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I didn't even know that was an option! Thanks! She jsut stopped coughing about a half an hour ago, so it had her going for a good 2 hours

but she needs the Tobi for the PA

but she needs the Tobi for the PA

My DD does Tobi 28 days on/28 days off because she cultures PA. She has a large asthma component to her CF, and they say she has a pretty reactive airway. The TOBI irritates her horribly. She coughs a lot during and after Tobi treatments. We do albuterol and pulmicort right before Tobi. She is...

My DD does Tobi 28 days on/28 days off because she cultures PA. She has a large asthma component to her CF, and they say she has a pretty reactive airway. The TOBI irritates her horribly. She coughs a lot during and after Tobi treatments. We do albuterol and pulmicort right before Tobi. She is...

I missed earlier threads so I'm not sure on all of the details of your daughter's swelling, but I'm sorry she's having such a tough time. My mom used to take methotrexate because she has psoriatic arthritis (sort of like rheumatoid arthritis' cousin). It helped quite a bit but I remember her...

I missed earlier threads so I'm not sure on all of the details of your daughter's swelling, but I'm sorry she's having such a tough time. My mom used to take methotrexate because she has psoriatic arthritis (sort of like rheumatoid arthritis' cousin). It helped quite a bit but I remember her...

Now that it's through trials an FDA approved, does everyone with the G551D mutation go on it? For anyone who is on it or has a child on it, have you noticd any differences? My kids do not have the G551D mutation, they have DF508 and Q493X. When(if) VX-809 is approved for the DF508 mutation, are...

Now that it's through trials an FDA approved, does everyone with the G551D mutation go on it? For anyone who is on it or has a child on it, have you noticd any differences? My kids do not have the G551D mutation, they have DF508 and Q493X. When(if) VX-809 is approved for the DF508 mutation, are...

<P>I have 2 kids with CF, one has The Vest from Hillrom, one has the Respirtech Incourage. Customer service has been great with both companies. I can set them both to do the same things like ramping up, ramping down, pausing for coughs or huffs, etc. They both came with a great traveling case...

<P>I have 2 kids with CF, one has The Vest from Hillrom, one has the Respirtech Incourage. Customer service has been great with both companies. I can set them both to do the same things like ramping up, ramping down, pausing for coughs or huffs, etc. They both came with a great traveling case...

<P>I have 2 kids with CF, one has The Vest from Hillrom, one has the Respirtech Incourage. Customer service has been great with both companies. I can set them both to do the same things like ramping up, ramping down, pausing for coughs or huffs, etc. They both came with a great traveling case...

<br>We did 15 min twie a day. I think it's better to get them in the habit young. 3-4 times a day if sick.

<br>We did 15 min twie a day. I think it's better to get them in the habit young. 3-4 times a day if sick.

<br>We did 15 min twie a day. I think it's better to get them in the habit young. 3-4 times a day if sick.

Both of my kids have cultured it. They both did 2 weeks of IV tobramycin and ceftaz, and started inhaled tobi. DS hasn't cultured it for over a year now, but DD still does. It hasn't caused any increase in symptoms or decrease in lung function. We do Tobi 28 days on/28 days off, and they take...

Both of my kids have cultured it. They both did 2 weeks of IV tobramycin and ceftaz, and started inhaled tobi. DS hasn't cultured it for over a year now, but DD still does. It hasn't caused any increase in symptoms or decrease in lung function. We do Tobi 28 days on/28 days off, and they take...

Both of my kids have cultured it. They both did 2 weeks of IV tobramycin and ceftaz, and started inhaled tobi. DS hasn't cultured it for over a year now, but DD still does. It hasn't caused any increase in symptoms or decrease in lung function. We do Tobi 28 days on/28 days off, and they take...

This might not be very popular, but I'd still go and sit at the opposite end of the table.

This might not be very popular, but I'd still go and sit at the opposite end of the table.