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  1. S

    Did he really say that?

    Thanks for all of the support. It is nice to know that there are people out there who get it. Knowing you have my back will help when I run into this guy, and others like him, in the future.
  2. S

    Did he really say that?

    Another parent saw me putting Lauren's equipment back into the van after a weekend of cub scout family camping. He asked how she was doing. I said she was doing great. (I always say that, unless she is really, really, really bad.) He then commented, "And they still make her do all that...
  3. S

    Did he really say that?

    Another parent saw me putting Lauren's equipment back into the van after a weekend of cub scout family camping. He asked how she was doing. I said she was doing great. (I always say that, unless she is really, really, really bad.) He then commented, "And they still make her do all that...
  4. S

    Did he really say that?

    Another parent saw me putting Lauren's equipment back into the van after a weekend of cub scout family camping. He asked how she was doing. I said she was doing great. (I always say that, unless she is really, really, really bad.) He then commented, "And they still make her do all that...
  5. S

    Does your child take Flovent or Symbicort?

    Lauren uses Flovent. I'm not sure if it makes any difference or not. It certainly hasn't caused any problems.
  6. S

    Does your child take Flovent or Symbicort?

    Lauren uses Flovent. I'm not sure if it makes any difference or not. It certainly hasn't caused any problems.
  7. S

    Does your child take Flovent or Symbicort?

    Lauren uses Flovent. I'm not sure if it makes any difference or not. It certainly hasn't caused any problems. <br />
  8. S

    how many treatments do you do a day?

    Here's Lauren's schedule Morning: Albuterol (Proventil) Hypertonic 7% 30 minutes of vest Flovent Evening: Albuterol (Proventil) Hypertonic 7% Pulmozyme 30 minutes of vest Flovent
  9. S

    how many treatments do you do a day?

    Here's Lauren's schedule Morning: Albuterol (Proventil) Hypertonic 7% 30 minutes of vest Flovent Evening: Albuterol (Proventil) Hypertonic 7% Pulmozyme 30 minutes of vest Flovent
  10. S

    how many treatments do you do a day?

    Here's Lauren's schedule <br /> <br /> <br />Morning: Albuterol (Proventil) <br />Hypertonic 7% <br />30 minutes of vest <br />Flovent <br /> <br />Evening: Albuterol (Proventil) <br />Hypertonic 7% <br />Pulmozyme <br />30 minutes of vest <br />Flovent
  11. S

    Pari Compressor/Nebulizer

    We've had the same problem. I think we went through three PARIs in 3 years. Now we have an INVACARE MobileAire Compressor. Wow, what a difference. It is so much more powerful than the PARI. I had to search and search to find a DME provider who would supply one for us. Apparently they are...
  12. S

    Pari Compressor/Nebulizer

    We've had the same problem. I think we went through three PARIs in 3 years. Now we have an INVACARE MobileAire Compressor. Wow, what a difference. It is so much more powerful than the PARI. I had to search and search to find a DME provider who would supply one for us. Apparently they are...
  13. S

    Pari Compressor/Nebulizer

    We've had the same problem. I think we went through three PARIs in 3 years. Now we have an INVACARE MobileAire Compressor. Wow, what a difference. It is so much more powerful than the PARI. I had to search and search to find a DME provider who would supply one for us. Apparently they are...
  14. S

    Anyone use periactin?

    Lauren has taken it and it wipes her out too, but only for the first day or two. I am not sure that it really helps her appetite, but it helps her attitude. I am guessing that a placebo would probably work just as well. ---------- Kathleen, mom to Lauren, age 9, DDF508, and her big brother - no CF
  15. S

    Anyone use periactin?

    Lauren has taken it and it wipes her out too, but only for the first day or two. I am not sure that it really helps her appetite, but it helps her attitude. I am guessing that a placebo would probably work just as well. ---------- Kathleen, mom to Lauren, age 9, DDF508, and her big brother - no CF
  16. S

    Anyone use periactin?

    Lauren has taken it and it wipes her out too, but only for the first day or two. I am not sure that it really helps her appetite, but it helps her attitude. I am guessing that a placebo would probably work just as well. <br />---------- <br />Kathleen, mom to Lauren, age 9, DDF508, and her big...
  17. S

    Nebbing saline while vesting

    DD, age 9, nebs Hypersal 7% while doing the vest. It does a better job of loosening up the junk in her lungs than the vest alone.
  18. S

    Nebbing saline while vesting

    DD, age 9, nebs Hypersal 7% while doing the vest. It does a better job of loosening up the junk in her lungs than the vest alone.
  19. S

    Nebbing saline while vesting

    DD, age 9, nebs Hypersal 7% while doing the vest. It does a better job of loosening up the junk in her lungs than the vest alone.
  20. S

    Difficulty breathing

    I'm so confused. DD, age 9, had a hard time breathing last night soon after she finished all of her breathing treatments (albuterol, hypersal 7%, pulmozyme, TOBI, flovent). She just kept taking deep breaths. Then she would run around the house with her brother instead of getting ready for...
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