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  1. J

    Pulmozyme not delivered...

    When it arrives, I would open and see if the icepacks and inside of the box still feel cool. If they do, it should be OK. If not, get a new shipment. Our CF doc says pulmozyme is actually stable at room temperature for up to a year.
  2. J

    Pulmozyme not delivered...

    When it arrives, I would open and see if the icepacks and inside of the box still feel cool. If they do, it should be OK. If not, get a new shipment. Our CF doc says pulmozyme is actually stable at room temperature for up to a year.
  3. J

    Pulmozyme not delivered...

    When it arrives, I would open and see if the icepacks and inside of the box still feel cool. If they do, it should be OK. If not, get a new shipment. Our CF doc says pulmozyme is actually stable at room temperature for up to a year.
  4. J

    Pulmozyme not delivered...

    When it arrives, I would open and see if the icepacks and inside of the box still feel cool. If they do, it should be OK. If not, get a new shipment. Our CF doc says pulmozyme is actually stable at room temperature for up to a year.
  5. J

    Pulmozyme not delivered...

    When it arrives, I would open and see if the icepacks and inside of the box still feel cool. If they do, it should be OK. If not, get a new shipment. Our CF doc says pulmozyme is actually stable at room temperature for up to a year.
  6. J

    CT Scan for head size.

    I would definitely discuss it with your CF dr before having her go through any tests. Our dd went through a needless hospitalization and lots of finger pricks because her pediatrician and the diabetes expert at the hospital thought she had type 1 diabetes. The diabetes doctor had even said...
  7. J

    CT Scan for head size.

    I would definitely discuss it with your CF dr before having her go through any tests. Our dd went through a needless hospitalization and lots of finger pricks because her pediatrician and the diabetes expert at the hospital thought she had type 1 diabetes. The diabetes doctor had even said...
  8. J

    CT Scan for head size.

    I would definitely discuss it with your CF dr before having her go through any tests. Our dd went through a needless hospitalization and lots of finger pricks because her pediatrician and the diabetes expert at the hospital thought she had type 1 diabetes. The diabetes doctor had even said...
  9. J

    CT Scan for head size.

    I would definitely discuss it with your CF dr before having her go through any tests. Our dd went through a needless hospitalization and lots of finger pricks because her pediatrician and the diabetes expert at the hospital thought she had type 1 diabetes. The diabetes doctor had even said...
  10. J

    CT Scan for head size.

    I would definitely discuss it with your CF dr before having her go through any tests. <br /> <br />Our dd went through a needless hospitalization and lots of finger pricks because her pediatrician and the diabetes expert at the hospital thought she had type 1 diabetes. The diabetes doctor had...
  11. J

    Working moms of CFers

    I work full time but my husband is a stay-at-home Dad. He's great at making sure all the doctor's appts are tracked, doing laundry, cooking (most of the time), but he's horrible at cleaning. We have three kids under 7. Any household with young kids is busy, even without CF thrown in. I...
  12. J

    Working moms of CFers

    I work full time but my husband is a stay-at-home Dad. He's great at making sure all the doctor's appts are tracked, doing laundry, cooking (most of the time), but he's horrible at cleaning. We have three kids under 7. Any household with young kids is busy, even without CF thrown in. I...
  13. J

    Working moms of CFers

    I work full time but my husband is a stay-at-home Dad. He's great at making sure all the doctor's appts are tracked, doing laundry, cooking (most of the time), but he's horrible at cleaning. We have three kids under 7. Any household with young kids is busy, even without CF thrown in. I...
  14. J

    Working moms of CFers

    I work full time but my husband is a stay-at-home Dad. He's great at making sure all the doctor's appts are tracked, doing laundry, cooking (most of the time), but he's horrible at cleaning. We have three kids under 7. Any household with young kids is busy, even without CF thrown in. I...
  15. J

    Working moms of CFers

    I work full time but my husband is a stay-at-home Dad. He's great at making sure all the doctor's appts are tracked, doing laundry, cooking (most of the time), but he's horrible at cleaning. <br /> <br />We have three kids under 7. Any household with young kids is busy, even without CF...
  16. J

    creon and milk

    Just thought I'd mention...the allergy test is a blood test. We get our daughter retested every year when she gets her annual CF blood workup. That way, there's no need for an extra needle stick. They just draw some extra blood for the milk allergy test.
  17. J

    creon and milk

    Just thought I'd mention...the allergy test is a blood test. We get our daughter retested every year when she gets her annual CF blood workup. That way, there's no need for an extra needle stick. They just draw some extra blood for the milk allergy test.
  18. J

    creon and milk

    Just thought I'd mention...the allergy test is a blood test. We get our daughter retested every year when she gets her annual CF blood workup. That way, there's no need for an extra needle stick. They just draw some extra blood for the milk allergy test.
  19. J

    creon and milk

    Just thought I'd mention...the allergy test is a blood test. We get our daughter retested every year when she gets her annual CF blood workup. That way, there's no need for an extra needle stick. They just draw some extra blood for the milk allergy test.
  20. J

    creon and milk

    Just thought I'd mention...the allergy test is a blood test. We get our daughter retested every year when she gets her annual CF blood workup. That way, there's no need for an extra needle stick. They just draw some extra blood for the milk allergy test.
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