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  1. M

    My son hates his treatments HELP!!

    At that age I was pretty compliant, but being dx'd at 2, PT was all I ever knew. I believe its alot harder when you are dx'd later. A whole new life different from what you're used to. Around 10-11 is when I began not wanting to do PT and trying to avoid meds. By 12 I skipped enzymes at school...
  2. M

    Safest Way to Make Pets Part of Our Lives

    I can understand your concern. And I agree with others that you really only want to commit to a pet if you are ready. As far as germs, there are 2 schools of thought with animals and human contact..one is concern with germs, dander, etc..the other is that exposure to these things especially...
  3. M

    How to keep salt out of your eyes?

    I have this problem when I run. By the end of a race, my eyes are burning. I've found wearing a head band really helps. They make ones specifically for exercise induced sweat, which is basically us on overdrive! Theyre called sweaty bands. I know there are really cute ones for ladies but...
  4. M

    How long to try to conceive before pushing for action

    Yes I did alter something after month 11 of ttc with my 2nd. I sat for a while with my OB and went over my cycle. They felt I was ovulating earlier than we thought, earlier than the OPK's were saying. This means it was possible I was mis-timing things all along. OPKs are not accurate for some...
  5. M

    How long to try to conceive before pushing for action

    It is very hard to ttc when you see so many around you happily entering into pregnancy, especially without the added burden of cf that we have. Its normal to feel the way you do. Cf adds a layer of difficulty to everything, and we are just going to worry about so much more. With my 1st, it took...
  6. M

    Breastfeeding Tobi or Cayston?

    Yay for the infantrisk hotline! I love that. They are so helpful and courteous. Yes, I second what Autumn said. I had the same experience with anesthesia and dye. Was told to pump and dump. Only to find out from Dr. Hale that there is no need to dump, as soon as anesthesia leaves your body (aka...
  7. M

    Breastfeeding - tobi or cayston?

    I replied to this post in the adults section. :)
  8. M

    Breastfeeding Tobi or Cayston?

    I can't recommend anything, only share what I have done. I have done both while breastfeeding, starting from 3 months onward. I contacted Dr. Thomas Hale who is the worlds authority on medications during lactation. Tobi is only absorbed via inhalation. So if you drink it, its not absorbed or...
  9. M

    Trying to get pregnant

    Absolutely not. Many if not most routine Cf meds are safe for pregnancy. They are rated by category A-D. A being safest, D being proven harmful. Most Cf meds fall into the B-C category and are very safe. This requires ahead of time planning, consulting with your Cf team, OB team and possibly a...
  10. M

    hospitalized

    I agree with all PP's that you should go to your Cf center hospital and get a thorough checkup in patient. I know, its an inconvenience, its annoying, etc...but it is your health. Its so worth it. You don't play around with heart issues, potassium issues.. I feel for you..hang in there. They...
  11. M

    Persistent MRSA

    Yes. A 3 wk cocktail of IV vanco, ceftaz, tobra, and oral zyvox kicked it way down. It was brutal to go through. But it broke a bad 2 yr cycle I had been in. Infectious disease orchestrated the regimen and my Cf team oversaw. Hope you find answers that work for you!
  12. M

    Lung function during pregnancy

    Agree 100% I also have committed to running and since my last baby have finished 2 half marathons and several other races. I will continue that post baby, no question. You don't need to be a marathon runner, but setting a major goal and committing is wonderful for recouping that lung function...
  13. M

    Lung function during pregnancy

    Its very normal to have a decline in lung function during pregnancy, for the simple fact that your diaphragm and then uterus, plus intenstines are pressing into your lower lungs and restricting how much air you will be able to get into them. Also fatigue plays a role. This would be the case in...
  14. M

    Breathe Easy ihatecf (Rami)

    Oh wow..Thank you for posting. I remember him well. Wow he really really fought...Such sad news. He was a really brave guy.
  15. M

    Lots of Nebulizers – Need Advice on Keeping them Clean

    I use 7 total every day. I have a bottle sterilizer on the counter. I rinse them out in a large tupperware and then throw them all in the sterilizer at the end of the day. 10 mins later put them on the counter to dry and start all over the next day. Pretty simple. Better than culturing...
  16. M

    Moving to Florida from the Rockies, Need Advice.

    I think it probably varies alot person to person, but I am one of those that thrives in the salt water climate of south FL, particularly in the Keys. We try to spend alot of time in the winter months here, away from the cold north east. Not just being in the warmth and salt air/salt water, but...
  17. M

    Life,School,...,Heck Everything Under the Sun, and CF

    Wow loaded question! Constant battle.I have two kids, a husband, so between that, running a home, homeschooling, doing treatments, maintaining an exercise schedule, volunteer work, etc its many full time jobs. The key is discipline. Being a scheduled person. I Go to bed early, wake early. I get...
  18. M

    Zero Energy/Reliant of Caffeine

    As long as your doctor says so, and as long as you compensate the dehydrating effects of it with drinking water, a few cups of coffee per day is totally fine. Good for asthma even, good for bowels, good for your mood. if I drink 2-3 per day and I'm still tired, it probably means I need more...
  19. M

    Running

    Start slow. When I began just over a year ago, i could not run a mile. I couldn't run 400 yards. but you keep at it, build slowly..Tomorrow I have my 2nd half marathon and 5th race overall!
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