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    job/ FEV1

    i think an office job, where you can sit down most of the day might suit you. i work in retail- at a clothes store- and i used to work about 40 hours a week but recently I've halved that because of my health, pfts are in the 40's. it depends what the people you work with are like as well, and...
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    you know that bad feeling i had about my port surgery???

    oh really? damn. because i've been in and out of hospital so often this year i dont really want to go until i'm feeling a lot better, especially if the situation is that bad. thanks for that though. i'll think about it!
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    you know that bad feeling i had about my port surgery???

    I'm glad to hear that it seems like it will work out Kylie!! And good to hear you got a bra lol! I hope once you get it accessed it ends up being fine...mine's in a similar position to yours i think but i dont have the big boobs problem. from the sounds of it a longer needle should do the trick-...
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    Being Small

    I'm the same as the other girls...I love being short now because its "cute"! Though I never disliked it. I think as you get older you get used to it and become OK with it (especially being a girl- i think its a lot easier to be ok with it if you're a girl.)
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    Update on Jazzysmom (AKA Melissa)

    Oh Melissa feel better soon!!! I've been thinking of you a lot lately....all my love your way from down here in Oz!! xoxoxo <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    Cough

    I'm constantly coughing...and constantly coughing stuff up as well, ut normally when I have an infection I cough even more so maybe it could be that? I sometimes wonder how much gunk my lungs can have in them because it seems like I'm coughing huge amounts up all the time!
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    JUST CURIOUS -What is the cost of your medications?

    im the same as emma, in australia but no health care card so about $30 for each thing...and I get about 5 meds each time i have an appt so it really adds up.
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    Ringing Ears

    thanks everyone....the resident dr actually came in this morning, and i was planning on asking him about it until he asked me "so how long have you had CF?" can you believe it?! so i called my dr and he told me stop amikacin for the time being and i'm going to have some tests done over the...
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    Public speaking about CF

    I've done a few speeches about CF as well at various events...if you want me to throw some ideas around let me know, otherwise I'd go with Allie's help because she's probably about 5 gazillion times better than me at writing! If you do want to mail me though, feel free, my address is...
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    Ringing Ears

    I've been in hospital and on Amikacin for about a week now and just recently I've noticed ringing in my ears. It's not constant, they'll ring for a bit and then stop- but its annoying. I wanted to speak to my doctor about it today, but he was in clinic all afternoon and now he's left for the...
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    Siblings who both have CF

    ohhhh that makes sense cos i was getting confused trying to think what clicks meant. this is making me laugh....btw just on topic again, my sister and i both had out appts today, i've been doing everything possible to stay well and she, well, hasnt and my pfts were 52% and hers were 96! go...
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    People need to relax

    i'm loving this...its given me such a good laugh, and i totally agree with the original poster people need to lighten the hell up! sometimes i read seandavis's comments and think where the hell is the guy coming from, but usually i get a good laugh. and if i dont i ignore it, i dont think he's...
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    About yourself

    1. What time did you get up this morning? about 8 then i went back to bed and got up aboput lunch time! 2. Diamonds or pearls? diamonds all the way 3. What was the last film you saw at the cinema? good question...v for vendetta i think 4. What is your favorite T.V show? survivor, friends, little...
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    Goodbye, Holland

    wow Allie thank you so much, that's awesome!!! you are so talented....never underestimate yourself and what you bring to everyone here.
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    Siblings who both have CF

    My sister is 2 years younger than me and has cf as well...similar to emilee's brother- she doesnt do much in the way of treatments, pretty negative towards the whole life thing, in a way she's a bit in denial of having cf, but her pft's are always in the 90's. I'm pretty positive about it...
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    Guys - spare yourselves, don't read

    my periods are like clockwork, never miss them <img src="i/expressions/face-icon-small-sad.gif" border="0"> no i know thats a good thing, because it means i'm well...sorry i'm of no help, if you're worried maybe check with your doctor, gyn??
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    Home from Hospital

    OW!!!! You poor thing....I had that when I was about 9 or 10, i was in agony!!! Look forward to getting better and having some pain free pampering. Thinking of you. <img src="i/expressions/face-icon-small-sad.gif" border="0"> xo
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    questions about how you were raised

    i made a point of saying i wasnt saying that to be horrible, just to help prove amy's point. i hate arguments about who has it worse.......and thats not what i was trying to say at all. i think you missed my point.
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    questions about how you were raised

    OK I'm not saying this to try and be a b*tch but just something to Seana in regards to Amy's point... You can answer questions about CF related to facts, of course you can. But you cant answer questions about what its like to have CF, or what its like to live with CF your entire life, or what...
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    CF camps

    I went to camps when I was little and I loved them. Now though I don't think I'd risk going. As much as they were beneficial, and I always had a great time, so many of the people I went on camp with either have cepacia now...or worse. So no I wouldnt risk it anymore.
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