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Hello everyone, first of all let me just say what a wonderful site this is and it can be so helpful. My 6yo Rubie was diagnosed with double delta f508 in early feb. It's been a while since I have posted, I just needed some time for it all to sink in. It's been tough for us but harder on our...

Our daughter was recently diagnosed with CF. My husband was doing some reseaerch on the internet trying to figure out what exactly we were up against and what the treatments are. He came across a couple supplements that are not part of the meds that CFers take. They are curcumin and...

Our daughter was recently diagnosed with CF. My husband was doing some reseaerch on the internet trying to figure out what exactly we were up against and what the treatments are. He came across a couple supplements that are not part of the meds that CFers take. They are curcumin and...

Our daughter was recently diagnosed with CF. My husband was doing some reseaerch on the internet trying to figure out what exactly we were up against and what the treatments are. He came across a couple supplements that are not part of the meds that CFers take. They are curcumin and...

"The Belly My 6yo daughter has the same thing. When she eats, her belly gets very bloated and hard to the touch. It isn't soft and mushy like most tummies are(you know what I mean). We just found out she is lactose intol. so maybe not having dairy will help. I'll let you know if it goes away. I...

"The Belly My 6yo daughter has the same thing. When she eats, her belly gets very bloated and hard to the touch. It isn't soft and mushy like most tummies are(you know what I mean). We just found out she is lactose intol. so maybe not having dairy will help. I'll let you know if it goes away. I...

"The Belly My 6yo daughter has the same thing. When she eats, her belly gets very bloated and hard to the touch. It isn't soft and mushy like most tummies are(you know what I mean). We just found out she is lactose intol. so maybe not having dairy will help. I'll let you know if it goes away. I...

Thank you for all your responses and helpful hints. Her appointment is on march 7th. We live in Illinois but we'll be going to the center in Milwaukee, WI. Rubie is already on enzymes cuz her pancreas isn't functioning and she's also on ADEK multivitamin. We were told to bring her meds to the...

Thank you for all your responses and helpful hints. Her appointment is on march 7th. We live in Illinois but we'll be going to the center in Milwaukee, WI. Rubie is already on enzymes cuz her pancreas isn't functioning and she's also on ADEK multivitamin. We were told to bring her meds to the...

Thank you for all your responses and helpful hints. Her appointment is on march 7th. We live in Illinois but we'll be going to the center in Milwaukee, WI. Rubie is already on enzymes cuz her pancreas isn't functioning and she's also on ADEK multivitamin. We were told to bring her meds to the...

Hello everyone. We finally have Rubies first appointment at the CF center where we live. I'm still very scared about this whole CF thing but I'm happy that our little one will finally be on the road to better health. I was wondering if anyone could tell me what to expect on our first visit...

Hello everyone. We finally have Rubies first appointment at the CF center where we live. I'm still very scared about this whole CF thing but I'm happy that our little one will finally be on the road to better health. I was wondering if anyone could tell me what to expect on our first visit...

Hello everyone. We finally have Rubies first appointment at the CF center where we live. I'm still very scared about this whole CF thing but I'm happy that our little one will finally be on the road to better health. I was wondering if anyone could tell me what to expect on our first visit...

Hello everybody, my 6yo daughter, Rubie, was diagnosed with CF three weeks ago. We are still waiting to get her into the CF center where we live. Shes been put her on pancreatic enzymes (MT4) to help her absorb more nutrients because shes so tiny(only 35lbs). Shes always had this problem with...

Hello everybody, my 6yo daughter, Rubie, was diagnosed with CF three weeks ago. We are still waiting to get her into the CF center where we live. Shes been put her on pancreatic enzymes (MT4) to help her absorb more nutrients because shes so tiny(only 35lbs). Shes always had this problem with...

Hello everybody, my 6yo daughter, Rubie, was diagnosed with CF three weeks ago. We are still waiting to get her into the CF center where we live. Shes been put her on pancreatic enzymes (MT4) to help her absorb more nutrients because shes so tiny(only 35lbs). Shes always had this problem with...

My 6 yo daughter has recently been diagnosed with cf. Her father just got a blood test done to see if he's a carrier and it came back negative, he's going to get another one done to be sure. I will be getting tested in a couple weeks. My question is, can someone get cf when only one parent is a...

My 6 yo daughter has recently been diagnosed with cf. Her father just got a blood test done to see if he's a carrier and it came back negative, he's going to get another one done to be sure. I will be getting tested in a couple weeks. My question is, can someone get cf when only one parent is a...

My 6 yo daughter has recently been diagnosed with cf. Her father just got a blood test done to see if he's a carrier and it came back negative, he's going to get another one done to be sure. I will be getting tested in a couple weeks. My question is, can someone get cf when only one parent is a...

Thank you guys for your caring words. I know this isn't going to be easy but we're not going to let it get the best of us. Just like you all have said, I dont plan on changing any of Rubies favorite activities, she'll still play soccer and play with her friends and go to camp in the summer. It's...