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  1. R

    is there anyone in the chicago area?

    Hello everybody, I was just wondering if there is anyone out there who lives in the Chicago area. Thanks in advance
  2. R

    is there anyone in the chicago area?

    Hello everybody, I was just wondering if there is anyone out there who lives in the Chicago area. Thanks in advance
  3. R

    is there anyone in the chicago area?

    Hello everybody, I was just wondering if there is anyone out there who lives in the Chicago area. Thanks in advance
  4. R

    the vest has arrived...yay!

    Rubie got the Hill Rom vest and it's a blessing. Thank you all for sharing your thoughts and taking the time to reply to me.
  5. R

    the vest has arrived...yay!

    Rubie got the Hill Rom vest and it's a blessing. Thank you all for sharing your thoughts and taking the time to reply to me.
  6. R

    the vest has arrived...yay!

    Rubie got the Hill Rom vest and it's a blessing. Thank you all for sharing your thoughts and taking the time to reply to me.
  7. R

    the vest has arrived...yay!

    we just got Rubies vest yesterday and we are so happy. Rubie loves it, she thinks it's fun. She sings when she has it on and loves to make funny noises. It's easier to work than we thought it would be. One more thing to add to our daily routine, the night session is easy, getting her up 30min...
  8. R

    the vest has arrived...yay!

    we just got Rubies vest yesterday and we are so happy. Rubie loves it, she thinks it's fun. She sings when she has it on and loves to make funny noises. It's easier to work than we thought it would be. One more thing to add to our daily routine, the night session is easy, getting her up 30min...
  9. R

    the vest has arrived...yay!

    we just got Rubies vest yesterday and we are so happy. Rubie loves it, she thinks it's fun. She sings when she has it on and loves to make funny noises. It's easier to work than we thought it would be. One more thing to add to our daily routine, the night session is easy, getting her up 30min...
  10. R

    should I be tested too?

    Hello everyone, I have another question. Now that my daughter has been diagnosed with CF(2 copies of deltaf508) should I get testet too? Obviously her dad and I are both carriers but is it necessary for us to get tested? I've never had any respiratory issues or major digestive problems. Just...
  11. R

    should I be tested too?

    Hello everyone, I have another question. Now that my daughter has been diagnosed with CF(2 copies of deltaf508) should I get testet too? Obviously her dad and I are both carriers but is it necessary for us to get tested? I've never had any respiratory issues or major digestive problems. Just...
  12. R

    should I be tested too?

    Hello everyone, I have another question. Now that my daughter has been diagnosed with CF(2 copies of deltaf508) should I get testet too? Obviously her dad and I are both carriers but is it necessary for us to get tested? I've never had any respiratory issues or major digestive problems. Just...
  13. R

    Question about Pulmozyme

    Thank you all for your responses, it helps to know I have somewhere to turn when I have questions. I still have alot to learn about CF and this is one of the many meds she'll be on in her life. I'll take it day by day and hope she stays healthy. Thanks again for all your answers, may good health...
  14. R

    Question about Pulmozyme

    Thank you all for your responses, it helps to know I have somewhere to turn when I have questions. I still have alot to learn about CF and this is one of the many meds she'll be on in her life. I'll take it day by day and hope she stays healthy. Thanks again for all your answers, may good health...
  15. R

    Question about Pulmozyme

    Thank you all for your responses, it helps to know I have somewhere to turn when I have questions. I still have alot to learn about CF and this is one of the many meds she'll be on in her life. I'll take it day by day and hope she stays healthy. Thanks again for all your answers, may good health...
  16. R

    Question about Pulmozyme

    Hi everyone, I dont post very often but I read this site all the time..you're all awesome. Today was Rubies first day doing her pulmozyme, we have never used a compresser or Neb before. I read everything thoroughly and we did it just like the directions said. I know that it is a mucus thinner...
  17. R

    Question about Pulmozyme

    Hi everyone, I dont post very often but I read this site all the time..you're all awesome. Today was Rubies first day doing her pulmozyme, we have never used a compresser or Neb before. I read everything thoroughly and we did it just like the directions said. I know that it is a mucus thinner...
  18. R

    Question about Pulmozyme

    Hi everyone, I dont post very often but I read this site all the time..you're all awesome. Today was Rubies first day doing her pulmozyme, we have never used a compresser or Neb before. I read everything thoroughly and we did it just like the directions said. I know that it is a mucus thinner...
  19. R

    she gained 3lbs..yey!

    Hello everyone, first of all let me just say what a wonderful site this is and it can be so helpful. My 6yo Rubie was diagnosed with double delta f508 in early feb. It's been a while since I have posted, I just needed some time for it all to sink in. It's been tough for us but harder on our...
  20. R

    she gained 3lbs..yey!

    Hello everyone, first of all let me just say what a wonderful site this is and it can be so helpful. My 6yo Rubie was diagnosed with double delta f508 in early feb. It's been a while since I have posted, I just needed some time for it all to sink in. It's been tough for us but harder on our...
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