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Hi i always thought with Chelsie having a rare mutation that she will have it mild and that's what her Doc thought at the hospital, so i guess it's just a wait and see kind of thing.xx Mom to Chelsie 5 w/cf

We do our daughters CPT twice a day one morning and one evening and she has her nebuliser on the evening as she is "supposed" to be colonised with pseudamonas (sp)??.

Hi Yvie Any luck with the phoning around yet? Mom to Chelsie 5 w/cf

They say you learn something new everyday, and i certainly have today, but i'm the kind of person not to let it get me down, i can see how well my daughter is, and as long as she can stay like that i'm happy (and she is). Thanks once again if i have anymore questions i'll ask away.xx Mom to...

<blockquote>Quote<br><hr><i>Originally posted by: <b>Allie</b></i><br>Do you know what class it is? It was explained to me that they go from one to five, one being the worst and five being the least severe. Ry had W1282x, which is a class one, and DeltaF508, which is a type two. 1898+1G>A...

Hi thanks Emily and your mom, you always hope your loved ones and yourself have a mild form of it but as you said everyone is different. We were told at one of the clinics that because my mutation 1898+G>A was a abnormal as the doctor called it he thought thats why Chelsie had been so well, she...

Thanks i'll check out the websites you have said. Mom to Chelsie 5 w/cf

Here's a pic of me and my daughter Chelsie Sorry it's a little small

I can see your point about the waiting it was horendous (sp)? for us having to wait an hour for the results, never mind being told that they will do a test, but not yet, give you chance to read up about CF, when really you may not have to, i'm the kind of person that has to read anything about...

1989+1G>A Mutation Hi, does anyone else have the single copy of 1898+ 1G>A as well as the copy of the delta F508 My daughter Chelsie seems to be really well since being since diagnosed 5 years ago not sure if this has anything to do with the mutations so i was just wondering if anyone else with...

Hi Yvie, I'm from the Uk, the Midlands, not sure why your waiting that long for the test and result maybe things have changed since my daughter was diagnosed, she is now 5 but was diagnosed at 8 months old. We had the first test done, we had a phone cal the nest day saying it came back...

My daughter goes to clinic every 2 months and has done since birth. Mom to Chelsie 5 w/cf

We go to meetings over here in the UK and their's a guy who was diagnosed in his 50's and now is in his 60's. mom to Chelsie 5 w/cf

Thanks, to the poster above, they use the heel prick test to test for quite afew things here in the UK, and i thought one of them was CF it wasnt done when my daughter was diagnosed, but has been brought in since, but just wondered why my friend's baby hadnt been tested in the heel prick test...

Hi to all, can you tell me if the heel prick test is automatically tested now for CF, i thought i heard that it was, i'm from the UK, but a friend of mine has just had a baby and CF wasnt tested for, in the heel prick test, so i was just curious. Thanks Mom to Chelsie 5 w/cf

Hi my daughter Chelsie was diagnosed at 8 months old we are from the UK. Chelsie first isolated Pseudomonas 3 years ago but with no symptoms that was the shock so in answer to your question not everyone will have symptoms of Pseudomonas. Good luck. <img...

Welcome any questions you need to know, just ask.xxx<img src="i/expressions/heart.gif" border="0">

Supermanfan Yeah sorry i meant vaccine/injection i guess i should of worded it a little better, glad you knew what i meant though, i asked my daughters doctor today at clinic and he said yeah it's better to have it then not, so i guess i better take her to have it, not looking forward to it...

ok thank you to you all.xx

Hi can anyone tell me if their children have had the pneumonia jab, my daughter 5wc/f has had the flu jab but now has been mentioned about the pneumonia jab, Thanks