Search results

Usually by the time my husband is sick, I've already been exposed to the contagious phase of a virus for a few days. That being said for bad colds or coughs we feel its still better to use common sense, and not have him coughing all over me. One of us usually sleeps in the guest room. Same with...

And it depends on the birth control. Some are more affected, some less.

First off I am sorry about the news you just received. No doubt it causes tremendous stress on what should be a joyful time. CF varies greatly person to person. Much of the outcome will depend on the work you put in, not only you as a parent but the individual as they get older. It will be a...

Hi L!! So nice to 'see' you! :)) hope you and crew are well! Think of you often. yes I guess the benefits are a must..just wondering who else reacts this way..it's a real drag.

I always have issues with cayston. Not to the point where id say I'm contraindicated..but wondering if anyone else falls in this category. My lungs are at a really good place right now. I'm on cayston currently. The day I start it, I feel tighter, I feel more soupy, at night. I feel just not...

This would be amazing! Thank you!

I have had a minor clot also. I had a line put in that caused moderate nerve damage during insertion and I still have pain in my arm, months later. It could be from the insertion, could be a clot, could be a not ideal placement. They can do an easy scan with dye to make sure everything is ok...

I did not have preterm with either of my kids, however as a preventative plan my team had me on a 100 g per day protein diet. Called the brewers diet. Perhaps some of that, hydration and adequate rest, plus keeping those airways nice and open, I hope you are able to get through the rest of your...

Wow to the OP...I don't know your doctor or you, where you live, how accessible a second opinion is but I'd strongly suggest you get one. I've had two healthy births and that advice goes against all I've ever heard. C section can be a life saving surgery. But an elective one without a true...

With my first i gained 18 but had an 8 lb 10 day overdue baby. And I felt great. with my second i gained 25 which they were all happy about. Baby was 7'11. I agree with PP that weight after birth is just as important esp if you choose to breastfeed. I also went back to my pre pregnancy weight...

Uh ok... anyway, for anyone else interested, last year I too received the vax and got confirmed flu twice, with pneumonia complications twice. I've since seen a specialized immunologist at Mt. Sinai NYC to determine how well I make antibodies to vaccines and turns out, I do not make them well at...

Has anyone ever gotten a rash on their body after they've stopped antibiotics? I stopped my IV regimen of Imipenum, Vancomycin, and Tobramycin on Monday. Its the first time I've had this cocktail. I had no side effects of the skin for the 3 week duration, but Tuesday I woke up with a mild itchy...

I wanted to update. I had a checkup 2 weeks into my tuneup, the details of which I mentioned on a previous page. My pfts increased from Fvc 85/fev1 51 up to Fvc 95/ fev1 69. That's with 2 weeks of my current regimen. I also switched from a chest vest to an updated full vest, and improved my...

I'm sorry to hear what you're going through. This describes my past few years to a T. To my knowledge I began culturing Mrsa about 3 years ago. Since then I too am beset by dry coughs, asthmatic flares, shortness of breath and even occasional hemoptysis when I never previously had it. Only in...

My brother ran it. And my husband. And my 2 sisters and several friends. I could not run it due to a bad exacerbation and hospitalization. But my heart was there for sure. I'm so proud of my brother, who also has Cf. He has had such a difficult year with his health. He could have taken the...

all valid points! My daughters school is also very good and we're satisfied with her education so far. My issue is that it seems my asthma component of Cf can no longer tolerate the winters of the northeast. And when she brings home a cold I have no ability to fight it during winter. I end up...

So tell me about your typical daily schedule...when do you do treatments?

Cabadie1, so what made you decide to start HS?

Thank you all for those replies! if we do this, it will definitely be private cyber. There is no public cyber in my state. And we prefer the teacher support and lesson plans of cyber. So can anyone give feedback on the workload you feel as a parent, with at home schooling compared to brick and...

All excellent points, thank you for sharing! i love the suggestion of using a face mask instead, to be hands free. As the parent with Cf, I would like ideally to have my treatments competed before our school day begins. I know however, this isn't always reality. So I may have to be working...