    I've had several ports. The tube going over the collarbone is pretty normal. It should be a lot more comfortable after the sutures are removed & the swelling goes down. Best luck!
  3. P

    New Port - catheter over collarbone...is this right?

    I've had several ports. The tube going over the collarbone is pretty normal. It should be a lot more comfortable after the sutures are removed & the swelling goes down. Best luck!
  4. P

    New Port - catheter over collarbone...is this right?

    I've had several ports. The tube going over the collarbone is pretty normal. It should be a lot more comfortable after the sutures are removed & the swelling goes down. Best luck!
  5. P

    One more question

    I always get chills the 1st night of Merrem, but I also get a temp over 103. It's always just the 1st night. The doctors have reasoned that it's from "toxins" being released from the lungs, but the temp & chills only happen with Merren & not with other IV antibiotics. I can't say if Merrem...
  6. P

    One more question

    I always get chills the 1st night of Merrem, but I also get a temp over 103. It's always just the 1st night. The doctors have reasoned that it's from "toxins" being released from the lungs, but the temp & chills only happen with Merren & not with other IV antibiotics. I can't say if Merrem...
  7. P

    One more question

    I always get chills the 1st night of Merrem, but I also get a temp over 103. It's always just the 1st night. The doctors have reasoned that it's from "toxins" being released from the lungs, but the temp & chills only happen with Merren & not with other IV antibiotics. I can't say if Merrem...
  8. P

    One more question

    I always get chills the 1st night of Merrem, but I also get a temp over 103. It's always just the 1st night. The doctors have reasoned that it's from "toxins" being released from the lungs, but the temp & chills only happen with Merren & not with other IV antibiotics. I can't say if Merrem...
  9. P

    One more question

    I always get chills the 1st night of Merrem, but I also get a temp over 103. It's always just the 1st night. The doctors have reasoned that it's from "toxins" being released from the lungs, but the temp & chills only happen with Merren & not with other IV antibiotics. I can't say if Merrem...
  10. P

    please tell me how are your teeth????

    I had good teeth when I was younger, but now they're pretty bad. I average 4-5 cavities a year even though I get 6 mo. checkups & use lots of fluoride rinses. My dentist says all the medications I take for CF dry out my mouth causing the cavities. For years I was afraid to go to the dentist...
  11. P

    please tell me how are your teeth????

    I had good teeth when I was younger, but now they're pretty bad. I average 4-5 cavities a year even though I get 6 mo. checkups & use lots of fluoride rinses. My dentist says all the medications I take for CF dry out my mouth causing the cavities. For years I was afraid to go to the dentist...
  12. P

    please tell me how are your teeth????

    I had good teeth when I was younger, but now they're pretty bad. I average 4-5 cavities a year even though I get 6 mo. checkups & use lots of fluoride rinses. My dentist says all the medications I take for CF dry out my mouth causing the cavities. For years I was afraid to go to the dentist...
  13. P

    please tell me how are your teeth????

    I had good teeth when I was younger, but now they're pretty bad. I average 4-5 cavities a year even though I get 6 mo. checkups & use lots of fluoride rinses. My dentist says all the medications I take for CF dry out my mouth causing the cavities. For years I was afraid to go to the dentist...
  14. P

    please tell me how are your teeth????

    I had good teeth when I was younger, but now they're pretty bad. I average 4-5 cavities a year even though I get 6 mo. checkups & use lots of fluoride rinses. My dentist says all the medications I take for CF dry out my mouth causing the cavities. For years I was afraid to go to the dentist...
  15. P

    Bronchospy

    Has any adult Cfer had a bronchospy to suction mucus from a collapsed lobe? I have been in the hospital 10 days & so far CPT hasn't helped this section of my lung feel much better. My CF doc suggested doing a bronchospy to relieve the discomfort, but I'm wondering does it work? Did It help...
  16. P

    Bronchospy

    Has any adult Cfer had a bronchospy to suction mucus from a collapsed lobe? I have been in the hospital 10 days & so far CPT hasn't helped this section of my lung feel much better. My CF doc suggested doing a bronchospy to relieve the discomfort, but I'm wondering does it work? Did It help...
  17. P

    Bronchospy

    Has any adult Cfer had a bronchospy to suction mucus from a collapsed lobe? I have been in the hospital 10 days & so far CPT hasn't helped this section of my lung feel much better. My CF doc suggested doing a bronchospy to relieve the discomfort, but I'm wondering does it work? Did It help...
  18. P

    Bronchospy

    Has any adult Cfer had a bronchospy to suction mucus from a collapsed lobe? I have been in the hospital 10 days & so far CPT hasn't helped this section of my lung feel much better. My CF doc suggested doing a bronchospy to relieve the discomfort, but I'm wondering does it work? Did It help...
  19. P

    Bronchospy

    Has any adult Cfer had a bronchospy to suction mucus from a collapsed lobe? I have been in the hospital 10 days & so far CPT hasn't helped this section of my lung feel much better. My CF doc suggested doing a bronchospy to relieve the discomfort, but I'm wondering does it work? Did It help...
  20. P

    do you have clubbing?

    My healthy brother, who didn't have CF, developed severe hand clubbing when a bacteria attacked his heart valves. I only have mild clubbing on my fingers, although my toes are quite clubbed. They've always been like that. I keep my nails short to help hide them. My brother was only sick for 6...
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