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My daughter has Auditory Neuropathy and mild hearing loss... I dont think anybody knows what caused it... I wonder if it could have been because of the antibiotics she was on a few weeks before she got sick. That would be a good question to speak with her doctors about i guess.

My daughter has Auditory Neuropathy and mild hearing loss... I dont think anybody knows what caused it... I wonder if it could have been because of the antibiotics she was on a few weeks before she got sick. That would be a good question to speak with her doctors about i guess.

My daughter has Auditory Neuropathy and mild hearing loss... I dont think anybody knows what caused it... I wonder if it could have been because of the antibiotics she was on a few weeks before she got sick. That would be a good question to speak with her doctors about i guess.

So Casey is finally being discharged today. We have a lot of thihngs to follow up on though. PT, OT, speech, auditory, neuro, metabolic, infectious disease, and the list goes on. lol... I am happy to be able to say her cf dr has now classified her as having cftr Metabolic Disorder instead of cf...

So Casey is finally being discharged today. We have a lot of thihngs to follow up on though. PT, OT, speech, auditory, neuro, metabolic, infectious disease, and the list goes on. lol... I am happy to be able to say her cf dr has now classified her as having cftr Metabolic Disorder instead of cf...

So Casey is finally being discharged today. We have a lot of thihngs to follow up on though. PT, OT, speech, auditory, neuro, metabolic, infectious disease, and the list goes on. lol... I am happy to be able to say her cf dr has now classified her as having cftr Metabolic Disorder instead of cf...

thanks, yes she is on medicaid. they do pay for gas for doc appts but i didnt know they paid for food during hospital stays... i will have to remember to ask about that for future reference

thanks, yes she is on medicaid. they do pay for gas for doc appts but i didnt know they paid for food during hospital stays... i will have to remember to ask about that for future reference

thanks, yes she is on medicaid. they do pay for gas for doc appts but i didnt know they paid for food during hospital stays... i will have to remember to ask about that for future reference

I did get your message. Thank you. It did help to know that I was not the only one dealing with a lot of problems. Sorry i didnt message you back.... things have been a little busy. I hope things are going well for you

I did get your message. Thank you. It did help to know that I was not the only one dealing with a lot of problems. Sorry i didnt message you back.... things have been a little busy. I hope things are going well for you

I did get your message. Thank you. It did help to know that I was not the only one dealing with a lot of problems. Sorry i didnt message you back.... things have been a little busy. I hope things are going well for you

We are working on getting into a housing program, but all programs take time. Also, while we are in the hospital, since i feel staying with my daughter in the hospital outweighs the benefit of working for 140 dollars this week(which most would go toward gas to drive back and forth) I wont be...

We are working on getting into a housing program, but all programs take time. Also, while we are in the hospital, since i feel staying with my daughter in the hospital outweighs the benefit of working for 140 dollars this week(which most would go toward gas to drive back and forth) I wont be...

We are working on getting into a housing program, but all programs take time. Also, while we are in the hospital, since i feel staying with my daughter in the hospital outweighs the benefit of working for 140 dollars this week(which most would go toward gas to drive back and forth) I wont be...

So we have been in the hospital with casey for the last few days with no real idea of what is going on or when we are going to be able to take her home, and somehow thats not the worst of it these days. Somehow my aunt(whom we currently live with) finds a way to make life worse, to make it seem...

So we have been in the hospital with casey for the last few days with no real idea of what is going on or when we are going to be able to take her home, and somehow thats not the worst of it these days. Somehow my aunt(whom we currently live with) finds a way to make life worse, to make it seem...

So we have been in the hospital with casey for the last few days with no real idea of what is going on or when we are going to be able to take her home, and somehow thats not the worst of it these days. Somehow my aunt(whom we currently live with) finds a way to make life worse, to make it seem...

I called the cf clinic and they said this is the kind of situation that a pediatrician deals with. I made an appointment for her to see a new pediatrician at 3 pm. We know she has an infection because of the elevated WBC. They just couldnt tell me what it is. Hopefully we will find out at 3.

I called the cf clinic and they said this is the kind of situation that a pediatrician deals with. I made an appointment for her to see a new pediatrician at 3 pm. We know she has an infection because of the elevated WBC. They just couldnt tell me what it is. Hopefully we will find out at 3.