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  1. G

    DDF508

    Hi Nancy, I definately feel like there is so much hope for Maggie and so many others wcf. There are many people with DDF508 that are living past the median age of survival right now and that is without a lifetime of the medications that have only been available for the past 10 years or even...
  2. G

    DDF508

    Hi Nancy, I definately feel like there is so much hope for Maggie and so many others wcf. There are many people with DDF508 that are living past the median age of survival right now and that is without a lifetime of the medications that have only been available for the past 10 years or even...
  3. G

    DDF508

    Hi Nancy, I definately feel like there is so much hope for Maggie and so many others wcf. There are many people with DDF508 that are living past the median age of survival right now and that is without a lifetime of the medications that have only been available for the past 10 years or even...
  4. G

    DDF508

    Hi Nancy, I definately feel like there is so much hope for Maggie and so many others wcf. There are many people with DDF508 that are living past the median age of survival right now and that is without a lifetime of the medications that have only been available for the past 10 years or even...
  5. G

    DDF508

    Hi Nancy, I definately feel like there is so much hope for Maggie and so many others wcf. There are many people with DDF508 that are living past the median age of survival right now and that is without a lifetime of the medications that have only been available for the past 10 years or even...
  6. G

    Pulmozyme

    My daughter (5.5 wcf) did her first nebs at 14 months. She loved sitting in her baby swing (not turned on) and watching shows, reading books, having tickeling sessions, etc while doing nebs. She sat in that swing for nebs until she was almost 2.5 years old bc she liked it so well and it made...
  7. G

    Pulmozyme

    My daughter (5.5 wcf) did her first nebs at 14 months. She loved sitting in her baby swing (not turned on) and watching shows, reading books, having tickeling sessions, etc while doing nebs. She sat in that swing for nebs until she was almost 2.5 years old bc she liked it so well and it made...
  8. G

    Pulmozyme

    My daughter (5.5 wcf) did her first nebs at 14 months. She loved sitting in her baby swing (not turned on) and watching shows, reading books, having tickeling sessions, etc while doing nebs. She sat in that swing for nebs until she was almost 2.5 years old bc she liked it so well and it made...
  9. G

    Pulmozyme

    My daughter (5.5 wcf) did her first nebs at 14 months. She loved sitting in her baby swing (not turned on) and watching shows, reading books, having tickeling sessions, etc while doing nebs. She sat in that swing for nebs until she was almost 2.5 years old bc she liked it so well and it made...
  10. G

    Pulmozyme

    My daughter (5.5 wcf) did her first nebs at 14 months. She loved sitting in her baby swing (not turned on) and watching shows, reading books, having tickeling sessions, etc while doing nebs. She sat in that swing for nebs until she was almost 2.5 years old bc she liked it so well and it made...
  11. G

    Newly Diagnosed Section

    Since there is a big difference between the "newly diagnosed" phase and the "could it be CF?" phase, maybe a seperate board would be an idea to consider?
  12. G

    Newly Diagnosed Section

    Since there is a big difference between the "newly diagnosed" phase and the "could it be CF?" phase, maybe a seperate board would be an idea to consider?
  13. G

    Newly Diagnosed Section

    Since there is a big difference between the "newly diagnosed" phase and the "could it be CF?" phase, maybe a seperate board would be an idea to consider?
  14. G

    Newly Diagnosed Section

    Since there is a big difference between the "newly diagnosed" phase and the "could it be CF?" phase, maybe a seperate board would be an idea to consider?
  15. G

    Newly Diagnosed Section

    Since there is a big difference between the "newly diagnosed" phase and the "could it be CF?" phase, maybe a seperate board would be an idea to consider?
  16. G

    Newbee may be way off but my 2 cents

    It is amazing to me that someone can live so long wcf before getting the diagnosis! I am glad you finally got the dx and hope that having the dx helps you improve quickly. I think your story must give much hope to other people with your mutations that have been diagnosed much earlier and are...
  17. G

    Newbee may be way off but my 2 cents

    It is amazing to me that someone can live so long wcf before getting the diagnosis! I am glad you finally got the dx and hope that having the dx helps you improve quickly. I think your story must give much hope to other people with your mutations that have been diagnosed much earlier and are...
  18. G

    Newbee may be way off but my 2 cents

    It is amazing to me that someone can live so long wcf before getting the diagnosis! I am glad you finally got the dx and hope that having the dx helps you improve quickly. I think your story must give much hope to other people with your mutations that have been diagnosed much earlier and are...
  19. G

    Newbee may be way off but my 2 cents

    It is amazing to me that someone can live so long wcf before getting the diagnosis! I am glad you finally got the dx and hope that having the dx helps you improve quickly. I think your story must give much hope to other people with your mutations that have been diagnosed much earlier and are...
  20. G

    Newbee may be way off but my 2 cents

    It is amazing to me that someone can live so long wcf before getting the diagnosis! I am glad you finally got the dx and hope that having the dx helps you improve quickly. I think your story must give much hope to other people with your mutations that have been diagnosed much earlier and are...
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