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  1. U

    Hirschsprungs Disease and CF

    Hi Joan! Your words mean so lot to me in this moment. I have many question to you ,is there any way to e-mail you?
  2. U

    Hirschsprungs Disease and CF

    Hi Joan! Your words mean so lot to me in this moment. I have many question to you ,is there any way to e-mail you?
  3. U

    ...please help...

    Thank you all for your help and answers. We are going to surgeon next wednesday and I will know the results of biopsy. Maybe it is not so important because surgeon sad that the third surgery will be the pull-throught surgery. I am warried about that because all large and some part of the small...
  4. U

    ...please help...

    Thank you all for your help and answers. We are going to surgeon next wednesday and I will know the results of biopsy. Maybe it is not so important because surgeon sad that the third surgery will be the pull-throught surgery. I am warried about that because all large and some part of the small...
  5. U

    ...please help...

    I am sure that testing was done in Croatia ,they discovered that one mutation is 508 but they dont know what is the other one. I dont have money but I will try to get credit in bank. I am warried about hirschprung results-do you know enybody who has it bouth? And his lungs are ok now but I am...
  6. U

    ...please help...

    I am sure that testing was done in Croatia ,they discovered that one mutation is 508 but they dont know what is the other one. I dont have money but I will try to get credit in bank. I am warried about hirschprung results-do you know enybody who has it bouth? And his lungs are ok now but I am...
  7. U

    ...please help...

    Hy! please sorry for my english but I come from Croatia and I just dont know who to ask. I realy hope you will understand me.I have a son ,6 weeks old. First day of his life he had surgery because his colon was smoll and the poop was stuck in it. Doctors clean his colon but after 4 days when...
  8. U

    ...please help...

    Hy! please sorry for my english but I come from Croatia and I just dont know who to ask. I realy hope you will understand me.I have a son ,6 weeks old. First day of his life he had surgery because his colon was smoll and the poop was stuck in it. Doctors clean his colon but after 4 days when...
  9. U

    Tears

    It is a beautiful poem. reality of life with CF...
  10. U

    Tears

    It is a beautiful poem. reality of life with CF...
  11. U

    To parents of a CFer

    I have a son ,6 weeks old. He had two surgerys and now he has a colostomy bag. Soon he will go back to the hospital. But nothing can stop me from loving him. With or without CF he is my son... It is hard to look at him and not knowing will he survive another surgery. But that is my reality... I...
  12. U

    To parents of a CFer

    I have a son ,6 weeks old. He had two surgerys and now he has a colostomy bag. Soon he will go back to the hospital. But nothing can stop me from loving him. With or without CF he is my son... It is hard to look at him and not knowing will he survive another surgery. But that is my reality... I...
  13. U

    Can I ask a favor? Med. question

    My 6 weeks old son with ileostoma gets: vitamin A vitamin D vitamin E Fe
  14. U

    Can I ask a favor? Med. question

    My 6 weeks old son with ileostoma gets: vitamin A vitamin D vitamin E Fe
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