Search results

  1. L

    Just needing to vent

    Ok I just needed to say something because I'm a little irritated. I haven't had my sporonox for about a week now and insurance is telling me that it can take up to 10 days to get it approved. This is the second time the docs have sent in a prior auth. form and the first time they said they...
  2. L

    Just needing to vent

    Ok I just needed to say something because I'm a little irritated. I haven't had my sporonox for about a week now and insurance is telling me that it can take up to 10 days to get it approved. This is the second time the docs have sent in a prior auth. form and the first time they said they...
  3. L

    Just needing to vent

    Ok I just needed to say something because I'm a little irritated. I haven't had my sporonox for about a week now and insurance is telling me that it can take up to 10 days to get it approved. This is the second time the docs have sent in a prior auth. form and the first time they said they...
  4. L

    steps to getting an upgrade on a vest

    Thank you Danyell! I will get started on this stuff today because it's really sad but getting a new vest machine would be like christmas and my birthday all wrapped in one! Nikki 27/f/cf
  5. L

    steps to getting an upgrade on a vest

    Thank you Danyell! I will get started on this stuff today because it's really sad but getting a new vest machine would be like christmas and my birthday all wrapped in one! Nikki 27/f/cf
  6. L

    steps to getting an upgrade on a vest

    Thank you Danyell! I will get started on this stuff today because it's really sad but getting a new vest machine would be like christmas and my birthday all wrapped in one! Nikki 27/f/cf
  7. L

    eFlow Rapid

    hello, I got my eflow through a study that I'm doing and I was told I could only use it for the study drug and nothing else. I live in the US and from what I've read on here the US version is different than the UK version or whatever version it is. As for the insurance thing sorry I can't...
  8. L

    eFlow Rapid

    hello, I got my eflow through a study that I'm doing and I was told I could only use it for the study drug and nothing else. I live in the US and from what I've read on here the US version is different than the UK version or whatever version it is. As for the insurance thing sorry I can't...
  9. L

    eFlow Rapid

    hello, I got my eflow through a study that I'm doing and I was told I could only use it for the study drug and nothing else. I live in the US and from what I've read on here the US version is different than the UK version or whatever version it is. As for the insurance thing sorry I can't...
  10. L

    steps to getting an upgrade on a vest

    Hello, I am trying to upgrade my vest to a more portable one and I was wondering if anyone could let me know the steps they took in doing so. I recieved some papers from the clinic and I called the insurance company but the lady I talked to said I needed different papers and some code to let...
  11. L

    steps to getting an upgrade on a vest

    Hello, I am trying to upgrade my vest to a more portable one and I was wondering if anyone could let me know the steps they took in doing so. I recieved some papers from the clinic and I called the insurance company but the lady I talked to said I needed different papers and some code to let...
  12. L

    steps to getting an upgrade on a vest

    Hello, I am trying to upgrade my vest to a more portable one and I was wondering if anyone could let me know the steps they took in doing so. I recieved some papers from the clinic and I called the insurance company but the lady I talked to said I needed different papers and some code to let...
  13. L

    How to tell the difference?

    I was always told I had an asthma component too. In fact the first 8 years of my life I was diagnosed with asthma and not cf. It turns out that it's not really asthma for me but that whole ABPA thing. But back to asthma I think it's harder to get control of than a cf shortness of breath...
  14. L

    How to tell the difference?

    I was always told I had an asthma component too. In fact the first 8 years of my life I was diagnosed with asthma and not cf. It turns out that it's not really asthma for me but that whole ABPA thing. But back to asthma I think it's harder to get control of than a cf shortness of breath...
  15. L

    How to tell the difference?

    I was always told I had an asthma component too. In fact the first 8 years of my life I was diagnosed with asthma and not cf. It turns out that it's not really asthma for me but that whole ABPA thing. But back to asthma I think it's harder to get control of than a cf shortness of breath...
  16. L

    Aspergillus, ABPA

    One thing I have noticed since I am also diagnosed with ABPA is that sometimes I Ige numbers are high and I can not tell because it's not affecting my lungs. I've noticed when my lungs are getting full then it affects me worse. I also take sporonox but I think you have to be on it a month...
  17. L

    Aspergillus, ABPA

    One thing I have noticed since I am also diagnosed with ABPA is that sometimes I Ige numbers are high and I can not tell because it's not affecting my lungs. I've noticed when my lungs are getting full then it affects me worse. I also take sporonox but I think you have to be on it a month...
  18. L

    Aspergillus, ABPA

    One thing I have noticed since I am also diagnosed with ABPA is that sometimes I Ige numbers are high and I can not tell because it's not affecting my lungs. I've noticed when my lungs are getting full then it affects me worse. I also take sporonox but I think you have to be on it a month...
  19. L

    Worse lung

    Mine is also the left lung. Upper left to be exact. I too can feel when plugs come up there is like a feeling like the flood gates have opened and even more junk comes out. Feels good but sometimes getting those plugs up are the worst things. When I can feel one loosening up I try and work...
  20. L

    Worse lung

    Mine is also the left lung. Upper left to be exact. I too can feel when plugs come up there is like a feeling like the flood gates have opened and even more junk comes out. Feels good but sometimes getting those plugs up are the worst things. When I can feel one loosening up I try and work...
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